Introduction

[Guest guest]

I have spent years hiding my nada's behavior from others. My nada used to take

an overdose regularly. Everytime things didn't go right she would take an

overdose. Most of the time she would just go up in the bedroom and sleep for a

couple of days. I've started opening up to others about my nada's problems.

It's hard for me to do. I've been the keeper of secrets ever since I was a

young child.

Right now we (I mean my siblings and our families and I) are

dealing with Mom's sleeping-pill overdose and subsequent fall three

weeks ago. I don't think it was a suicide attempt per se, but some

combination of her old demons, elderly confusion, and yet another

round of manipulative behavior. I've told almost no one about the

event, because people with ordinary parents and ordinary relationships

would, of course, react with great horror and concern and say " Oh, you

must be so worried...are you going out there...what are you doing for

her... " I think my response would sound so callous to them. Yes, I am

worried and upset. But also yes, this has been going on, in one shape

or another, for every day of my 47 years. Know what I mean?

[Guest guest]

I have spent years hiding my nada's behavior from others. My nada used to take

an overdose regularly. Everytime things didn't go right she would take an

overdose. Most of the time she would just go up in the bedroom and sleep for a

couple of days. I've started opening up to others about my nada's problems.

It's hard for me to do. I've been the keeper of secrets ever since I was a

young child.

Right now we (I mean my siblings and our families and I) are

dealing with Mom's sleeping-pill overdose and subsequent fall three

weeks ago. I don't think it was a suicide attempt per se, but some

combination of her old demons, elderly confusion, and yet another

round of manipulative behavior. I've told almost no one about the

event, because people with ordinary parents and ordinary relationships

would, of course, react with great horror and concern and say " Oh, you

must be so worried...are you going out there...what are you doing for

her... " I think my response would sound so callous to them. Yes, I am

worried and upset. But also yes, this has been going on, in one shape

or another, for every day of my 47 years. Know what I mean?

[Guest guest]

Hi, ,

Just wanted to welcome you to our group. I have been lurking recently on the

site, and have not been able to contribute much to the group lately. I care

for my father at home, and he always seems to be so much worse during the

colder months. It consumes so much more of my life when he is not doing so

well.

I am so sorry to hear about your mother. Does your mother exhibit the

Parkinsonian symptoms of LBD? I believe I remember someone along the way saying

that the trembling uses up so much energy in our LOs and essentially, they are

burning up more calories. Maybe someone else in the group has more information

on that.

I noticed that you are in Dallas. I am in Shreveport, so we are not too far

away from each other. I am glad you found our group. I hope you and your

family have the best Holiday you can under the circumstances.

Hugs,

Piper

[Guest guest]

Hi, ,

Just wanted to welcome you to our group. I have been lurking recently on the

site, and have not been able to contribute much to the group lately. I care

for my father at home, and he always seems to be so much worse during the

colder months. It consumes so much more of my life when he is not doing so

well.

I am so sorry to hear about your mother. Does your mother exhibit the

Parkinsonian symptoms of LBD? I believe I remember someone along the way saying

that the trembling uses up so much energy in our LOs and essentially, they are

burning up more calories. Maybe someone else in the group has more information

on that.

I noticed that you are in Dallas. I am in Shreveport, so we are not too far

away from each other. I am glad you found our group. I hope you and your

family have the best Holiday you can under the circumstances.

Hugs,

Piper

[Guest guest]

Hi Jayne..sometimes the disease is not active but the destruction of the

joints still exists and this can cause pain. Welcome and tell us how you

are..Make sure you go to the doctor and ask him tho....Liz NJ

[Guest guest]

>

>

>

> Hi Jayne..sometimes the disease is not active but the destruction

of the

> joints still exists and this can cause pain. Welcome and tell us

how you

> are..Make sure you go to the doctor and ask him tho....Liz NJ

>

>

>

>

>

[Guest guest]

Welcome

Well happy things for some they do happen. For my self after a few

years of suffering and many trips to intensive care because of stills I

got to enjoy a remission. That time is now over and it is back to stills

fun, not as bad as at first but not the wonderful time of before, I do

know this you can have a family life and fun with stills. My ex divorced

me over stills being I could not work and bring a pay check home any

more this was after 26 years and two kids with her. My son now 22 and I

have an awesome relation ship my daughter and I do not have one at all.

The ex worked her over to get her to have nothing to do with me I

believe it is called parent annihilation syndrome or PAS. sad yes but

here is the good news I am now remarried to a woman who loves me like I

never have been before she has three kids and they treat me as if I was

there father we all have fun and they all get along with my son great

also . I do not regret the divorce or stills now days as I got to slow

down smell the flowers I was to busy passing before. I have a wonderful

wife and kids that not only support me be help me when ever I need it.

and to tell the truth I would not want my life before stills back for

any thing as emotionally I am the happiest I have ever been in my life

and I thank stills for giving me it and releasing me from a very bad

woman and getting to meet and marry an awesome one named my love,

wife, bride, AND BEST FRIEND!. So see even with stills good things

happen just be ready to see and accept them

Hugs all

Marty the redneck

[Guest guest]

Welcome

Well happy things for some they do happen. For my self after a few

years of suffering and many trips to intensive care because of stills I

got to enjoy a remission. That time is now over and it is back to stills

fun, not as bad as at first but not the wonderful time of before, I do

know this you can have a family life and fun with stills. My ex divorced

me over stills being I could not work and bring a pay check home any

more this was after 26 years and two kids with her. My son now 22 and I

have an awesome relation ship my daughter and I do not have one at all.

The ex worked her over to get her to have nothing to do with me I

believe it is called parent annihilation syndrome or PAS. sad yes but

here is the good news I am now remarried to a woman who loves me like I

never have been before she has three kids and they treat me as if I was

there father we all have fun and they all get along with my son great

also . I do not regret the divorce or stills now days as I got to slow

down smell the flowers I was to busy passing before. I have a wonderful

wife and kids that not only support me be help me when ever I need it.

and to tell the truth I would not want my life before stills back for

any thing as emotionally I am the happiest I have ever been in my life

and I thank stills for giving me it and releasing me from a very bad

woman and getting to meet and marry an awesome one named my love,

wife, bride, AND BEST FRIEND!. So see even with stills good things

happen just be ready to see and accept them

Hugs all

Marty the redneck

[Guest guest]

: Dado tu nombre y Apellido, pienso que es muy posible que hables y/o

entiendas el Español.- De ser asi por favor respondeme este email para que

sigamos comunicandonos.-

Yo tuve la enfermedad del Still en el mes de febrero del año 1998.-

Espero tu respuesta si es que hablas Español.-

Un abrazo

Gracias (Thak You)

o ni

Rep.Argentina

Vargas escribió:

Hello my name is Vargas, I was diagnosed with Stills Disease

maybe about two weeks ago. I just looked it up on the Internet Monday, I was too

afraid of what I might find out. I was hospitalized for 8 days, the doctors

could not tell what I had and they also found a bacteria in my blood (it's gone

now). I am 34 10/24/72, married to a wonderful man who has been very supportive,

we have two boys 5 & 2. I have my ups and downs, it is such an unpredictable

disease, I have had my meds changed probably 4 times now. I just started new

meds today Pred 60 mg daily. I am really interested in hearing some happy

stories, or success stories all I have heard is the bad and it really scares me

because I want to get back to my family. I just came back to work Monday

3/12/2007, and I feel that is helping me from being depressed. The mornings are

the worst for me. Any feedback will help, it will help to know that I really am

not the only one dealing with this. Thank you.

Vargas

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with theYahoo! Search movie showtime shortcut.

[Guest guest]

: Dado tu nombre y Apellido, pienso que es muy posible que hables y/o

entiendas el Español.- De ser asi por favor respondeme este email para que

sigamos comunicandonos.-

Yo tuve la enfermedad del Still en el mes de febrero del año 1998.-

Espero tu respuesta si es que hablas Español.-

Un abrazo

Gracias (Thak You)

o ni

Rep.Argentina

Vargas escribió:

Hello my name is Vargas, I was diagnosed with Stills Disease

maybe about two weeks ago. I just looked it up on the Internet Monday, I was too

afraid of what I might find out. I was hospitalized for 8 days, the doctors

could not tell what I had and they also found a bacteria in my blood (it's gone

now). I am 34 10/24/72, married to a wonderful man who has been very supportive,

we have two boys 5 & 2. I have my ups and downs, it is such an unpredictable

disease, I have had my meds changed probably 4 times now. I just started new

meds today Pred 60 mg daily. I am really interested in hearing some happy

stories, or success stories all I have heard is the bad and it really scares me

because I want to get back to my family. I just came back to work Monday

3/12/2007, and I feel that is helping me from being depressed. The mornings are

the worst for me. Any feedback will help, it will help to know that I really am

not the only one dealing with this. Thank you.

Vargas

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with theYahoo! Search movie showtime shortcut.

[Guest guest]

Hello and welcome to the group.I am born same year as you were and

diagnosed in Oct 2002.After 6 months of pain,fever month and half that in

hospital.I started at 60mgs of prednisone and added methotextrate at one time as

well,I hope you see improvement.Ohh yea the good part I have been able to Wean

off all meds and currently back workin for last 2 yrs,in of all things

Concrete.Usually its not backbreaking work as I work on mostly the Fine

finishing or Flatwork.I still deal with neck pain and headaches but not severe

or any of the extra night sweats,weird extreme pain in different spot each day

ect,take care. d.Canada

Introduction

Hello my name is Vargas, I was diagnosed with Stills Disease maybe about

two weeks ago. I just looked it up on the Internet Monday, I was too afraid of

what I might find out. I was hospitalized for 8 days, the doctors could not tell

what I had and they also found a bacteria in my blood (it's gone now). I am 34

10/24/72, married to a wonderful man who has been very supportive, we have two

boys 5 & 2. I have my ups and downs, it is such an unpredictable disease, I have

had my meds changed probably 4 times now. I just started new meds today Pred 60

mg daily. I am really interested in hearing some happy stories, or success

stories all I have heard is the bad and it really scares me because I want to

get back to my family. I just came back to work Monday 3/12/2007, and I feel

that is helping me from being depressed. The mornings are the worst for me. Any

feedback will help, it will help to know that I really am not the only one

dealing with this. Thank you.

Vargas

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with theYahoo! Search movie showtime shortcut.

[Guest guest]

Hello and welcome to the group.I am born same year as you were and

diagnosed in Oct 2002.After 6 months of pain,fever month and half that in

hospital.I started at 60mgs of prednisone and added methotextrate at one time as

well,I hope you see improvement.Ohh yea the good part I have been able to Wean

off all meds and currently back workin for last 2 yrs,in of all things

Concrete.Usually its not backbreaking work as I work on mostly the Fine

finishing or Flatwork.I still deal with neck pain and headaches but not severe

or any of the extra night sweats,weird extreme pain in different spot each day

ect,take care. d.Canada

Introduction

Hello my name is Vargas, I was diagnosed with Stills Disease maybe about

two weeks ago. I just looked it up on the Internet Monday, I was too afraid of

what I might find out. I was hospitalized for 8 days, the doctors could not tell

what I had and they also found a bacteria in my blood (it's gone now). I am 34

10/24/72, married to a wonderful man who has been very supportive, we have two

boys 5 & 2. I have my ups and downs, it is such an unpredictable disease, I have

had my meds changed probably 4 times now. I just started new meds today Pred 60

mg daily. I am really interested in hearing some happy stories, or success

stories all I have heard is the bad and it really scares me because I want to

get back to my family. I just came back to work Monday 3/12/2007, and I feel

that is helping me from being depressed. The mornings are the worst for me. Any

feedback will help, it will help to know that I really am not the only one

dealing with this. Thank you.

Vargas

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with theYahoo! Search movie showtime shortcut.

[Guest guest]

Sorry you have Stills but you found the right place. My name is Kirk

& I live in NE Pa. I first dealt with Stills (or Stills first dealt with me)

in January of 2004. We have something in common, as my kids were 5 & 2 at

that time. I've had a real rough ride, but many more seem to get by it much

quicker than I am.

Best of luck! I have found that I need to keep as occupied as I can

(can't really work much) as I get real depressed if I don't as it allows me

too much time to think about what I used to be and such, so good luck going

back to work!

Nice to " meet " you, Kirk Bonanny.

>

> Hello my name is Vargas, I was diagnosed with Stills Disease maybe

> about two weeks ago. I just looked it up on the Internet Monday, I was too

> afraid of what I might find out. I was hospitalized for 8 days, the doctors

> could not tell what I had and they also found a bacteria in my blood (it's

> gone now). I am 34 10/24/72, married to a wonderful man who has been very

> supportive, we have two boys 5 & 2. I have my ups and downs, it is such an

> unpredictable disease, I have had my meds changed probably 4 times now. I

> just started new meds today Pred 60 mg daily. I am really interested in

> hearing some happy stories, or success stories all I have heard is the bad

> and it really scares me because I want to get back to my family. I just came

> back to work Monday 3/12/2007, and I feel that is helping me from being

> depressed. The mornings are the worst for me. Any feedback will help, it

> will help to know that I really am not the only one dealing with this. Thank

> you.

>

> Vargas

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with theYahoo! Search movie showtime shortcut.

>

>

[Guest guest]

Sorry you have Stills but you found the right place. My name is Kirk

& I live in NE Pa. I first dealt with Stills (or Stills first dealt with me)

in January of 2004. We have something in common, as my kids were 5 & 2 at

that time. I've had a real rough ride, but many more seem to get by it much

quicker than I am.

Best of luck! I have found that I need to keep as occupied as I can

(can't really work much) as I get real depressed if I don't as it allows me

too much time to think about what I used to be and such, so good luck going

back to work!

Nice to " meet " you, Kirk Bonanny.

>

> Hello my name is Vargas, I was diagnosed with Stills Disease maybe

> about two weeks ago. I just looked it up on the Internet Monday, I was too

> afraid of what I might find out. I was hospitalized for 8 days, the doctors

> could not tell what I had and they also found a bacteria in my blood (it's

> gone now). I am 34 10/24/72, married to a wonderful man who has been very

> supportive, we have two boys 5 & 2. I have my ups and downs, it is such an

> unpredictable disease, I have had my meds changed probably 4 times now. I

> just started new meds today Pred 60 mg daily. I am really interested in

> hearing some happy stories, or success stories all I have heard is the bad

> and it really scares me because I want to get back to my family. I just came

> back to work Monday 3/12/2007, and I feel that is helping me from being

> depressed. The mornings are the worst for me. Any feedback will help, it

> will help to know that I really am not the only one dealing with this. Thank

> you.

>

> Vargas

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with theYahoo! Search movie showtime shortcut.

>

>

[Guest guest]

Hi ,

I am a little late in the welcomes, but here you go. Welcome!

I live in SE PA and work full time and manage, with my wife, our 33

year old handicapped son. He manages himself pretty well, with

exception of full self care. <Mostly getting his meals and keeping

an

eye on his tooth brushing, bathing, shaving and getting him to his

program daily. He is developmentally disabled with mild Cerebral

Palsy

and mute. He is very proficient at Sign Language.>

I have only had to take a few days off from work. Several times for

hospital stays or flairs resulting in ER visits. Most of the ER were

prior to diagnosis and treatment. I am in IT management and my boss

has been very understanding of plethora of Doc visits. Luckily I a

able to work from home when things act up. Even when I am bad I have

been reasonably able to function at home and work. The worse times

are

when my energy level is low and I can not seem to stay awake in the

evenings. Very important to rest when you need it.

Right now I am on 20 mg pred, 8 vials of Remicaed every 6 weeks, 25mg

methotrexate, folic acid and actonel and procrit weekly. I get the

poly arthritis stuff before 4 weeks post remicade, have enlarged

spleen and anemia that would get worse without the procrit.

Anyway, sound like you husband is supportive and your 2 youngsters

should keep your mind occupied. I try to not dwell on the bad days,

as mine seem less bad than others expeience. However, I think there

are many who manage. When I have good days I enjoy them. When I

have bad days, I try not to dwell on them, but remember that there

will be good days again. Hang in there and keep your positive

spirits and thoughts.

Tom from PA

>

>

[Guest guest]

Hi ,

I am a little late in the welcomes, but here you go. Welcome!

I live in SE PA and work full time and manage, with my wife, our 33

year old handicapped son. He manages himself pretty well, with

exception of full self care. <Mostly getting his meals and keeping

an

eye on his tooth brushing, bathing, shaving and getting him to his

program daily. He is developmentally disabled with mild Cerebral

Palsy

and mute. He is very proficient at Sign Language.>

I have only had to take a few days off from work. Several times for

hospital stays or flairs resulting in ER visits. Most of the ER were

prior to diagnosis and treatment. I am in IT management and my boss

has been very understanding of plethora of Doc visits. Luckily I a

able to work from home when things act up. Even when I am bad I have

been reasonably able to function at home and work. The worse times

are

when my energy level is low and I can not seem to stay awake in the

evenings. Very important to rest when you need it.

Right now I am on 20 mg pred, 8 vials of Remicaed every 6 weeks, 25mg

methotrexate, folic acid and actonel and procrit weekly. I get the

poly arthritis stuff before 4 weeks post remicade, have enlarged

spleen and anemia that would get worse without the procrit.

Anyway, sound like you husband is supportive and your 2 youngsters

should keep your mind occupied. I try to not dwell on the bad days,

as mine seem less bad than others expeience. However, I think there

are many who manage. When I have good days I enjoy them. When I

have bad days, I try not to dwell on them, but remember that there

will be good days again. Hang in there and keep your positive

spirits and thoughts.

Tom from PA

>

>

[Guest guest]

I would highly recommend Clayton Elementary School. We live in Circle C West

and it's a great neighborhood. The school promotes many successful strategies

to help our special kids learn to function in a general ed classroom. Our son

improved greatly since joining his peers in a gen ed classroom. Even though it

is a great challenge for him, the school provides a one on one shadow and two

breaks from the classroom to complete his work in a small group setting in the

resource room. By spring the shadow was beginning to fade away during specials

(music then art and PE) as he was successfully following the teacher's

instructions. The teachers and children are very compassionate and sympathetic

to his special needs (we let everyone know Tyler has autism so they wouldn't be

confused by some of his behaviors).

Maggie

jennifer_flinton wrote:

Hi Everyone:

I just joined both this group as well as the Thoughtful House yahoo

group since our family is considering a move to Austin. We currently

live in Olympia, Washington.

Our family consists of myself, my husband, and our five-year-old ASD

son, Jimmy. Jimmy has been in a TEACCH-model preschool classroom

within our school district since he was 3 years old. He will be in

there for his fourth year next year as the program also encompasses

his Kindergarten year.

The reason we're interested in moving to Austin is this: We were

very impressed with our recent visit to Thoughtful House, and also

are impressed with the school services available through the Eanes

school district. Here in Olympia, all they have for ASD kids once

they hit 1st grade is a life skills-based program, which is

unacceptable. And just like in Texas, in Washington we don't receive

any services from the state, either - there's a waiting list

stretching back to 1999.

When and if we move, it wouldn't be until next spring, so I'm just at

the preliminary stages of gathering information at this point.

So, if any of you are in or around Austin and have any input on

services available there, I'd love to hear from you.

Thanks in advance!

-

Jimmy 10/12/2001

---------------------------------

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[Guest guest]

I would highly recommend Clayton Elementary School. We live in Circle C West

and it's a great neighborhood. The school promotes many successful strategies

to help our special kids learn to function in a general ed classroom. Our son

improved greatly since joining his peers in a gen ed classroom. Even though it

is a great challenge for him, the school provides a one on one shadow and two

breaks from the classroom to complete his work in a small group setting in the

resource room. By spring the shadow was beginning to fade away during specials

(music then art and PE) as he was successfully following the teacher's

instructions. The teachers and children are very compassionate and sympathetic

to his special needs (we let everyone know Tyler has autism so they wouldn't be

confused by some of his behaviors).

Maggie

jennifer_flinton wrote:

Hi Everyone:

I just joined both this group as well as the Thoughtful House yahoo

group since our family is considering a move to Austin. We currently

live in Olympia, Washington.

Our family consists of myself, my husband, and our five-year-old ASD

son, Jimmy. Jimmy has been in a TEACCH-model preschool classroom

within our school district since he was 3 years old. He will be in

there for his fourth year next year as the program also encompasses

his Kindergarten year.

The reason we're interested in moving to Austin is this: We were

very impressed with our recent visit to Thoughtful House, and also

are impressed with the school services available through the Eanes

school district. Here in Olympia, all they have for ASD kids once

they hit 1st grade is a life skills-based program, which is

unacceptable. And just like in Texas, in Washington we don't receive

any services from the state, either - there's a waiting list

stretching back to 1999.

When and if we move, it wouldn't be until next spring, so I'm just at

the preliminary stages of gathering information at this point.

So, if any of you are in or around Austin and have any input on

services available there, I'd love to hear from you.

Thanks in advance!

-

Jimmy 10/12/2001

---------------------------------

Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV.

[Guest guest]

Thank you so much, Maggie, that is very helpful advice. You are the

second person who has recommended Clayton Elementary to me. How does

that work - do you have to live in the catchment area for Clayton to

get assigned to it, or can you just live anywhere in that school

district? Also, my son is totally overwhelmed by large classrooms

and large groups of kids, to the point of distraction. I've never

thought he would truly get anything out of being " mainstreamed, " even

with an aide, because of the sheer number of kids in the classroom.

Maybe someday but certainly not now. How does the Circle C school

district (I don't know what it's called) deal with children like

that? Do they have a self-contained autism classroom for those who

are not high enough functioning to be mainstreamed?

Thanks again!

-

> Hi Everyone:

>

> I just joined both this group as well as the Thoughtful House yahoo

> group since our family is considering a move to Austin. We

currently

> live in Olympia, Washington.

>

> Our family consists of myself, my husband, and our five-year-old

ASD

> son, Jimmy. Jimmy has been in a TEACCH-model preschool classroom

> within our school district since he was 3 years old. He will be in

> there for his fourth year next year as the program also encompasses

> his Kindergarten year.

>

> The reason we're interested in moving to Austin is this: We were

> very impressed with our recent visit to Thoughtful House, and also

> are impressed with the school services available through the Eanes

> school district. Here in Olympia, all they have for ASD kids once

> they hit 1st grade is a life skills-based program, which is

> unacceptable. And just like in Texas, in Washington we don't

receive

> any services from the state, either - there's a waiting list

> stretching back to 1999.

>

> When and if we move, it wouldn't be until next spring, so I'm just

at

> the preliminary stages of gathering information at this point.

>

> So, if any of you are in or around Austin and have any input on

> services available there, I'd love to hear from you.

>

> Thanks in advance!

>

> -

>

> Jimmy 10/12/2001

>

>

>

>

>

>

> ---------------------------------

> Ready for the edge of your seat? Check out tonight's top picks on

Yahoo! TV.

>

>

[Guest guest]

Can someone please address what Clayton Elementary does for HFA kids? How do

they approach that as being part of AISD?

Thank you

Re: Introduction

I would highly recommend Clayton Elementary School. We live in Circle C West

and it's a great neighborhood. The school promotes many successful strategies to

help our special kids learn to function in a general ed classroom. Our son

improved greatly since joining his peers in a gen ed classroom. Even though it

is a great challenge for him, the school provides a one on one shadow and two

breaks from the classroom to complete his work in a small group setting in the

resource room. By spring the shadow was beginning to fade away during specials

(music then art and PE) as he was successfully following the teacher's

instructions. The teachers and children are very compassionate and sympathetic

to his special needs (we let everyone know Tyler has autism so they wouldn't be

confused by some of his behaviors).

Maggie

jennifer_flinton wrote:

Hi Everyone:

I just joined both this group as well as the Thoughtful House yahoo

group since our family is considering a move to Austin. We currently

live in Olympia, Washington.

Our family consists of myself, my husband, and our five-year-old ASD

son, Jimmy. Jimmy has been in a TEACCH-model preschool classroom

within our school district since he was 3 years old. He will be in

there for his fourth year next year as the program also encompasses

his Kindergarten year.

The reason we're interested in moving to Austin is this: We were

very impressed with our recent visit to Thoughtful House, and also

are impressed with the school services available through the Eanes

school district. Here in Olympia, all they have for ASD kids once

they hit 1st grade is a life skills-based program, which is

unacceptable. And just like in Texas, in Washington we don't receive

any services from the state, either - there's a waiting list

stretching back to 1999.

When and if we move, it wouldn't be until next spring, so I'm just at

the preliminary stages of gathering information at this point.

So, if any of you are in or around Austin and have any input on

services available there, I'd love to hear from you.

Thanks in advance!

-

Jimmy 10/12/2001

---------------------------------

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[Guest guest]

Can someone please address what Clayton Elementary does for HFA kids? How do

they approach that as being part of AISD?

Thank you

Re: Introduction

I would highly recommend Clayton Elementary School. We live in Circle C West

and it's a great neighborhood. The school promotes many successful strategies to

help our special kids learn to function in a general ed classroom. Our son

improved greatly since joining his peers in a gen ed classroom. Even though it

is a great challenge for him, the school provides a one on one shadow and two

breaks from the classroom to complete his work in a small group setting in the

resource room. By spring the shadow was beginning to fade away during specials

(music then art and PE) as he was successfully following the teacher's

instructions. The teachers and children are very compassionate and sympathetic

to his special needs (we let everyone know Tyler has autism so they wouldn't be

confused by some of his behaviors).

Maggie

jennifer_flinton wrote:

Hi Everyone:

I just joined both this group as well as the Thoughtful House yahoo

group since our family is considering a move to Austin. We currently

live in Olympia, Washington.

Our family consists of myself, my husband, and our five-year-old ASD

son, Jimmy. Jimmy has been in a TEACCH-model preschool classroom

within our school district since he was 3 years old. He will be in

there for his fourth year next year as the program also encompasses

his Kindergarten year.

The reason we're interested in moving to Austin is this: We were

very impressed with our recent visit to Thoughtful House, and also

are impressed with the school services available through the Eanes

school district. Here in Olympia, all they have for ASD kids once

they hit 1st grade is a life skills-based program, which is

unacceptable. And just like in Texas, in Washington we don't receive

any services from the state, either - there's a waiting list

stretching back to 1999.

When and if we move, it wouldn't be until next spring, so I'm just at

the preliminary stages of gathering information at this point.

So, if any of you are in or around Austin and have any input on

services available there, I'd love to hear from you.

Thanks in advance!

-

Jimmy 10/12/2001

---------------------------------

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[Guest guest]

Sorry. I intended that I was struck.

Fabrizio

> >

> >

> >

> >

> >

> >

> > Hello everybody,

> > I write to introduce myself to the list. I appreciate a lot the

work

> > that everybody is doing, and I hope to contribute in the future.

> >

> > It's less than 1 year that I have been exposed to the work of

Rife,

> > and also other people who enriched my knowledge of how " waves "

work.

> > They folgorated me, literally.

> >

> > I'll have soon my first plasma machine, and start testing. It

will

> > require time, but I have in mind some algorithms for

controlling the

> > device from a computer, computerized scanning, resonance

tracing (I'm

> > a software developer), etc.

> >

> > I don't anticipate nothing now, and I won't be very active in

the very

> > near future. But I will try to be very active in the

development in

> > the next future.

> >

> > Thanks,

> > Fabrizio

> >

> >

>

>

> --

> Dr. Jutkowitz www.ADVBIOSTRUCTURALCORR.com

> Advanced BioStructural Correction™

> 618 Stratfield Rd, Fairfield, CT 06825

>

> Have an opinion about ABC™ or something else but have not

investigated

> to get all the data? I enjoy this statement from JFK:

>

> " Too often we. . . enjoy the comfort of opinion without the

discomfort

> of thought. "

>

[Guest guest]

Sorry. I intended that I was struck.

Fabrizio

> >

> >

> >

> >

> >

> >

> > Hello everybody,

> > I write to introduce myself to the list. I appreciate a lot the

work

> > that everybody is doing, and I hope to contribute in the future.

> >

> > It's less than 1 year that I have been exposed to the work of

Rife,

> > and also other people who enriched my knowledge of how " waves "

work.

> > They folgorated me, literally.

> >

> > I'll have soon my first plasma machine, and start testing. It

will

> > require time, but I have in mind some algorithms for

controlling the

> > device from a computer, computerized scanning, resonance

tracing (I'm

> > a software developer), etc.

> >

> > I don't anticipate nothing now, and I won't be very active in

the very

> > near future. But I will try to be very active in the

development in

> > the next future.

> >

> > Thanks,

> > Fabrizio

> >

> >

>

>

> --

> Dr. Jutkowitz www.ADVBIOSTRUCTURALCORR.com

> Advanced BioStructural Correction™

> 618 Stratfield Rd, Fairfield, CT 06825

>

> Have an opinion about ABC™ or something else but have not

investigated

> to get all the data? I enjoy this statement from JFK:

>

> " Too often we. . . enjoy the comfort of opinion without the

discomfort

> of thought. "

>

[Guest guest]

Nina,

If you mother has had RSD for some time, she probably has allodynia

( pain from sensations that should not be painful) . Most likely the

application of any type of frequency device will be irritating,

uncomfortable, or outright painful.

I've recently written a protocol for the treatment of RSD that

utilizes Medical as well as Alternative therapies. It has been

effective. You can write me off list if you would like a copy of this.

Jim Bare

jbare@...

>My question to all of you is I am my mothers caregiver, and she suffers

>from RSD (Reflex Sympathetic Dystrophy-neurological). There has been

>very little success with her pain using the Global Wellness Machine.

[Guest guest]

yep i am gearing up for a torrid time really soon.....hannah will be 14 in

october, puberty has hit big,

so i know its just round the corner....her sister only started at 15.....so

maybe it might hold till then, but i don't know. Would not being on a good diet

have anything to do with it all? her diet is atrocious...

Cheryl S [chez]

To: Autism_in_Girls@...: D22@...: Mon, 12 May 2008

13:10:18 -0400Subject: Re: Introduction

Hi Jen!My daughter Allie is 12, almost 13. I can tell Allie is in the early

stages of puberty. As Bette once said in All About Eve, " Fasten your seat

belts ... " LOLWelcome to the group, it's good to have you with us!SandiHouston,

TXIn a message dated 5/11/2008 12:20:31 P.M. Central Daylight Time, jen@...

writes:Hi there- I've just joined this group, and from browsing through past

messages it looks like giving an introduction is a good idea.I have 12 year old

triplets who are all diagnosed autistic- 2 girls and one boy. We were lucky

enough that since they were born prematurely we were in contact with

developmental specialists since they were born, so we found out early and were

able to get them into " intervention " at 20 months of age. We cover the entire

spectrum in our house, and we've had a lot of experience with different

therapies/theories etc. One of my daughters is fully integrated in grade 7 at

the moment, and few people know that she is on the spectrum although as we near

puberty we are now finding out that her autism manifests itself in weird and

wonderful ways. I have another daughter in a self-contained special ed class who

is doing incredibly well and is a joy to be around, a my son is living in a

group home near us because of his extreme aggression and self-injury which means

that he needs more than one-on-one care, but I am still fully integrated in his

care and life and we see him as often as we can. All of my children are

absolutely wonderful (of course), and except for the difficulties that they face

I wouldn't change anything about them. I've had lots of experience with advocacy

and changing laws etc., and did support work for multiple birth families with

special needs for a number of years before I burned out on it :-)My kids are

amazing (as I know everyone else's are). I'm thrilled to find this group as

there seem to be so few people with daughters with autism who want to talk about

it, and I want to help them navigate their lives as best as I can. We're right

into pre-puberty now, so I find it especially helpful to talk to other families

with autistic daughters. We're also starting to set up adult programs and living

situations for 2 of my kids, so it's always good to talk to other people and see

what's out there. I live in Ontario, I was a single mom for a very long time

which was relatively challenging, but I'm getting married again as soon as my

husband's immigration to Canada is complete within a month or two. It sure is

easier helping the kids when there are 2 people around, aside from the benefits

of just having a partner :-) I tend to fall into the " neurodiversity " camp as I

don't think that my kids need to be " cured " of anything- I want to do everything

that I can do make my kids' lives as fulfilling and happy as possible, and I've

been lucky to have " met " enough autistic adults to know that that is possible.

My kids might be different, but they're definitely not " bad " , or

" disappointing " differentrecognize that we've been doing this long enough to

realize that not everyone feels the same way :-) And I do get bitchy and

frustrated just the same as everyone else lolMy girls both have lung problems as

well, and one had cancer (she's fine now), so I've got a pile of info on taking

special needs kids to the hospital if you ever need it.Right now we're mainly

dealing with puberty issues for the girls. One daughter doesn't want to get her

period as that means that she's going to grow up and eventually die, and the

other daughter is extremely socially awkward in some ways and feels that she's

years behind her peers. It's great to find a group that has discussion about the

issues that female autistics face, as I'm feeling kind of at a loss at the

moment. There is so little information on sex ed and puberty as it relates to

autistic females out there, so I'm hoping that people can either give me some

advice or at least sympathize. Happy Mother's Day everyone, and thanks for

letting me join your group :-)Jen**************Wondering what's for Dinner

Tonight? Get new twists on family favorites at AOL Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)[Non-text portions

of this message have been removed]

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