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Hi. I just signed up for this group and I hope to get some good information

and maybae not feel so alone. I have three kids all of which are in the autism

spectrum. My youngest, nna, who is 9 has the most issues. She has been

diagnosed with several things over the years including Rett, Autism, Cerebral

Palsy, and possibly Bipolar. So I really don't know what is really wrong with

her. I'm hoping someone has a daughter sort of like mine. nna has severe

mood swings, she rocks relentlessly, head bangs, bites, has speech but is

somewhat hard to understand, has an IQ of 65, spits, has no social skills,

doesn't

tolerate any change, transitions are extremely hard for her, she acts like she

doesn't hear me or when she does she thinks I said something else and gets mad

when it's different. she can't separate fantasy from reality (she thinks

cartoons are real and hates me because I won't get her stitch) She has seizures,

she drools, she doesn't play with toys and she watches the same movie over and

over. Her walking is clumsy and her ankles prolapse. She can only use her

hands to write for a little bit, then she can't hold the pencil anymore. She is

potty trained during the day (with some accidents) but not at night. She doesn't

sleep all night even with Melatonin, she has severe tantrums, which include

screaming, yelling, swearing and just not making any sense. She is small for

her age, has had the Fundoplication done and has night feedings. She has had a

Roux-En-Y done with a permanent J tube placed directly into her intestines

because her stomach can't tolerate the feeds any more. She has Reflux and has

the

VNS for seizure control. She is also a big time wanderer. I had to change the

locks on the doors because she kept getting up in the middle of the night and

wandering outside. She can't tolerate loud noises or bright lights, going

downtown causes severe meltdowns. At school she sits by herself in the cafeteria

because she doesn't want to be around anyone. She loves cartoons and crazy

frog, she has speech and PT at school and is in a behavioral class. she is

definitely a handful.

Thanks for listening,

Pam

Mom to Jake, 16 Asperger, severe Dyslexia, anxiety and Bipolar

ph, 15 Severe processing disorder, Bipolar, ADHD, ODD, OCD,

and Autistic tendencies

nna, 9 my little undiagnosed one

_pjrd67@..._ (mailto:pjrd67@...)

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