Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 , Would you please describe more about your sons autism? I am always interested and curious to see what has gone on in other children. In what ways did he keep regressing at 2.75, 3.75 & 4.75? Thanks- --- Rob or Sunseri <RobRose@...> wrote: > My son slowed down in development shortly after his > first birthday, then regressed at age 2.75, again at > age 3.75, again at 4.75. He is unvaccinated. > > - > > > > --------------------------------- > How low will we go? Check out Messenger’s low > PC-to-Phone call rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 At 2.75 he went from developmentally delayed to clearly autistic. He lost his 107 word vocabulary, lost eye contact, stared off in space and no longer wanted to play with the family. He began to regain skills at 3.25 and was speaking in short sentances and making social milestones such as not giving up a toy/instead saying " mine!. " At 3.75, he again became completely non-verbal. Through therapy, he regained speech, but it was not spontaneous speech. At 4.75, his well pronounced words became garbled, but he did not seem to notice. The word drink was now " keta " and he spoke it as if we were supposed to just know keta was now drink (and batita was bye-bye, patita was now puzzle, etc). - Curtis and Hackler <thehacks@...> wrote: , Would you please describe more about your sons autism? I am always interested and curious to see what has gone on in other children. In what ways did he keep regressing at 2.75, 3.75 & 4.75? Thanks- --- Rob or Sunseri <RobRose@...> wrote: > My son slowed down in development shortly after his > first birthday, then regressed at age 2.75, again at > age 3.75, again at 4.75. He is unvaccinated. > > - > > > > --------------------------------- > How low will we go? Check out Messenger’s low > PC-to-Phone call rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 : Has your son ever been evaluated for Landau Kleffner or its variants, does he have epileptic activity? Just curious, this description is similar to LKS from what I have learned. .. Re: regressions At 2.75 he went from developmentally delayed to clearly autistic. He lost his 107 word vocabulary, lost eye contact, stared off in space and no longer wanted to play with the family. He began to regain skills at 3.25 and was speaking in short sentances and making social milestones such as not giving up a toy/instead saying " mine!. " At 3.75, he again became completely non-verbal. Through therapy, he regained speech, but it was not spontaneous speech. At 4.75, his well pronounced words became garbled, but he did not seem to notice. The word drink was now " keta " and he spoke it as if we were supposed to just know keta was now drink (and batita was bye-bye, patita was now puzzle, etc). - Curtis and Hackler <thehacks@...> wrote: , Would you please describe more about your sons autism? I am always interested and curious to see what has gone on in other children. In what ways did he keep regressing at 2.75, 3.75 & 4.75? Thanks- --- Rob or Sunseri <RobRose@...> wrote: > My son slowed down in development shortly after his > first birthday, then regressed at age 2.75, again at > age 3.75, again at 4.75. He is unvaccinated. > > - > > > > --------------------------------- > How low will we go? Check out Messenger’s low > PC-to-Phone call rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 His EEG was pretty normal. We are repeating one this summer. We were steered more in the direction of looking into a metabolic disorder to explain his regressions, but a specialist ruled out any in-born errors. I keep questioning, so maybe a new term will eventually be used to describe him. Doctors are put off by his good eye-contact and the fact that he is cuddly and tries to be social -- just not appropriately so (too huggy). Besides speech, his biggest issue is fear. He has very high anxiety. - " K. Fischer " <elfischer@...> wrote: : Has your son ever been evaluated for Landau Kleffner or its variants, does he have epileptic activity? Just curious, this description is similar to LKS from what I have learned. .. Re: regressions At 2.75 he went from developmentally delayed to clearly autistic. He lost his 107 word vocabulary, lost eye contact, stared off in space and no longer wanted to play with the family. He began to regain skills at 3.25 and was speaking in short sentances and making social milestones such as not giving up a toy/instead saying " mine!. " At 3.75, he again became completely non-verbal. Through therapy, he regained speech, but it was not spontaneous speech. At 4.75, his well pronounced words became garbled, but he did not seem to notice. The word drink was now " keta " and he spoke it as if we were supposed to just know keta was now drink (and batita was bye-bye, patita was now puzzle, etc). - Curtis and Hackler <thehacks@...> wrote: , Would you please describe more about your sons autism? I am always interested and curious to see what has gone on in other children. In what ways did he keep regressing at 2.75, 3.75 & 4.75? Thanks- --- Rob or Sunseri <RobRose@...> wrote: > My son slowed down in development shortly after his > first birthday, then regressed at age 2.75, again at > age 3.75, again at 4.75. He is unvaccinated. > > - > > > > --------------------------------- > How low will we go? Check out Messenger’s low > PC-to-Phone call rates. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 , When I read that your child has fears, I just had to jump in to tell you that until my daughter got on the nids program, she also had fears. In fact the first time we went to see Dr. G 3 yrs ago, we DROVE from Indianapolis to LA because after 911 she would not fly. She was also horrified of dogs after being nipped by one. Last summer we flew with no fear, and she now has a 85 pound dog that she trained with us....all fears are gone!! In fact the picture of her holding her dog is on the board in Dr. G's office. Thank God we found him. Joni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 Hi Janice, Thanks so much for this information. I think for me, I just get scared - period!! I got scared that he was regressing and losing everything. It uts my mind at ease knowing that my situation is not unique. Truly, each time he gets sick with a cold or anything else, his speech suffers - he regresses. I guess I was just seeing compromised speech alongside his bowel issues -- constipation/then diarrhea from the vit. c. He is better today, but still has diarrhea.....his speech is better -- not the way it was before, but better. I really appreciate the help and information that I receive here -- NO ONE else understands or gets it AT ALL. My son was assessed (speech) this morning for the school district's transition, and the SLP just looked at me as if I was crazy when I suggested that he was going through a regression due to tummy issues. And she's certainly not the only one.....my husband, the ped., the chiropractor -- this information is just not " out there " yet. I'm glad I'm able to find it SOMEWHERE!! I'll look into those supplements. I may email back with a few ????? re: them. Thanks THanks Thanks ** I just needed to know that others have experienced this as well!! @...: jscott@...: Thu, 14 Feb 2008 10:28:21 -0800Subject: RE: [ ] Regressions Hi ,Yes, I think that this is the way with dyspraxia... Surges and regressions define my life. Is it a good speech day or a bad speech day? Mark usually asks the question in the morning on our way to school. We do our exercises on the bad days but really, they don't help much. Usually on the bad days, he needs a lot of water to drink (keeps the excess saliva at bay) and I remove all gluten products along with his usual dairy removal. As a matter of 'his' viewpoint, Mark says that a lot of the time when his speech gets really 'slushy' sounding, it means that he is thirsty. Quite often, water will help his speech.But for the real regressions, I try to keep it simple.... he eats nuts, fruits, meat, veggies with no carbohydrates.... for a couple of days and usually the regression will cease. I find that keeping the diet as 'clean' as possible seems to reduce the bad days. Because our children tend to have compromised immune systems, when they are ill, it is reflected in their abilities. It is a constant complaint of mine. I may get a cold and feel dragged down but Mark gets a cold and loses physical milestones! This has been happening less and less since we got him on the right supplements for his body. I would bet that your boy is low in COQ10 or some other immune vitamin. This has really improved since we started doing L-Carnitine, COQ10 and Taurine along with the oils.I don't like the idea that you were feeling scared. This means that he is regressing way too much beyond simple articulation issues. Perhaps slow down on what you add and simplify. Remember when you begin to start supplements, only add one at a time. " Go Low and Slow " is the supplement motto. Over time ramp up dosages as your child develops a tolerance. If you have a negative reaction, then reduce the dosage, try a different brand name (look for the ingredience in your brands as some kids are really sensitive to things like soy fillers) or just drop the supplement and look to another source for the nutrient. I try not to add more than one new supplement a week so that I can really see how my son is tolerating the new vitamin.How is your boy this morning? Try cutting back the vitamin C and Pom juice to maintenance levels and see if his bowels normalize.Just some ideas for you....JaniceMother of Mark, 13 [ ] RegressionsMy son has been doing very well, and responding well to fish oils and diet. Recently, though, we've been experiencing some (what looks like) regressions. We've had constipation along with it. I've addressed the constipation by paying closer attention to diet and vitamin c.....POM juice.....acidopholius. I'm thinking that the bowel issues are linked to the regressions that I see. My son is still doing ok, but there's certainly more searching and difficulty speaking. He's also not putting as many words together. I'm getting scared. I'd added cod liver oil to the fish oil regime a few weeks ago, and I've not added vitamin e, yet. Could the additional fish oil be doing this. Initially, I saw a surge in his verbal skills. He's also calmed down ALOT. He's definitely more focused, playing independently, etc.....Does anyone have any suggestions?Thanks________________________________________________________\ __Connect and share in new ways with Windows Live.http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008\ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 , I hope you dont mind me chiming in, but do you possibly think it could be sugar intolerance. POM has quite a bit of sugar. The reason I say this is because if you look at my son's labs he is literally in childhood burnout due to sugar. His metabolism is off. He simply cannot tolerate sugar and it comes in a packed punch with juice. We can give him little to no juice according to Dr, Nutritionist and DAN! He is not diabetic. Just a thought. Thanks, Colleen Mother of Charlie 32 months [ ] Regressions My son has been doing very well, and responding well to fish oils and diet. Recently, though, we've been experiencing some (what looks like) regressions. We've had constipation along with it. I've addressed the constipation by paying closer attention to diet and vitamin c.....POM juice.....acidopholius. I'm thinking that the bowel issues are linked to the regressions that I see. My son is still doing ok, but there's certainly more searching and difficulty speaking. He's also not putting as many words together. I'm getting scared. I'd added cod liver oil to the fish oil regime a few weeks ago, and I've not added vitamin e, yet. Could the additional fish oil be doing this. Initially, I saw a surge in his verbal skills. He's also calmed down ALOT. He's definitely more focused, playing independently, etc.....Does anyone have any suggestions?Thanks____________________________________________________ ______Connect and share in new ways with Windows Live.http:// <Live.http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_0 12008> www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008[Non-tex t portions of this message have been removed] __________________________________________________________ Climb to the top of the charts! Play the word scramble challenge with star power. http://club. <http://club.live.com/star_shuffle.aspx?icid=starshuffle_wlmailtextlink_jan> live.com/star_shuffle.aspx?icid=starshuffle_wlmailtextlink_jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 Maybe, I didn't give him much POM juice, I gave him vit c, which the doctor said was fine. It's just that each time my son gets sick, whether it's a cold or anything else, his speech suffers. I got particularly concerned because my son was losing articulation due to constipation then the diarhea (due to vit c). I'm trying, but we've been battling intermittent constipation. I guess since he wasn't battling a cold, I became more concerned than usual. It's just tough sometimes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 > > A while back I posted a list of triggers for regressions that we have seen. Regressions with otherwise benign viruses and colds are real in many of these children. Fortunately they are reversible. We see it with every mild illness. If the regression lasts for more than 2 weeks I start looking for other causes. Old fish oil has been the culprit many times. We hit the 2 week mark and I thow away the pills (or liquid) and open a fresh bottle. Heated bottles (ie shipped in the summer), or liquid not refrigerated will get oxidized and go rancid. They don't always " smell " bad, either. Our kids are just very sensitive. Exposures to things he is allergic to also triggers regressions. Last september was a big one and I posted asking others about regressions. This one took a long time to turn around...too long - that I at one point was also worried about losing all the gains after we came so far. Turns out I bought a new breadmaker and had started baking fresh bread. Now we know ph is severely allergic to yeast (as well as gluten and milk). The yeast in the bread was triggering his regression. The aspergillus (fungus) source of lipast triggered the worst regression I ever say in speach and coordination. Ultimately he developed hives and an asthma flare - which clued me into the allergy component. When milk products are accidentally given...we get 2-3 weeks of diarrhea, eczema, and regression in speach and coordination. The inflammatory triggers are clearly there...at least for my son, and I believe others like him. > Hi Janice, > > Thanks so much for this information. > > I think for me, I just get scared - period!! I got scared that he was regressing and losing everything. It uts my mind at ease knowing that my situation is not unique. Truly, each time he gets sick with a cold or anything else, his speech suffers - he regresses. I guess I was just seeing compromised speech alongside his bowel issues -- constipation/then diarrhea from the vit. c. He is better today, but still has diarrhea.....his speech is better -- not the way it was before, but better. I really appreciate the help and information that I receive here -- NO ONE else understands or gets it AT ALL. My son was assessed (speech) this morning for the school district's transition, and the SLP just looked at me as if I was crazy when I suggested that he was going through a regression due to tummy issues. And she's certainly not the only one.....my husband, the ped., the chiropractor -- this information is just not " out there " yet. I'm glad I'm able to find it SOMEWHERE!! > > I'll look into those supplements. I may email back with a few ????? re: them. > > Thanks THanks Thanks > > > > ** I just needed to know that others have experienced this as well!! > > > @...: jscott@...: Thu, 14 Feb 2008 10:28:21 - 0800Subject: RE: [ ] Regressions > > > > > Hi ,Yes, I think that this is the way with dyspraxia... Surges and regressions define my life. Is it a good speech day or a bad speech day? Mark usually asks the question in the morning on our way to school. We do our exercises on the bad days but really, they don't help much. Usually on the bad days, he needs a lot of water to drink (keeps the excess saliva at bay) and I remove all gluten products along with his usual dairy removal. As a matter of 'his' viewpoint, Mark says that a lot of the time when his speech gets really 'slushy' sounding, it means that he is thirsty. Quite often, water will help his speech.But for the real regressions, I try to keep it simple.... he eats nuts, fruits, meat, veggies with no carbohydrates.... for a couple of days and usually the regression will cease. I find that keeping the diet as 'clean' as possible seems to reduce the bad days. Because our children tend to have compromised immune systems, when they are ill, it is reflected in their abilities. It is a constant complaint of mine. I may get a cold and feel dragged down but Mark gets a cold and loses physical milestones! This has been happening less and less since we got him on the right supplements for his body. I would bet that your boy is low in COQ10 or some other immune vitamin. This has really improved since we started doing L-Carnitine, COQ10 and Taurine along with the oils.I don't like the idea that you were feeling scared. This means that he is regressing way too much beyond simple articulation issues. Perhaps slow down on what you add and simplify. Remember when you begin to start supplements, only add one at a time. " Go Low and Slow " is the supplement motto. Over time ramp up dosages as your child develops a tolerance. If you have a negative reaction, then reduce the dosage, try a different brand name (look for the ingredience in your brands as some kids are really sensitive to things like soy fillers) or just drop the supplement and look to another source for the nutrient. I try not to add more than one new supplement a week so that I can really see how my son is tolerating the new vitamin.How is your boy this morning? Try cutting back the vitamin C and Pom juice to maintenance levels and see if his bowels normalize.Just some ideas for you....JaniceMother of Mark, 13 [ ] RegressionsMy son has been doing very well, and responding well to fish oils and diet. Recently, though, we've been experiencing some (what looks like) regressions. We've had constipation along with it. I've addressed the constipation by paying closer attention to diet and vitamin c.....POM juice.....acidopholius. I'm thinking that the bowel issues are linked to the regressions that I see. My son is still doing ok, but there's certainly more searching and difficulty speaking. He's also not putting as many words together. I'm getting scared. I'd added cod liver oil to the fish oil regime a few weeks ago, and I've not added vitamin e, yet. Could the additional fish oil be doing this. Initially, I saw a surge in his verbal skills. He's also calmed down ALOT. He's definitely more focused, playing independently, etc.....Does anyone have any suggestions? Thanks__________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 I am so glad we addressed this, my son, has been doing so well but his cold over the last 2 weeks has caused me to pull him off the suppliment and I have been giving him large doses of vitamin c, but he has been hyper as heck and sluring, I eased up when the teacher asked what was he on. I am slowing putting him back on the suppliment but I did see a regression with this cold and flu season. I freak cause his IEP was comming up and I thought they would use all of this against him. > > Hi , > > Yes, I think that this is the way with dyspraxia... Surges and regressions define my life. Is it a good speech day or a bad speech day? Mark usually asks the question in the morning on our way to school. We do our exercises on the bad days but really, they don't help much. Usually on the bad days, he needs a lot of water to drink (keeps the excess saliva at bay) and I remove all gluten products along with his usual dairy removal. As a matter of 'his' viewpoint, Mark says that a lot of the time when his speech gets really 'slushy' sounding, it means that he is thirsty. Quite often, water will help his speech. > > But for the real regressions, I try to keep it simple.... he eats nuts, fruits, meat, veggies with no carbohydrates.... for a couple of days and usually the regression will cease. I find that keeping the diet as 'clean' as possible seems to reduce the bad days. > > Because our children tend to have compromised immune systems, when they are ill, it is reflected in their abilities. It is a constant complaint of mine. I may get a cold and feel dragged down but Mark gets a cold and loses physical milestones! This has been happening less and less since we got him on the right supplements for his body. I would bet that your boy is low in COQ10 or some other immune vitamin. This has really improved since we started doing L- Carnitine, COQ10 and Taurine along with the oils. > > I don't like the idea that you were feeling scared. This means that he is regressing way too much beyond simple articulation issues. Perhaps slow down on what you add and simplify. Remember when you begin to start supplements, only add one at a time. " Go Low and Slow " is the supplement motto. Over time ramp up dosages as your child develops a tolerance. If you have a negative reaction, then reduce the dosage, try a different brand name (look for the ingredience in your brands as some kids are really sensitive to things like soy fillers) or just drop the supplement and look to another source for the nutrient. > > I try not to add more than one new supplement a week so that I can really see how my son is tolerating the new vitamin. > > How is your boy this morning? Try cutting back the vitamin C and Pom juice to maintenance levels and see if his bowels normalize. > > Just some ideas for you.... > > Janice > Mother of Mark, 13 > > > [ ] Regressions > > My son has been doing very well, and responding well to fish oils and diet. Recently, though, we've been experiencing some (what looks like) regressions. We've had constipation along with it. I've addressed the constipation by paying closer attention to diet and vitamin c.....POM juice.....acidopholius. I'm thinking that the bowel issues are linked to the regressions that I see. My son is still doing ok, but there's certainly more searching and difficulty speaking. He's also not putting as many words together. I'm getting scared. I'd added cod liver oil to the fish oil regime a few weeks ago, and I've not added vitamin e, yet. Could the additional fish oil be doing this. Initially, I saw a surge in his verbal skills. He's also calmed down ALOT. He's definitely more focused, playing independently, etc.....Does anyone have any suggestions? Thanks_________________________________________________________ _Connect and share in new ways with Windows Live.http://www.windowslive.com/share.html? ocid=TXT_TAGHM_Wave2_sharelife_012008[Non-text portions of this message have been removed] > > __________________________________________________________ > Climb to the top of the charts! Play the word scramble challenge with star power. > http://club.live.com/star_shuffle.aspx? icid=starshuffle_wlmailtextlink_jan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 I remember just before I started my son on E reading here that E and C shouldn't be given together because it negates the E or something? Could the vitamin C you are giving be lessening the effects of the E that is in the fish oil capsules? I have no idea if this is an option, but I know with my son when I stopped the C he seemed to make even more progress. I had just started the E supplement so maybe it was because the E effect finally kicked in, but I did notice a big difference. Miche Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 I had not heard this. So are multos worthless from an E standpoint? > > I remember just before I started my son on E reading here that E and C > shouldn't be given together because it negates the E or something? Could > the vitamin C you are giving be lessening the effects of the E that is in > the fish oil capsules? I have no idea if this is an option, but I know with > my son when I stopped the C he seemed to make even more progress. I had > just started the E supplement so maybe it was because the E effect finally > kicked in, but I did notice a big difference. > > Miche > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 We have something wierd going on here that may be mirrorimage relevant, the only reason I am posting at this point. We have had diarrhea lately and nothing in paticular unless you count daily dha, was different. That just seemed to assiciate with diarrhea but then it stopped yesterday. During the diarrhea though we had speech gains. When it stopped we lost none of the gains but it was only one day. Yesterday two things were different: He was given a gummy vite type of 369 and I gave him an egg cooked in goats butter. Severe diarrhea ensued and he was uncomfortable before that, which we had not seen before. It scared me. I then bathed him and was cleaning only to find him downstairs fresh as a daisy eating away. The only other thing I did this week was make a bread with new flours, one of which is millet. I do see in both of my kids difficulty in processing B vitamins. I avoided the supplements fearing the yeast issue but they have to get some B so I tried this as they cannot tolerate Childrens Essence 1/4 dose, Supernuthera 1/4 dose, etc. Well, today we saw the biggest surge yet. There were inklings of slight phonemic awareness but today he pointed to and said all the alphabet letters he is physically capable of saying (S and some others he cannot say and is very angry about it). Yesterday we got ten new words that were said perfectly. Still though, with this progress, consistency (like hearing all those words today) remains an issue. When you asked the initial sickness regression thing that was when I realized we were unique. My kids don't get sick much and when they do, even the NT one gains skills. I have a love/hate relationship with this because he was really sick and really better quickly yesterday. Horrific. And I still do not know what it was. > > > > A while back I posted a list of triggers for regressions that we > have seen. > > Regressions with otherwise benign viruses and colds are real in many > of these children. Fortunately they are reversible. We see it with > every mild illness. > > If the regression lasts for more than 2 weeks I start looking for > other causes. > > Old fish oil has been the culprit many times. We hit the 2 week mark > and I thow away the pills (or liquid) and open a fresh bottle. > Heated bottles (ie shipped in the summer), or liquid not refrigerated > will get oxidized and go rancid. They don't always " smell " bad, > either. Our kids are just very sensitive. > > Exposures to things he is allergic to also triggers regressions. Last > september was a big one and I posted asking others about regressions. > This one took a long time to turn around...too long - that I at one > point was also worried about losing all the gains after we came so > far. Turns out I bought a new breadmaker and had started baking fresh > bread. Now we know ph is severely allergic to yeast (as well as > gluten and milk). The yeast in the bread was triggering his > regression. The aspergillus (fungus) source of lipast triggered the > worst regression I ever say in speach and coordination. Ultimately he > developed hives and an asthma flare - which clued me into the allergy > component. When milk products are accidentally given...we get 2-3 > weeks of diarrhea, eczema, and regression in speach and coordination. > The inflammatory triggers are clearly there...at least for my son, > and I believe others like him. > > Hi Janice, > > > > Thanks so much for this information. > > > > I think for me, I just get scared - period!! I got scared that he > was regressing and losing everything. It uts my mind at ease knowing > that my situation is not unique. Truly, each time he gets sick with a > cold or anything else, his speech suffers - he regresses. I guess I > was just seeing compromised speech alongside his bowel issues -- > constipation/then diarrhea from the vit. c. He is better today, but > still has diarrhea.....his speech is better -- not the way it was > before, but better. I really appreciate the help and information > that I receive here -- NO ONE else understands or gets it AT ALL. My > son was assessed (speech) this morning for the school district's > transition, and the SLP just looked at me as if I was crazy when I > suggested that he was going through a regression due to tummy > issues. And she's certainly not the only one.....my husband, the > ped., the chiropractor -- this information is just not " out there " > yet. I'm glad I'm able to find it SOMEWHERE!! > > > > I'll look into those supplements. I may email back with a > few ????? re: them. > > > > Thanks THanks Thanks > > > > > > > > ** I just needed to know that others have experienced this as well!! > > > > > > @: jscott@: Thu, 14 Feb 2008 10:28:21 - > 0800Subject: RE: [ ] Regressions > > > > > > > > > > Hi ,Yes, I think that this is the way with dyspraxia... > Surges and regressions define my life. Is it a good speech day or a > bad speech day? Mark usually asks the question in the morning on our > way to school. We do our exercises on the bad days but really, they > don't help much. Usually on the bad days, he needs a lot of water to > drink (keeps the excess saliva at bay) and I remove all gluten > products along with his usual dairy removal. As a matter of 'his' > viewpoint, Mark says that a lot of the time when his speech gets > really 'slushy' sounding, it means that he is thirsty. Quite often, > water will help his speech.But for the real regressions, I try to > keep it simple.... he eats nuts, fruits, meat, veggies with no > carbohydrates.... for a couple of days and usually the regression > will cease. I find that keeping the diet as 'clean' as possible seems > to reduce the bad days. Because our children tend to have compromised > immune systems, when they are ill, it is reflected in their > abilities. It is a constant complaint of mine. I may get a cold and > feel dragged down but Mark gets a cold and loses physical milestones! > This has been happening less and less since we got him on the right > supplements for his body. I would bet that your boy is low in COQ10 > or some other immune vitamin. This has really improved since we > started doing L-Carnitine, COQ10 and Taurine along with the oils.I > don't like the idea that you were feeling scared. This means that he > is regressing way too much beyond simple articulation issues. Perhaps > slow down on what you add and simplify. Remember when you begin to > start supplements, only add one at a time. " Go Low and Slow " is the > supplement motto. Over time ramp up dosages as your child develops a > tolerance. If you have a negative reaction, then reduce the dosage, > try a different brand name (look for the ingredience in your brands > as some kids are really sensitive to things like soy fillers) or just > drop the supplement and look to another source for the nutrient. I > try not to add more than one new supplement a week so that I can > really see how my son is tolerating the new vitamin.How is your boy > this morning? Try cutting back the vitamin C and Pom juice to > maintenance levels and see if his bowels normalize.Just some ideas > for you....JaniceMother of Mark, 13 [ ] RegressionsMy son has > been doing very well, and responding well to fish oils and diet. > Recently, though, we've been experiencing some (what looks like) > regressions. We've had constipation along with it. I've addressed the > constipation by paying closer attention to diet and vitamin c.....POM > juice.....acidopholius. I'm thinking that the bowel issues are linked > to the regressions that I see. My son is still doing ok, but there's > certainly more searching and difficulty speaking. He's also not > putting as many words together. I'm getting scared. I'd added cod > liver oil to the fish oil regime a few weeks ago, and I've not added > vitamin e, yet. Could the additional fish oil be doing this. > Initially, I saw a surge in his verbal skills. He's also calmed down > ALOT. He's definitely more focused, playing independently, > etc.....Does anyone have any suggestions? > Thanks__________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 My son had diarrhea for two days, but it was not severe at all. It happened only once or twice a day. He also had basic tummy problems. I'd initially thought it was the vit. c. I was kicking myself thinking that I'd given him toooooo much. It turns out that both my husband and myself are very sick today (vomiting/diarrhea). So it seems that my son probably had a virus. Perhaps the vitamin c lessened the severity of the virus by " getting it out " quickly or something.....or perhaps he's next in line for it. Anyway, just wanted to let you know that something's definitely going around here in regards to diarrhea, etc.....I'm glad your son, Liz, isn't regressing with whatever's going on with him. , thanks for this info on regressions. In light of this, I keep my fish oil WAY too long and plan to change it out. Can anyone tell me how to access the archives????? I tried to before posting questions about regressions, but couldn't find them. I'm not the most savvy individual when it comes to technology. I went to the CHERAB site, but couldn't find it. Feel free to email offline if you feel it's more appropriate.......to avoid tying up the list serv -- for I may have a few questions, etc..... Thanks @...: lizlaw@...: Fri, 15 Feb 2008 20:30:18 +0000Subject: [ ] Re: Regressions We have something wierd going on here that may be mirrorimage relevant, the only reason I am posting at this point. We have had diarrhea lately and nothing in paticular unless you count daily dha, was different. That just seemed to assiciate with diarrhea but then it stopped yesterday. During the diarrhea though we had speech gains. When it stopped we lost none of the gains but it was only one day. Yesterday two things were different: He was given a gummy vite type of 369 and I gave him an egg cooked in goats butter. Severe diarrhea ensued and he was uncomfortable before that, which we had not seen before. It scared me. I then bathed him and was cleaning only to find him downstairs fresh as a daisy eating away. The only other thing I did this week was make a bread with new flours, one of which is millet. I do see in both of my kids difficulty in processing B vitamins. I avoided the supplements fearing the yeast issue but they have to get some B so I tried this as they cannot tolerate Childrens Essence 1/4 dose, Supernuthera 1/4 dose, etc. Well, today we saw the biggest surge yet. There were inklings of slight phonemic awareness but today he pointed to and said all the alphabet letters he is physically capable of saying (S and some others he cannot say and is very angry about it). Yesterday we got ten new words that were said perfectly. Still though, with this progress, consistency (like hearing all those words today) remains an issue. When you asked the initial sickness regression thing that was when I realized we were unique. My kids don't get sick much and when they do, even the NT one gains skills. I have a love/hate relationship with this because he was really sick and really better quickly yesterday. Horrific. And I still do not know what it was.> >> > A while back I posted a list of triggers for regressions that we> have seen.> > Regressions with otherwise benign viruses and colds are real in many> of these children. Fortunately they are reversible. We see it with> every mild illness.> > If the regression lasts for more than 2 weeks I start looking for> other causes.> > Old fish oil has been the culprit many times. We hit the 2 week mark> and I thow away the pills (or liquid) and open a fresh bottle.> Heated bottles (ie shipped in the summer), or liquid not refrigerated> will get oxidized and go rancid. They don't always " smell " bad,> either. Our kids are just very sensitive.> > Exposures to things he is allergic to also triggers regressions. Last> september was a big one and I posted asking others about regressions.> This one took a long time to turn around...too long - that I at one> point was also worried about losing all the gains after we came so> far. Turns out I bought a new breadmaker and had started baking fresh> bread. Now we know ph is severely allergic to yeast (as well as> gluten and milk). The yeast in the bread was triggering his> regression. The aspergillus (fungus) source of lipast triggered the> worst regression I ever say in speach and coordination. Ultimately he> developed hives and an asthma flare - which clued me into the allergy> component. When milk products are accidentally given...we get 2-3> weeks of diarrhea, eczema, and regression in speach and coordination.> The inflammatory triggers are clearly there...at least for my son,> and I believe others like him.> > Hi Janice,> >> > Thanks so much for this information.> >> > I think for me, I just get scared - period!! I got scared that he> was regressing and losing everything. It uts my mind at ease knowing> that my situation is not unique. Truly, each time he gets sick with a> cold or anything else, his speech suffers - he regresses. I guess I> was just seeing compromised speech alongside his bowel issues --> constipation/then diarrhea from the vit. c. He is better today, but> still has diarrhea.....his speech is better -- not the way it was> before, but better. I really appreciate the help and information> that I receive here -- NO ONE else understands or gets it AT ALL. My> son was assessed (speech) this morning for the school district's> transition, and the SLP just looked at me as if I was crazy when I> suggested that he was going through a regression due to tummy> issues. And she's certainly not the only one.....my husband, the> ped., the chiropractor -- this information is just not " out there " > yet. I'm glad I'm able to find it SOMEWHERE!!> >> > I'll look into those supplements. I may email back with a> few ????? re: them.> >> > Thanks THanks Thanks> >> > > >> > ** I just needed to know that others have experienced this as well!!> >> >> > @: jscott@: Thu, 14 Feb 2008 10:28:21 -> 0800Subject: RE: [ ] Regressions> >> >> >> >> > Hi ,Yes, I think that this is the way with dyspraxia...> Surges and regressions define my life. Is it a good speech day or a> bad speech day? Mark usually asks the question in the morning on our> way to school. We do our exercises on the bad days but really, they> don't help much. Usually on the bad days, he needs a lot of water to> drink (keeps the excess saliva at bay) and I remove all gluten> products along with his usual dairy removal. As a matter of 'his'> viewpoint, Mark says that a lot of the time when his speech gets> really 'slushy' sounding, it means that he is thirsty. Quite often,> water will help his speech.But for the real regressions, I try to> keep it simple.... he eats nuts, fruits, meat, veggies with no> carbohydrates.... for a couple of days and usually the regression> will cease. I find that keeping the diet as 'clean' as possible seems> to reduce the bad days. Because our children tend to have compromised> immune systems, when they are ill, it is reflected in their> abilities. It is a constant complaint of mine. I may get a cold and> feel dragged down but Mark gets a cold and loses physical milestones!> This has been happening less and less since we got him on the right> supplements for his body. I would bet that your boy is low in COQ10> or some other immune vitamin. This has really improved since we> started doing L-Carnitine, COQ10 and Taurine along with the oils.I> don't like the idea that you were feeling scared. This means that he> is regressing way too much beyond simple articulation issues. Perhaps> slow down on what you add and simplify. Remember when you begin to> start supplements, only add one at a time. " Go Low and Slow " is the> supplement motto. Over time ramp up dosages as your child develops a> tolerance. If you have a negative reaction, then reduce the dosage,> try a different brand name (look for the ingredience in your brands> as some kids are really sensitive to things like soy fillers) or just> drop the supplement and look to another source for the nutrient. I> try not to add more than one new supplement a week so that I can> really see how my son is tolerating the new vitamin.How is your boy> this morning? Try cutting back the vitamin C and Pom juice to> maintenance levels and see if his bowels normalize.Just some ideas> for you....JaniceMother of Mark, 13 [ ] RegressionsMy son has> been doing very well, and responding well to fish oils and diet.> Recently, though, we've been experiencing some (what looks like)> regressions. We've had constipation along with it. I've addressed the> constipation by paying closer attention to diet and vitamin c.....POM> juice.....acidopholius. I'm thinking that the bowel issues are linked> to the regressions that I see. My son is still doing ok, but there's> certainly more searching and difficulty speaking. He's also not> putting as many words together. I'm getting scared. I'd added cod> liver oil to the fish oil regime a few weeks ago, and I've not added> vitamin e, yet. Could the additional fish oil be doing this.> Initially, I saw a surge in his verbal skills. He's also calmed down> ALOT. He's definitely more focused, playing independently,> etc.....Does anyone have any suggestions?> Thanks__________________________________________________________> _________________________________________________________________ Shed those extra pounds with MSN and The Biggest Loser! http://biggestloser.msn.com/ Quote Link to comment Share on other sites More sharing options...
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