Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Doris and Steve <sjsmith@...> wrote: Perhaps your passion for chelation supplements and secretin have blinded you? Doris, I have left 3 doctors who wanted to chelate my son and 1 doctor who advised secretin. I previously stated that I refused chelation on myself when it was offered to me over 10 years ago. The only supplements I routinely give my child are pharmaceutical grade fish oil, and MB12 injections. My passion is for giving parents the facts and letting them make their own decisions. What started this discussion in the first place were the claims that children were " dying left and right from chelation. " There is no factual basis to this, and it bothered me that it was posted as fact. The reason I did not hear about is that it is not well publicized. My state has one of the most active autism networks in the country and only one person had ever heard of -- they had just moved here from CA. - --------------------------------- Feel free to call! Free PC-to-PC calls. Low rates on PC-to-Phone. Get Messenger with Voice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 , My daughter never seemed to become ill from immunizations. She developed normally up until about 18 mos of age. I mean talking, say phrases, crawling, standing, walking within normal limits. She also made extrodinary eye contact, my girl-friend video-taped her many hours within her 1st 24 hours. (1993) She was really never sick, as a matter of fact all of her pediatricians were so impressed with her weight gaining ability on breast milk. Early pediatricians (Florida) have commented on her health and color, due to slight jaundice at birth. The one of a few quirks that troubled me was her inability to wave: bye-bye. Pediatricians thought I was crazy to be concerned about these few things I mentioned. Plus, she was my 1st, so I wasn't as confident regarding my concerns back then. Isn't it funny how we need to believe only 1/2 of what we see and none of what we hear. My high-school boyfriend's mother told me that and I never forgot it!! We should talk, . isoaa-Michele Cerruto (familiar with protocol since '98) and I mean very familiar with all the medical stuff occurring within our children's bodies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Doris- I noticed that you said that your son was " normal " and then regressed completely by 2. Did your son exhibit any hand flapping or running in circles, or did he just stop talking and making eye contact? I am trying to find someone with a similar experience. I haven't found many people who have had a child develop typically then regress, even though I'm sure they are out there. We are going to see Dr G in July. I'd appreciate any information you could share. Thanks- --- Doris and Steve <sjsmith@...> wrote: > You should therefore ask yourself 'why is so > hush-hush? > Why isn't it more well known? Could someone or > perhaps a group > be keeping this information from caregivers? " > The research is certainly out there. Not by Dr G > (yet) > but by JHU, MIND and others. > The 2 JHU articles on the brain have been posted to > > in the past and are accessable via the archives. > Do a search on PARDU or ZIMMERMAN and you will find > them. > I post anything I find, as has Cheryl and others. > > Perhaps your passion for chelation supplements and > secretin have > blinded you? Many of us have posted > information on list servs > for years - more often than not being smacked down > or told to keep off the listserv > or fear being removed. > To quote Mulder, the Truth is out There. > The world of what is being called Autism is going to > burst > wide open one day soon. Dr G has a goldmine of > information > stored in his head and in the written records of our > children. > > But we as parents need to push forward. We need > to pass the Miss. > DVD to as many people as possible. I've just passed > a copy to my contacts > as JHU - so far, all is quiet. This is a good sign > ) > Means they are thinking about it ... > > > Dr G has stated that chelation injury may not be > evident now, but rather years from > now in the form of Alzheimers or Dementia. > Chelation and HBOT were not developed for Autism; > they are not FDA recommended for Autism. But > parents want results > and they don't want to wait. I feel their pain. We > were there once. > We had a 'normal' child until he was 2. Then he was > gone. > But I let common sense take a front seat and > research the passenger seat. > > Again, is not a fast process. > And it's not a perfect process. Trial and error; > tweaking and twisting. > But in todays world, it makes sense. > > doris > maryland > > > > > > > > > Message 25 > From: " Rob or Sunseri " > RobRose@... > Date: Sun May 21, 2006 0:49am(PDT) > Subject: Re: and Chelation > > isoaa@... wrote: This is a group and > any newcomer that joins and hears Chelation Therapy > spoken about AS OFTEN AS IT HAS BEEN... will be > confused. > Speaking as a newcomer to can I only say > this... OUCH! > > How insulting. I guess " newcomer to " means > we just walked out the door from the diagnosing > physician and arrived directly here with blankets > pulled tightly over our heads so that our virgin > ears would never hear about the che------ > controversy that is on the web, television, > newspapers, bookstores, etc. > > In the recent week, I have gained an enormous > amount of valuable information and respect for those > who have provided and explained it. The > conversation about metals and how views the > metal issue has been enlightening and more than > makes up for the fact that no one answered the > questions I initially asked about when I first > joined this listserve (which is why I did not post > much until recently). > > Discussing and learning is part of the process of > becoming LESS confused about the very confusing > diagnosis of autism and trying to keep people from > doing this is controlling and just plain wrong IMO. > > Thank you to all of you who have taken time from > your busy lives to join in the discussion with me > and also to those who e-mailed me off-list. > Michele, although I have not appreciated some of > your comments (or really I just don't understand > what is behind them), I do appreciate your passion. > To me, however, it appears as if you are preaching > to the choir. If people have found their way to > (which is half the battle BTW -- it took this > internet junkie 2.5 years to even find such a > concept of ), they are already following the > protocol or exploring the theory. If they are > exploring the theory, they need to explore other > theories as well so that they can compare, contrast > and decide. If after following the protocol to a > " T " they find it doesn't work for their child, at > least they will know about other interventions > available if they are allowed to be discussed on > this list. > > Instead of preaching to this choir -- how about > also joining ASD listserves unrelated to so > that you can post your child's success and explain > the theory to outsiders. I assume your child is > recovered based on your posts & people need to hear > recovery stories outside of this group. I said > it once before and I'll say it again, is a well > kept secret in the world of ASD treatment. What a > shame. > > - > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 , our son regressed...at 10 mo - 1 year he was talking - I even taped quite a bit and was able to have our speech pathologist verify that he was doing beautifully at this stage...no sign of " autistic " traits..then he slowly started to slide..and wasn't particularly noticeable at the time..especially being our first child. In retrospect, we think the disease process started earlier when we tracked back his history. He was sick for the first time with croup at six months old and put on antibiotics - and in a steam tent in hoispital for 2 nights. (Did he get exposed to CMV there?). Later that week, when well, we went down to see his doctor for his 6 month check-up - two booster shots - Hep B and HIB were due and adminstered - did they react with an immune system battling another bug! No real side effects, but 6 weeks later, a serious bout with diarrea and then later ENT issues regulary till he was about 2. We have heard many stories of children developing normally and then regressing. This is a group and > > any newcomer that joins and hears Chelation Therapy > > spoken about AS OFTEN AS IT HAS BEEN... will be > > confused. > > Speaking as a newcomer to can I only say > > this... OUCH! > > > > How insulting. I guess " newcomer to " means > > we just walked out the door from the diagnosing > > physician and arrived directly here with blankets > > pulled tightly over our heads so that our virgin > > ears would never hear about the che------ > > controversy that is on the web, television, > > newspapers, bookstores, etc. > > > > In the recent week, I have gained an enormous > > amount of valuable information and respect for those > > who have provided and explained it. The > > conversation about metals and how views the > > metal issue has been enlightening and more than > > makes up for the fact that no one answered the > > questions I initially asked about when I first > > joined this listserve (which is why I did not post > > much until recently). > > > > Discussing and learning is part of the process of > > becoming LESS confused about the very confusing > > diagnosis of autism and trying to keep people from > > doing this is controlling and just plain wrong IMO. > > > > Thank you to all of you who have taken time from > > your busy lives to join in the discussion with me > > and also to those who e-mailed me off-list. > > Michele, although I have not appreciated some of > > your comments (or really I just don't understand > > what is behind them), I do appreciate your passion. > > To me, however, it appears as if you are preaching > > to the choir. If people have found their way to > > (which is half the battle BTW -- it took this > > internet junkie 2.5 years to even find such a > > concept of ), they are already following the > > protocol or exploring the theory. If they are > > exploring the theory, they need to explore other > > theories as well so that they can compare, contrast > > and decide. If after following the protocol to a > > " T " they find it doesn't work for their child, at > > least they will know about other interventions > > available if they are allowed to be discussed on > > this list. > > > > Instead of preaching to this choir -- how about > > also joining ASD listserves unrelated to so > > that you can post your child's success and explain > > the theory to outsiders. I assume your child is > > recovered based on your posts & people need to hear > > recovery stories outside of this group. I said > > it once before and I'll say it again, is a well > > kept secret in the world of ASD treatment. What a > > shame. > > > > - > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Hi , Our son (now almost 8 in July), developed normal, Hit all of the milestones, pointing, eye contact, crawled (up on his slide) at 7 months, said " da-da " at 6 months, had words like down at age 10 months! Walked at 12 months...when the pediatrician asked him to " shut the door " he did it, was very friendly and social with other people. Never cried if strangers tried to pick him up and smiled all the time. Then right immediately after his 15 month checkup he started getting cranky and didn't like strangers and hyper!! He totally changed! Even towards peers. All of the moms at the preschool (my daughters) would tell me " what happened? " He used to be so friendly. Also, he started " video scripting " - no normal language and started pointing for what he wanted. Finally at 2 & 1/2 he was diagnosed with HF Autism. God bless, Argie Re: and Chelation > > isoaa@... wrote: This is a group and > any newcomer that joins and hears Chelation Therapy > spoken about AS OFTEN AS IT HAS BEEN... will be > confused. > Speaking as a newcomer to can I only say > this... OUCH! > > How insulting. I guess " newcomer to " means > we just walked out the door from the diagnosing > physician and arrived directly here with blankets > pulled tightly over our heads so that our virgin > ears would never hear about the che------ > controversy that is on the web, television, > newspapers, bookstores, etc. > > In the recent week, I have gained an enormous > amount of valuable information and respect for those > who have provided and explained it. The > conversation about metals and how views the > metal issue has been enlightening and more than > makes up for the fact that no one answered the > questions I initially asked about when I first > joined this listserve (which is why I did not post > much until recently). > > Discussing and learning is part of the process of > becoming LESS confused about the very confusing > diagnosis of autism and trying to keep people from > doing this is controlling and just plain wrong IMO. > > Thank you to all of you who have taken time from > your busy lives to join in the discussion with me > and also to those who e-mailed me off-list. > Michele, although I have not appreciated some of > your comments (or really I just don't understand > what is behind them), I do appreciate your passion. > To me, however, it appears as if you are preaching > to the choir. If people have found their way to > (which is half the battle BTW -- it took this > internet junkie 2.5 years to even find such a > concept of ), they are already following the > protocol or exploring the theory. If they are > exploring the theory, they need to explore other > theories as well so that they can compare, contrast > and decide. If after following the protocol to a > " T " they find it doesn't work for their child, at > least they will know about other interventions > available if they are allowed to be discussed on > this list. > > Instead of preaching to this choir -- how about > also joining ASD listserves unrelated to so > that you can post your child's success and explain > the theory to outsiders. I assume your child is > recovered based on your posts & people need to hear > recovery stories outside of this group. I said > it once before and I'll say it again, is a well > kept secret in the world of ASD treatment. What a > shame. > > - > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Argie, Was there a medical event ~15 months that you could attribute to the change in your son? An illness, or food introduction, a bug-bite, or vaccinations? I'm trying to remember back in my own son's history for any such event. It's very difficult for me to remember, as his twin was very sick and medically fragile during their infancy and I hardly even remember him as a baby. But, I do remember talking with their OT about some concerns I had, at the approximate age as your son . We had tried cow's milk and it was disastrous, and he also got the MMR vacc around that time (and I think that was the only vaccination right around that time). Thanks, Kristy Re: and Chelation > > isoaa@... wrote: This is a group and > any newcomer that joins and hears Chelation Therapy > spoken about AS OFTEN AS IT HAS BEEN... will be > confused. > Speaking as a newcomer to can I only say > this... OUCH! > > How insulting. I guess " newcomer to " means > we just walked out the door from the diagnosing > physician and arrived directly here with blankets > pulled tightly over our heads so that our virgin > ears would never hear about the che------ > controversy that is on the web, television, > newspapers, bookstores, etc. > > In the recent week, I have gained an enormous > amount of valuable information and respect for those > who have provided and explained it. The > conversation about metals and how views the > metal issue has been enlightening and more than > makes up for the fact that no one answered the > questions I initially asked about when I first > joined this listserve (which is why I did not post > much until recently). > > Discussing and learning is part of the process of > becoming LESS confused about the very confusing > diagnosis of autism and trying to keep people from > doing this is controlling and just plain wrong IMO. > > Thank you to all of you who have taken time from > your busy lives to join in the discussion with me > and also to those who e-mailed me off-list. > Michele, although I have not appreciated some of > your comments (or really I just don't understand > what is behind them), I do appreciate your passion. > To me, however, it appears as if you are preaching > to the choir. If people have found their way to > (which is half the battle BTW -- it took this > internet junkie 2.5 years to even find such a > concept of ), they are already following the > protocol or exploring the theory. If they are > exploring the theory, they need to explore other > theories as well so that they can compare, contrast > and decide. If after following the protocol to a > " T " they find it doesn't work for their child, at > least they will know about other interventions > available if they are allowed to be discussed on > this list. > > Instead of preaching to this choir -- how about > also joining ASD listserves unrelated to so > that you can post your child's success and explain > the theory to outsiders. I assume your child is > recovered based on your posts & people need to hear > recovery stories outside of this group. I said > it once before and I'll say it again, is a well > kept secret in the world of ASD treatment. What a > shame. > > - > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Kristy, It was his regular check up and he did receive the injections. I have to go back and dig his records for the actual vaccines, but I think it was MMR & DPT. I forgot to mention earlier that he got RSV virus when he was about 6 months and has always had chronic ear/sinus infections. The pediatrician back then prescribed a lot of antibiotics. Also, at 1 year he started getting constipated as well. So maybe it started sooner, but the injections maybe " triggered " it. Hope this helps, Argie Re: and Chelation > > isoaa@... wrote: This is a group and > any newcomer that joins and hears Chelation Therapy > spoken about AS OFTEN AS IT HAS BEEN... will be > confused. > Speaking as a newcomer to can I only say > this... OUCH! > > How insulting. I guess " newcomer to " means > we just walked out the door from the diagnosing > physician and arrived directly here with blankets > pulled tightly over our heads so that our virgin > ears would never hear about the che------ > controversy that is on the web, television, > newspapers, bookstores, etc. > > In the recent week, I have gained an enormous > amount of valuable information and respect for those > who have provided and explained it. The > conversation about metals and how views the > metal issue has been enlightening and more than > makes up for the fact that no one answered the > questions I initially asked about when I first > joined this listserve (which is why I did not post > much until recently). > > Discussing and learning is part of the process of > becoming LESS confused about the very confusing > diagnosis of autism and trying to keep people from > doing this is controlling and just plain wrong IMO. > > Thank you to all of you who have taken time from > your busy lives to join in the discussion with me > and also to those who e-mailed me off-list. > Michele, although I have not appreciated some of > your comments (or really I just don't understand > what is behind them), I do appreciate your passion. > To me, however, it appears as if you are preaching > to the choir. If people have found their way to > (which is half the battle BTW -- it took this > internet junkie 2.5 years to even find such a > concept of ), they are already following the > protocol or exploring the theory. If they are > exploring the theory, they need to explore other > theories as well so that they can compare, contrast > and decide. If after following the protocol to a > " T " they find it doesn't work for their child, at > least they will know about other interventions > available if they are allowed to be discussed on > this list. > > Instead of preaching to this choir -- how about > also joining ASD listserves unrelated to so > that you can post your child's success and explain > the theory to outsiders. I assume your child is > recovered based on your posts & people need to hear > recovery stories outside of this group. I said > it once before and I'll say it again, is a well > kept secret in the world of ASD treatment. What a > shame. > > - > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 , What has your sons experience been with Dr.G? Did he/does he do any stims, like hand flapping? I'm curious to know what Dr. G's thoughts are about things like that. There are times I think I need to interrupt those behaviors, and other times, I feel like he must need to do it. Thanks- --- robert_wilsonsg <rmwilson@...> wrote: > , > our son regressed...at 10 mo - 1 year he was talking > - I even taped > quite a bit and was able to have our speech > pathologist verify that > he was doing beautifully at this stage...no sign of > " autistic " > traits..then he slowly started to slide..and wasn't > particularly > noticeable at the time..especially being our first > child. In > retrospect, we think the disease process started > earlier when we > tracked back his history. He was sick for the first > time with croup > at six months old and put on antibiotics - and in a > steam tent in > hoispital for 2 nights. (Did he get exposed to CMV > there?). Later > that week, when well, we went down to see his doctor > for his 6 month > check-up - two booster shots - Hep B and HIB were > due and > adminstered - did they react with an immune system > battling another > bug! No real side effects, but 6 weeks later, a > serious bout with > diarrea and then later ENT issues regulary till he > was about 2. > > We have heard many stories of children developing > normally and then > regressing. > > > This is a group and > > > any newcomer that joins and hears Chelation > Therapy > > > spoken about AS OFTEN AS IT HAS BEEN... will be > > > confused. > > > Speaking as a newcomer to can I only say > > > this... OUCH! > > > > > > How insulting. I guess " newcomer to " > means > > > we just walked out the door from the diagnosing > > > physician and arrived directly here with > blankets > > > pulled tightly over our heads so that our virgin > > > ears would never hear about the che------ > > > controversy that is on the web, television, > > > newspapers, bookstores, etc. > > > > > > In the recent week, I have gained an enormous > > > amount of valuable information and respect for > those > > > who have provided and explained it. The > > > conversation about metals and how views the > > > metal issue has been enlightening and more than > > > makes up for the fact that no one answered the > > > questions I initially asked about when I > first > > > joined this listserve (which is why I did not > post > > > much until recently). > > > > > > Discussing and learning is part of the process > of > > > becoming LESS confused about the very confusing > > > diagnosis of autism and trying to keep people > from > > > doing this is controlling and just plain wrong > IMO. > > > > > > Thank you to all of you who have taken time > from > > > your busy lives to join in the discussion with > me > > > and also to those who e-mailed me off-list. > > > Michele, although I have not appreciated some of > > > your comments (or really I just don't understand > > > what is behind them), I do appreciate your > passion. > > > To me, however, it appears as if you are > preaching > > > to the choir. If people have found their way to > > > (which is half the battle BTW -- it took > this > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 He developed hand flapping as the disease progressed. It has since reduced. However if he's very agitated or over excited he can still do it. Dr G sees stims as a sign that things are not right..and we monitor increase or decrease in this behaviour as medicine is adjusted. As the child becomes more ware of himslef and surroundings, then interruption and pointing out he does it can help....its about getting control of his motor/nercous/vestibular system --- Curtis and Hackler <thehacks@...> wrote: > , > What has your sons experience been with Dr.G? Did > he/does he do any stims, like hand flapping? I'm > curious to know what Dr. G's thoughts are about things > like that. There are times I think I need to > interrupt those behaviors, and other times, I feel > like he must need to do it. > > Thanks- > > --- robert_wilsonsg <rmwilson@...> wrote: > > > , > > our son regressed...at 10 mo - 1 year he was talking > > - I even taped > > quite a bit and was able to have our speech > > pathologist verify that > > he was doing beautifully at this stage...no sign of > > " autistic " > > traits..then he slowly started to slide..and wasn't > > particularly > > noticeable at the time..especially being our first > > child. In > > retrospect, we think the disease process started > > earlier when we > > tracked back his history. He was sick for the first > > time with croup > > at six months old and put on antibiotics - and in a > > steam tent in > > hoispital for 2 nights. (Did he get exposed to CMV > > there?). Later > > that week, when well, we went down to see his doctor > > for his 6 month > > check-up - two booster shots - Hep B and HIB were > > due and > > adminstered - did they react with an immune system > > battling another > > bug! No real side effects, but 6 weeks later, a > > serious bout with > > diarrea and then later ENT issues regulary till he > > was about 2. > > > > We have heard many stories of children developing > > normally and then > > regressing. > > > > > > This is a group and > > > > any newcomer that joins and hears Chelation > > Therapy > > > > spoken about AS OFTEN AS IT HAS BEEN... will be > > > > confused. > > > > Speaking as a newcomer to can I only say > > > > this... OUCH! > > > > > > > > How insulting. I guess " newcomer to " > > means > > > > we just walked out the door from the diagnosing > > > > physician and arrived directly here with > > blankets > > > > pulled tightly over our heads so that our virgin > > > > ears would never hear about the che------ > > > > controversy that is on the web, television, > > > > newspapers, bookstores, etc. > > > > > > > > In the recent week, I have gained an enormous > > > > amount of valuable information and respect for > > those > > > > who have provided and explained it. The > > > > conversation about metals and how views the > > > > metal issue has been enlightening and more than > > > > makes up for the fact that no one answered the > > > > questions I initially asked about when I > > first > > > > joined this listserve (which is why I did not > > post > > > > much until recently). > > > > > > > > Discussing and learning is part of the process > > of > > > > becoming LESS confused about the very confusing > > > > diagnosis of autism and trying to keep people > > from > > > > doing this is controlling and just plain wrong > > IMO. > > > > > > > > Thank you to all of you who have taken time > > from > > > > your busy lives to join in the discussion with > > me > > > > and also to those who e-mailed me off-list. > > > > Michele, although I have not appreciated some of > > > > your comments (or really I just don't understand > > > > what is behind them), I do appreciate your > > passion. > > > > To me, however, it appears as if you are > > preaching > > > > to the choir. If people have found their way to > > > > (which is half the battle BTW -- it took > > this > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 How has Dr. G helped your son? How is he doing now? Was language also affected, meaning did he lose it, when he regressed? I appreciate your information! --- rmwilson <rmwilson@...> wrote: > He developed hand flapping as the disease > progressed. It has since reduced. However if he's > very agitated or over excited he can still do it. Dr > G sees stims as a sign that things are not > right..and we monitor increase or decrease in this > behaviour as medicine is adjusted. As the child > becomes more ware of himslef and surroundings, then > interruption and pointing out he does it can > help....its about getting control of his > motor/nercous/vestibular system > > --- Curtis and Hackler <thehacks@...> > wrote: > > > , > > What has your sons experience been with Dr.G? Did > > he/does he do any stims, like hand flapping? I'm > > curious to know what Dr. G's thoughts are about > things > > like that. There are times I think I need to > > interrupt those behaviors, and other times, I feel > > like he must need to do it. > > > > Thanks- > > > > --- robert_wilsonsg <rmwilson@...> > wrote: > > > > > , > > > our son regressed...at 10 mo - 1 year he was > talking > > > - I even taped > > > quite a bit and was able to have our speech > > > pathologist verify that > > > he was doing beautifully at this stage...no sign > of > > > " autistic " > > > traits..then he slowly started to slide..and > wasn't > > > particularly > > > noticeable at the time..especially being our > first > > > child. In > > > retrospect, we think the disease process started > > > earlier when we > > > tracked back his history. He was sick for the > first > > > time with croup > > > at six months old and put on antibiotics - and > in a > > > steam tent in > > > hoispital for 2 nights. (Did he get exposed to > CMV > > > there?). Later > > > that week, when well, we went down to see his > doctor > > > for his 6 month > > > check-up - two booster shots - Hep B and HIB > were > > > due and > > > adminstered - did they react with an immune > system > > > battling another > > > bug! No real side effects, but 6 weeks later, a > > > serious bout with > > > diarrea and then later ENT issues regulary till > he > > > was about 2. > > > > > > We have heard many stories of children > developing > > > normally and then > > > regressing. > > > > > > > > > > > > > > > > > > You should therefore ask yourself 'why is > > > > so > > > > > hush-hush? > > > > > Why isn't it more well known? Could someone > or > > > > > perhaps a group > > > > > be keeping this information from > caregivers? " > > > > > The research is certainly out there. Not by > Dr G > > > > > (yet) > > > > > but by JHU, MIND and others. > > > > > The 2 JHU articles on the brain have been > posted > > > to > > > > > > > > > > in the past and are accessable via the > archives. > > > > > Do a search on PARDU or ZIMMERMAN and you > will > > > find > > > > > them. > > > > > I post anything I find, as has Cheryl and > > > others. > > > > > > > > > > Perhaps your passion for chelation > supplements > > > and > > > > > secretin have > > > > > blinded you? Many of us have posted > > > > > information on list servs > > > > > for years - more often than not being > smacked > > > down > > > > > or told to keep off the listserv > > > > > or fear being removed. > > > > > To quote Mulder, the Truth is out There. > > > > > The world of what is being called Autism is > > > going to > > > > > burst > > > > > wide open one day soon. Dr G has a goldmine > of > > > > > information > > > > > stored in his head and in the written > records of > > > our > > > > > children. > > > > > > > > > > But we as parents need to push forward. > We > > > need > > > > > to pass the Miss. > > > > > DVD to as many people as possible. I've > just > > > passed > > > > > a copy to my contacts > > > > > as JHU - so far, all is quiet. This is a > good > > > sign > > > > > ) > > > > > Means they are thinking about it ... > > > > > > > > > > > > > > > Dr G has stated that chelation injury may > not be > > > > > evident now, but rather years from > > > > > now in the form of Alzheimers or Dementia. > > > > > Chelation and HBOT were not developed for > > > Autism; > > > > > they are not FDA recommended for Autism. > But > > > > > parents want results > > > > > and they don't want to wait. I feel their > pain. > > > We > > > > > were there once. > > > > > We had a 'normal' child until he was 2. Then > he > > > was > > > > > gone. > > > > > But I let common sense take a front seat and > > > > > research the passenger seat. > > > > > > > > > > Again, is not a fast process. > > > > > And it's not a perfect process. Trial and > > > error; > > > > > tweaking and twisting. > > > > > But in todays world, it makes sense. > > > > > > > > > > doris > > > > > maryland > > > > > > > > > > > > > > > > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 his language reduced to key words for " wants " like 'water'. He is doing much better now..and regaining...its hard work with therapists, teachers etc..there are new challenges like self esteem, success, fear of failure to overcome. The old " autism " world was a safe place....the real world is scary and overwhelming and we are helping him to overcome this. Many have been through this..and I know parents with " recovered kids " who are still working on various issues.. --- Curtis and Hackler <thehacks@...> wrote: > How has Dr. G helped your son? How is he doing now? > Was language also affected, meaning did he lose it, > when he regressed? > > I appreciate your information! > > --- rmwilson <rmwilson@...> wrote: > > > He developed hand flapping as the disease > > progressed. It has since reduced. However if he's > > very agitated or over excited he can still do it. Dr > > G sees stims as a sign that things are not > > right..and we monitor increase or decrease in this > > behaviour as medicine is adjusted. As the child > > becomes more ware of himslef and surroundings, then > > interruption and pointing out he does it can > > help....its about getting control of his > > motor/nercous/vestibular system > > > > --- Curtis and Hackler <thehacks@...> > > wrote: > > > > > , > > > What has your sons experience been with Dr.G? Did > > > he/does he do any stims, like hand flapping? I'm > > > curious to know what Dr. G's thoughts are about > > things > > > like that. There are times I think I need to > > > interrupt those behaviors, and other times, I feel > > > like he must need to do it. > > > > > > Thanks- > > > > > > --- robert_wilsonsg <rmwilson@...> > > wrote: > > > > > > > , > > > > our son regressed...at 10 mo - 1 year he was > > talking > > > > - I even taped > > > > quite a bit and was able to have our speech > > > > pathologist verify that > > > > he was doing beautifully at this stage...no sign > > of > > > > " autistic " > > > > traits..then he slowly started to slide..and > > wasn't > > > > particularly > > > > noticeable at the time..especially being our > > first > > > > child. In > > > > retrospect, we think the disease process started > > > > earlier when we > > > > tracked back his history. He was sick for the > > first > > > > time with croup > > > > at six months old and put on antibiotics - and > > in a > > > > steam tent in > > > > hoispital for 2 nights. (Did he get exposed to > > CMV > > > > there?). Later > > > > that week, when well, we went down to see his > > doctor > > > > for his 6 month > > > > check-up - two booster shots - Hep B and HIB > > were > > > > due and > > > > adminstered - did they react with an immune > > system > > > > battling another > > > > bug! No real side effects, but 6 weeks later, a > > > > serious bout with > > > > diarrea and then later ENT issues regulary till > > he > > > > was about 2. > > > > > > > > We have heard many stories of children > > developing > > > > normally and then > > > > regressing. > > > > > > > > > > > > > > > > > > > > > > > You should therefore ask yourself 'why is > > > > > > so > > > > > > hush-hush? > > > > > > Why isn't it more well known? Could someone > > or > > > > > > perhaps a group > > > > > > be keeping this information from > > caregivers? " > > > > > > The research is certainly out there. Not by > > Dr G > > > > > > (yet) > > > > > > but by JHU, MIND and others. > > > > > > The 2 JHU articles on the brain have been > > posted > > > > to > > > > > > > > > > > > in the past and are accessable via the > > archives. > > > > > > Do a search on PARDU or ZIMMERMAN and you > > will > > > > find > > > > > > them. > > > > > > I post anything I find, as has Cheryl and > > > > others. > > > > > > > > > > > > Perhaps your passion for chelation > > supplements > > > > and > > > > > > secretin have > > > > > > blinded you? Many of us have posted > > > > > > information on list servs > > > > > > for years - more often than not being > > smacked > > > > down > > > > > > or told to keep off the listserv > > > > > > or fear being removed. > > > > > > To quote Mulder, the Truth is out There. > > > > > > The world of what is being called Autism is > > > > going to > > > > > > burst > > > > > > wide open one day soon. Dr G has a goldmine > > of > > > > > > information > > > > > > stored in his head and in the written > > records of > > > > our > > > > > > children. > > > > > > > > > > > > But we as parents need to push forward. > > We > > > > need > > > > > > to pass the Miss. > > > > > > DVD to as many people as possible. I've > > just > > > > passed > > > > > > a copy to my contacts > > > > > > as JHU - so far, all is quiet. This is a > > good > > > > sign > > > > > > ) > > > > > > Means they are thinking about it ... > > > > > > > > > > > > > > > > > > Dr G has stated that chelation injury may > > not be > > > > > > evident now, but rather years from > > > > > > now in the form of Alzheimers or Dementia. > > > > > > Chelation and HBOT were not developed for > > > > Autism; > > > > > > they are not FDA recommended for Autism. > > But > > > > > > parents want results > > > > > > and they don't want to wait. I feel their > > pain. > > > > We > > > > > > were there once. > > > > > > We had a 'normal' child until he was 2. Then > > he > > > > was > > > > > > gone. > > > > > > But I let common sense take a front seat and > > > > > > research the passenger seat. > > > > > > > > > > > > Again, is not a fast process. > > > > > > And it's not a perfect process. Trial and > > > > error; > > > > > > tweaking and twisting. > > > > > > But in todays world, it makes sense. > > > > > > > > > > > > doris > > > > > > maryland > > > > > > > > > > > > > > > > > > > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Hi Argie - Curious - did he have the MMR or other vaccines at the 15 month checkup (you probably stated his vaccine status but I can't remember)? Did he have any prior history w/ thrush, colic, yeasty-bloated tummy, constipation, eczema, etc? --- Argie Olivo <golivo@...> wrote: > Hi , > > Our son (now almost 8 in July), developed normal, > Hit all of the > milestones, pointing, eye contact, crawled (up on > his slide) at 7 months, > said " da-da " at 6 months, had words like down at age > 10 months! Walked at > 12 months...when the pediatrician asked him to " shut > the door " he did it, > was very friendly and social with other people. > Never cried if strangers > tried to pick him up and smiled all the time. Then > right immediately after > his 15 month checkup he started getting cranky and > didn't like strangers > and hyper!! He totally changed! Even towards > peers. All of the moms at > the preschool (my daughters) would tell me " what > happened? " He used to be > so friendly. Also, he started " video scripting " - > no normal language and > started pointing for what he wanted. Finally at 2 & > 1/2 he was diagnosed > with HF Autism. > > God bless, > Argie > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.