Re:- A joint effort FOR US ALL !!

[Guest guest]

In a message dated 5/17/2006 8:07:45 PM Central Standard Time, isoaa@...

writes:

<<What I don't understand, Gaylen is why you are assuming I am bashing

anyone, >>

I wasn't assuming that you, personally, were bashing anyone in particular. I

was just offended by the wording that seemed to belittle parents of autistic

kids as being uninformed and overly desperate.

<< I just can't understand that after all we have been through, all of us

here at @ , why we can't just stick to the protocol, other than

articles or newpapers or top topics of conversation regarding " autism " . >>

That would be wonderful but apparantly others feel the need to routinely post

the same story about the " chelation deaths " . I assume this is to scare

people into not considering chelation. I understand and respect the

position

that chelation isn't something kids should go through, but disagree with the

methods of trying to scare people about it with an at best semi-related news

story about three drug mix-up incidents.

<<I think we are all too sensitive here. With all the crap we put in our

kids

bodies, why would anyone add to it with IV Chelation, when kids are dying

left

and right, regardless how safe everyone says it is. That 's my argument.>>

What kids are " dying left and right " ? It's comments like this that I was

talking about when I wrote about " over-dramatizing " things to try to scare

parents. If you have other research that supports that there have been many

deaths

directly associated with chelation, then please post them. Otherwise, the

best way to encourage people to investigate the position is to just say

that

chelation can be harmful so recommends against it. Over-dramatizing the

effects without any research to back it up tends to put off those

investigating both options and make them less likely to consider other things

that

supports.

<<I am struggling with what appears to be .... pointing fingers at certain

individuals. We need to stand as a TEAM IF WE ARE EVER GOING TO BE

SUCCESSFUL IN SPREADING THE TRUTH HERE. We should probably think about keeping

posts

more general other than getting clicky and pal-pal with certain individuals

and NOT with others ..........................................because feelings

can get hurt too!>>

If my post hurt your feelings, I apologize. It wasn't meant as an attack or

pointing fingers or whatever but rather a sharing that parents can be very

offended and turned off when a post alludes to or directly calls them stupid,

desperate, or uninformed. While I copied some of your comments as references to

what I was referring to, my message was meant to speak in general terms

because I have seen and heard similar comments from others, including Dr.

Goldberg.

I usually bristle a bit when I hear or read them but ignore them and move on.

However, having worked in public relations and knowing how such a thing can

really turn off the very people you are trying to reach, I thought it would be

worthwhile for me to share my thoughts. Sorry if they were too hormonal -- I

have my chocolate now so will go back to lurking again.

Gaylen

[Guest guest]

Michele,

Can you please let us know where your information comes from regarding kids

" dying left and right from chelation? " I cannot find any factual source that

supports this.

I sit on an advisory board to a children's hospital that is creating an autism

treatment center. One of the many treatment options I am hoping to bring to

their attention is , but does not help all kids with autism. Also

sitting on this board is an Emergency Room doctor who has a son who is recovered

from autism as a result of chelation. He wants chelation available as a

treatment option. Co-incidentally also in our city, the two primary doctors

that are chelating autistic kids spent over 2 decades as hospital ER docs.

Safety is their primary concern for these kids. Part of my job on the hospital

board is to bring the science to the table. There is science behind , and

there is science behind chelation. I do happen to know of families who were not

helped by but are doing extremely well with chelation. My objective is to

make many safe treatment options available to many families.

What parents need to realize about medicine is that it is always going to be

about 20 years behind science, because that's about how long it takes to go from

a reasonable theory to a proven, published, replicated and accepted medical

preactice. Children with autism do not have 20 years to wait until doctors

agree on the " accepted " cure for autism. In the mean time, parents must decide

how to best treat their child, and the more information and options available,

the closer we are to success.

-

isoaa@... wrote:

In a message dated 5/17/2006 6:35:54 PM Eastern Standard Time,

Googahly@... writes:

<<Any protocol that involves possible death is reason enough to avoid it.>>

So, I guess you will be avoiding the protocol since more deaths have

been linked to SSRIs than to any chelation drug. Rather than

over-dramatizing

reports of deaths due to drug mix-ups, (which are only semi-related at best

to

this " competing " treatment), why don't we focus on how beneficial is for

kids and talk up the science behind it and its success stories? Sure, we

could scare a few parents away from the other doctors and possibly help their

kids

in the long run, but wouldn't it be better to share the real science and

success of and ultimately help more parents and doctors to want to use

this

treatment because it works?

Ok, I'm done now. Think I need some chocolate, and maybe a vacation.

Gaylen

Hi Gaylen and all list members:

There are hundreds of thousands of people dying daily from drug mixes: over

the counter, prescriptions, including SSRI's, etc... When certain drugs are

mixed together whether over long or short periods of time there is always a

chance of poisoning to occur. And from what I came across today it is the

leading cause of death.

What I don't understand, Gaylen is why you are assuming I am bashing anyone,

I am a parent who has been made a fool of and laughed at as we all were at

one time or another. I just can't understand that after all we have been

through, all of us here at @ , why we can't just stick to the

protocol, other than articles or newpapers or top topics of conversation

regarding

" autism " .

I think we are all too sensitive here. With all the crap we put in our kids

bodies, why would anyone add to it with IV Chelation, when kids are dying left

and right, regardless how safe everyone says it is. That 's my argument.

I am struggling with what appears to be .... pointing fingers at certain

individuals. We need to stand as a TEAM IF WE ARE EVER GOING TO BE SUCCESSFUL

IN

SPREADING THE TRUTH HERE. We should probably think about keeping posts more

general other than getting clicky and pal-pal with certain individuals and

NOT with others ..........................................because feelings can

get hurt too!

Michele Cerruto

Mauldin, SC

[Guest guest]

In a message dated 5/17/2006 8:53:17 PM Central Standard Time,

RobRose@... writes:

I sit on an advisory board to a children's hospital that is creating an

autism treatment center.

Okay, what lucky city is getting an autism treatment center?

I just took my son to his primary care doctor on the base and he told me

" there is no increase in the numbers of kids with autism " and they " were all

just labeled mentally retarded before " and several other archaic thoughts.

What a blessing to at least get doctors together in one place that are past

Autism 101!

Sharon

[Guest guest]

You have been on this board for a couple of months now (I believe)

and gathered some info from us parents. I hope you get the dvd

and present it to your hospital board.

Can you share which children's hospital? Do you need

testimonials/data from patients or parents? Please understand the

concept behind is a disfunctional immune system. There are

many other doctors that test/treat the immune system in asd kids

without calling it . Some have posted to this board in the

past. Others are DAN doctors or have had some DAN

training/experience.

My son has done tremendous under the

antiviral/antifungal/antibiotic/ssri treatment. All of these meds

were used to treat something " Quantitatively " wrong is my son's

body. There is no subjectivity in the numbers.

Please please let the board at your hospital know about .

Thank you

> In a message dated 5/17/2006 6:35:54 PM Eastern Standard Time,

> Googahly@... writes:

> <<Any protocol that involves possible death is reason enough to

avoid it.>>

>

> So, I guess you will be avoiding the protocol since more

deaths have

> been linked to SSRIs than to any chelation drug. Rather than

> over-dramatizing

> reports of deaths due to drug mix-ups, (which are only semi-

related at best

> to

> this " competing " treatment), why don't we focus on how beneficial

is for

> kids and talk up the science behind it and its success stories?

Sure, we

> could scare a few parents away from the other doctors and possibly

help their

> kids

> in the long run, but wouldn't it be better to share the real

science and

> success of and ultimately help more parents and doctors to

want to use

> this

> treatment because it works?

>

> Ok, I'm done now. Think I need some chocolate, and maybe a

vacation.

> Gaylen

> Hi Gaylen and all list members:

>

> There are hundreds of thousands of people dying daily from drug

mixes: over

> the counter, prescriptions, including SSRI's, etc... When certain

drugs are

> mixed together whether over long or short periods of time there

is always a

> chance of poisoning to occur. And from what I came across today

it is the

> leading cause of death.

>

> What I don't understand, Gaylen is why you are assuming I am

bashing anyone,

> I am a parent who has been made a fool of and laughed at as we all

were at

> one time or another. I just can't understand that after all we

have been

> through, all of us here at @ , why we can't just stick

to the

> protocol, other than articles or newpapers or top topics of

conversation regarding

> " autism " .

>

> I think we are all too sensitive here. With all the crap we put

in our kids

> bodies, why would anyone add to it with IV Chelation, when kids

are dying left

> and right, regardless how safe everyone says it is. That 's my

argument.

>

> I am struggling with what appears to be .... pointing fingers at

certain

> individuals. We need to stand as a TEAM IF WE ARE EVER GOING TO

BE SUCCESSFUL IN

> SPREADING THE TRUTH HERE. We should probably think about keeping

posts more

> general other than getting clicky and pal-pal with certain

individuals and

> NOT with others ..........................................because

feelings can

> get hurt too!

>

> Michele Cerruto

> Mauldin, SC

>

>

>

[Guest guest]

Hi ,

Maybe I should officially introduce myself to this group. I have only known

about for a few months (it seems to be a bit of a well kept secret), but I

am spreading the word to my community (Phoenix, AZ). We have one child from our

city who will be coming to see Dr. G soon, and my cousin has scheduled to bring

her daughter from Oklahoma (epilepsy). I have posted the testing to our

local group and many are running the panels, but they are doing other things as

well. We are a very pro-active ASD community, and we have been bringing in

doctors from other states to treat our kids out of satelite clinics -- even

convincing some to become officially licensed in AZ. This keeps our local

doctors (DAN or otherwise) on their toes, as they know we will replace them if

they are not on the cutting edge (personally it is not the opinion of our local

group that DAN as a whole is on the cutting edge, but many of the parents

themselves are).

I have understood ASD as an immunity disorder from my first readings about it

(2.5 years ago when my own son was diagnosed), but do not see the huge

disagreement among the professionals that some in this group do. The heavy

metal theory is based on what is known about mercury -- that it is an

immunosupressant. When the mercury is removed, the immune system theoretically

can bounce back if it receives support (meds, herbs, and other agents). I have

no problem with a doctor not feeling comfortable with addressing the metals, but

instead going after the viruses. Kids are improving -- hooray! Doctors should

do what they believe is safe, but there are doctors who are comfortable treating

the metals along with the viruses because they believe that is also safe and

more effective. One of my son's physicians will put him on Valtrex if I really

push him, but would prefer TD-DMPS and anti-viral herbs because of their

outstanding safety record (his words) -- this is an ASD

doctor who was an ER doctor for 24 years prior to treating ASD. My son's

pediatrician will not touch the protocol. She and her sister and her

husband and her brother-in-law are all pediatricians and they reviewed it and

did not feel it was safe enough to recommend -- even though she diagnosed my son

with immune deficiency and referred him to a specialist to explore IVIG. I do

not know any chelating doctor that does not aggressively address the viruses,

and to be honest I wonder if many kids are not actually releasing metals as

viruses are treated. Recently there was a brief discussion about a change in

urine color during treatment (which is what a chelating doctor looks for

when he gives a chelating agent because the urine changes color when metals come

out -- confirmed my urine labs). If viruses and metals bind together as many

theorize, it is possible is in fact an indirect form of chelation (mild

chelation I would suspect). You won't know

unless you are testing the urine and stools while you follow the protocol. Who

knows -- maybe is even a better way to remove metals. Too bad doctors with

different but similar ideas don't ever share coffee together like parents do!

It is my experience that the parents are the only ones who can facilitate that.

I have forced my son's pediatrician, GI specialist, genetic specialist, ASD

specialist and toxicologist to all shake hands and play nice or they don't get

to stay on 's team. To my pleasure, they are all working together very

well.

One of the goals of our local non-profit (of which I am a founding board

member) is to help Phoenix Children's Hospital establish the treatment clinic.

I hope they embrace as a treatment option, but I hope they do not end

there. We have asked for more options and studies. Our group also does much

more than the PCH project -- that is a only piece of the puzzle.

Rather than personal testimonies, at this point I need data. It is

frustrating to me that I have found more useful info on through

Binstock's website than through itself, but please let me know if I am just

looking in the wrong place. Dr. G's office staff was not knowledgeable or

helpful in my phone conversations with them & the website needs to be updated.

I can't bring ASD treatment articles from the mid-to-late 90s into a

presentation. I will be laughed at! The office also told me to buy the DVD,

but it took me pushing and pushing for more info before the receptionist

remembered there even was a DVD! I was also told that Dr. G will not work with

other doctors (from his office staff). How strange -- mis-information I hope,

but it is coming from the person he entrusts to speak for him. This group is

helpful and I have flagged many postings that I am following up on as I collect

information to present.

I hope that explains my mission a bit to you and to this group. I am a bit

different from many of you I realize in my purpose for being on this board.

What further separates me from most with an ASD child is that we had the

difficult family situation of giving birth to a daughter with what is known as a

congenital diaphragmatic hernia and pulmonary sequestration 4 months after we

got the Autism diagnosis. She has beat the odds and survived, but has required

2 major surgeries and multiple hospitalizations. We were forced to suspend my

son's autism treatment and limit it to diet and a few helpful supplements while

we tended to my youngest daughter who turns 2 today. The benefit of this

dreadful situation was that we were only able to dedicate ourselves to testing

-- not treatment & therefore we did run just about every single test and explore

every single theory out there so that we could make an informed decision when

the time was appropriate to treat. What can I say

-- my son fits all of the theories! He has immune deficiency and he also has

the two 2 null alleles for glutathione production, which suggests his body

cannot rid itself of heavy metals. What treatment will we select? My husband

and I and the 5 doctors we have consulted the most are making that decision

jointly at the present time!

-

meljackmom <meljackmom@...> wrote:

You have been on this board for a couple of months now (I believe)

and gathered some info from us parents. I hope you get the dvd

and present it to your hospital board.

Can you share which children's hospital? Do you need

testimonials/data from patients or parents? Please understand the

concept behind is a disfunctional immune system. There are

many other doctors that test/treat the immune system in asd kids

without calling it . Some have posted to this board in the

past. Others are DAN doctors or have had some DAN

training/experience.

My son has done tremendous under the

antiviral/antifungal/antibiotic/ssri treatment. All of these meds

were used to treat something " Quantitatively " wrong is my son's

body. There is no subjectivity in the numbers.

Please please let the board at your hospital know about .

Thank you

> In a message dated 5/17/2006 6:35:54 PM Eastern Standard Time,

> Googahly@... writes:

> <<Any protocol that involves possible death is reason enough to

avoid it.>>

>

> So, I guess you will be avoiding the protocol since more

deaths have

> been linked to SSRIs than to any chelation drug. Rather than

> over-dramatizing

> reports of deaths due to drug mix-ups, (which are only semi-

related at best

> to

> this " competing " treatment), why don't we focus on how beneficial

is for

> kids and talk up the science behind it and its success stories?

Sure, we

> could scare a few parents away from the other doctors and possibly

help their

> kids

> in the long run, but wouldn't it be better to share the real

science and

> success of and ultimately help more parents and doctors to

want to use

> this

> treatment because it works?

>

> Ok, I'm done now. Think I need some chocolate, and maybe a

vacation.

> Gaylen

> Hi Gaylen and all list members:

>

> There are hundreds of thousands of people dying daily from drug

mixes: over

> the counter, prescriptions, including SSRI's, etc... When certain

drugs are

> mixed together whether over long or short periods of time there

is always a

> chance of poisoning to occur. And from what I came across today

it is the

> leading cause of death.

>

> What I don't understand, Gaylen is why you are assuming I am

bashing anyone,

> I am a parent who has been made a fool of and laughed at as we all

were at

> one time or another. I just can't understand that after all we

have been

> through, all of us here at @ , why we can't just stick

to the

> protocol, other than articles or newpapers or top topics of

conversation regarding

> " autism " .

>

> I think we are all too sensitive here. With all the crap we put

in our kids

> bodies, why would anyone add to it with IV Chelation, when kids

are dying left

> and right, regardless how safe everyone says it is. That 's my

argument.

>

> I am struggling with what appears to be .... pointing fingers at

certain

> individuals. We need to stand as a TEAM IF WE ARE EVER GOING TO

BE SUCCESSFUL IN

> SPREADING THE TRUTH HERE. We should probably think about keeping

posts more

> general other than getting clicky and pal-pal with certain

individuals and

> NOT with others ..........................................because

feelings can

> get hurt too!

>

> Michele Cerruto

> Mauldin, SC

>

>

>

[Guest guest]

Hi Sharon,

Because my non-ASD daughter is a surgical/pulmonary/GI patient at Phoenix

Children's Hospital and I was so impressed with the team approach to her

treatment, I asked anyone at PCH who would listen why my son could not also

receive a team approach to his treatment as well. I educated the doctors about

ASD and invited them to a case presentation of my son (that I presented!). I

then invited an ASD researcher at ASU and a mother of a recovered child to make

a joint presentation with me (in March of this year) to neurology, psych,

genetics, GI, developmental and anyone else who was interested. We had 4 times

the attendance we hoped for. Our goal was to close the meeting with an

agreement to establish a parent advisory board to advise the hospital on how to

proceed further. Instead we ended the meeting with one psychologist proclaiming

that our goal should be to establish the premere autism treatment center in the

SW and the chief of neurology (an older man) declaring

that he had just decided he would not retire until this happened. I also made

a presentation to their child life staff with another mom about how they could

be more helpful to ASD kids both in-patient and out-patient. The highlight was

when we introduced them to a recovered 7 YO who was very entertaining as he

answered their questions! Beginning this month, we (me and other parents

another mother and I selected) now meet monthly with an assigned staff liasion.

We are advising them on what treatments we want and backing it up with whatever

university studies and/or clinical experience is available. They even gave us a

tiny budget, security badges to enter without checking in and we will have an

audience with the CEO and his staff near the end of this year. We do not yet

have a date for an official clinic opening, but what we do have is a GI doctor

who is now consulting with Dr. Krigsman in Texas on all ASD kids, a new

manditory 24-hour EEG policy on ASD kids (no more

2-hour EEGs), psychologists waiting to receive RDI training from the

Connections Center in Houston, and doctors in all fields willing to collaborate

the unusual findings on ASD kids to name a few accomplishments.

I am not boasting, but I did this single-handedly -- although I now have lots

of help. It is possible for any parent to accomplish this in their city. All

you need to do is find one insider who will listen and they will find you all of

the others who will get involved. In my case that one person was a community

outreach nurse who spoke with the nurse manager of neurosciences, and it all

started moving forward from there. I also took my son to pretty much every

specialist they had right down to opthamology so that I could give my sales

pitch and enlist doctors' support. It was worth it on every front -- my son

benefitted from all of the testing, and this hospital is mini-disneyland in his

eyes so he did not complain (outdoor playground courtyard, trees that play

musical notes when you tough the branches, visits by big monster trucks & they

let the kids climb them, etc.)!

In my mind, it is not enough to have a few lucky kids who receive treatment --

it must be available to each and every child & in the coming years that will be

the reality in Phoenix (because I am not going to " retire " either until it

does!).

-.

Aut2BMiracles@... wrote:

In a message dated 5/17/2006 8:53:17 PM Central Standard Time,

RobRose@... writes:

I sit on an advisory board to a children's hospital that is creating an

autism treatment center.

Okay, what lucky city is getting an autism treatment center?

I just took my son to his primary care doctor on the base and he told me

" there is no increase in the numbers of kids with autism " and they " were all

just labeled mentally retarded before " and several other archaic thoughts.

What a blessing to at least get doctors together in one place that are past

Autism 101!

Sharon

[Guest guest]

I have to chime in and agree with this specific

statement - because I tend to be a very diplomatic

person and feel that we could express our

disagreements kindly, backing it with sound

explanations and research - without hurting feelings,

offending people, and driving them away. I feel that

every person driven away is a person who may lose

access to valuable information. I latched onto

with whole-hearted faith and enthusiasm because it

matched my entire life history so completely and I had

experienced it so " by the book " as described, I have

had very little reason to doubt a word out of Dr

Goldberg's mouth - there is no other place that I have

found that explained in clear detail everything I have

been through. But for me to fully understand the big

picture, I had to study and read obsessively and

endlessly for two years, and also had weekly access to

Dr Goldberg for every question that arose. But I know

not everyone has had such a specific " ah-ha " moment

like I did when reading .

On the other side, because of that access to Dr

Goldberg in chats and during consults, I also

understand Dr Goldberg's 'firm' and very strong

personality, passion, anger, frustration, the same

thing that can come off as very offensive to most -

and I also firmly believe that it is that personality

type that has given him the personal strength to stand

his ground, treat these kids aggressively, and develop

a very clear direction. It is amazing how his

direction has never changed. While the refusal to

discuss other therapies on this list seems to be rigid

and unyielding to new people, it is due to a very high

level of confidence, not to mention the fact that he

is already quite aware of the effects of most of these

recycled ideas - something I expect from the man I

turned my children over to. His confidence is a

strength in my opinion. We simply cannot dictate the

type of personality included in the mind of the man

who has put forth out there the strongest most

supported hypothesis and most specific treatment plan

for our kids. And he simply never will be looking for

the magic supplement and natural herb to fix our kids

.... he is looking to research the new immune

modulators that already exist and are being studied in

adults. And his mentors have stellar reputations and

experience that he draws from, and people assume that

this is coming only from one man.

I just don't think everyone who reads the list can

understand that and have the total faith in him that I

and many of us do. But I don't get offended by them

questioning ... I instead feel an almost religious

urge to " bring them over " to our side and thinking -

but not by offending - rather educating to the best of

my ability. Unfortunately, I just don't have the

amount of mental energy. If I could write a book that

could lay out all the knowledge and research that

supports this, I would. If I could design the perfect

website that puts all of this at everyone's

fingertips, I certainly would. If any of us could and

had the time and resources, we would. In the

meantime, we could patiently address people's

questions the best we can as parents - I think we just

get really weary of it. I just hope that in the end,

and in the near future, research will come together

and get published to get this all backed up. We're

all so ready!

And we're all human.

--- Googahly@... wrote:

others, including Dr. Goldberg.

> I usually bristle a bit when I hear or read them but

> ignore them and move on.

> However, having worked in public relations and

> knowing how such a thing can

> really turn off the very people you are trying to

> reach, I thought it would be

> worthwhile for me to share my thoughts. Sorry if

> they were too hormonal -- I

> have my chocolate now so will go back to lurking

> again.

> Gaylen

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

The current " spirited " discussion is very timely! Just yesterday,

another list that I sub to, reinforced it's own purpose via it's mission

statement. To paraphrase that list's statement as it relates to this

list: remember that this is not a " general autism discussion " list. It

is NOT a place to debate differing approaches to treatment. It IS a

place to find support and to gather information pertaining specifically

to the approach.

While it is inevitable that we will wander from our stated focus from

time to time, I'd also like to everyone to remember that it can be done

in a non-confrontational way. We ARE all here for the same reason, for

the same purpose.

We want our children to be well. And we will not rest until they are.

Sandy

[Guest guest]

by the way, there are many other good doctors out there who are helping our

children. some of you need to get out more and see what's going on in the

world.

vicki

[Guest guest]

Perhaps it wasn't intended as such, but a statement like this could be

viewed as terribly insulting to the hardworking parents on this list.

Since you've joined just recently, I suggest that you review the

archives. I promise you, our parents do " see what's going on in the

world. " For many, that is precisely the reason we are here.

Sandy

vickila1@... wrote:

> by the way, there are many other good doctors out there who are

> helping our

> children. some of you need to get out more and see what's going on in

> the

> world.

>

> vicki

>

>

>

[Guest guest]

Sandy and others

I can kind of see where Vicki is coming from in her statement. I have

met only one other mom on for instance a group. I belong to

many many many autism . I don't think her intention was to

sound judgemental or condescending but to state that the " voice "

by fellow parents is not heard on other list servs. From my experience

in the past eight months of being on various list servs, I agree with

this opinion.

I would also like to add that there are other doctors in the DAN

movement that do make mention of , such as Dr McCandless in

Children with Starving Brains. Binstock (?) was a great

contributor to this book and also is a wonderful researcher whose

contributions have been mentioned on this listserv as well. A father

with a child who was labeled autistic used a " variation " of the

protocol to help his son. He used a specific diet, methyl b12 nasal

spray (in lieu of SSRI's), and an anti viral, Valtrex. This father is

local to Southern California and also began a listserv helping others.

Kristie

mommy to Aidan 2.11

[Guest guest]

Hi Kristie,

I'm on another list with you (you told me about the list) and I think

it *might* be helpful to share more info about on there. What do you

think?

Kristy

Re: - A joint effort FOR US ALL !!

Sandy and others

I can kind of see where Vicki is coming from in her statement. I have

met only one other mom on for instance a group. I belong to

many many many autism . I don't think her intention was to

sound judgemental or condescending but to state that the " voice "

by fellow parents is not heard on other list servs. From my experience

in the past eight months of being on various list servs, I agree with

this opinion.

I would also like to add that there are other doctors in the DAN

movement that do make mention of , such as Dr McCandless in

Children with Starving Brains. Binstock (?) was a great

contributor to this book and also is a wonderful researcher whose

contributions have been mentioned on this listserv as well. A father

with a child who was labeled autistic used a " variation " of the

protocol to help his son. He used a specific diet, methyl b12 nasal

spray (in lieu of SSRI's), and an anti viral, Valtrex. This father is

local to Southern California and also began a listserv helping others.

Kristie

mommy to Aidan 2.11

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

Hi there Kristy

Actually on that board someone did bring up without stating Dr

Goldberg's name. I responded and did mention his name and said I am

trying to get an appointment with him for the first time (paperwork is

in awaiting letter hopefully this week for me to turn in again!!!).

Anyways the response I got was a bit...non supportive I would say.

There was only one or two responses but they both (besides original

supporter post) not very supportive of the comments I made.

I haven't seen Dr Goldberg yet but when I do and see how things go I

definitely plan to let others know on all the listservs I am on. I can

guarantee I will have " your back " if you want to post about how

and Dr Goldberg has helped you and your son!!! You can be sure of that

Kristy!!

Kristie

mommy to Aidan 2.11