Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Are some children treated for autism with both the protocol and chelation? If so, is it usually with the same doctor, or a different doctor for each type of therapy? Thank you, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Hi Kristy, I don't know of any doctor following the protocol who would encourage chelation. Why? Well possibly without knowing it, hit the nail on the head in one of her posts when she said that children treated for may eliminate the metals in their system by themselves. This is precisely what happens. This makes safer or at least more effective than chelation because our kids' bodies are processing these metals when they are ready. The metals got stored up in their bodies because their bodies didn't know what to do with them while their immune systems were not functioning properly. When the viruses are treated and the immune system gets stronger, our kids' bodies will seek out and eliminate the metals stores in their bodies when their bodies are ready to do this. I can't emphasize how neat this is. If you chelate when the body isn't ready to " deal with " the metals, the metals will simply get stashed someplace else, maybe someplace really really bad (like the brain!). By letting our kids's bodies find and take care of metals in their own time, you ensure that the metal won't just move around in their system and get stashed somewhere else. This, more than some opposition to chelating chemicals, is why I personally think that the approach is the safer and yes, smarter way to go. God made our bodies really smart and when it is functioning the way it should once the immune system is restored, our own natural systems will know what to do. I hope this helps you understand the /chelation debate. I know it can be a heated topic, but I don't think it needs to be. Just know that does not ignore the metals problem that many of our kids have, it simply has a different approach. Sincerely, April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 My son completed chelation before starting treatment with Dr. Goldberg so at least in our case he did not refuse to see a child just because of chelation. I'm sure he would take it on a case by case basis. In our case, we had an identified exposure from MSMA spraying on a golf course where we lived. Our whole family was treated through a doctor experienced in metals toxicity well before the DAN doctors started doing this treatment. The methods we used were different from the approach that is currently used in many cases of autism. He spent a great deal of time during our initial consult discussing his thoughts about chelation. Since I tape recorded our consult, I was able to refer back to it many times to try to determine exactly what his problem with chelation is. He clearly believes that it can cause brain damage and is not needed in most of the cases unless there was a clear exposure and the testing was done at a reputable hospital. Even then, he firmly believes that getting the body healthier will help it eliminate metals on its own. During that consult, he talked about an adult patient with clear-cut mercury poisoning prior to starting who later did not test to be toxic in mercury after a year or so into . I did not ask him to elaborate on what type of testing so cannot comment on that. His concerns, as best I've been able to gather, are about redistributing the metals to areas where they will do more harm and de-mineralizing the body during the process. Both are valid concerns and need to be monitored carefully if a person needs to chelate due to metals poisoning. While I truly believe that we needed to go through chelation and all benefitted from it, I personally would not recommend that chelation and be done together (at the same time). Since the goal is to try to get the immune system as cooled down and balanced as possible, I can understand how chelating at the same time you're doing this approach would be very counter-productive. When you chelate, you go through many periods where the body is less balanced and actually can get stressed as the metals are being pulled out. He did say that he found it much more difficult to stabilize a child with the protocol if they had gone through chelation. Fortunately, this was not the case for my son. I could never get a clear answer as to why but I suspect that it may have been that either the kids who had chelated and then moved to were those who did not respond well to chelation so may be more difficult cases anyway; did not complete chelation and perhaps did have some redistribution or damage along the way; or had parents who were more likely to add other things to their child's protocol without Dr. Goldberg's knowledge so the results were skewed. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 I just wanted to throw in here, in response to the general conversation, that I believe I remember Dr. Goldberg saying that he will not treat kids who are being chelated and that in the past he has found that children who have been chelated prior to seeing him do not seem to respond as well to the treatments. If I remember correctly, he said that he feared that might indicate that these children had been damaged by the chelation. If anyone remembers the source of these comments please feel free to add to my comments... maybe it was the old video. I can't seem to find it in any of the articles on his website. I'm not trying to start an argument here but merely throwing in what I remember Dr. G's comments to be on this subject. Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 This is the kind of stuff that stops conversations. I hear things like this on other boards about SSRI's causing brain damage. Really, I should just stop trying, really, I should. Egos abound. Re: and Chelation I just wanted to throw in here, in response to the general conversation, that I believe I remember Dr. Goldberg saying that he will not treat kids who are being chelated and that in the past he has found that children who have been chelated prior to seeing him do not seem to respond as well to the treatments. If I remember correctly, he said that he feared that might indicate that these children had been damaged by the chelation. If anyone remembers the source of these comments please feel free to add to my comments... maybe it was the old video. I can't seem to find it in any of the articles on his website. I'm not trying to start an argument here but merely throwing in what I remember Dr. G's comments to be on this subject. Caroline Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute and/or the Parent Coalition. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Dr. Goldberg saying that he will not treat kids who are being chelated and that in the past he has found that children who have been chelated prior to seeing him do not seem to respond as well to the treatments. If I remember correctly, he said that he feared that might indicate that these children had been damaged by the chelation. If anyone remembers the source of these comments please feel free to add to my comments... maybe it was the old video. I can't seem to find it in any of the articles on his website. _________________________________________________ Caroline and other Nids Members: I also remember Dr. Goldberg saying this. I have attended 2 seminars: one in Fort Worth, TX and the other in Tupelo, MS, and there is much information regarding the possible dangers that chelation can have on a human body both immediate and in THE FUTURE. On this DVD from Tupelo, MS... WHICH Sandy recently posted. Correct me if I am wrong, but I understood that the negative effects Chelation Therapy may cause may NOT ALWAYS BE present at first, but may APPEAR at a later TIME. I know 5 years ago it was very difficult to present the idea that the immune system and viruses had anything to do with " Autism " , and the information was unheard of and not even receptive to certain physicians to look at. And really no matter how well-prepared you were AND/OR how pretty / handsome you appeared...you were looked at and thought of as an unrealistic mom with very good intentions. Thank God this is changing today and Thank God the New Moms and Dads WILL NOT have to go through the 5, 10,15 or EVEN 20 years some of us had to. Times are changing. This is a group and any newcomer that joins and hears Chelation Therapy spoken about AS OFTEN AS IT HAS BEEN... will be confused. The concept is now being recognized by top neurologists and researchers/scientists via JHU and NCU and many other Universities that have nothing to do with the Board. This is factual science and logical, sensible information that Dr. Goldberg and his mentors have been trying to bring about public awareness through out the USA and abroad. My heart truly goes out to any parent still suffering this moment not knowing what to do ... but Thanks to Dr. Goldberg and his mentors and other great physicians, we are finally coming to the point where the children will help the help the moment they come into the world. And an awesome chance to live a productive life each and every one of us deserves. Thanks for Listening !! Michele Cerruto. Mauldin, SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 , I'm sorry what I wrote bothers you, but you must agree that it is important for those following this list to understand what is part of " " treatments and what is not. Many follow this board to decide whether or not to take their children to Dr. Goldberg... and they deserve to know his opinion on the subject. That is why they are here. Caroline > From: Cochran <Ladyshrink111@...> > Reply-< > > Date: Sat, 20 May 2006 13:13:48 -0400 > < > > Subject: Re: Re: and Chelation > > This is the kind of stuff that stops conversations. I hear things like this on > other boards about SSRI's causing brain damage. Really, I should just stop > trying, really, I should. Egos abound. > > > Re: and Chelation > > > I just wanted to throw in here, in response to the general conversation, > that I believe I remember Dr. Goldberg saying that he will not treat kids > who are being chelated and that in the past he has found that children who > have been chelated prior to seeing him do not seem to respond as well to the > treatments. If I remember correctly, he said that he feared that might > indicate that these children had been damaged by the chelation. > > If anyone remembers the source of these comments please feel free to add to > my comments... maybe it was the old video. I can't seem to find it in any > of the articles on his website. > > I'm not trying to start an argument here but merely throwing in what I > remember Dr. G's comments to be on this subject. > > Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 I'm not sure what you mean about comments that stop conversations. The treatment protocol does not include chelation. Some on the list have tried to explain their perspectives on why. While I don't want to make any topic on this list taboo, but I also have concerns that the chelation discussion is rapidly approaching debate status. Just to reiterate, the list is a support list for families either doing the protocol, or considering the protocol. It is not a place to debate other treatments, either alternative nor augmentive, though it is perfectly expected that such topics will come up from time to time in the normal course of discussion. Thank you, Sandy Cochran wrote: > This is the kind of stuff that stops conversations. I hear things like > this on other boards about SSRI's causing brain damage. Really, I > should just stop trying, really, I should. Egos abound. > > > Re: and Chelation > > > I just wanted to throw in here, in response to the general conversation, > that I believe I remember Dr. Goldberg saying that he will not treat > kids > who are being chelated and that in the past he has found that > children who > have been chelated prior to seeing him do not seem to respond as > well to the > treatments. If I remember correctly, he said that he feared > that might > indicate that these children had been damaged by the chelation. > > If anyone remembers the source of these comments please feel free to > add to > my comments... maybe it was the old video. I can't seem to find it > in any > of the articles on his website. > > I'm not trying to start an argument here but merely throwing in what I > remember Dr. G's comments to be on this subject. > > Caroline > > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 isoaa@... wrote: This is a group and any newcomer that joins and hears Chelation Therapy spoken about AS OFTEN AS IT HAS BEEN... will be confused. Speaking as a newcomer to can I only say this... OUCH! How insulting. I guess " newcomer to " means we just walked out the door from the diagnosing physician and arrived directly here with blankets pulled tightly over our heads so that our virgin ears would never hear about the che------ controversy that is on the web, television, newspapers, bookstores, etc. In the recent week, I have gained an enormous amount of valuable information and respect for those who have provided and explained it. The conversation about metals and how views the metal issue has been enlightening and more than makes up for the fact that no one answered the questions I initially asked about when I first joined this listserve (which is why I did not post much until recently). Discussing and learning is part of the process of becoming LESS confused about the very confusing diagnosis of autism and trying to keep people from doing this is controlling and just plain wrong IMO. Thank you to all of you who have taken time from your busy lives to join in the discussion with me and also to those who e-mailed me off-list. Michele, although I have not appreciated some of your comments (or really I just don't understand what is behind them), I do appreciate your passion. To me, however, it appears as if you are preaching to the choir. If people have found their way to (which is half the battle BTW -- it took this internet junkie 2.5 years to even find such a concept of ), they are already following the protocol or exploring the theory. If they are exploring the theory, they need to explore other theories as well so that they can compare, contrast and decide. If after following the protocol to a " T " they find it doesn't work for their child, at least they will know about other interventions available if they are allowed to be discussed on this list. Instead of preaching to this choir -- how about also joining ASD listserves unrelated to so that you can post your child's success and explain the theory to outsiders. I assume your child is recovered based on your posts & people need to hear recovery stories outside of this group. I said it once before and I'll say it again, is a well kept secret in the world of ASD treatment. What a shame. - --------------------------------- Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Oh no it is not like that at all! I think there is a fine line between people searching for answers and people coming on the list and challenging the protocol. Sometimes you are not sure what someone else is trying to do. In parents searching for answers and understandings they also challenge the concepts of and ask why chelation is not supported by Dr Goldberg. People can either agree or disagree with the reasons behind Dr G's view of chelation, but it is what it is...not a part of the protocol, viewed more harmful than helpful and is not part of the treatment. I think it is great you and others joining this list and gathering the info. Sometimes some of us parents that have been around awhile get tired of feeling like we are " defending " the protocol. AND we also know it is not perfect and for many reasons some things work for kids and others don't. This is a group and any newcomer that joins and hears Chelation Therapy > spoken about AS OFTEN AS IT HAS BEEN... will be confused. > Speaking as a newcomer to can I only say this... OUCH! > > How insulting. I guess " newcomer to " means we just walked out the door from the diagnosing physician and arrived directly here with blankets pulled tightly over our heads so that our virgin ears would never hear about the che------ controversy that is on the web, television, newspapers, bookstores, etc. > > In the recent week, I have gained an enormous amount of valuable information and respect for those who have provided and explained it. The conversation about metals and how views the metal issue has been enlightening and more than makes up for the fact that no one answered the questions I initially asked about when I first joined this listserve (which is why I did not post much until recently). > > Discussing and learning is part of the process of becoming LESS confused about the very confusing diagnosis of autism and trying to keep people from doing this is controlling and just plain wrong IMO. > > Thank you to all of you who have taken time from your busy lives to join in the discussion with me and also to those who e-mailed me off-list. Michele, although I have not appreciated some of your comments (or really I just don't understand what is behind them), I do appreciate your passion. To me, however, it appears as if you are preaching to the choir. If people have found their way to (which is half the battle BTW -- it took this internet junkie 2.5 years to even find such a concept of ), they are already following the protocol or exploring the theory. If they are exploring the theory, they need to explore other theories as well so that they can compare, contrast and decide. If after following the protocol to a " T " they find it doesn't work for their child, at least they will know about other interventions available if they are allowed to be discussed on this list. > > Instead of preaching to this choir -- how about also joining ASD listserves unrelated to so that you can post your child's success and explain the theory to outsiders. I assume your child is recovered based on your posts & people need to hear recovery stories outside of this group. I said it once before and I'll say it again, is a well kept secret in the world of ASD treatment. What a shame. > > - > > > > > > --------------------------------- > Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 This is a group and any newcomer that joins and hears Chelation Therapy > spoken about AS OFTEN AS IT HAS BEEN... will be confused. > Speaking as a newcomer to can I only say this... OUCH! > > How insulting. I guess " newcomer to " means we just walked out the door from the diagnosing physician and arrived directly here with blankets pulled tightly over our heads so that our virgin ears would never hear about the che------ controversy that is on the web, television, newspapers, bookstores, etc. > > In the recent week, I have gained an enormous amount of valuable information and respect for those who have provided and explained it. The conversation about metals and how views the metal issue has been enlightening and more than makes up for the fact that no one answered the questions I initially asked about when I first joined this listserve (which is why I did not post much until recently). > > Discussing and learning is part of the process of becoming LESS confused about the very confusing diagnosis of autism and trying to keep people from doing this is controlling and just plain wrong IMO. > > Thank you to all of you who have taken time from your busy lives to join in the discussion with me and also to those who e-mailed me off-list. Michele, although I have not appreciated some of your comments (or really I just don't understand what is behind them), I do appreciate your passion. To me, however, it appears as if you are preaching to the choir. If people have found their way to (which is half the battle BTW -- it took this internet junkie 2.5 years to even find such a concept of ), they are already following the protocol or exploring the theory. If they are exploring the theory, they need to explore other theories as well so that they can compare, contrast and decide. If after following the protocol to a " T " they find it doesn't work for their child, at least they will know about other interventions available if they are allowed to be discussed on this list. > > Instead of preaching to this choir -- how about also joining ASD listserves unrelated to so that you can post your child's success and explain the theory to outsiders. I assume your child is recovered based on your posts & people need to hear recovery stories outside of this group. I said it once before and I'll say it again, is a well kept secret in the world of ASD treatment. What a shame. > > - > > > > > > --------------------------------- > Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 In a message dated 5/21/2006 3:49:47 AM Eastern Standard Time, RobRose@... writes: Instead of preaching to this choir -- how about also joining ASD listserves unrelated to so that you can post your child's success and explain the theory to outsiders. I assume your child is recovered based on your posts & people need to hear recovery stories outside of this group. I said it once before and I'll say it again, is a well kept secret in the world of ASD treatment. What a shame. - , My daughter is far from recovered. We are one of the older patients here. I have been around since very early 2000. My daughter is in that PSA on the Home Page of .net. Lindsey was 7 when she finally got in to see Dr. Goldberg. And she was classified severe on the spectrum. She is starting to talk more now and things are moving along better now, but unfortunately she had some traumatic events in a public school for extensive periods, at the same time she began with Dr. Goldberg. She is by no means recovered and mainstreamed. I am still fighting with every breath to get her re-tested, re-evaluated and a fresh start and to remove some of this stigma attached to her school records- " A " . I just moved from outside Manhattan to SC for this fresh start. The people here are very compassionate and very concerned about the welfare of their children and other children. We have worked hard at remaining a group that stands together and helps other parents. Please try to understand that we just feel very strongly because of our own medical conditions. The children are ill not by themselves, but from their parents. So now let me try to explain that I have joined and participating in other online groups. I am still a part a few. And just knowing I was passing information along that was factual and dependent upon Lab results; helped me to cope better with my own situation. It was very hard for me to drop my daughter off at school, knowing the other children weren't getting the help they needed. It still bothers me to this day. couldn't be too well kept of a secret if it was being discussed via . OH & by the way....I was not referring to the intelligence of any person, actually I know that if you are a parent with a child diagnosed with that " A " word , you must be intelligent, strong and a survivor. God doesn't allow just anyone to care for Special Children. Lastly, if I could take back my words that caused pain, I would have already done that. Sorry you feel so disappointed here, but we are really a great group and I hope you do decide to remain a part. Sincerely, Michele Cerruto. Mauldin, SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Michele, I now understand why a few people on this board reacted in the way they did to my questions and desire to compare the different theories out there (which is just part of my learning style). If it is a common thing for people to join this group just to bash and try to prove that something out there is better, obviously people raise their defenses and maybe over react. Mostly I feel misunderstood. Here I am the last of the " holding out for something better than chelation " moms in my own autism community and I am looked at as some kind of chelating know-it-all trying to convince others to abandon ! This is the first year I have even been able to consider chelation because I thought I was out of options & then I discover this concept, so it gives me hope. Hope that explains things better, and thank you for your kind post. - > > In a message dated 5/21/2006 3:49:47 AM Eastern Standard Time, > RobRose@... writes: > Instead of preaching to this choir -- how about also joining ASD listserves > unrelated to so that you can post your child's success and explain the > theory to outsiders. I assume your child is recovered based on your posts & > people need to hear recovery stories outside of this group. I said it once > before and I'll say it again, is a well kept secret in the world of ASD > treatment. What a shame. > > - > > , My daughter is far from recovered. We are one of the older patients > here. I have been around since very early 2000. My daughter is in that PSA > on the Home Page of .net. Lindsey was 7 when she finally got in to see Dr. > Goldberg. And she was classified severe on the spectrum. She is starting to > talk more now and things are moving along better now, but unfortunately she > had some traumatic events in a public school for extensive periods, at the same > time she began with Dr. Goldberg. > > She is by no means recovered and mainstreamed. I am still fighting with > every breath to get her re-tested, re-evaluated and a fresh start and to remove > some of this stigma attached to her school records- " A " . I just moved from > outside Manhattan to SC for this fresh start. > > The people here are very compassionate and very concerned about the > welfare of their children and other children. We have worked hard at remaining a > group that stands together and helps other parents. Please try to understand > that we just feel very strongly because of our own medical conditions. The > children are ill not by themselves, but from their parents. > > So now let me try to explain that I have joined and participating in other > online groups. I am still a part a few. And just knowing I was passing > information along that was factual and dependent upon Lab results; helped me to > cope better with my own situation. It was very hard for me to drop my daughter > off at school, knowing the other children weren't getting the help they > needed. It still bothers me to this day. > > couldn't be too well kept of a secret if it was being discussed via > . > > OH & by the way....I was not referring to the intelligence of any person, > actually I know that if you are a parent with a child diagnosed with that " A " > word , you must be intelligent, strong and a survivor. God doesn't allow just > anyone to care for Special Children. > > Lastly, if I could take back my words that caused pain, I would have already > done that. Sorry you feel so disappointed here, but we are really a great > group and I hope you do decide to remain a part. > > Sincerely, > > Michele Cerruto. > Mauldin, SC > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 He does *not* in any way, shape or form approve of chelation. The side effects of the meds really depend on the child as they all react differently. Side effects are generally not tolerated by Dr. G and if they are showing side effects, he will act. But he monitors blood regularly and expects you to keep him very well informed of what is going on. My son has only reacted negatively to something once (and that's after being on the protocol for 1.5 years) and it was immediately changed. Each child is different and how they will react to things will be different. One child may do great on Valtrex, another may not. You still have to go through die off and there is a distinction between die off and side effects. Cheryl On Apr 16, 2008, at 4:20 PM, Natalia Ibbott wrote: > We are new to the list and wondering what Dr. G does about chelation? > Also what are the side effects to the meds he using? We have 4 yo son > and doing mostly natural stuff and herbs for now > Thank you for all answears > Natalia > > > Quote Link to comment Share on other sites More sharing options...
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