Re: 2 year cure?

[Guest guest]

I was going to ask the same question...Dr. Goldberg has never, ever

used the word " cure " in any conversation, in any of his writing that I

know of...The only thing I can think of is that he HAS said it takes

an average of two years to get a child's health restored. But even

then, most children continue to need maintenance medication and most

continue to need behavioral/educational intervention. The success

stories that have been shared on this list -- and several are for ASD,

not just ADHD (just ask Marcia!) -- are most accurately described as

*recoveries*, not cures.

Donna

>

> I was curious who told you your son would be cured in two years? I

was never told anything like that. Dr G said he can't promise me

anything only that he would promise not to harm him. I hang on to the

recovery stories for hope and if I look at the big picture my son is

way better then when we started. The up and down ride however can be

discouraging but I findk just the hope of him getting a little better

each year keeps me going. Jerri

>

>

>

> 1f. Re: A gentle reminder

> Posted by: " catherine quinn " quinn.cat1968@... quinn.cat1968

> Date: Fri Jun 9, 2006 8:11 am (PDT)

>

> We have been doing the protocal for 7yrs. I was told in 2 yrs my son

would be cured.

> I WAS TOLD I WILL CURE YOUR SON IN 2 YRS.....IT DID NOT HAPPEN

> That never happened....it never will....he will always be severely

affected by AUTISM.

> We have taken every med, dietary intervention, therapy under the

protocal, blood test,, brain scan....he is a severely disabled young

man, left non-verbal, and will never, ever be cured.

>

> I do not say that with bitterness. I have heard a million times

" we are really close " but there is as of yet any pharmaceutical

company on board. I ignore the " WE ARE REALLY CLOSE STATEMENTS "

>

> For right now, this is as good as it gets. The helps, yes,

his life would be alot worse....but please don't preach you will cure

these kids....it hasn't happened yet, and to say so only gives hope in

miracles, that really are not ready to happen.

>

> For ADHD/Nids kids, is this a cure....yes, but for severely

affected Autism/Nids...no, it helps tremendously but not a cure. I

hope that statement. Your son will be cured in 2yrs is no longer used.

It broke my heart....I should never have been told that.

>

> If parents find other treatments that are helpful, and are not

harmful good...leave them alone...and let them share information. I

don't think anyone has the right to beat people up over therapies that

might be helpful.

>

> Cat

>

[Guest guest]

we were told that, and yes he himself told us that...me and my husband....also

my friend whose son is severely autistic was also told he would be cured in one

year

if your kid is adhd, asperger, you may get the " cure " but severely autistic

no.....

as I said, I am not bitter.although I will tell you, I had such raised hopes

only to have my heart broken again, it really killed me...when I realized for

sure, I was never going to get my son back as a whole person.

my point is the nids drugs help, but I don't believe anyone who is looking

into other treatments should be shut out.

I am still doing this protocal, despite the original promises, because it does

make some things better.

its not a cure, but it helps....at the same time, other parents are also

finding " other things that work " . I have respect for everyone who is trying to

help their child get better.

cat

.

Jerri Gann <njgann@...> wrote:

I was curious who told you your son would be cured in two years? I was

never told anything like that. Dr G said he can't promise me anything only that

he would promise not to harm him. I hang on to the recovery stories for hope and

if I look at the big picture my son is way better then when we started. The up

and down ride however can be discouraging but I findk just the hope of him

getting a little better each year keeps me going. Jerri

1f. Re: A gentle reminder

Posted by: " catherine quinn " quinn.cat1968@... quinn.cat1968

Date: Fri Jun 9, 2006 8:11 am (PDT)

We have been doing the protocal for 7yrs. I was told in 2 yrs my son would be

cured.

I WAS TOLD I WILL CURE YOUR SON IN 2 YRS.....IT DID NOT HAPPEN

That never happened....it never will....he will always be severely affected by

AUTISM.

We have taken every med, dietary intervention, therapy under the protocal, blood

test,, brain scan....he is a severely disabled young man, left non-verbal, and

will never, ever be cured.

I do not say that with bitterness. I have heard a million times " we are really

close " but there is as of yet any pharmaceutical company on board. I ignore the

" WE ARE REALLY CLOSE STATEMENTS "

For right now, this is as good as it gets. The helps, yes, his life would

be alot worse....but please don't preach you will cure these kids....it hasn't

happened yet, and to say so only gives hope in miracles, that really are not

ready to happen.

For ADHD/Nids kids, is this a cure....yes, but for severely affected

Autism/Nids...no, it helps tremendously but not a cure. I hope that statement.

Your son will be cured in 2yrs is no longer used. It broke my heart....I should

never have been told that.

If parents find other treatments that are helpful, and are not harmful

good...leave them alone...and let them share information. I don't think anyone

has the right to beat people up over therapies that might be helpful.

Cat

__________________________________________________

[Guest guest]

I was told by a different, well meaning doctor, " by the time he is 5, no body

will ever know he once had autism. " It happens too often.

-

catherine quinn <quinn.cat1968@...> wrote:

we were told that, and yes he himself told us that...me and my

husband....also my friend whose son is severely autistic was also told he would

be cured in one year

if your kid is adhd, asperger, you may get the " cure " but severely autistic

no.....

as I said, I am not bitter.although I will tell you, I had such raised hopes

only to have my heart broken again, it really killed me...when I realized for

sure, I was never going to get my son back as a whole person.

my point is the nids drugs help, but I don't believe anyone who is looking into

other treatments should be shut out.

I am still doing this protocal, despite the original promises, because it does

make some things better.

its not a cure, but it helps....at the same time, other parents are also finding

" other things that work " . I have respect for everyone who is trying to help

their child get better.

cat

..

Jerri Gann <njgann@...> wrote:

I was curious who told you your son would be cured in two years? I was never

told anything like that. Dr G said he can't promise me anything only that he

would promise not to harm him. I hang on to the recovery stories for hope and if

I look at the big picture my son is way better then when we started. The up and

down ride however can be discouraging but I findk just the hope of him getting a

little better each year keeps me going. Jerri

1f. Re: A gentle reminder

Posted by: " catherine quinn " quinn.cat1968@... quinn.cat1968

Date: Fri Jun 9, 2006 8:11 am (PDT)

We have been doing the protocal for 7yrs. I was told in 2 yrs my son would be

cured.

I WAS TOLD I WILL CURE YOUR SON IN 2 YRS.....IT DID NOT HAPPEN

That never happened....it never will....he will always be severely affected by

AUTISM.

We have taken every med, dietary intervention, therapy under the protocal, blood

test,, brain scan....he is a severely disabled young man, left non-verbal, and

will never, ever be cured.

I do not say that with bitterness. I have heard a million times " we are really

close " but there is as of yet any pharmaceutical company on board. I ignore the

" WE ARE REALLY CLOSE STATEMENTS "

For right now, this is as good as it gets. The helps, yes, his life would

be alot worse....but please don't preach you will cure these kids....it hasn't

happened yet, and to say so only gives hope in miracles, that really are not

ready to happen.

For ADHD/Nids kids, is this a cure....yes, but for severely affected

Autism/Nids...no, it helps tremendously but not a cure. I hope that statement.

Your son will be cured in 2yrs is no longer used. It broke my heart....I should

never have been told that.

If parents find other treatments that are helpful, and are not harmful

good...leave them alone...and let them share information. I don't think anyone

has the right to beat people up over therapies that might be helpful.

Cat

__________________________________________________

[Guest guest]

As far as I know Dr. G NEVER uses the cure word!

> I was curious who told you your son would be cured in two

years? I was never told anything like that. Dr G said he can't promise

me anything only that he would promise not to harm him. I hang on to

the recovery stories for hope and if I look at the big picture my son

is way better then when we started. The up and down ride however can

be discouraging but I findk just the hope of him getting a little

better each year keeps me going. Jerri

>

> 1f. Re: A gentle reminder

> Posted by: " catherine quinn " quinn.cat1968@... quinn.cat1968

> Date: Fri Jun 9, 2006 8:11 am (PDT)

>

> We have been doing the protocal for 7yrs. I was told in 2 yrs my son

would be cured.

> I WAS TOLD I WILL CURE YOUR SON IN 2 YRS.....IT DID NOT HAPPEN

> That never happened....it never will....he will always be severely

affected by AUTISM.

> We have taken every med, dietary intervention, therapy under the

protocal, blood test,, brain scan....he is a severely disabled young

man, left non-verbal, and will never, ever be cured.

>

> I do not say that with bitterness. I have heard a million times " we

are really close " but there is as of yet any pharmaceutical company on

board. I ignore the " WE ARE REALLY CLOSE STATEMENTS "

>

> For right now, this is as good as it gets. The helps, yes, his

life would be alot worse....but please don't preach you will cure

these kids....it hasn't happened yet, and to say so only gives hope in

miracles, that really are not ready to happen.

>

> For ADHD/Nids kids, is this a cure....yes, but for severely affected

Autism/Nids...no, it helps tremendously but not a cure. I hope that

statement. Your son will be cured in 2yrs is no longer used. It broke

my heart....I should never have been told that.

>

> If parents find other treatments that are helpful, and are not

harmful good...leave them alone...and let them share information. I

don't think anyone has the right to beat people up over therapies that

might be helpful.

>

> Cat

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

I have seen children with severe autism who have been normalized in two

years in Dr. Goldberg's office. There are subgroups of children with autism. The

knowledge is out there on how to group them but I don't think that you will

see the articles to prove that for a while. Usually with young children it does

not take very long to get them on the right track but occasionally you do

get a young child who is in a subgroup that takes much longer to respond. I

think we, as health care providers, are always cautiously optimistic about

every

child we see. How could we do this work if we weren't?

Kathy on RN,MSN

NNY Autism Center

[Guest guest]

Cat,

Who is he?

Your posts from last week are troubling..

> I was curious who told you your son would be cured in

two years? I was never told anything like that. Dr G said he can't

promise me anything only that he would promise not to harm him. I

hang on to the recovery stories for hope and if I look at the big

picture my son is way better then when we started. The up and down

ride however can be discouraging but I findk just the hope of him

getting a little better each year keeps me going. Jerri

>

> 1f. Re: A gentle reminder

> Posted by: " catherine quinn " quinn.cat1968@... quinn.cat1968

> Date: Fri Jun 9, 2006 8:11 am (PDT)

>

> We have been doing the protocal for 7yrs. I was told in 2 yrs my

son would be cured.

> I WAS TOLD I WILL CURE YOUR SON IN 2 YRS.....IT DID NOT HAPPEN

> That never happened....it never will....he will always be severely

affected by AUTISM.

> We have taken every med, dietary intervention, therapy under the

protocal, blood test,, brain scan....he is a severely disabled young

man, left non-verbal, and will never, ever be cured.

>

> I do not say that with bitterness. I have heard a million

times " we are really close " but there is as of yet any

pharmaceutical company on board. I ignore the " WE ARE REALLY CLOSE

STATEMENTS "

>

> For right now, this is as good as it gets. The helps, yes,

his life would be alot worse....but please don't preach you will

cure these kids....it hasn't happened yet, and to say so only gives

hope in miracles, that really are not ready to happen.

>

> For ADHD/Nids kids, is this a cure....yes, but for severely

affected Autism/Nids...no, it helps tremendously but not a cure. I

hope that statement. Your son will be cured in 2yrs is no longer

used. It broke my heart....I should never have been told that.

>

> If parents find other treatments that are helpful, and are not

harmful good...leave them alone...and let them share information. I

don't think anyone has the right to beat people up over therapies

that might be helpful.

>

> Cat

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

i have already discussed this issue......this is my last post regarding our

experience , i have received some nasty private emails and i don't appreciate

it.

and yes dr g told us our son would be cured in 2yrs, to myself and my husband

and on more then one occassion.

also my best friend, whose son is also severely autistic, she was told her son

would be cured in one year too.

i am not bitter, i understand his hope was to have had things in place but it

just has not happened. that's the way it is. the pharmaceutical industry is not

interested, and the money is tied up in looking for defective chromosomes by big

universities. that's the world we live in today.

my entire point on my original comment to certain nids list mates was to stop

harrasing the mother that was looking into alternative treatments. she is

desperate to save her child. nids is not the whole solution, at this pont right

now, Nids is not a cure....there are other things that also help. (help...not

cure)

alot of the alternatives that parents look at are not dangerous, chelation has

been used for hundreds of years, and (i don't mean IV chelation) there is dmsa,

there is clay baths, there is lots of alternatives. b-12, alot of people swear

by them (even old-time docs still prescribe them), scd diets are supposed to be

wonderful for kids with autism, there are alot homeopathic products that people

use, reishi mushrooms, that the chinese have used for hundreds of years to boost

the immune system.

many of you do get this and are not threatend, but many of you do not.

peace,

Cat

loking4answrs <loking4answrs@...> wrote:

As far as I know Dr. G NEVER uses the cure word!

> I was curious who told you your son would be cured in two

years? I was never told anything like that. Dr G said he can't promise

me anything only that he would promise not to harm him. I hang on to

the recovery stories for hope and if I look at the big picture my son

is way better then when we started. The up and down ride however can

be discouraging but I findk just the hope of him getting a little

better each year keeps me going. Jerri

>

> 1f. Re: A gentle reminder

> Posted by: " catherine quinn " quinn.cat1968@... quinn.cat1968

> Date: Fri Jun 9, 2006 8:11 am (PDT)

>

> We have been doing the protocal for 7yrs. I was told in 2 yrs my son

would be cured.

> I WAS TOLD I WILL CURE YOUR SON IN 2 YRS.....IT DID NOT HAPPEN

> That never happened....it never will....he will always be severely

affected by AUTISM.

> We have taken every med, dietary intervention, therapy under the

protocal, blood test,, brain scan....he is a severely disabled young

man, left non-verbal, and will never, ever be cured.

>

> I do not say that with bitterness. I have heard a million times " we

are really close " but there is as of yet any pharmaceutical company on

board. I ignore the " WE ARE REALLY CLOSE STATEMENTS "

>

> For right now, this is as good as it gets. The helps, yes, his

life would be alot worse....but please don't preach you will cure

these kids....it hasn't happened yet, and to say so only gives hope in

miracles, that really are not ready to happen.

>

> For ADHD/Nids kids, is this a cure....yes, but for severely affected

Autism/Nids...no, it helps tremendously but not a cure. I hope that

statement. Your son will be cured in 2yrs is no longer used. It broke

my heart....I should never have been told that.

>

> If parents find other treatments that are helpful, and are not

harmful good...leave them alone...and let them share information. I

don't think anyone has the right to beat people up over therapies that

might be helpful.

>

> Cat

>

>

>

>

>

> __________________________________________________

>