Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 > > Our child never wet her bed until we started her on SSRIs. It seemed like > her body needed a bit of time to adjust. She slept harder and, therefore, > seemed to sleep right through her need to pee. But it only happened a few > times, not every night, and stopped pretty quick after her brain adjusted > to the different doses of SSRIs. We're on Celexa now and it's been a good > fit but when we moved from 1 tab. to 1 1/4 every other day, she wet almost > nightly. Also, we could hardly wake her up in the morning. We switched > her back to 1 tab. daily and she hasn't wet (it's only been a few days but > we're happy!) at night. She woke up a bit easier this morning but it was > still a struggle. We're seeing so many good things on Celexa, we don't > want to give it up but it's kind of scary to have her in such a deep > sleep. In this state, she would sleep right through a smoke detector. > Good luck, > , Thanks for the reply. I guess I am just a little nervous about giving it because ssri's have such a negative stereotype. I am glad your daughter is doing so well on it. I hope my son does well too. I guess every child is different and will react differently to ssri's. Is your daughter on the autism/nids spectrum? What improvements have you noticed? My son has been doing the nids protocol since Dec. and I am seeing such nice steady gains. Dr. noticed that my son had much more clarity to him. I really noticed it too thinking back to his previous appointments. He just seemed more talkative and with it, not so spacey. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Hi , Our daughter is diagnosed PDDNOS, we see Dr. Goldberg and follow the protocol. We are seeing improvements overall, but the ones that are the most important for school are in her attention, completing tasks, talking to and with people rather than scripting or talking at them, and socializing with her classmates. We just had a phone consult tonight and I am a little sad. Her blood work is not as good, her HHV6 number is higher and he's a little worried. This is such an up and down ride! We had a hard time before deciding to start ssri's. This is our third. We started with Zoloft and liked the results but when the dose got too high, things got worse. Then we tried Paxil but we used the generic brand and someone on this list said it has casein in it. It was horrible for us and we changed right away. Celexa has been the best by far. Dr. G thinks that we gave up with the increased dose too soon and he wants us to try it again in the summer after school is out. What is your son taking? >, >Thanks for the reply. I guess I am just a little nervous about >giving it because ssri's have such a negative stereotype. I am glad >your daughter is doing so well on it. I hope my son does well too. >I guess every child is different and will react differently to >ssri's. Is your daughter on the autism/nids spectrum? What >improvements have you noticed? My son has been doing the nids >protocol since Dec. and I am seeing such nice steady gains. Dr. > noticed that my son had much more clarity to him. I really >noticed it too thinking back to his previous appointments. He just >seemed more talkative and with it, not so spacey. >Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 What is your son taking? > Hi , my son is taking 1/4 of a 10mg tablet of celexa. Today was the first day I gave it to him. So far so good. I think Dr. is fantastic doctor. He is starting him out at a low dose which I am glad. I will keep you updated on the progress I see. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Is your son doing anything else besides the celexa? You said you are seeing good things with Dr. . What is his philosophy? Does he follow protocol? < My son is on valtrex, diflucan, and now celexa. He runs every test that Dr. Goldberg runs. He follows the nids protocol. Even though I just started the nids protocol this past Dec. and my son is 8 going to be 9 this summer it has been tremendously helpful. So I think the nids protocol can be helpful for older kids. I just wanted to let any parent out there that might have an older child know there still is hope. What I like about Dr. is he is nice and answers any questions. I am thankful to him because he has made the nids protocol available to people in and near Texas that couldn't travel to California. My son so far has resdponded well to every medication. And if for some reason that a medication may not agree with him I know that I can instantly call Dr. and he is there to personally help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 That is so great that Dr. is so available to you. We had upped our girl's celexa and the results were not good. After our update, Dr. G told us to go back to 1 tab. Now he's saying we should have given it more time, her body was just adjusting. He wants to try it again in a month. I'm feeling so sad! I hate to feel like she's such a guinea pig (even though I know she is) and now she'll have to go through that difficult 2 weeks AGAIN. And her numbers are not as good as they were and he doesn't know why. So I'm feeling pretty low right now. I really hope you have continued success with Dr. . Take care, >< My son is on valtrex, diflucan, and now celexa. He runs every test >that Dr. Goldberg runs. He follows the nids protocol. Even though I >just started the nids protocol this past Dec. and my son is 8 going to >be 9 this summer it has been tremendously helpful. So I think the >nids protocol can be helpful for older kids. I just wanted to let any >parent out there that might have an older child know there still is >hope. What I like about Dr. is he is nice and answers any >questions. I am thankful to him because he has made the nids protocol >available to people in and near Texas that couldn't travel to >California. My son so far has resdponded well to every medication. >And if for some reason that a medication may not agree with him I know >that I can instantly call Dr. and he is there to personally >help. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 > > That is so great that Dr. is so available to you. We had upped our > girl's celexa and the results were not good. After our update, Dr. G told > us to go back to 1 tab. Now he's saying we should have given it more time, > her body was just adjusting. He wants to try it again in a month. I'm > feeling so sad! I hate to feel like she's such a guinea pig (even though I > know she is) and now she'll have to go through that difficult 2 weeks > AGAIN. And her numbers are not as good as they were and he doesn't know > why. So I'm feeling pretty low right now. I really hope you have > continued success with Dr. . , I am sorry things aren't going so great right now for your daughter and you. How long have you been doing the nids protocol? I thought your daughter was making good progress. Is it just a rough patch that you hit? I feel whatever biomedical treatment we try with our kids is scary. I think we all think about is it the right way to go. I know I pray constantly for guidance. Even though her numbers on testing isn't where there need to be I am sure she is still making gains. I really do hope that things smooth out and the numbers on testing are where they need to be. I hope this for all of our kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 , We've been doing the nids protocol since April, just a little over a year. I thought things were going well based on how our daughter " looked " but her numbers (hhv6 and NK cells) are not as good. And that is giving us cause for concern although I don't know what I should really be concerned about! And whenever Dr. G ups the ssri and it isn't good, he wants to change ssri. I also am worried about the damage we do upping an ssri, going back down, upping it again. I am not looking forward to putting my daughter's body through the celexa increase again, it was hard on her. But we're in this for the long haul. Some days are just harder than others. >, I am sorry things aren't going so great right now for your >daughter and you. How long have you been doing the nids protocol? >I thought your daughter was making good progress. Is it just a >rough patch that you hit? I feel whatever biomedical treatment we >try with our kids is scary. I think we all think about is it the >right way to go. I know I pray constantly for guidance. Even >though her numbers on testing isn't where there need to be I am sure >she is still making gains. I really do hope that things smooth out >and the numbers on testing are where they need to be. I hope this >for all of our kids. > Quote Link to comment Share on other sites More sharing options...
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