Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Low oxalate list: www.lowoxalate.info They have some food lists, but look at many lists, some are different. I have the Low Oxalate Cookbook, which has a pretty good list, so feel free to ask if you have any questions. Is Vit K presrcibed? Yes. The best one is from Thorne. It is a dropper. one drop is 1 mg. Ask your doctor to get it from Thorne for you. My DAN always has it in stock. What is VSL#3? VSL#3 DS is a powerful probiotic. 900 billion bacteria per sachet. Brady's dose is 1/2 a sachet, which is 1 1/2 teaspoons, but he takes 1 teaspoon, which I have worked up to. It has lactic acid, so it is not SCD approved, but the lactic acid is what degrades the oxalates. It has a good taste and can easily blend with an apple/pear juice and SNT Green Apple flavor. There are two strengths. You can get the reg strength on the internet, but the DS, double strength is prescription only. I got DS from Walgreens and free through Medicaid. Hurray! Have I seen improvements on VSL? VSL gave Brady diarrhea right away. It didn't seem to bother him at first, but after a few weeks, the crying started, again. I was this close to halting the VSL, but then started Vit K. After 2 weeks of Vit K,Brady finally had a non watery BM. I think the VSL is better when used with VitK. The VSL can degrade the oxalates, but the Vit K gives the oxalates a way out of the body. I would start VSL and Vitk together, or Vit K a little before VSL. I am a very superstitious person, so I am loathe to say this, but a few days after Vit K, a few breathy sounds come out, like, " yeah, bye, done " . I don't want to jinx anything, though. We all know about the gut-brain connection, but Vit K says there is also a calcium- neurotransmitter connection. Neurotransmitters need only a small amount of calcium to fire. When they get too much, they continue to fire until they die. Remember that for a moment. LOD and VitK have several opposing views. I have read and read about this so here is my attempt to make it relevant to kids like Brady. Keep in mind, this is based on Brady, 8, but so many kids sound like him. Especially older kids who have had oxalates build up for years. LOD says give calcium to help bind to the oxalates. I tried that- disaster and crying. Vit K says no extra calcium because these kids are already hypercalcemic. Brady's blood calcium levels are always at the top or just over the ref range. Vit K's function is to keep calcium in the bones and teeth, and not the blood. Extremely eye openeing for me. LOD says try arginine to help with pain. I tried that and it seemed to help. LOD also says try biotin to help with die off. I tried that and it seemed to help. There is also some speculation that biotin can help with yeast. Brady takes 5mg BID. LOD does not believe in Vit K. Vit K advocates CLO which I cannot get near Brady, but he gets SNT, with lots of Vit A. I am going to supplement with D3 as soon as his Vit K gets up to full strength which will be 6 drops TID for 60 lb Brady. The D3 site is new and very interesting. Vit K advocates lots of magnesium. Brady is getting 300 mg/day, and I am trying to get up to 500/day. Magnesium is a calcium channel blocker. Remember what I said about the neurotransmitters above? Well, there was a study out last week in the journal Neurology about Parkinson's. I only read the blurb in the newspaper, but it said that certain blood pressure medications may reduce the risk of Parkinson's. In a study of 7300 adults over 40, the long term use of calcium channel blockers (which must be the BP meds) lowered their risk of PD by 23%. Does anyone else see a similarlity? The Autism Research Institute advocates the use of magnesium to help alleviate hyperactivity, but nothing was listed on ARI about magnesium as a calcium channel blocker. I think there is really something there. Yes, I still on board with treating viruses. Brady has done 6 IVIG and he is a good responder to that. My main goal for Brady, and this might sound familiar, is to take away his pain, crying, and screaming. It is working, truly. Sorry my posts are so long, but Brady has always been a non or negative responder. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi, This calcium and vitamin k thing. My son has been poking at his eyeballs, someone said it is too little calcium, but on my son's blood work, calcium is high. So now I am thinking, it might be low vitamin k. What type of vitamin k? nne -- In mb12 valtrex , " rebeccaaccetta " wrote: > > Low oxalate list: www.lowoxalate.info > > They have some food lists, but look at many lists, some are different. > I have the Low Oxalate Cookbook, which has a pretty good list, so feel > free to ask if you have any questions. > > Is Vit K presrcibed? Yes. The best one is from Thorne. It is a dropper. > one drop is 1 mg. Ask your doctor to get it from Thorne for you. My DAN > always has it in stock. > > What is VSL#3? > > VSL#3 DS is a powerful probiotic. 900 billion bacteria per sachet. > Brady's dose is 1/2 a sachet, which is 1 1/2 teaspoons, but he takes 1 > teaspoon, which I have worked up to. It has lactic acid, so it is not > SCD approved, but the lactic acid is what degrades the oxalates. It > has a good taste and can easily blend with an apple/pear juice and > SNT Green Apple flavor. There are two strengths. You can get the reg > strength on the internet, but the DS, double strength is prescription > only. I got DS from Walgreens and free through Medicaid. Hurray! > > Have I seen improvements on VSL? > > VSL gave Brady diarrhea right away. It didn't seem to bother him at > first, but after a few weeks, the crying started, again. I was this > close to halting the VSL, but then started Vit K. After 2 weeks of Vit > K,Brady finally had a non watery BM. I think the VSL is better when > used with VitK. The VSL can degrade the oxalates, but the Vit K gives > the oxalates a way out of the body. I would start VSL and Vitk > together, or Vit K a little before VSL. > > I am a very superstitious person, so I am loathe to say this, but a > few days after Vit K, a few breathy sounds come out, like, " yeah, bye, > done " . I don't want to jinx anything, though. We all know about the > gut-brain connection, but Vit K says there is also a calcium- > neurotransmitter connection. Neurotransmitters need only a small > amount of calcium to fire. When they get too much, they continue to > fire until they die. Remember that for a moment. > > LOD and VitK have several opposing views. I have read and read about > this so here is my attempt to make it relevant to kids like Brady. Keep > in mind, this is based on Brady, 8, but so many kids sound like him. > Especially older kids who have had oxalates build up for years. > > LOD says give calcium to help bind to the oxalates. I tried that- > disaster and crying. Vit K says no extra calcium because these kids are > already hypercalcemic. Brady's blood calcium levels are always at the > top or just over the ref range. Vit K's function is to keep calcium in > the bones and teeth, and not the blood. Extremely eye openeing for me. > LOD says try arginine to help with pain. I tried that and it seemed to > help. LOD also says try biotin to help with die off. I tried that and > it seemed to help. There is also some speculation that biotin can help > with yeast. Brady takes 5mg BID. LOD does not believe in Vit K. > > Vit K advocates CLO which I cannot get near Brady, but he gets SNT, > with lots of Vit A. I am going to supplement with D3 as soon as his Vit > K gets up to full strength which will be 6 drops TID for 60 lb Brady. > The D3 site is new and very interesting. > > Vit K advocates lots of magnesium. Brady is getting 300 mg/day, and I > am trying to get up to 500/day. Magnesium is a calcium channel blocker. > Remember what I said about the neurotransmitters above? Well, there was > a study out last week in the journal Neurology about Parkinson's. I > only read the blurb in the newspaper, but it said that certain blood > pressure medications may reduce the risk of Parkinson's. In a study of > 7300 adults over 40, the long term use of calcium channel blockers > (which must be the BP meds) lowered their risk of PD by 23%. Does > anyone else see a similarlity? > The Autism Research Institute advocates the use of magnesium to help > alleviate hyperactivity, but nothing was listed on ARI about magnesium > as a calcium channel blocker. I think there is really something there. > > Yes, I still on board with treating viruses. Brady has done 6 IVIG and > he is a good responder to that. My main goal for Brady, and this might > sound familiar, is to take away his pain, crying, and screaming. It is > working, truly. > > Sorry my posts are so long, but Brady has always been a non or negative > responder. > > Becky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 We had high serum calcium levels too. on the vitamin k yahoo group says this is because our kids cannot uptake the calcium. It ends up where it shouldn't be causing neurons to fire and eventually causing cell death. (This is how I understood it.) It also binds with oxalates. Vitamin K2 helps break down the oxalates. We also had the eye pain. They pushed on their eyes. We had to eliminate all calcium and high oxalate foods and supplements. We got the boys out of their autism fog with this intervention and made a recovery but we still have some oxalate issues. We are considering this protocol to help with this. Since our boys are now verbal they tell us when they have belly pain and head pain. It is always related to oxalates and calcium. Our boys were HUGE milk drinkers and cheese consumers before we made the big diet changes. Although, since we just started to do some antiviral / antifungal treatment ( l lysine) we are tolerating some calcium now. (gut is healing too) We are still not able to tolerate oxalates though, thus the vitamin K protocol is being considered. marib005 wrote: > > Hi, > > This calcium and vitamin k thing. My son has been poking at his > eyeballs, someone said it is too little calcium, but on my son's > blood work, calcium is high. So now I am thinking, it might be low > vitamin k. What type of vitamin k? > > nne > -- In mb12 valtrex , " rebeccaaccetta " > wrote: > >> Low oxalate list: www.lowoxalate.info >> >> They have some food lists, but look at many lists, some are >> > different. > >> I have the Low Oxalate Cookbook, which has a pretty good list, so >> > feel > >> free to ask if you have any questions. >> >> Is Vit K presrcibed? Yes. The best one is from Thorne. It is a >> > dropper. > >> one drop is 1 mg. Ask your doctor to get it from Thorne for you. My >> > DAN > >> always has it in stock. >> >> What is VSL#3? >> >> VSL#3 DS is a powerful probiotic. 900 billion bacteria per sachet. >> Brady's dose is 1/2 a sachet, which is 1 1/2 teaspoons, but he >> > takes 1 > >> teaspoon, which I have worked up to. It has lactic acid, so it is >> > not > >> SCD approved, but the lactic acid is what degrades the oxalates. It >> has a good taste and can easily blend with an apple/pear juice and >> SNT Green Apple flavor. There are two strengths. You can get the >> > reg > >> strength on the internet, but the DS, double strength is >> > prescription > >> only. I got DS from Walgreens and free through Medicaid. Hurray! >> >> Have I seen improvements on VSL? >> >> VSL gave Brady diarrhea right away. It didn't seem to bother him at >> first, but after a few weeks, the crying started, again. I was this >> close to halting the VSL, but then started Vit K. After 2 weeks of >> > Vit > >> K,Brady finally had a non watery BM. I think the VSL is better when >> used with VitK. The VSL can degrade the oxalates, but the Vit K >> > gives > >> the oxalates a way out of the body. I would start VSL and Vitk >> together, or Vit K a little before VSL. >> >> I am a very superstitious person, so I am loathe to say this, but a >> few days after Vit K, a few breathy sounds come out, like, " yeah, >> > bye, > >> done " . I don't want to jinx anything, though. We all know about the >> gut-brain connection, but Vit K says there is also a calcium- >> neurotransmitter connection. Neurotransmitters need only a small >> amount of calcium to fire. When they get too much, they continue to >> fire until they die. Remember that for a moment. >> >> LOD and VitK have several opposing views. I have read and read >> > about > >> this so here is my attempt to make it relevant to kids like Brady. >> > Keep > >> in mind, this is based on Brady, 8, but so many kids sound like >> > him. > >> Especially older kids who have had oxalates build up for years. >> >> LOD says give calcium to help bind to the oxalates. I tried that- >> disaster and crying. Vit K says no extra calcium because these kids >> > are > >> already hypercalcemic. Brady's blood calcium levels are always at >> > the > >> top or just over the ref range. Vit K's function is to keep calcium >> > in > >> the bones and teeth, and not the blood. Extremely eye openeing for >> > me. > >> LOD says try arginine to help with pain. I tried that and it seemed >> > to > >> help. LOD also says try biotin to help with die off. I tried that >> > and > >> it seemed to help. There is also some speculation that biotin can >> > help > >> with yeast. Brady takes 5mg BID. LOD does not believe in Vit K. >> >> Vit K advocates CLO which I cannot get near Brady, but he gets SNT, >> with lots of Vit A. I am going to supplement with D3 as soon as his >> > Vit > >> K gets up to full strength which will be 6 drops TID for 60 lb >> > Brady. > >> The D3 site is new and very interesting. >> >> Vit K advocates lots of magnesium. Brady is getting 300 mg/day, and >> > I > >> am trying to get up to 500/day. Magnesium is a calcium channel >> > blocker. > >> Remember what I said about the neurotransmitters above? Well, there >> > was > >> a study out last week in the journal Neurology about Parkinson's. I >> only read the blurb in the newspaper, but it said that certain >> > blood > >> pressure medications may reduce the risk of Parkinson's. In a study >> > of > >> 7300 adults over 40, the long term use of calcium channel blockers >> (which must be the BP meds) lowered their risk of PD by 23%. Does >> anyone else see a similarlity? >> The Autism Research Institute advocates the use of magnesium to >> > help > >> alleviate hyperactivity, but nothing was listed on ARI about >> > magnesium > >> as a calcium channel blocker. I think there is really something >> > there. > >> Yes, I still on board with treating viruses. Brady has done 6 IVIG >> > and > >> he is a good responder to that. My main goal for Brady, and this >> > might > >> sound familiar, is to take away his pain, crying, and screaming. It >> > is > >> working, truly. >> >> Sorry my posts are so long, but Brady has always been a non or >> > negative > >> responder. >> >> Becky >> >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 We started giving THorne product, $50 a bottle but it is only a drop...within three weeks he stopped eye poking. He is not currently taking it anymore...we will re into if the behavior comes back. It seems to have sorted itself out with temporary supplementation...so def try K. Di > > > > Low oxalate list: www.lowoxalate.info > > > > They have some food lists, but look at many lists, some are > different. > > I have the Low Oxalate Cookbook, which has a pretty good list, so > feel > > free to ask if you have any questions. > > > > Is Vit K presrcibed? Yes. The best one is from Thorne. It is a > dropper. > > one drop is 1 mg. Ask your doctor to get it from Thorne for you. My > DAN > > always has it in stock. > > > > What is VSL#3? > > > > VSL#3 DS is a powerful probiotic. 900 billion bacteria per sachet. > > Brady's dose is 1/2 a sachet, which is 1 1/2 teaspoons, but he > takes 1 > > teaspoon, which I have worked up to. It has lactic acid, so it is > not > > SCD approved, but the lactic acid is what degrades the oxalates. It > > has a good taste and can easily blend with an apple/pear juice and > > SNT Green Apple flavor. There are two strengths. You can get the > reg > > strength on the internet, but the DS, double strength is > prescription > > only. I got DS from Walgreens and free through Medicaid. Hurray! > > > > Have I seen improvements on VSL? > > > > VSL gave Brady diarrhea right away. It didn't seem to bother him at > > first, but after a few weeks, the crying started, again. I was this > > close to halting the VSL, but then started Vit K. After 2 weeks of > Vit > > K,Brady finally had a non watery BM. I think the VSL is better when > > used with VitK. The VSL can degrade the oxalates, but the Vit K > gives > > the oxalates a way out of the body. I would start VSL and Vitk > > together, or Vit K a little before VSL. > > > > I am a very superstitious person, so I am loathe to say this, but a > > few days after Vit K, a few breathy sounds come out, like, " yeah, > bye, > > done " . I don't want to jinx anything, though. We all know about the > > gut-brain connection, but Vit K says there is also a calcium- > > neurotransmitter connection. Neurotransmitters need only a small > > amount of calcium to fire. When they get too much, they continue to > > fire until they die. Remember that for a moment. > > > > LOD and VitK have several opposing views. I have read and read > about > > this so here is my attempt to make it relevant to kids like Brady. > Keep > > in mind, this is based on Brady, 8, but so many kids sound like > him. > > Especially older kids who have had oxalates build up for years. > > > > LOD says give calcium to help bind to the oxalates. I tried that- > > disaster and crying. Vit K says no extra calcium because these kids > are > > already hypercalcemic. Brady's blood calcium levels are always at > the > > top or just over the ref range. Vit K's function is to keep calcium > in > > the bones and teeth, and not the blood. Extremely eye openeing for > me. > > LOD says try arginine to help with pain. I tried that and it seemed > to > > help. LOD also says try biotin to help with die off. I tried that > and > > it seemed to help. There is also some speculation that biotin can > help > > with yeast. Brady takes 5mg BID. LOD does not believe in Vit K. > > > > Vit K advocates CLO which I cannot get near Brady, but he gets SNT, > > with lots of Vit A. I am going to supplement with D3 as soon as his > Vit > > K gets up to full strength which will be 6 drops TID for 60 lb > Brady. > > The D3 site is new and very interesting. > > > > Vit K advocates lots of magnesium. Brady is getting 300 mg/day, and > I > > am trying to get up to 500/day. Magnesium is a calcium channel > blocker. > > Remember what I said about the neurotransmitters above? Well, there > was > > a study out last week in the journal Neurology about Parkinson's. I > > only read the blurb in the newspaper, but it said that certain > blood > > pressure medications may reduce the risk of Parkinson's. In a study > of > > 7300 adults over 40, the long term use of calcium channel blockers > > (which must be the BP meds) lowered their risk of PD by 23%. Does > > anyone else see a similarlity? > > The Autism Research Institute advocates the use of magnesium to > help > > alleviate hyperactivity, but nothing was listed on ARI about > magnesium > > as a calcium channel blocker. I think there is really something > there. > > > > Yes, I still on board with treating viruses. Brady has done 6 IVIG > and > > he is a good responder to that. My main goal for Brady, and this > might > > sound familiar, is to take away his pain, crying, and screaming. It > is > > working, truly. > > > > Sorry my posts are so long, but Brady has always been a non or > negative > > responder. > > > > Becky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Regarding poking the eyeballs, my son is doing the same. Yasko's moms will tell you that it is metals detox. Just thought I'd share that thought. Metals are stored in the eyes as well as everywhere else, and the eyes are the hardest part in detox or something of that nature. However, we had rapid eye blinking and head shaking and that turned out to be strep. So you might want to look further for strep throat if it continues, or other eye behaviors develop. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Someone responded to the eye poking thing yesterday saying it was metals coming out. Are you chelating with anything new? Re: Zurama answers Hi,This calcium and vitamin k thing. My son has been poking at his eyeballs, someone said it is too little calcium, but on my son's blood work, calcium is high. So now I am thinking, it might be low vitamin k. What type of vitamin k?nne-- In mb12 valtrex , "rebeccaaccetta" wrote:>> Low oxalate list: www.lowoxalate.info> > They have some food lists, but look at many lists, some are different. > I have the Low Oxalate Cookbook, which has a pretty good list, so feel > free to ask if you have any questions. > > Is Vit K presrcibed? Yes. The best one is from Thorne. It is a dropper. > one drop is 1 mg. Ask your doctor to get it from Thorne for you. My DAN > always has it in stock.> > What is VSL#3? > > VSL#3 DS is a powerful probiotic. 900 billion bacteria per sachet. > Brady's dose is 1/2 a sachet, which is 1 1/2 teaspoons, but he takes 1 > teaspoon, which I have worked up to. It has lactic acid, so it is not > SCD approved, but the lactic acid is what degrades the oxalates. It > has a good taste and can easily blend with an apple/pear juice and > SNT Green Apple flavor. There are two strengths. You can get the reg > strength on the internet, but the DS, double strength is prescription > only. I got DS from Walgreens and free through Medicaid. Hurray! > > Have I seen improvements on VSL? > > VSL gave Brady diarrhea right away. It didn't seem to bother him at > first, but after a few weeks, the crying started, again. I was this > close to halting the VSL, but then started Vit K. After 2 weeks of Vit > K,Brady finally had a non watery BM. I think the VSL is better when > used with VitK. The VSL can degrade the oxalates, but the Vit K gives > the oxalates a way out of the body. I would start VSL and Vitk > together, or Vit K a little before VSL.> > I am a very superstitious person, so I am loathe to say this, but a > few days after Vit K, a few breathy sounds come out, like, "yeah, bye, > done". I don't want to jinx anything, though. We all know about the > gut-brain connection, but Vit K says there is also a calcium-> neurotransmitter connection. Neurotransmitters need only a small > amount of calcium to fire. When they get too much, they continue to > fire until they die. Remember that for a moment.> > LOD and VitK have several opposing views. I have read and read about > this so here is my attempt to make it relevant to kids like Brady. Keep > in mind, this is based on Brady, 8, but so many kids sound like him. > Especially older kids who have had oxalates build up for years.> > LOD says give calcium to help bind to the oxalates. I tried that-> disaster and crying. Vit K says no extra calcium because these kids are > already hypercalcemic. Brady's blood calcium levels are always at the > top or just over the ref range. Vit K's function is to keep calcium in > the bones and teeth, and not the blood. Extremely eye openeing for me. > LOD says try arginine to help with pain. I tried that and it seemed to > help. LOD also says try biotin to help with die off. I tried that and > it seemed to help. There is also some speculation that biotin can help > with yeast. Brady takes 5mg BID. LOD does not believe in Vit K.> > Vit K advocates CLO which I cannot get near Brady, but he gets SNT, > with lots of Vit A. I am going to supplement with D3 as soon as his Vit > K gets up to full strength which will be 6 drops TID for 60 lb Brady. > The D3 site is new and very interesting.> > Vit K advocates lots of magnesium. Brady is getting 300 mg/day, and I > am trying to get up to 500/day. Magnesium is a calcium channel blocker. > Remember what I said about the neurotransmitters above? Well, there was > a study out last week in the journal Neurology about Parkinson's. I > only read the blurb in the newspaper, but it said that certain blood > pressure medications may reduce the risk of Parkinson's. In a study of > 7300 adults over 40, the long term use of calcium channel blockers > (which must be the BP meds) lowered their risk of PD by 23%. Does > anyone else see a similarlity? > The Autism Research Institute advocates the use of magnesium to help > alleviate hyperactivity, but nothing was listed on ARI about magnesium > as a calcium channel blocker. I think there is really something there.> > Yes, I still on board with treating viruses. Brady has done 6 IVIG and > he is a good responder to that. My main goal for Brady, and this might > sound familiar, is to take away his pain, crying, and screaming. It is > working, truly. > > Sorry my posts are so long, but Brady has always been a non or negative > responder. > > Becky> Quote Link to comment Share on other sites More sharing options...
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