Morgellon syndrome

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and Autism is caused by refridgerator mothers ...

and CFIDS is just a woman overreacting to PMS ...

CDC Probes Bizarre Morgellons Condition

Tuesday, August 8, 2006 8:15 PM EDT

The Associated Press

By MIKE STOBBE

ATLANTA (AP) Imagine your body pocked by erupting sores. The sensation

of little bugs crawling all over you. And worst of all, mysterious red

and blue fibers sprouting from your skin.

It may sound like a macabre science fiction movie, but a growing legion

of Americans say they suffer from this condition. And now the U.S.

Centers for Disease Control and Prevention is investigating.

Some doctors dismiss these patients as delusional. But the condition

called Morgellons has caused a small frenzy on the Internet, with

hundreds of people pleading for help.

" Sometimes the government doesn't want to panic people until they can

figure out a definitive cause, " said Pat Boddie, a 62-year-old Alabama

woman who said she's had Morgellons for 14 years.

" They're trying to figure out if this is going to be an epidemic. I hate

to tell them, but it already is, " she said.

The CDC has been receiving as many as 20 calls a day from self-diagnosed

Morgellons patients. The agency has been urged to investigate by, among

others, U.S. Sen. Dianne Feinstein of California.

" We're going into this with an open mind, " said Dan Rutz, spokesman for

a CDC Morgellons task force that began meeting in June.

But so far there is no evidence of an infectious agent, and health

officials say there is not yet enough evidence even to call it a disease.

People claiming to have Morgellons report a wide variety of symptoms,

ranging from joint pain to irregular bowel movements. But most describe

crawling sensations along the skin, sores, fatigue, " brain fog, " and the

appearance of small or microscopic fibers on or under the skin.

Some say they've suffered for decades, but the syndrome did not get a

name until 2002, when the name " Morgellons " (pronounced mor-GELL-uns)

was chosen by Leitao. The South Carolina woman, who said her son

suffers from the condition, founded the Morgellons Research Foundation.

She found the name in a 1674 medical paper that described a condition

called Morgellons, with symptoms somewhat like her son's. So she began

using the name. " I never expected it to stick, " she said.

Leitao's organization has become a leading source of information and

research advocacy, but it too has become controversial.

Last week, at least three of the eight members of the organization

resigned over disagreements with Leitao, the executive director, about

how she's been running the foundation. One member the board's chairman

sent a letter to the U.S. Internal Revenue Service, saying Leitao had

failed to produce requested financial records and he voiced suspicions

of financial impropriety.

Another board member who resigned, Dr. Greg , a Gainesville, Ga.,

pediatrician, had recently posted a donations-soliciting letter for the

foundation on an Internet site frequented by Morgellons patients. Last

week, he posted a retraction.

" I cannot in good faith ask anyone to contribute to the foundation, "

wrote.

Leitao described the controversy as " a power struggle " and said she's

done nothing illegal.

Also resigning from the organization was Randy Wymore, an Oklahoma State

University assistant professor of pharmacology. He was the

organization's director of research.

Wymore had initiated the relationship last year. But because of the

in-fighting he said he decided to distance himself. " The research I'm

doing is not affected by this, " Wymore added.

Until the CDC task force, Wymore was seen as the most reputable

scientist to research Morgellons, although he was trained in molecular

biology, not clinical disease or fibrous materials.

He recruited two Oklahoma State faculty physicians. They tweezed fibers

from beneath the skin of some Morgellons patients who visited the

Oklahoma State Center for Health Sciences in Tulsa in February, Wymore

said, and sent those samples to the Tulsa Police Department's forensic

laboratory.

The police checked the samples against carpet and clothing fibers and

other materials, and conducted chemical analyses and other tests.

Nothing matched, said Mark Boese, the police lab's director.

" How it is being produced, I don't know, " Boese said. He theorized the

fibers could be produced by human hair follicles that somehow

encapsulated pollutants processed by the body.

Some doctors believe Morgellons is produced by the mind, not the body.

" I think of Morgellons as a piece of a larger phenomenon delusional

parasitosis, " said Dr. Annette s, a psychiatrist at the Oregon

Health & Science University in Portland.

Delusional parasitosis is a psychosis in which sufferers believe they

are infected with parasites. Often the patients have a real-life problem

with scabies, lice, or some other tiny attackers, but then imagine they

are continuing to plague them, s said.

Asked about reports of multiple Morgellons cases within a family,

s said delusions are transmissible the psychiatric term is

'folie a deux,' for instances in which people come to share a delusion.

Some people will biopsy themselves, or seek large quantities of

antibiotics, herbal remedies, industrial bug killers and other expensive

and potentially harmful treatments, she said.

The CDC's Rutz said there may be several subgroups among the people who

identify themselves as Morgellons sufferers. One group may have

delusional parasitosis, but another may have something else.

The 12-person CDC task force includes two pathologists, a toxicologist,

an ethicist, a mental health expert and specialists in infectious,

parasitic, environmental and chronic disease. The group is developing a

case definition of Morgellons.

It's impossible to say how many people have Morgellons without a

commonly accepted way to define it. The Morgellons Research Foundation

believes the number is at least 5,500, based on the number of families

registered with the organization's Web site.

Hopefully, a CDC case definition will lead some physicians to stop

treating Morgellons patients like they're crazy, said , the Georgia

pediatrician and a Morgellons sufferer.

" A lot of physicians think that if it's not in the textbooks, it's not

real, " said , who said a fiber once slid across his eyeball and

then burrowed in.

Verna Gallagher, 48, said she's been seeing a dermatologist for nearly a

year. " (But) he doesn't believe in Morgellons. He said 'That's not a

real thing,' " said Gallagher, of Roseville, Calif., near Sacramento.

But while her doctor dismisses the fibers as lint, Gallagher says he is

concerned that she may become suicidal. " I cry, and he says I have to

live my life " and tells here to write down things that she likes to do.

Meanwhile, she says she is plagued by tiny dark specks and fibers that

infest her house. She's paid for exterminators, taken antidepressants,

bathed in Borax and spent hundreds on vitamins, garlic pills and other

potential remedies.

" Nothing's helped, " she said.