Re: methylcobalamin versus cyanocobalamin

[Guest guest]

Dr Steenblock,..you wrote " some of these children are extremely

sensitive or allergic to a variety of chemicals " ...

which is one reason why Dr Goldberg is so overly cautious with any

treatment, let alone large doses of vitamins and supplements..

you can never be sure of how sever an allergic reaction might be...

> This is really scarry

>

> This was just forwarded to me. You may know that the MIND

insititute

> (Dr. Hendren) is doing a Methyl B12 study that has no legitimate

> scientific basis, and some risk, on autistic kids. I have

brought up

> the anecdotal reports of autistic kids on these B12 shots have

> seizures. The IRB at UCD had an MD look at the papers that

> tangentially suggest that B12 can methylate certain genes and

create

> an imbalance of neurotransmitters (GABA?) in the brain that would

tend

> to kindle seizures in some people... The MD said, " Nah, I don't

think

> this is a problem... "

>

> But there are many more problems with this study, some of them

have

> been started to be addressed by Hendren, he's apparently

rewriting the

> description of the study for the clinicaltrials.gov site....

>

> I want to know if it's time for someone to step in and stop this

> business... look at this. Stroke-like symptoms from kids getting

> these shots. What do we do? Sit on our hands until they kill a

child

> with this stuff? Give me some ideas of how to deal with this,

please?

>

> -----------

> From: " c----- w------- ........ "

> -----------

> Sent: Thursday, May 25, 2006 11:26 PM

> Subject: ------- NEED HELP WITH OVERMETHYLATION (anyone at the

last DAN)

>

> We started our daughter on the nasal B12 and saw some really good

> gains to begin with (first week). she was dosing every day.

After the

> first week, we noticed some strange mouth movements and at times,

she

> looked almost like a stroke victim. Dr. Jerry K[artzinel] said

that

> she was over methylated and to stop for several days and that the

> issue would clear on its own. She has become irritable and

> beligerent. Someone who was at the last DAN said that there was a

> mention of needing to take TMG if this happens. I would like to

know

> from any of the listmates who attended what was said> If anyone

else

> has any information regarding this problem, I would appreciate

hearing

> from you.

> Thanks,

> CW

>

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent

Coalition.

>

>

>

>

>

[Guest guest]

" Dr A. Steenblock " <drsteenblock@...> wrote:

I have used excessive amount of the methylcobalamin for many years and have

never seen anything like these symptoms with the methyl form.

My understanding is that excess MB-12 is harmlessly wasted in the urine -- is

that correct?

-

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[Guest guest]

Hi -

I don't know a lot about the B12 (other than I feel

worse after cyanocobalamin B12 shots) - so I can't

answer a question on that.

I just wanted to mention that B12 deficiency is one

that can be an anemia of chronic infection (in which

case it could be a protective measure in trying to

fight an infection). I think Dr G's biggest gripe

with this is that if a child isn't absorbing B12, it's

a big signal of chronic infection, and that THAT

should be treated, then B12 should start returning to

normal w/some help from supplementation.

I think that's the big controversy surrounding the use

of this - trying to treat a deficiency and not the

underlying cause, which in a lot of cases can

exacerbate an infection. I don't know if that's the

cases here, but I'm not sure it has been researched

from that point of view. We do know there are

pathway/absorption problems, but we also know chronic

immune activation or infection can cause those

problems - we know there are gene issues surrounding

this, and we know that immune problems can affect the

gene expressions. (It's way over my head, though!)

Could you point me to a website that explains what

they're doing, the findings, and why? I'm curious to

how it points back to .

--- Rob or Sunseri <RobRose@...>

wrote:

..

>

> My understanding is that excess MB-12 is

> harmlessly wasted in the urine -- is that correct?

>

> -

>

__________________________________________________

[Guest guest]

, Search for information on Dr Neubrander. He

is considered one of the top doctors doing research

and treating patients with Autism. He spoke at the

Autism One conference this week. It is one of the

first things he tries and sees HUGE gains with it. We

use it and it has been wonderful. This is methyl B12.

Cheryl

--- <thecolemans4@...> wrote:

> Hi -

>

> I don't know a lot about the B12 (other than I feel

> worse after cyanocobalamin B12 shots) - so I can't

> answer a question on that.

>

> I just wanted to mention that B12 deficiency is one

> that can be an anemia of chronic infection (in which

> case it could be a protective measure in trying to

> fight an infection). I think Dr G's biggest gripe

> with this is that if a child isn't absorbing B12,

> it's

> a big signal of chronic infection, and that THAT

> should be treated, then B12 should start returning

> to

> normal w/some help from supplementation.

>

> I think that's the big controversy surrounding the

> use

> of this - trying to treat a deficiency and not the

> underlying cause, which in a lot of cases can

> exacerbate an infection. I don't know if that's the

> cases here, but I'm not sure it has been researched

> from that point of view. We do know there are

> pathway/absorption problems, but we also know

> chronic

> immune activation or infection can cause those

> problems - we know there are gene issues surrounding

> this, and we know that immune problems can affect

> the

> gene expressions. (It's way over my head, though!)

>

>

> Could you point me to a website that explains what

> they're doing, the findings, and why? I'm curious

> to

> how it points back to .

>

>

>

>

> --- Rob or Sunseri <RobRose@...>

> wrote:

> .

> >

> > My understanding is that excess MB-12 is

> > harmlessly wasted in the urine -- is that correct?

> >

> > -

> >

>

> __________________________________________________

>

[Guest guest]

I have never heard nor seen any reference to vitamin B12 deficiency being caused

by or being a cause of the anemia of chronic disease. Could you give me a

reference as to the validity of these statements. Dr Steenblock

www.strokedoctor.com

cheryl peeples <cherylppls@...> wrote: , Search for information

on Dr Neubrander. He

is considered one of the top doctors doing research

and treating patients with Autism. He spoke at the

Autism One conference this week. It is one of the

first things he tries and sees HUGE gains with it. We

use it and it has been wonderful. This is methyl B12.

Cheryl

--- <thecolemans4@...> wrote:

> Hi -

>

> I don't know a lot about the B12 (other than I feel

> worse after cyanocobalamin B12 shots) - so I can't

> answer a question on that.

>

> I just wanted to mention that B12 deficiency is one

> that can be an anemia of chronic infection (in which

> case it could be a protective measure in trying to

> fight an infection). I think Dr G's biggest gripe

> with this is that if a child isn't absorbing B12,

> it's

> a big signal of chronic infection, and that THAT

> should be treated, then B12 should start returning

> to

> normal w/some help from supplementation.

>

> I think that's the big controversy surrounding the

> use

> of this - trying to treat a deficiency and not the

> underlying cause, which in a lot of cases can

> exacerbate an infection. I don't know if that's the

> cases here, but I'm not sure it has been researched

> from that point of view. We do know there are

> pathway/absorption problems, but we also know

> chronic

> immune activation or infection can cause those

> problems - we know there are gene issues surrounding

> this, and we know that immune problems can affect

> the

> gene expressions. (It's way over my head, though!)

>

>

> Could you point me to a website that explains what

> they're doing, the findings, and why? I'm curious

> to

> how it points back to .

>

>

>

>

> --- Rob or Sunseri <RobRose@...>

> wrote:

> .

> >

> > My understanding is that excess MB-12 is

> > harmlessly wasted in the urine -- is that correct?

> >

> > -

> >

>

> __________________________________________________

>

[Guest guest]

Hi Dr Steenblock -

I am not able to find any references to this, either.

I was told by a couple of my doctors that it could be

related - and I'm not sure if Dr Goldberg ever said

that or not. My iron deficiency anemia definitely

was, and they said it was likely that my B12 anemia

was as well.. .it had been tracked from results at the

beginning of a 2 year illness and steadily decreased.

This of course is not proof, but I remember being told

that both anemias were most likely due to the chronic

strep...

I don't have any abstracts in my files, but I feel

like I've seen it before - and that it was hard to

find. I'll post it if I find it and try to figure out

whether or not I actually ever read it. I don't want

to ever give inaccurate information - nor sound like

an idiot if I make that statement to my doctor.

--- " Dr A. Steenblock " <drsteenblock@...>

wrote:

> I have never heard nor seen any reference to vitamin

> B12 deficiency being caused by or being a cause of

> the anemia of chronic disease. Could you give me a

> reference as to the validity of these statements. Dr

> Steenblock www.strokedoctor.com

>

__________________________________________________