Re: herpes titres after valtrex

[Guest guest]

April:

I am curious if your son had antibodies to other viruses or vaccine

viruses but just not the HV6, was he one of those kids that notoriously

didn't produce antibodies or was it just the HV6 in particular?

I ask because my son has always tested negative to most viruses, but

normal antibodies to most vaccine strains. Has anyone had this happen

with strep, normal ASO titers until treated with antibiotics then it

goes up? I find this really interesting.

herpes titres after valtrex

> Someone explained that here once (for one of their children). Didn't

the

titres shoot up after the med was given?

>

> -

>

My son did this and I think it is fairly common when dealing with

someone

with immune disfuction. His immune system was so repressed that he was

not

creating antibodies for HV6 though it was quite active in his body. Once

Dr. G gave him antivirals (valtrex) his titre shot up; my son's body had

been given the opportunity it needed to finally fight this dangerous

virus.

April

[Guest guest]

Hi -

I haven't heard that happen w/strep, but more than a

few times with HHV6. HHV6 has the ability to 'tweak'

the immune system to hide from it, as well as make it

more difficult to fight off other pathogens as well

due to the shift it creates - sorta like an evil

little immune modulator I think.

I was curious why you ask about the strep though. Any

particular experience making you wonder that? You can

still have some subtle ocd symptoms w/strep without

necessarily having very high titers. My youngest

never had high ASO but would still get some OCD

w/strep (and mycoplasma) - it would just go away

within 3 days of antibiotics.

--- " K. Fischer " <elfischer@...> wrote:

> Has

> anyone had this happen

> with strep, normal ASO titers until treated with

> antibiotics then it

> goes up? I find this really interesting.

>

>

>

__________________________________________________

[Guest guest]

So in your son's case, what labs did justify the use of valtrex?

-

April Jagnow <april@...> wrote:

> Someone explained that here once (for one of their children). Didn't the

titres shoot up after the med was given?

>

> -

>

My son did this and I think it is fairly common when dealing with someone

with immune disfuction. His immune system was so repressed that he was not

creating antibodies for HV6 though it was quite active in his body. Once

Dr. G gave him antivirals (valtrex) his titre shot up; my son's body had

been given the opportunity it needed to finally fight this dangerous virus.

April

__________________________________________________

[Guest guest]

Hi ,

That is a really good question. There were just some subtle signs of immune

disfuction such as his liver was not functioning properly, low ferritin, his

HV6 was 1:10 which is the borderline, I can't remember all the details. Due

to family history (I have a brother who is quite possibly on the spectrum,

and at least 2 cousins) and my son's developmental history, and Dr.

Goldberg's years of experience of seeing this phenomenon where the titres

shoot up after antivirals, he just knew. It was a bit of a leap of faith

for us; might have been easier if we did see dramatic lab results. But Dr.

Golberg's theory made such sense and I have a friend whose daughter had been

greatly helped by him so we tried it. It was very scary to put my then 3

year old on valtrex. I was able to do it knowing that Dr. Goldberg orders

blood draws every 4 to 6 weeks to check for how/if the meds are working and

if any possible damage could be taking place as a result of the meds. He is

so thorough and so careful. And as time has gone by, his " hunches " have so

often been so dead on. For ex: we switched from valtrex to famvir and the

titre shot up again. We increased famvir and it shot up again. He just

knows how to nail this nasty virus.

If you choose to do the labwork to see if your son's immune system is

disfunctional, just make sure someone who can read the results together as a

whole sees the results. Our local peditrician (whom I really like) said

that there was nothing there. Dr. Goldberg saw ... and he was right.

It's his extensive experience that makes the big difference here I think.

And in case it eases your mind, I do know that he has turned away a few

patients who, after looking over their bloodwork and family history, he

determined " truly autistic " not having . He is not in the business of

selling treatments to desperate families, but rather he wants to help all

those he can.

Hope this helps

April

Re: herpes titres after valtrex

> So in your son's case, what labs did justify the use of valtrex?

>

> -

>

> April Jagnow <april@...> wrote:

>

>

> > Someone explained that here once (for one of their children). Didn't the

> titres shoot up after the med was given?

> >

> > -

> >

>

> My son did this and I think it is fairly common when dealing with someone

> with immune disfuction. His immune system was so repressed that he was not

> creating antibodies for HV6 though it was quite active in his body. Once

> Dr. G gave him antivirals (valtrex) his titre shot up; my son's body had

> been given the opportunity it needed to finally fight this dangerous

virus.

>

> April

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Hi ,

My son was sick alot as a baby and toddler. If there was a 2 day cold going

around, he's catch it and it would last a week. Sometimes he was able to

fight it off himself (though much slower than normal), but often we'd have

to get the antibiotics because he had gotten another ear infection. I think

he was able to make antibodies for his vaccinations. The vaccines would

make him tired for a day maybe a low grade fever, and then he'd be fine; he

never got really sick from a vaccine. Of course, I'd never let them stick

him with one if he had so much as a sniffle though.

Regarding strep, I do have a friend who took her daughter to an immunologist

who determined that her body is unable to make antibodies to strep... so her

ASO titre is negative, but her reaction to strep is severe, resulting in

aggressive behavior. I'm not sure strep is a " stealth " bug as much as it is

just really, really hard to kill. I know a " normal " kid who got strep 9

times her kindergarten year. I personally think this girl is a strep

carrier and that it just lays in wait for her to get tired so it can wreak

havok. Is that crazy?

April

herpes titres after valtrex

>

>

>

> > Someone explained that here once (for one of their children). Didn't

> the

> titres shoot up after the med was given?

> >

> > -

> >

>

> My son did this and I think it is fairly common when dealing with

> someone

> with immune disfuction. His immune system was so repressed that he was

> not

> creating antibodies for HV6 though it was quite active in his body. Once

> Dr. G gave him antivirals (valtrex) his titre shot up; my son's body had

> been given the opportunity it needed to finally fight this dangerous

> virus.

>

> April

>

>

>

>

[Guest guest]

That is exactly why I asked about it, my son has subtle OCD every once

in awhile, but not consistently, has had strep in the past a couple of

times as an infant, but his ASO titers were tested by his pediatrtian

(not during a strep episode) at my request and they were in the normal

range. So, I was wondering if strep sticks around in the system if ASO

is normal, or does the OCD generally just creep up if a new case of

strep occurs?

RE: herpes titres after valtrex

Hi -

I haven't heard that happen w/strep, but more than a

few times with HHV6. HHV6 has the ability to 'tweak'

the immune system to hide from it, as well as make it

more difficult to fight off other pathogens as well

due to the shift it creates - sorta like an evil

little immune modulator I think.

I was curious why you ask about the strep though. Any

particular experience making you wonder that? You can

still have some subtle ocd symptoms w/strep without

necessarily having very high titers. My youngest

never had high ASO but would still get some OCD

w/strep (and mycoplasma) - it would just go away

within 3 days of antibiotics.

--- " K. Fischer " <elfischercharter (DOT)

<mailto:elfischer%40charter.net> net> wrote:

> Has

> anyone had this happen

> with strep, normal ASO titers until treated with

> antibiotics then it

> goes up? I find this really interesting.

>

>

>

__________________________________________________

[Guest guest]

April:

When your son was getting these dramatic titer results after the Valtrex

and the Famvir, did he have symptoms of the illness at all, or was he

healthy with these results, just curious.

Re: herpes titres after valtrex

Hi ,

That is a really good question. There were just some subtle signs of

immune

disfuction such as his liver was not functioning properly, low ferritin,

his

HV6 was 1:10 which is the borderline, I can't remember all the details.

Due

to family history (I have a brother who is quite possibly on the

spectrum,

and at least 2 cousins) and my son's developmental history, and Dr.

Goldberg's years of experience of seeing this phenomenon where the

titres

shoot up after antivirals, he just knew. It was a bit of a leap of faith

for us; might have been easier if we did see dramatic lab results. But

Dr.

Golberg's theory made such sense and I have a friend whose daughter had

been

greatly helped by him so we tried it. It was very scary to put my then 3

year old on valtrex. I was able to do it knowing that Dr. Goldberg

orders

blood draws every 4 to 6 weeks to check for how/if the meds are working

and

if any possible damage could be taking place as a result of the meds. He

is

so thorough and so careful. And as time has gone by, his " hunches " have

so

often been so dead on. For ex: we switched from valtrex to famvir and

the

titre shot up again. We increased famvir and it shot up again. He just

knows how to nail this nasty virus.

If you choose to do the labwork to see if your son's immune system

is

disfunctional, just make sure someone who can read the results together

as a

whole sees the results. Our local peditrician (whom I really like) said

that there was nothing there. Dr. Goldberg saw ... and he was right.

It's his extensive experience that makes the big difference here I

think.

And in case it eases your mind, I do know that he has turned away a few

patients who, after looking over their bloodwork and family history, he

determined " truly autistic " not having . He is not in the business

of

selling treatments to desperate families, but rather he wants to help

all

those he can.

Hope this helps

April

Re: herpes titres after valtrex

> So in your son's case, what labs did justify the use of valtrex?

>

> -

>

> April Jagnow <apriljagnow (DOT) <mailto:april%40jagnow.com> com> wrote:

>

>

> > Someone explained that here once (for one of their children). Didn't

the

> titres shoot up after the med was given?

> >

> > -

> >

>

> My son did this and I think it is fairly common when dealing with

someone

> with immune disfuction. His immune system was so repressed that he was

not

> creating antibodies for HV6 though it was quite active in his body.

Once

> Dr. G gave him antivirals (valtrex) his titre shot up; my son's body

had

> been given the opportunity it needed to finally fight this dangerous

virus.

>

> April

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Goodness... it's so hard to say. It isn't always

exclusively strep. Mycoplasma can trigger some subtle

OCD - not usually nearly as intense as strep in my

experience - and even some strains of lactobacillus,

although I am not sure if I've had problems w/the l.

acidophilus strain (I've taken it without problems

before and am trying it again now) but have definitely

briefly developed OCD after eating yogurt before - I

had figured that out as a teenager before I had ever

heard of any of this.

Those bacteria can also trigger restless leg syndrome,

stuff like that. I'll repost an abstract that

Cheryl/Raptor had posted w/her comments...

Is your child on a single strain probiotic? Either

way, yes strep is quite common in the throat and

sinuses without being an infection, but so are other

things, so the possibility is that your son may react

subtly to other bacteria as well. It doesn't have to

be only about strep. Dr G has treated some kids w/

Ery-ped (mine included) w/ OCD symptoms despite normal

ASO of 10, and I've seen both of my kids respond to it

- and I just figured it wasn't strep but something

else in that class.

If you can't get treatment for it, don't stress too

much - focus on keeping the diet good and tight, keep

that GI flora as healthy as you can w/probiotics too

unless you want to test it by pulling out your

probiotic for a few days then adding it back to see if

it's a possible (and possibly temporary) trigger.

HTH-

--- " K. Fischer " <elfischer@...> wrote:

> That is exactly why I asked about it, my son has

> subtle OCD every once

> in awhile, but not consistently, has had strep in

> the past a couple of

> times as an infant, but his ASO titers were tested

> by his pediatrtian

> (not during a strep episode) at my request and they

> were in the normal

> range. So, I was wondering if strep sticks around

> in the system if ASO

> is normal, or does the OCD generally just creep up

> if a new case of

> strep occurs?

>

>

__________________________________________________

[Guest guest]

Hi ,

I'm sure he had symptoms, but not of fever or anything like that. When we

first started with Dr. Goldberg, my son just couldn't sleep at night. He'd

be up hours every night. The first thing I noticed immediately with

starting valtrex was that my son slept for 3 days. He had a lot of catching

up to do! We haven't gone back to those sleepless nights. What Dr.

Goldberg keeps asking over and over is " Is he bright? " " Is he alert? " " Do

you see that sparkle in his eyes? " " Does he look as sharp and alert as his

peers? " If the answer was no or even almost, he was making adjustments,

though he does this gradually over time. And those adjustments did bring

improvement in that sparkle and in processing time- the amount of time it

took for him to answer me.

April

Re: herpes titres after valtrex

> So in your son's case, what labs did justify the use of valtrex?

>

> -

>

> April Jagnow <apriljagnow (DOT) <mailto:april%40jagnow.com> com> wrote:

>

>

> > Someone explained that here once (for one of their children). Didn't

the

> titres shoot up after the med was given?

> >

> > -

> >

>

> My son did this and I think it is fairly common when dealing with

someone

> with immune disfuction. His immune system was so repressed that he was

not

> creating antibodies for HV6 though it was quite active in his body.

Once

> Dr. G gave him antivirals (valtrex) his titre shot up; my son's body

had

> been given the opportunity it needed to finally fight this dangerous

virus.

>

> April

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Are there any probiotic strains in particular to avoid as possible OCD

gut triggers? I could swear someone once posted something about that.

RE: herpes titres after valtrex

Goodness... it's so hard to say. It isn't always

exclusively strep. Mycoplasma can trigger some subtle

OCD - not usually nearly as intense as strep in my

experience - and even some strains of lactobacillus,

although I am not sure if I've had problems w/the l.

acidophilus strain (I've taken it without problems

before and am trying it again now) but have definitely

briefly developed OCD after eating yogurt before - I

had figured that out as a teenager before I had ever

heard of any of this.

Those bacteria can also trigger restless leg syndrome,

stuff like that. I'll repost an abstract that

Cheryl/Raptor had posted w/her comments...

Is your child on a single strain probiotic? Either

way, yes strep is quite common in the throat and

sinuses without being an infection, but so are other

things, so the possibility is that your son may react

subtly to other bacteria as well. It doesn't have to

be only about strep. Dr G has treated some kids w/

Ery-ped (mine included) w/ OCD symptoms despite normal

ASO of 10, and I've seen both of my kids respond to it

- and I just figured it wasn't strep but something

else in that class.

If you can't get treatment for it, don't stress too

much - focus on keeping the diet good and tight, keep

that GI flora as healthy as you can w/probiotics too

unless you want to test it by pulling out your

probiotic for a few days then adding it back to see if

it's a possible (and possibly temporary) trigger.

HTH-

--- " K. Fischer " <elfischercharter (DOT)

<mailto:elfischer%40charter.net> net> wrote:

> That is exactly why I asked about it, my son has

> subtle OCD every once

> in awhile, but not consistently, has had strep in

> the past a couple of

> times as an infant, but his ASO titers were tested

> by his pediatrtian

> (not during a strep episode) at my request and they

> were in the normal

> range. So, I was wondering if strep sticks around

> in the system if ASO

> is normal, or does the OCD generally just creep up

> if a new case of

> strep occurs?

>

>

__________________________________________________

[Guest guest]

Some recently posted something about avoiding several strains for reasons not

limited to OCD so maybe that's what you are thinking of, but I have heard that

you should avoid Streptococcus thermophilus (it's used to make yogurt, but not

keifer).

-

" K. Fischer " <elfischer@...> wrote:

Are there any probiotic strains in particular to avoid as possible OCD

gut triggers? I could swear someone once posted something about that.

RE: herpes titres after valtrex

Goodness... it's so hard to say. It isn't always

exclusively strep. Mycoplasma can trigger some subtle

OCD - not usually nearly as intense as strep in my

experience - and even some strains of lactobacillus,

although I am not sure if I've had problems w/the l.

acidophilus strain (I've taken it without problems

before and am trying it again now) but have definitely

briefly developed OCD after eating yogurt before - I

had figured that out as a teenager before I had ever

heard of any of this.

Those bacteria can also trigger restless leg syndrome,

stuff like that. I'll repost an abstract that

Cheryl/Raptor had posted w/her comments...

Is your child on a single strain probiotic? Either

way, yes strep is quite common in the throat and

sinuses without being an infection, but so are other

things, so the possibility is that your son may react

subtly to other bacteria as well. It doesn't have to

be only about strep. Dr G has treated some kids w/

Ery-ped (mine included) w/ OCD symptoms despite normal

ASO of 10, and I've seen both of my kids respond to it

- and I just figured it wasn't strep but something

else in that class.

If you can't get treatment for it, don't stress too

much - focus on keeping the diet good and tight, keep

that GI flora as healthy as you can w/probiotics too

unless you want to test it by pulling out your

probiotic for a few days then adding it back to see if

it's a possible (and possibly temporary) trigger.

HTH-

--- " K. Fischer " <elfischercharter (DOT)

<mailto:elfischer%40charter.net> net> wrote:

> That is exactly why I asked about it, my son has

> subtle OCD every once

> in awhile, but not consistently, has had strep in

> the past a couple of

> times as an infant, but his ASO titers were tested

> by his pediatrtian

> (not during a strep episode) at my request and they

> were in the normal

> range. So, I was wondering if strep sticks around

> in the system if ASO

> is normal, or does the OCD generally just creep up

> if a new case of

> strep occurs?

>

>

__________________________________________________

[Guest guest]

Hi -

The only ones mentioned in a research abstract that

was posted are " Gram-positive pathogenic Streptococcus

pyogenes or nonpathogenic Lactobacillus rhamnosus " but

there are so many...

That's why we just stick to Acidophilus. I would

imagine it would vary per individual. You wouldn't

want to take something broad like Culturelle if you

have any OCD issues. However, having good gut flora

is important. How do you find the balance? But if

your diet is good and low sugar and there's not a

yeast issue, etc, supplementing with the simple ones

should benefit.

HTH-

--- " K. Fischer " <elfischer@...> wrote:

> Are there any probiotic strains in particular to

> avoid as possible OCD

> gut triggers? I could swear someone once posted

> something about that.

>

>

__________________________________________________