Re: My Child's Eye Turns

[Guest guest]

When Lion's Eye Clinic here at Albany Med (NY), the supposed " best "

around here, told me there was nothing wrong with my daughter's eyes

(I have pictures of her strabismus, it's an esotropia, turns in) I

took her to see a Dr. Fox in Niskayuna, NY. He does not take

insurance but they can sometimes be persuaded to pay if your main doc

will write a letter. Ours said that " Behavioral Optometrists and

vision therapy are a bunch of hooey and a waste of $$ so he would have

no part of it " . We fired him! Went on our own and Dr. Fox found her

to be farsighted. Giving her glasses got rid of her " enstein "

walk and her inability to do stairs. The convergence / divergence and

depth perception were completely off before that. NOW, as far as the

esotropia, it stopped for a couple months with the glasses then slowly

crept back. He had us put abt. 1/4 " wide strips of the invisible type

tape (foggy looking) on her lenses vertically from the nose out. We

do this about 45 mins. every day. I believe it's enough visual

distraction to cause the eyes to focus and not drift. The other thing

we are finding is that her struggles with crossing midline physically

seems to be connected. When we do midline exercises suggested by Dr.

Fox and " Brain Gym " type things (snow angels on the L.R. rug for

example) her eyes get better.... hmmm..... Her dad IS dyslexic - and

he has slight challenges crossing midline on harder activities... hmmm...

What do you think?

Darlene

>

> My name is and I also have an Eye that Turns. The doctor

who told you that the surgery is ONLY cosmetic is CORRECT!! The

condition is called Strabismus if YOU would like to " shock " your MD

with your Knowledge! I still have difficulty with my eye turning

ESPECIALLY when I am feeling extra tired or have a cold or other

infection. I had the BEST Md's available during the 1980's. They tried

one thing after another to correct my condition including, taping my

eyeglasses on the " good " side to force my " LAZY EYE " to work harder.

After many unsuccessful attempts to correct the problem it was decided

that surgery was my best chance at a " normal " childhood!! In 1983 I

had my surgery while I was in the first grade. I remember being

excited about getting to miss some school for a week or so! I also

recall that I had a severe allergic reaction to the anesthetic the

surgeon used!! I vomited for at least an hour! As far as suggestions

to help your child I am afraid to say " I do

> not know what you should do " ... But have you tried the Emotional

Freedom Technique? www.lifescriptcounseling.com has an explanation if

you want to learn more. Other that that I recommend that you " look to

a higher power " as well as doing additional research online and

following the suggestions of the provider that you trust the most!!

>

> Blessings,

>

>

[Guest guest]

Yes, I very much do believe that Dr. Mom is a much better choice! I

am ultimately the only one responsible for my child.

I read your other reply about the $900 of broken glasses. Why not go

to the dollar store and go thru several cheap ones to get him used to

the idea? Just the slight magnification or some plain lens ones.

Does anyone else in the house wear glasses? 's dad wears them

all the time and I put mine on on occasion so she's seen them before.

Honestly, she was easy. She first pulled them off, we put them back

on and held her arms. Within about a minute she was walking around

the room looking at everything as if for the first time. If the

glasses moved she'd push them back up her nose. She will bend them

all to heck if she's mad at us or bored and out of our sight for a

second but that's only happened I think 4 times since September.

Wish I had more ideas. My bottom line would be to try anything first

before surgery. BTW, there are simpler exercises. If you want I can

scan ours and send them to you via email. Are you anywhere near our

Dr. Fox?

Darlene

>

> It's so so so hard to know what to do. We have had so many

different opinions. Some say go with the prism lenses and behavioral

vision therapy. Others say that is total bunk and will not work and

laugh it off. Other say go for surgery. Behavioral docs say NO

surgery, NEVER surgery. Yikes. Why is everything so hard? Ever

notice we have to be our kids doctors?

>

>

> Re: My Child's Eye Turns

>

>

> When Lion's Eye Clinic here at Albany Med (NY), the supposed " best "

> around here, told me there was nothing wrong with my daughter's eyes

> (I have pictures of her strabismus, it's an esotropia, turns in) I

> took her to see a Dr. Fox in Niskayuna, NY. He does not take

> insurance but they can sometimes be persuaded to pay if your main doc

> will write a letter. Ours said that " Behavioral Optometrists and

> vision therapy are a bunch of hooey and a waste of $$ so he would have

> no part of it " . We fired him! Went on our own and Dr. Fox found her

> to be farsighted. Giving her glasses got rid of her " enstein "

> walk and her inability to do stairs. The convergence / divergence and

> depth perception were completely off before that. NOW, as far as the

> esotropia, it stopped for a couple months with the glasses then slowly

> crept back. He had us put abt. 1/4 " wide strips of the invisible type

> tape (foggy looking) on her lenses vertically from the nose out. We

> do this about 45 mins. every day. I believe it's enough visual

> distraction to cause the eyes to focus and not drift. The other thing

> we are finding is that her struggles with crossing midline physically

> seems to be connected. When we do midline exercises suggested by Dr.

> Fox and " Brain Gym " type things (snow angels on the L.R. rug for

> example) her eyes get better.... hmmm..... Her dad IS dyslexic - and

> he has slight challenges crossing midline on harder activities...

hmmm...

>

> What do you think?

> Darlene

[Guest guest]

My son's left eye started to wander, and was turning out at 6 months old. He started wearing glasses because aside from the turn his vision was a mess. His right eye was at the very high end of normal, his left at the very low end. His optho explained to me that his immature brain couldn't take the 2 different images it was getting and make a single one for his brain to see, so basically his brain was shutting down his left eye. The turn was always worse when he was sick or tired. We started patching the good eye 4 hours a day and my son wore glasses. We got him new lenses any time there was the slightest change in his vision. He was in bifocals at one point. He did have strabismus surgery. Three years and 3 months later my son's vision is normal in both eyes and very close to the same in both eyes, no more at opposite ends of the normal range. He is out of glasses. he still has a very minor turn in his left eye, usually noticeable when he's tired or sick, or when he's spacing out, but what was once a 30 degree turn in his left eye, is now very minor. His eyes didn't always work in sync either.

I have no regret taking the route we did. My son is 6 years old now and when we started seeing doctors for his eyes he was 6 months old. I didn't know about autism or any issues involved with it, or any other way to treat my son.

There is a video of my son here. At the 1 minute mark he is in his crib. Look at his eyes. He is looking straight ahead at the camera but his left eye is looking somewhere else. You can actually see him refocus his eyes and pull the 2 into working together.

I also put some pictures of him in the photo section an album titled HubsMom. They may not show up yet because it says they have to be approved, but they should show up at some point. I don't have many photos from early showing the turn. That was predigital camera for me and I'm sure we probably tossed any really bad eye photos. The picture I do have I kept because we were showing the scratches and bites my son got from a cat. there are a couple of pics showing him with glasses and once he got out of glasses

Kerrie

PS. I remember when my son was 7 months old and they told me he needed glasses. I cried off and on for days. I was sick to my stomach. I thought it was the worst thing in the world that could happen to my perfect beautiful boy. I hated the way he looked with the glasses. By the time he came out of them 3 years and 3 months later, we joked about putting clear lenses in his frames because he was so cute in his glasses and it was hard to imagine him without them. Plus once he was diagnosed with autism, the eye glass issue seems so insignificant :)Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.

[Guest guest]

This may not pertain to your situation but my son' left eye would

wander sometimes, mostly when tired. It didn't happen all the time

but at least a couple times a day, since Starting the DAN protocol

last October, this no longer happens. We think that the Amino Acids

may have done something to help out because only his left eye from

the inner corner would get red after taking them, I was worried

about it at first but then we started to notice the eye no longer

turned. I asked our DAN about this and he said that he may have had

a virus in that eye and the Amino's helped to clear it up.

> >

> >

> > Another idea is to get glasses through Walmart vision centers.

For

> $10 you

> > insure the lenses for 1 year or until the prescription changes

(if

> its less

> > than a year) and for $10 you insure the frames for a year. In

my

> son's 3 yrs 3

> > months in glasses we went through about 14 frames and paid for 2

or

> 3. We

> > replaces his lenses atleast a dozen times for free. He would put

> them in his

> > mouth and rub his bottom teeth on them.

> >

> > Kerrie

> >

> > In a message dated 2/18/2008 12:42:11 A.M. Eastern Standard

Time,

> > mouse@ writes:

> >

> >

> > I read your other reply about the $900 of broken glasses. Why

not

> go

> > to the dollar store and go thru several cheap ones to get him

used

> to

> > the idea? Just the slight magnification or some plain lens

ones.

> >

> >

> >

> >

> >

> >

> > **************Ideas to please picky eaters. Watch video on AOL

> Living.

> > (http://living.aol.com/video/how-to-please-your-picky-

eater/rachel-

> campos-duffy/

> > 2050827?NCID=aolcmp00300000002598)

> >

>

[Guest guest]

WOW! That's interesting Lynn, thanks for sharing that. There have definitely been points where my son's eye was better than now. It seems to get more lazy, not less. What kind/brand of amino acids did you buy? Did you also do antivirals? We're doing this and I'm hoping it will help...but not so far.

Thanks.

Re: My Child's Eye Turns

This may not pertain to your situation but my son' left eye would wander sometimes, mostly when tired. It didn't happen all the time but at least a couple times a day, since Starting the DAN protocol last October, this no longer happens. We think that the Amino Acids may have done something to help out because only his left eye from the inner corner would get red after taking them, I was worried about it at first but then we started to notice the eye no longer turned. I asked our DAN about this and he said that he may have had a virus in that eye and the Amino's helped to clear it up. > >> > > > Another idea is to get glasses through Walmart vision centers. For > $10 you > > insure the lenses for 1 year or until the prescription changes (if > its less > > than a year) and for $10 you insure the frames for a year. In my > son's 3 yrs 3 > > months in glasses we went through about 14 frames and paid for 2 or > 3. We > > replaces his lenses atleast a dozen times for free. He would put > them in his > > mouth and rub his bottom teeth on them. > > > > Kerrie> > > > In a message dated 2/18/2008 12:42:11 A.M. Eastern Standard Time, > > mouse@ writes:> > > > > > I read your other reply about the $900 of broken glasses. Why not > go> > to the dollar store and go thru several cheap ones to get him used > to> > the idea? Just the slight magnification or some plain lens ones. > > > > > > > > > > > > > > **************Ideas to please picky eaters. Watch video on AOL > Living. > > (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-> campos-duffy/> > 2050827?NCID=aolcmp00300000002598)> >>

[Guest guest]

I have wondered myself if my daughter's eye isn't getting better due

to improved health overall. As I've added things here and there it

seems the ones that may stimulate brain activity the most (for her

anyway) have also strengthened or helped the eye stay focused - no pun

intended.

Darlene

>

> WOW! That's interesting Lynn, thanks for sharing that. There have

definitely been points where my son's eye was better than now. It

seems to get more lazy, not less. What kind/brand of amino acids did

you buy? Did you also do antivirals? We're doing this and I'm hoping

it will help...but not so far.

>

> Thanks.

>

>

> Re: My Child's Eye Turns

>

>

> This may not pertain to your situation but my son' left eye would

> wander sometimes, mostly when tired. It didn't happen all the time

> but at least a couple times a day, since Starting the DAN protocol

> last October, this no longer happens. We think that the Amino Acids

> may have done something to help out because only his left eye from

> the inner corner would get red after taking them, I was worried

> about it at first but then we started to notice the eye no longer

> turned. I asked our DAN about this and he said that he may have had

> a virus in that eye and the Amino's helped to clear it up.

[Guest guest]

Darlene - Have you given her l-carnitine?

Re: My Child's Eye Turns> > > This may not pertain to your situation but my son' left eye would > wander sometimes, mostly when tired. It didn't happen all the time > but at least a couple times a day, since Starting the DAN protocol > last October, this no longer happens. We think that the Amino Acids > may have done something to help out because only his left eye from > the inner corner would get red after taking them, I was worried > about it at first but then we started to notice the eye no longer > turned. I asked our DAN about this and he said that he may have had > a virus in that eye and the Amino's helped to clear it up.

[Guest guest]



acetyl l-carnitine. I started it recently but think it's giving him horrible diarrhea.

Re: My Child's Eye Turns> > > This may not pertain to your situation but my son' left eye would > wander sometimes, mostly when tired. It didn't happen all the time > but at least a couple times a day, since Starting the DAN protocol > last October, this no longer happens. We think that the Amino Acids > may have done something to help out because only his left eye from > the inner corner would get red after taking them, I was worried > about it at first but then we started to notice the eye no longer > turned. I asked our DAN about this and he said that he may have had > a virus in that eye and the Amino's helped to clear it up.