Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Kristie, I read your post on the list and your question about what to expect when going to Dr. Goldberg. I am probably not answering that question. I will leave that to other list members. But I will give you information to help you. Going to Dr. G is the best thing you can do for your child. You are extremely fortunate to be getting there when your son is only three. That way when your son's body becomes more healthy, you won't have as much to teach him to catch up to his peers. I am forwarding articles I send to parents to start teaching them about the medical stuff. Some are my son's story, others are written by Dr. G and Hopkins. If there are any other list members who need help email me privately and I will forward what I sent Kristie. I would love to help any way I can. Marcia 805 497-8202 ----- Original Message ----- I hope this email will help you understand better how to help your child both medically and educationally. What most medical doctors are just starting to accept is that Autism, ADD, ADHD are the result of an immune systems that aren't working properly. There is even a new name for these conditions (Neuro-Immune Dysfunction Syndromes) I should probably start by telling you about the website. It is http://www.nids.net On there is a section titled " For families " That has a link to Dr. Goldberg's website titled " Neuroimmune doctor " There is a lot of good information there. In this email are two articles I wrote two articles that tell my son, 's recovery from Autism. I wrote " One Cure Doesn't Fit All " when he was almost seven. I also attached a more recent article not yet published called, " What Our Pediatrician Never Told Us. " In both articles I called him to protect his privacy. is now seventeen and recovered. When my son entered kindergarten at almost six years old, he was in the third percentile for speech. By that time we had been seeing Dr. Goldberg for about a year. By the third grade, my son tested in the 85th percentile for speech and by fifth grade no longer received any assistance at all at school. Dr. Goldberg uses only hard science and medical tests to treat our children. On my son's current report card, he earned all " A's " and one " B. " is in all the AP classes with no assistance. He just scored in the 92nd percentile in the nation on his SAT's for Math. In critical reading he was in the 87th percentile. Not too shabby for a kid who was in the third percentile for speech when he entered kindergarten. His teachers and friends do not know he was ever diagnosed with Autism. But more importantly, he is well liked and doing all the things the doctors said would never be possible. None of this would have been possible without Dr. G. or the educational component. Helping recover is the hardest thing I have ever done. It took so much strength to be more stubborn than he was. I f I had known in the beginning, he would get better as a result of the hard work, I could have continued. But it was extremely difficult to keep working at this not knowing if this would ever help him be " normal " was extremely difficult. Especially since I was told by the " experts " that would probably end up in an institution. Most of what I did to help was so I would have no guilt later. I never really believed he could recover from Autism. I wanted to be able to tell myself I did everything possible to help him. My son always had language, but it definitely wasn't conversational speech. The hardest thing I ever did was to keep speaking to a child who showed no response one way or another that he understood me or cared about what I said. It was only later after he was better that I realized he did understand the things I talked to him about. Think about it. How long does it take a normal kid to learn language? Three years to be proficient. If you could wave a magic wand and make his body normal, it would still take time to catch him up. Keep talking to your kids For our kids, English is a foreign language that you have to teach them. One piece of advice Maurice gave me on the phone that was an enormous help was to use what they like. loves the computer and we used that. He started using it at two. We looked upon the computer as another therapist. Every program he did had some educational component even though they were fun. He was using the computer even before we knew there was a problem. I always let him get ahead academically, because then he had one area where he shined. As he got older, the other kids realized he was great at Math and History and would ask him for help with stuff at school. We also used the computer as a reward. Most of our kids love the computer. He would do it for hours. They love that predictability thing. hated anything physical, so to improve his motor planning and muscle tone we would set up obstacle courses, where the last thing would be an Edmark, son or Learning Company computer game. That made him want to do it. He also liked it when we timed him with a stop watch so he could try to beat his last time. 's progress was ten steps forward, and three steps back. It was long and slow. It is not a direct climb to improvement. We all concentrated so much on what he needed to learn that sometimes we didn't realize all that he had learned. At the beginning of each school year I would make a list for his teachers about what he still needed to learn. Sometimes I didn't realize how far he had come until I started deleting things from the list. We tend to notice what is still left to learn, not what we had accomplished. So remember to pat yourself on the back. Helping our kids get better is kind of like a roller coaster. Sometimes you're at the top feeling good about what is happening and sometimes you hit bottom. Autistic children also create a lot of tension in the home. I know my husband and I can get through anything after we survived 's recovery. I have so many things to help that I will start you slowly. Yell uncle if I send too much Marcia 805 497-8202 Quote Link to comment Share on other sites More sharing options...
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