Re: hypo thyroid? incidence with autism/cfs/nids

[Guest guest]

Most kids with ASD have hypo-thyroidism is my understanding. The most accurate

test for this is actually one you do at home. Search " basal body temperature "

and " thyroid " to get directions how. I am not aware of a new study, but have

seen some in the past. The blood tests are often not accurate or the doctor

does not order the full panel/does not interpret them correctly unfortunately.

-

catherine quinn <quinn.cat1968@...> wrote:

Does anyone know about the thyroid issue with autism/cfs/nids? Is there a new

study showing issues with thyroid?

thanks

cat

<><

---------------------------------

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[Guest guest]

My son has nids and I have cfs. Both of us have low thyroid and both of us

are considerably overweight and sluggish. Years ago, I was diagnosed with low

thyroid and was on synthroid for a few years but did not experience any

improvement in physical symptoms/weight gain so I stopped the synthroid (sp?).

I

know that a while ago, there was talk of renaming nids to something like

neuroendocrine immune dysfunction...due to the complex endocrine issues many

experience.

Please let me know if any of you have found better solutions to this problem.

mary

[Guest guest]

My son has recently had a thyroid test and the results show that his TSH hormone

levels are low. My son's pediatrician here in New York wants my son to see an

endocrinologist. We have a phone consult with Dr. Goldberg soon and want to

discuss the results with him. I'm not sure whether the results indicate

hypo-thyroidism or hyper-thythroidism. I'm wondering what is the connection

between thyroid problems and autism-nids kids. Is this a common problem for many

of the nids patients? Thanks for any information. Tony and Gayle Vizioli

Re: hypo thyroid? incidence with autism/cfs/nids

Most kids with ASD have hypo-thyroidism is my understanding. The most accurate

test for this is actually one you do at home. Search " basal body temperature "

and " thyroid " to get directions how. I am not aware of a new study, but have

seen some in the past. The blood tests are often not accurate or the doctor

does not order the full panel/does not interpret them correctly unfortunately.

-

catherine quinn <quinn.cat1968@...> wrote:

Does anyone know about the thyroid issue with autism/cfs/nids? Is there a new

study showing issues with thyroid?

thanks

cat

<><

---------------------------------

Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with

Messenger with Voice.

[Guest guest]

Dr G does test TSH .. our son has been in normal range on each occasion

--- gvizjazz@... wrote:

> My son has recently had a thyroid test and the results show that his

> TSH hormone levels are low. My son's pediatrician here in New York

> wants my son to see an endocrinologist. We have a phone consult

> with Dr. Goldberg soon and want to discuss the results with him. I'm

> not sure whether the results indicate hypo-thyroidism or

> hyper-thythroidism. I'm wondering what is the connection between

> thyroid problems and autism-nids kids. Is this a common problem for

> many of the nids patients? Thanks for any information. Tony and

> Gayle Vizioli

>

> Re: hypo thyroid? incidence with autism/cfs/nids

>

>

> Most kids with ASD have hypo-thyroidism is my understanding. The

> most accurate

> test for this is actually one you do at home. Search " basal body

> temperature "

> and " thyroid " to get directions how. I am not aware of a new study,

> but have

> seen some in the past. The blood tests are often not accurate or

> the doctor

> does not order the full panel/does not interpret them correctly

> unfortunately.

>

> -

>

> catherine quinn <quinn.cat1968@...> wrote:

> Does anyone know about the thyroid issue with autism/cfs/nids? Is

> there a new

> study showing issues with thyroid?

>

> thanks

>

> cat

> <><

>

>

> ---------------------------------

> Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with

>

> Messenger with Voice.

>

>

[Guest guest]

Hi -

If your thyroid levels are low, it could be dangerous

to not be on a supplement. There may be another you

could try if you see an endocronologist - like Armor

(sp?). CFS would prevent you from being able to

necessarily observe improvement, but that does not

mean you don't need to be taking it to keep your body

functioning. Not having sufficient levels of thyroid

hormone will make it even more difficult for you to

overcome the chronic infections, etc, that may

exacerbate CFS. I would urge you to have your thyroid

levels rechecked and consider continuing this therapy

regardless of whether you feel improvement or not.

Also, Evening Primrose Oil supplements could help you

get a little more out of the therapy, as it provides

some of the precursors to your hormones. But the

thyroid hormone is very very important.

Have you had your immune system evaluated?

Have you tried dietary intervention - ie most

importantly removing sugar, and also important -

removing dairy and whole grains, nuts, berries? This

is a difficult lifestyle change to make in a bad state

of fatigue - but one that will bring about the most

significant and rapid results as far as what you can

do on your own. Also, supplementing with Acidophilus

(probiotics) will help counteract yeast, provide the

good bacteria necessary for digestion, and by

improving digestion, start picking up your energy

levels a bit. Once you see a positive result, it's

easier to get motivated.

I went many years w/a sugar additiction that I thought

I'd never be able to break, but I recently have and

couldn't be happier that I've overcome most of it. I

feel better, too, though not yet as good as I plan to.

The only way I succeeded was to eat something of

protein or vegetable first every time I had a sugar

craving (like a Pepsi), and then I might have still

had the sugar ... but only after I ate something

nutritious - even if it was just some zuccini or

squash leftovers. Within two weeks, I realized I had

been HUNGRY all the time, undernourished, and that the

sugar craving was so constant because I actually

recognized hunger or anxiety as a need for Pepsi (aka

the devil!). It was almost no time that I was able to

stop the soda all together, then the ice cream, etc

etc. I still can't believe it has actually happened -

a serious 20 year addiction!

Also, I found that easily digestible foods give me

more energy, ie salami. Making sure you're getting

protein (with it's fat) in a little higher proportion

to carbs will also start giving energy. Of course,

you still need the probiotics for digesting - a

problem most CFIDS have. Enzyme-rich foods are also

good - salads, sourkraut, lacto-fermented type things.

(A great book for nutrient dense and high energy

foods is Nourishing Traditions by Sally Fallon.)

Getting that part under control, you may start perking

up some. You also need medical evaluation for chronic

infections, anemia, etc, and hopefully find a

knowledgeable doctor to help evaluate this... have you

had a lab workup? Any other significant medical

histories? What have you tried so far? How long have

you been in a state of CFS?

There is hope for improvement.

--- rhemary@... wrote:

> My son has nids and I have cfs. Both of us have low

> thyroid and both of us

> are considerably overweight and sluggish. Years

> ago, I was diagnosed with low

> thyroid and was on synthroid for a few years but did

> not experience any

> improvement in physical symptoms/weight gain so I

> stopped the synthroid (sp?). I

> know that a while ago, there was talk of renaming

> nids to something like

> neuroendocrine immune dysfunction...due to the

> complex endocrine issues many

> experience.

>

> Please let me know if any of you have found better

> solutions to this problem.

>

> mary

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi -

TSH is Thyroid Stimulating Hormone. If it is low,

then often the T3 hormone is high and would

typically/possibly indicate hyperthyroidism. Usually

the other -T3 or T4 - would be high at the same time.

It doesn't sound like your son's was...?

However, in , this is not always the case. I

can't give total details, but sometimes it can be an

" illness " result. When I'm sick w/a bacterial

infection, a lot of times my TSH will get low, but I'm

hypothyroid. They always recheck thinking my

Synthroid may be too high, but the levels are never

too high and sometimes come back w/all of them low.

One doc told me it was an 'illness profile'. I

remember Dr G giving me a brief explanation that it is

basically " immune-related " - at least in the way mine

presented.

Yes, it's a common problem. You'll want to see the

endocrinologist, but I'd also take advice per Dr

Goldberg, since he would possibly be more knowledgable

from the standpoint.

HTH- Don't worry.

--- gvizjazz@... wrote:

> My son has recently had a thyroid test and the

> results show that his TSH hormone levels are low. My

> son's pediatrician here in New York wants my son to

> see an endocrinologist. We have a phone consult

> with Dr. Goldberg soon and want to discuss the

> results with him. I'm not sure whether the results

> indicate hypo-thyroidism or hyper-thythroidism. I'm

> wondering what is the connection between thyroid

> problems and autism-nids kids. Is this a common

> problem for many of the nids patients? Thanks for

> any information. Tony and Gayle Vizioli

__________________________________________________

[Guest guest]

Have you switched from table/sea salt to " celtic sea salt? " It is salt the way

salt used to come -- with all 84 minerals instead of table salt which is

sometimes missing even the iodine or sea salt which only has about 4 minerals to

it.

It's a simple switch to make with many health benefits (including thyroid).

You can find it at health food stores or culinary shops (chefs use it for it's

better flavor). It is more salty than table salt, so you only add a pinch to

foods and preferably you add it just prior to serving.

This is perhaps just a piece of the thyroid puzzle, but a pretty easy one so I

thought I'd make the suggestion.

-

rhemary@... wrote:

My son has nids and I have cfs. Both of us have low thyroid and both of us

are considerably overweight and sluggish. Years ago, I was diagnosed with low

thyroid and was on synthroid for a few years but did not experience any

improvement in physical symptoms/weight gain so I stopped the synthroid (sp?).

I

know that a while ago, there was talk of renaming nids to something like

neuroendocrine immune dysfunction...due to the complex endocrine issues many

experience.

Please let me know if any of you have found better solutions to this problem.

mary