Re: Mom of 29 month old unofficially diagnosed with asd

[Guest guest]

Here are some books to help guide you:Biological Treatments for Autism and PDD – ShawChildren With Starving Brains – Jacquelyn McCandlessThe Puzzle of Autism:  Putting It All Together – Amy Yasko and GordonEvidence of Harm – KirbyChanging the Course of Autism: A Scientific Approach for Parents and Physicians – JepsonHealing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders – BockEnzymes for Autism and other Neurological Disorders – DefeliceIt would be helpful if you could give use your most pressing concerns and we can give suggestions.  Remember that each child has individual needs so it's not really a one size fits all approach which is why we need more info from you.  Yes, probiotics would be a good place to start.  I'll send you a file privately that can also help give you some direction.  You need to research the protocols and decide which protocol you would like to go with first.  Most people choose DAN!.  We started on DAN and moved on to NIDS as my son wasn't much of a responder.  It may be something we revisit if/when I feel we've gone as far as we can go with the NIDS protocol but it's a very individual choice.Cheryl Hi, I'm new here, just so excited to have been accepted into the group.I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he wasdiagnosed about 3 months back and am getting early interventionservices since dec. i started off with cfgf diet almost immediatelybut have only been soy free for about 2 weeks now. Now i'm atcrossroads to what i'm supposed to do, please tell me what kind ofsupplements i can give my son. i have been reading a lot from all overand extremely confused.i would guessa multivitaminan omega 3 supplementcal - mag ??probiotics and anti-fungal ??please direct me to the next step, i am stuck here after the diet began.thanks,kaly

[Guest guest]

Here are some books to help guide you:Biological Treatments for Autism and PDD – ShawChildren With Starving Brains – Jacquelyn McCandlessThe Puzzle of Autism:  Putting It All Together – Amy Yasko and GordonEvidence of Harm – KirbyChanging the Course of Autism: A Scientific Approach for Parents and Physicians – JepsonHealing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders – BockEnzymes for Autism and other Neurological Disorders – DefeliceIt would be helpful if you could give use your most pressing concerns and we can give suggestions.  Remember that each child has individual needs so it's not really a one size fits all approach which is why we need more info from you.  Yes, probiotics would be a good place to start.  I'll send you a file privately that can also help give you some direction.  You need to research the protocols and decide which protocol you would like to go with first.  Most people choose DAN!.  We started on DAN and moved on to NIDS as my son wasn't much of a responder.  It may be something we revisit if/when I feel we've gone as far as we can go with the NIDS protocol but it's a very individual choice.Cheryl Hi, I'm new here, just so excited to have been accepted into the group.I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he wasdiagnosed about 3 months back and am getting early interventionservices since dec. i started off with cfgf diet almost immediatelybut have only been soy free for about 2 weeks now. Now i'm atcrossroads to what i'm supposed to do, please tell me what kind ofsupplements i can give my son. i have been reading a lot from all overand extremely confused.i would guessa multivitaminan omega 3 supplementcal - mag ??probiotics and anti-fungal ??please direct me to the next step, i am stuck here after the diet began.thanks,kaly

[Guest guest]

Hi Kaly and welcome to the group. You will find a ton of information, both helpful and overwhelming, from this group. The best thing you can do is read a LOT. The books suggested are good ones. I would also suggest Elaine Gotschall's book called "Breaking the Vicious Cycle" which details information on another diet called Specific Carbohydrate Diet that many have seen amazing things from in their children. There is also an excellent book and an easy read by Karyn Seroussi called Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research & Recovery. This one is about gfcf, if you haven't already read it.

You are already on the right track with gfcfsf. Time will help you to decide if this dietary change is helping your child. In my VERY humble opinion, you might want to take the next step of getting your child on a powerful multivitamin. If you haven't already done so, check out the following websites:

www.kirkmanlabs.com - They specialize in supplements for kids on the spectrum. We use a multi that they sell called DRN. It was developed by our former DAN doctor, Neubrander, after treating tons of children, reading tons of test results, and formulating what might best help the majority of children. This is his minimum recommended dosing in one bottle. You can visit Dr. N's website to learn more about DAN treatment and see recovery videos at www.drneubrander.com. Kirkman's also sells other multis (among many other things) and lots of people use one called Super Nu Thera. What you get will depend upon whether or not your child will swallow pills, take a syrup, etc. Keep in mind that many of the capsules are big. (For my child, we use a medicine dropper that I buy at any local pharmacy. I mix the DRN capsules into a syrup, then shoot it "down the hatch" followed by a drink of water. My son tolerates this really really well. I put the water right into the cup that the mixed vitamin was in and I syringe every last drip of it into him.)

http://www.ourkidsasd.com/ is another good supplement site. This one was developed by a pharmacy called Lee Silsby and they have lots of supplements that people following the DAN protocol would be looking for.

www.vitacost.com is another good place to shop for supplements and their prices are good too, comparably.

Remember not to totally trust in everything you read online. There are a ton of websites out there in regard to autism and treatment, and just as many differing opinions. Your best bet is to find a doctor you trust and follow his or her guidelines. Then use these boards as a tool to learn, vent to other parents, get ideas for new treatments to talk to your doctor about, and see what works and what doesn't for others. Remember, this is a long and tough battle but your baby is so worth the fight. I'm still learning and struggling myself, and my son was diagnosed over three years ago.

Hang in there, good luck and feel free to email me offline anytime.

H.

Mom of 29 month old unofficially diagnosed with asd

Hi, I'm new here, just so excited to have been accepted into the group.I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he wasdiagnosed about 3 months back and am getting early interventionservices since dec. i started off with cfgf diet almost immediatelybut have only been soy free for about 2 weeks now. Now i'm atcrossroads to what i'm supposed to do, please tell me what kind ofsupplements i can give my son. i have been reading a lot from all overand extremely confused.i would guessa multivitaminan omega 3 supplementcal - mag ??probiotics and anti-fungal ??please direct me to the next step, i am stuck here after the diet began.thanks,kaly

[Guest guest]

Hi Kaly and welcome to the group. You will find a ton of information, both helpful and overwhelming, from this group. The best thing you can do is read a LOT. The books suggested are good ones. I would also suggest Elaine Gotschall's book called "Breaking the Vicious Cycle" which details information on another diet called Specific Carbohydrate Diet that many have seen amazing things from in their children. There is also an excellent book and an easy read by Karyn Seroussi called Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research & Recovery. This one is about gfcf, if you haven't already read it.

You are already on the right track with gfcfsf. Time will help you to decide if this dietary change is helping your child. In my VERY humble opinion, you might want to take the next step of getting your child on a powerful multivitamin. If you haven't already done so, check out the following websites:

www.kirkmanlabs.com - They specialize in supplements for kids on the spectrum. We use a multi that they sell called DRN. It was developed by our former DAN doctor, Neubrander, after treating tons of children, reading tons of test results, and formulating what might best help the majority of children. This is his minimum recommended dosing in one bottle. You can visit Dr. N's website to learn more about DAN treatment and see recovery videos at www.drneubrander.com. Kirkman's also sells other multis (among many other things) and lots of people use one called Super Nu Thera. What you get will depend upon whether or not your child will swallow pills, take a syrup, etc. Keep in mind that many of the capsules are big. (For my child, we use a medicine dropper that I buy at any local pharmacy. I mix the DRN capsules into a syrup, then shoot it "down the hatch" followed by a drink of water. My son tolerates this really really well. I put the water right into the cup that the mixed vitamin was in and I syringe every last drip of it into him.)

http://www.ourkidsasd.com/ is another good supplement site. This one was developed by a pharmacy called Lee Silsby and they have lots of supplements that people following the DAN protocol would be looking for.

www.vitacost.com is another good place to shop for supplements and their prices are good too, comparably.

Remember not to totally trust in everything you read online. There are a ton of websites out there in regard to autism and treatment, and just as many differing opinions. Your best bet is to find a doctor you trust and follow his or her guidelines. Then use these boards as a tool to learn, vent to other parents, get ideas for new treatments to talk to your doctor about, and see what works and what doesn't for others. Remember, this is a long and tough battle but your baby is so worth the fight. I'm still learning and struggling myself, and my son was diagnosed over three years ago.

Hang in there, good luck and feel free to email me offline anytime.

H.

Mom of 29 month old unofficially diagnosed with asd

Hi, I'm new here, just so excited to have been accepted into the group.I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he wasdiagnosed about 3 months back and am getting early interventionservices since dec. i started off with cfgf diet almost immediatelybut have only been soy free for about 2 weeks now. Now i'm atcrossroads to what i'm supposed to do, please tell me what kind ofsupplements i can give my son. i have been reading a lot from all overand extremely confused.i would guessa multivitaminan omega 3 supplementcal - mag ??probiotics and anti-fungal ??please direct me to the next step, i am stuck here after the diet began.thanks,kaly

[Guest guest]

Hi , i just read your mail now, i couldn't wait and ordered the

supernuthera this morning. I was surprised to hear the " down the

hatch " approach, hee hee... have been using that for all of my sons'

medicines this far, be it tylenol or liquid multi-vit..... it does go

down and stays down this way.

Kim and Cheryl, thanks for your inputs too. i guess i will start with

the cal-mag first, i know i can get it at the nearest wholefoods

market. so by the time the vitamins arrive, krithin(ds) would've been

on 6days of cal-mag, hopefully with good results. then wait a week and

start supernuthera, i guess.

I am reading thro the specific carb diet, am planning to take off

bad(illegal) carbs little by little, my son loves plain white

rice(aahh...maybe that was the culprit all along)...like all of you

fore-warned, i'll take it one step at a time. thanks again.

Kaly.

>

> Hi Kaly and welcome to the group. You will find a ton of

information, both helpful and overwhelming, from this group. The best

thing you can do is read a LOT. The books suggested are good ones. I

would also suggest Elaine Gotschall's book called " Breaking the

Vicious Cycle " which details information on another diet called

Specific Carbohydrate Diet that many have seen amazing things from in

their children. There is also an excellent book and an easy read by

Karyn Seroussi called Unraveling the Mystery of Autism and Pervasive

Developmental Disorder: A Mother's Story of Research & Recovery. This

one is about gfcf, if you haven't already read it.

>

> You are already on the right track with gfcfsf. Time will help you

to decide if this dietary change is helping your child. In my VERY

humble opinion, you might want to take the next step of getting your

child on a powerful multivitamin. If you haven't already done so,

check out the following websites:

>

> www.kirkmanlabs.com - They specialize in supplements for kids on the

spectrum. We use a multi that they sell called DRN. It was developed

by our former DAN doctor, Neubrander, after treating tons of

children, reading tons of test results, and formulating what might

best help the majority of children. This is his minimum recommended

dosing in one bottle. You can visit Dr. N's website to learn more

about DAN treatment and see recovery videos at www.drneubrander.com.

Kirkman's also sells other multis (among many other things) and lots

of people use one called Super Nu Thera. What you get will depend

upon whether or not your child will swallow pills, take a syrup, etc.

Keep in mind that many of the capsules are big. (For my child, we use

a medicine dropper that I buy at any local pharmacy. I mix the DRN

capsules into a syrup, then shoot it " down the hatch " followed by a

drink of water. My son tolerates this really really well. I put the

water right into the cup that the mixed vitamin was in and I syringe

every last drip of it into him.)

>

> http://www.ourkidsasd.com/ is another good supplement site. This

one was developed by a pharmacy called Lee Silsby and they have lots

of supplements that people following the DAN protocol would be looking

for.

>

> www.vitacost.com is another good place to shop for supplements and

their prices are good too, comparably.

>

> Remember not to totally trust in everything you read online. There

are a ton of websites out there in regard to autism and treatment, and

just as many differing opinions. Your best bet is to find a doctor

you trust and follow his or her guidelines. Then use these boards as

a tool to learn, vent to other parents, get ideas for new treatments

to talk to your doctor about, and see what works and what doesn't for

others. Remember, this is a long and tough battle but your baby is so

worth the fight. I'm still learning and struggling myself, and my son

was diagnosed over three years ago.

>

> Hang in there, good luck and feel free to email me offline anytime.

>

> H.

>

>

>

>

> Mom of 29 month old unofficially diagnosed

with asd

>

>

> Hi, I'm new here, just so excited to have been accepted into the

group.

> I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he was

> diagnosed about 3 months back and am getting early intervention

> services since dec. i started off with cfgf diet almost immediately

> but have only been soy free for about 2 weeks now. Now i'm at

> crossroads to what i'm supposed to do, please tell me what kind of

> supplements i can give my son. i have been reading a lot from all over

> and extremely confused.

>

> i would guess

> a multivitamin

> an omega 3 supplement

> cal - mag ??

> probiotics and anti-fungal ??

>

> please direct me to the next step, i am stuck here after the diet

began.

> thanks,

> kaly

>

[Guest guest]

be careful with SupernuThera some kids regress on it, not many but

roughly I would say 10-15% do not tolerate it at all and makes them

worse. For us it was probably folinic in it but who knows...

Our son also had a terrible horrible regression on calcium, made him 100

times more autistic overnight, again lots of kids do well on it (esp the

ca/magnesium when given in combo) but negative reactions are not that

uncommon.

Natasa

> >

> > Hi Kaly and welcome to the group. You will find a ton of

> information, both helpful and overwhelming, from this group. The best

> thing you can do is read a LOT. The books suggested are good ones. I

> would also suggest Elaine Gotschall's book called " Breaking the

> Vicious Cycle " which details information on another diet called

> Specific Carbohydrate Diet that many have seen amazing things from in

> their children. There is also an excellent book and an easy read by

> Karyn Seroussi called Unraveling the Mystery of Autism and Pervasive

> Developmental Disorder: A Mother's Story of Research & Recovery. This

> one is about gfcf, if you haven't already read it.

> >

> > You are already on the right track with gfcfsf. Time will help you

> to decide if this dietary change is helping your child. In my VERY

> humble opinion, you might want to take the next step of getting your

> child on a powerful multivitamin. If you haven't already done so,

> check out the following websites:

> >

> > www.kirkmanlabs.com - They specialize in supplements for kids on the

> spectrum. We use a multi that they sell called DRN. It was developed

> by our former DAN doctor, Neubrander, after treating tons of

> children, reading tons of test results, and formulating what might

> best help the majority of children. This is his minimum recommended

> dosing in one bottle. You can visit Dr. N's website to learn more

> about DAN treatment and see recovery videos at www.drneubrander.com.

> Kirkman's also sells other multis (among many other things) and lots

> of people use one called Super Nu Thera. What you get will depend

> upon whether or not your child will swallow pills, take a syrup, etc.

> Keep in mind that many of the capsules are big. (For my child, we use

> a medicine dropper that I buy at any local pharmacy. I mix the DRN

> capsules into a syrup, then shoot it " down the hatch " followed by a

> drink of water. My son tolerates this really really well. I put the

> water right into the cup that the mixed vitamin was in and I syringe

> every last drip of it into him.)

> >

> > http://www.ourkidsasd.com/ is another good supplement site. This

> one was developed by a pharmacy called Lee Silsby and they have lots

> of supplements that people following the DAN protocol would be looking

> for.

> >

> > www.vitacost.com is another good place to shop for supplements and

> their prices are good too, comparably.

> >

> > Remember not to totally trust in everything you read online. There

> are a ton of websites out there in regard to autism and treatment, and

> just as many differing opinions. Your best bet is to find a doctor

> you trust and follow his or her guidelines. Then use these boards as

> a tool to learn, vent to other parents, get ideas for new treatments

> to talk to your doctor about, and see what works and what doesn't for

> others. Remember, this is a long and tough battle but your baby is so

> worth the fight. I'm still learning and struggling myself, and my son

> was diagnosed over three years ago.

> >

> > Hang in there, good luck and feel free to email me offline anytime.

> >

> > H.

> >

> >

> >

> >

> > Mom of 29 month old unofficially diagnosed

> with asd

> >

> >

> > Hi, I'm new here, just so excited to have been accepted into the

> group.

> > I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he was

> > diagnosed about 3 months back and am getting early intervention

> > services since dec. i started off with cfgf diet almost

immediately

> > but have only been soy free for about 2 weeks now. Now i'm at

> > crossroads to what i'm supposed to do, please tell me what kind of

> > supplements i can give my son. i have been reading a lot from all

over

> > and extremely confused.

> >

> > i would guess

> > a multivitamin

> > an omega 3 supplement

> > cal - mag ??

> > probiotics and anti-fungal ??

> >

> > please direct me to the next step, i am stuck here after the diet

> began.

> > thanks,

> > kaly

> >

>

[Guest guest]

OMG, i never knew, will throw the tylenol away. thankfully krithin

rarely falls sick, so it has been atleast 2 months since i gave him

last. thanks a lot again.

> >

> > Hi Kaly and welcome to the group. You will find a ton of

> information, both helpful and overwhelming, from this group. The best

> thing you can do is read a LOT. The books suggested are good ones. I

> would also suggest Elaine Gotschall's book called " Breaking the

> Vicious Cycle " which details information on another diet called

> Specific Carbohydrate Diet that many have seen amazing things from in

> their children. There is also an excellent book and an easy read by

> Karyn Seroussi called Unraveling the Mystery of Autism and Pervasive

> Developmental Disorder: A Mother's Story of Research & Recovery. This

> one is about gfcf, if you haven't already read it.

> >

> > You are already on the right track with gfcfsf. Time will help you

> to decide if this dietary change is helping your child. In my VERY

> humble opinion, you might want to take the next step of getting your

> child on a powerful multivitamin. If you haven't already done so,

> check out the following websites:

> >

> > www.kirkmanlabs.com - They specialize in supplements for kids on the

> spectrum. We use a multi that they sell called DRN. It was developed

> by our former DAN doctor, Neubrander, after treating tons of

> children, reading tons of test results, and formulating what might

> best help the majority of children. This is his minimum recommended

> dosing in one bottle. You can visit Dr. N's website to learn more

> about DAN treatment and see recovery videos at www.drneubrander.com.

> Kirkman's also sells other multis (among many other things) and lots

> of people use one called Super Nu Thera. What you get will depend

> upon whether or not your child will swallow pills, take a syrup, etc.

> Keep in mind that many of the capsules are big. (For my child, we use

> a medicine dropper that I buy at any local pharmacy. I mix the DRN

> capsules into a syrup, then shoot it " down the hatch " followed by a

> drink of water. My son tolerates this really really well. I put the

> water right into the cup that the mixed vitamin was in and I syringe

> every last drip of it into him.)

> >

> > http://www.ourkidsasd.com/ is another good supplement site. This

> one was developed by a pharmacy called Lee Silsby and they have lots

> of supplements that people following the DAN protocol would be looking

> for.

> >

> > www.vitacost.com is another good place to shop for supplements and

> their prices are good too, comparably.

> >

> > Remember not to totally trust in everything you read online. There

> are a ton of websites out there in regard to autism and treatment, and

> just as many differing opinions. Your best bet is to find a doctor

> you trust and follow his or her guidelines. Then use these boards as

> a tool to learn, vent to other parents, get ideas for new treatments

> to talk to your doctor about, and see what works and what doesn't for

> others. Remember, this is a long and tough battle but your baby is so

> worth the fight. I'm still learning and struggling myself, and my son

> was diagnosed over three years ago.

> >

> > Hang in there, good luck and feel free to email me offline anytime.

> >

> > H.

> >

> >

> >

> >

> > Mom of 29 month old unofficially diagnosed

> with asd

> >

> >

> > Hi, I'm new here, just so excited to have been accepted into the

> group.

> > I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he was

> > diagnosed about 3 months back and am getting early intervention

> > services since dec. i started off with cfgf diet almost immediately

> > but have only been soy free for about 2 weeks now. Now i'm at

> > crossroads to what i'm supposed to do, please tell me what kind of

> > supplements i can give my son. i have been reading a lot from

all over

> > and extremely confused.

> >

> > i would guess

> > a multivitamin

> > an omega 3 supplement

> > cal - mag ??

> > probiotics and anti-fungal ??

> >

> > please direct me to the next step, i am stuck here after the diet

> began.

> > thanks,

> > kaly

> >

>

[Guest guest]

I expect that the best way to:  "GET  (need)  a lot more explanation please or direction towards absorption of supplements well and usefully/helpfully;"  would be to get good direction from doctors, online for some economy,  in person when possible.  Combine that with the great wisdom on the groups that you find are in the same places as your family in the Autisms Jigsaw Puzzle.  There is no overall picture just yet, though we are getting there.  If you can afford an autism doc,  that doc should be in the same area of the puzzle, too.I could tell you some of the chelation story; some supplements;  but I have no personal, practical experience of much of the rest.Hi ,it makes a lot of sense, but i need a lot more explaination please ordirection towards absorption of supplements well and usefully/helpfully. right now, my idea of giving super nu thera is to stop giving hisregular colored chewable multivitamin to something cfgf n colorfree,and am just hoping to not have a negative side-effect. i might bewrong or is it the same as not seeing a positive effect??? please tellme. Kari, i didn't think twice about the trial size and the big one iordered is already on its way. i guess i should do more research onregression of any particular brand of any supplement. cross my fingersand pray to god that this doen't cause a negative reaction to krithin.Natasa, thanks for letting me know about nuthera. i just to wait andsee and just have one side-effect "extreme poverty"Kaly.> > >> > > be careful with SupernuThera some kids regress on it, not many but> > > roughly I would say 10-15% do not tolerate it at all and makes them> > > worse. For us it was probably folinic in it but who knows...> > >> > > Our son also had a terrible horrible regression on calcium, made > > him 100> > > times more autistic overnight, again lots of kids do well on it > > (esp the> > > ca/magnesium when given in combo) but negative reactions are not > > that> > > uncommon.> > >> > > Natasa> > >> > >>

[Guest guest]

In my opinion- and this is just from my own sons personal experience-

the Super nu thera has too many supps in it to introduce to the body

all at once. If there is a reaction, you wont know which Vitamin is

actually the culprit. My doctor reccomends introducing one

vitamin/supplement ata a time and waiting up to 4 days-longer with

some others, to gage the results and know what is working and what is

not. My son had a reaction and it was just one thing in there......so

just a word of caution, just trying to be helpful.

> >

> > Hi Kaly and welcome to the group. You will find a ton of

> information, both helpful and overwhelming, from this group. The

best

> thing you can do is read a LOT. The books suggested are good ones.

I

> would also suggest Elaine Gotschall's book called " Breaking the

> Vicious Cycle " which details information on another diet called

> Specific Carbohydrate Diet that many have seen amazing things from

in

> their children. There is also an excellent book and an easy read by

> Karyn Seroussi called Unraveling the Mystery of Autism and Pervasive

> Developmental Disorder: A Mother's Story of Research & Recovery.

This

> one is about gfcf, if you haven't already read it.

> >

> > You are already on the right track with gfcfsf. Time will help

you

> to decide if this dietary change is helping your child. In my VERY

> humble opinion, you might want to take the next step of getting your

> child on a powerful multivitamin. If you haven't already done so,

> check out the following websites:

> >

> > www.kirkmanlabs.com - They specialize in supplements for kids on

the

> spectrum. We use a multi that they sell called DRN. It was

developed

> by our former DAN doctor, Neubrander, after treating tons of

> children, reading tons of test results, and formulating what might

> best help the majority of children. This is his minimum recommended

> dosing in one bottle. You can visit Dr. N's website to learn more

> about DAN treatment and see recovery videos at www.drneubrander.com.

> Kirkman's also sells other multis (among many other things) and lots

> of people use one called Super Nu Thera. What you get will depend

> upon whether or not your child will swallow pills, take a syrup,

etc.

> Keep in mind that many of the capsules are big. (For my child, we

use

> a medicine dropper that I buy at any local pharmacy. I mix the DRN

> capsules into a syrup, then shoot it " down the hatch " followed by a

> drink of water. My son tolerates this really really well. I put the

> water right into the cup that the mixed vitamin was in and I syringe

> every last drip of it into him.)

> >

> > http://www.ourkidsasd.com/ is another good supplement site. This

> one was developed by a pharmacy called Lee Silsby and they have lots

> of supplements that people following the DAN protocol would be

looking

> for.

> >

> > www.vitacost.com is another good place to shop for supplements and

> their prices are good too, comparably.

> >

> > Remember not to totally trust in everything you read online.

There

> are a ton of websites out there in regard to autism and treatment,

and

> just as many differing opinions. Your best bet is to find a doctor

> you trust and follow his or her guidelines. Then use these boards

as

> a tool to learn, vent to other parents, get ideas for new treatments

> to talk to your doctor about, and see what works and what doesn't

for

> others. Remember, this is a long and tough battle but your baby is

so

> worth the fight. I'm still learning and struggling myself, and my

son

> was diagnosed over three years ago.

> >

> > Hang in there, good luck and feel free to email me offline

anytime.

> >

> > H.

> >

> >

> >

> >

> > Mom of 29 month old unofficially

diagnosed

> with asd

> >

> >

> > Hi, I'm new here, just so excited to have been accepted into the

> group.

> > I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he

was

> > diagnosed about 3 months back and am getting early intervention

> > services since dec. i started off with cfgf diet almost

immediately

> > but have only been soy free for about 2 weeks now. Now i'm at

> > crossroads to what i'm supposed to do, please tell me what kind

of

> > supplements i can give my son. i have been reading a lot from

all over

> > and extremely confused.

> >

> > i would guess

> > a multivitamin

> > an omega 3 supplement

> > cal - mag ??

> > probiotics and anti-fungal ??

> >

> > please direct me to the next step, i am stuck here after the

diet

> began.

> > thanks,

> > kaly

> >

>

[Guest guest]

In my opinion- and this is just from my own sons personal experience-

the Super nu thera has too many supps in it to introduce to the body

all at once. If there is a reaction, you wont know which Vitamin is

actually the culprit. My doctor reccomends introducing one

vitamin/supplement ata a time and waiting up to 4 days-longer with

some others, to gage the results and know what is working and what is

not. My son had a reaction and it was just one thing in there......so

just a word of caution, just trying to be helpful.

> >

> > Hi Kaly and welcome to the group. You will find a ton of

> information, both helpful and overwhelming, from this group. The

best

> thing you can do is read a LOT. The books suggested are good ones.

I

> would also suggest Elaine Gotschall's book called " Breaking the

> Vicious Cycle " which details information on another diet called

> Specific Carbohydrate Diet that many have seen amazing things from

in

> their children. There is also an excellent book and an easy read by

> Karyn Seroussi called Unraveling the Mystery of Autism and Pervasive

> Developmental Disorder: A Mother's Story of Research & Recovery.

This

> one is about gfcf, if you haven't already read it.

> >

> > You are already on the right track with gfcfsf. Time will help

you

> to decide if this dietary change is helping your child. In my VERY

> humble opinion, you might want to take the next step of getting your

> child on a powerful multivitamin. If you haven't already done so,

> check out the following websites:

> >

> > www.kirkmanlabs.com - They specialize in supplements for kids on

the

> spectrum. We use a multi that they sell called DRN. It was

developed

> by our former DAN doctor, Neubrander, after treating tons of

> children, reading tons of test results, and formulating what might

> best help the majority of children. This is his minimum recommended

> dosing in one bottle. You can visit Dr. N's website to learn more

> about DAN treatment and see recovery videos at www.drneubrander.com.

> Kirkman's also sells other multis (among many other things) and lots

> of people use one called Super Nu Thera. What you get will depend

> upon whether or not your child will swallow pills, take a syrup,

etc.

> Keep in mind that many of the capsules are big. (For my child, we

use

> a medicine dropper that I buy at any local pharmacy. I mix the DRN

> capsules into a syrup, then shoot it " down the hatch " followed by a

> drink of water. My son tolerates this really really well. I put the

> water right into the cup that the mixed vitamin was in and I syringe

> every last drip of it into him.)

> >

> > http://www.ourkidsasd.com/ is another good supplement site. This

> one was developed by a pharmacy called Lee Silsby and they have lots

> of supplements that people following the DAN protocol would be

looking

> for.

> >

> > www.vitacost.com is another good place to shop for supplements and

> their prices are good too, comparably.

> >

> > Remember not to totally trust in everything you read online.

There

> are a ton of websites out there in regard to autism and treatment,

and

> just as many differing opinions. Your best bet is to find a doctor

> you trust and follow his or her guidelines. Then use these boards

as

> a tool to learn, vent to other parents, get ideas for new treatments

> to talk to your doctor about, and see what works and what doesn't

for

> others. Remember, this is a long and tough battle but your baby is

so

> worth the fight. I'm still learning and struggling myself, and my

son

> was diagnosed over three years ago.

> >

> > Hang in there, good luck and feel free to email me offline

anytime.

> >

> > H.

> >

> >

> >

> >

> > Mom of 29 month old unofficially

diagnosed

> with asd

> >

> >

> > Hi, I'm new here, just so excited to have been accepted into the

> group.

> > I'm kaly, mom to krithin, a sweet little 2-1/2 yr old boy. he

was

> > diagnosed about 3 months back and am getting early intervention

> > services since dec. i started off with cfgf diet almost

immediately

> > but have only been soy free for about 2 weeks now. Now i'm at

> > crossroads to what i'm supposed to do, please tell me what kind

of

> > supplements i can give my son. i have been reading a lot from

all over

> > and extremely confused.

> >

> > i would guess

> > a multivitamin

> > an omega 3 supplement

> > cal - mag ??

> > probiotics and anti-fungal ??

> >

> > please direct me to the next step, i am stuck here after the

diet

> began.

> > thanks,

> > kaly

> >

>