Re: From Healthfraud Please warn anyone you know doing this (Elyse)

[Guest guest]

Please do not quote me without knowing what you are talking about. I did NOT

say that she had stroke like symptoms, I said that her mouth movements reminded

me of someone who may have had a stroke. DO NOT use my letter to chelatingkids

to further your purpose. Incidentally, my child is NOT on B12 shots. I want my

name removed from the website as I find that I have nothing in common with

you.

Sincerely,

CW

Rob or Sunseri <RobRose@...> wrote:

What is scary to me is the mis-information found in the post below. Those

interested in making up their own minds should review the Jill study and

Dr. Neubrander's clinical experience themselves. I look forward to the

completion of the UCD study, as do many of us who's children do well on the

MB-12. My own child does not have anxiety attacks any longer as a result of the

injections. The pilot study comparing the nasal vs. the sub-C is favoring the

sub-Q thus far.

I have a metabolic/genetic specialist at Phoenix Children's Hospital (not a

DAN doctor) monitoring my son's MB-12 progress. He is impressed and contacted

Dr. Neubrander personally to learn more. He treats lots of non-ASD kids with

b-12/folate disorders and wants to see more of the ASD b-12 responders in his

office, as he was unaware of the success stories. I spread the word and several

other families have gone in to see him or scheduled to see him. This includes

the founder of our local non-profit group who considers her son to be recovered

from diet and MB-12 alone (which makes a lot of sense as his mother has a b-12

disorder herself). She has experimented with removing the MB-12 3-4 times.

Everytime she does her son's studdering comes back and he wets the bed.

-

La Donna Ford <connormom1999@...> wrote:

Hi, Elyse,

I am a new member, but I have checked the archives to try to find the

anecdotal

reports of seizures in children on B12. I can't find them. Were you

referring to

a past post on this list or a google search? I would really like to read more

about

this. I agree that this is scary.

Thanks,

La Donna

elyse14 <elyse-g@...> wrote:

This is really scarry

This was just forwarded to me. You may know that the MIND insititute

(Dr. Hendren) is doing a Methyl B12 study that has no legitimate

scientific basis, and some risk, on autistic kids. I have brought up

the anecdotal reports of autistic kids on these B12 shots have

seizures. The IRB at UCD had an MD look at the papers that

tangentially suggest that B12 can methylate certain genes and create

an imbalance of neurotransmitters (GABA?) in the brain that would tend

to kindle seizures in some people... The MD said, " Nah, I don't think

this is a problem... "

But there are many more problems with this study, some of them have

been started to be addressed by Hendren, he's apparently rewriting the

description of the study for the clinicaltrials.gov site....

I want to know if it's time for someone to step in and stop this

business... look at this. Stroke-like symptoms from kids getting

these shots. What do we do? Sit on our hands until they kill a child

with this stuff? Give me some ideas of how to deal with this, please?

-----------

From: " c----- w------- ........ "

-----------

Sent: Thursday, May 25, 2006 11:26 PM

Subject: ------- NEED HELP WITH OVERMETHYLATION (anyone at the last DAN)

We started our daughter on the nasal B12 and saw some really good

gains to begin with (first week). she was dosing every day. After the

first week, we noticed some strange mouth movements and at times, she

looked almost like a stroke victim. Dr. Jerry K[artzinel] said that

she was over methylated and to stop for several days and that the

issue would clear on its own. She has become irritable and

beligerent. Someone who was at the last DAN said that there was a

mention of needing to take TMG if this happens. I would like to know

from any of the listmates who attended what was said> If anyone else

has any information regarding this problem, I would appreciate hearing

from you.

Thanks,

CW

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

CW,

Why should you have to be removed from any list? If someone forwarded your

post from another list without your permission, they are automatically removed

from both lists and can potentially be banned from all . You should

notify what happened so that business gets taken care of.

-

JOHN WRIGHT <butterflycw@...> wrote:

Please do not quote me without knowing what you are talking about. I did NOT

say that she had stroke like symptoms, I said that her mouth movements reminded

me of someone who may have had a stroke. DO NOT use my letter to chelatingkids

to further your purpose. Incidentally, my child is NOT on B12 shots. I want my

name removed from the website as I find that I have nothing in common with

you.

Sincerely,

CW

Rob or Sunseri <RobRose@...> wrote:

What is scary to me is the mis-information found in the post below. Those

interested in making up their own minds should review the Jill study and

Dr. Neubrander's clinical experience themselves. I look forward to the

completion of the UCD study, as do many of us who's children do well on the

MB-12. My own child does not have anxiety attacks any longer as a result of the

injections. The pilot study comparing the nasal vs. the sub-C is favoring the

sub-Q thus far.

I have a metabolic/genetic specialist at Phoenix Children's Hospital (not a

DAN doctor) monitoring my son's MB-12 progress. He is impressed and contacted

Dr. Neubrander personally to learn more. He treats lots of non-ASD kids with

b-12/folate disorders and wants to see more of the ASD b-12 responders in his

office, as he was unaware of the success stories. I spread the word and several

other families have gone in to see him or scheduled to see him. This includes

the founder of our local non-profit group who considers her son to be recovered

from diet and MB-12 alone (which makes a lot of sense as his mother has a b-12

disorder herself). She has experimented with removing the MB-12 3-4 times.

Everytime she does her son's studdering comes back and he wets the bed.

-

La Donna Ford <connormom1999@...> wrote:

Hi, Elyse,

I am a new member, but I have checked the archives to try to find the

anecdotal

reports of seizures in children on B12. I can't find them. Were you

referring to

a past post on this list or a google search? I would really like to read more

about

this. I agree that this is scary.

Thanks,

La Donna

elyse14 <elyse-g@...> wrote:

This is really scarry

This was just forwarded to me. You may know that the MIND insititute

(Dr. Hendren) is doing a Methyl B12 study that has no legitimate

scientific basis, and some risk, on autistic kids. I have brought up

the anecdotal reports of autistic kids on these B12 shots have

seizures. The IRB at UCD had an MD look at the papers that

tangentially suggest that B12 can methylate certain genes and create

an imbalance of neurotransmitters (GABA?) in the brain that would tend

to kindle seizures in some people... The MD said, " Nah, I don't think

this is a problem... "

But there are many more problems with this study, some of them have

been started to be addressed by Hendren, he's apparently rewriting the

description of the study for the clinicaltrials.gov site....

I want to know if it's time for someone to step in and stop this

business... look at this. Stroke-like symptoms from kids getting

these shots. What do we do? Sit on our hands until they kill a child

with this stuff? Give me some ideas of how to deal with this, please?

-----------

From: " c----- w------- ........ "

-----------

Sent: Thursday, May 25, 2006 11:26 PM

Subject: ------- NEED HELP WITH OVERMETHYLATION (anyone at the last DAN)

We started our daughter on the nasal B12 and saw some really good

gains to begin with (first week). she was dosing every day. After the

first week, we noticed some strange mouth movements and at times, she

looked almost like a stroke victim. Dr. Jerry K[artzinel] said that

she was over methylated and to stop for several days and that the

issue would clear on its own. She has become irritable and

beligerent. Someone who was at the last DAN said that there was a

mention of needing to take TMG if this happens. I would like to know

from any of the listmates who attended what was said> If anyone else

has any information regarding this problem, I would appreciate hearing

from you.

Thanks,

CW

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

Sorry my bad! I did not write this just forwared it sorry if I

offended anyone it just scared the pants off me! I had taken off the

e-mail of the person who wrote it...to Healthfraud

Again sorry...I don't know who you are

Elyse

-- In , JOHN WRIGHT <butterflycw@...> wrote:

>

> Please do not quote me without knowing what you are talking about.

I did NOT say that she had stroke like symptoms, I said that her

mouth movements reminded me of someone who may have had a stroke. DO

NOT use my letter to chelatingkids to further your purpose.

Incidentally, my child is NOT on B12 shots. I want my name removed

from the website as I find that I have nothing in common with

you.

> Sincerely,

> CW

> Rob or Sunseri <RobRose@...> wrote:

> What is scary to me is the mis-information found in the post

below. Those interested in making up their own minds should review

the Jill study and Dr. Neubrander's clinical experience

themselves. I look forward to the completion of the UCD study, as do

many of us who's children do well on the MB-12. My own child does

not have anxiety attacks any longer as a result of the injections.

The pilot study comparing the nasal vs. the sub-C is favoring the sub-

Q thus far.

>

> I have a metabolic/genetic specialist at Phoenix Children's

Hospital (not a DAN doctor) monitoring my son's MB-12 progress. He

is impressed and contacted Dr. Neubrander personally to learn more.

He treats lots of non-ASD kids with b-12/folate disorders and wants

to see more of the ASD b-12 responders in his office, as he was

unaware of the success stories. I spread the word and several other

families have gone in to see him or scheduled to see him. This

includes the founder of our local non-profit group who considers her

son to be recovered from diet and MB-12 alone (which makes a lot of

sense as his mother has a b-12 disorder herself). She has

experimented with removing the MB-12 3-4 times. Everytime she does

her son's studdering comes back and he wets the bed.

>

> -

>

> La Donna Ford <connormom1999@...> wrote:

> Hi, Elyse,

> I am a new member, but I have checked the archives to try to find

the anecdotal

> reports of seizures in children on B12. I can't find them. Were

you referring to

> a past post on this list or a google search? I would really like

to read more about

> this. I agree that this is scary.

> Thanks,

> La Donna

>

>

> elyse14 <elyse-g@...> wrote:

> This is really scarry

>

> This was just forwarded to me. You may know that the MIND

insititute

> (Dr. Hendren) is doing a Methyl B12 study that has no legitimate

> scientific basis, and some risk, on autistic kids. I have brought

up

> the anecdotal reports of autistic kids on these B12 shots have

> seizures. The IRB at UCD had an MD look at the papers that

> tangentially suggest that B12 can methylate certain genes and create

> an imbalance of neurotransmitters (GABA?) in the brain that would

tend

> to kindle seizures in some people... The MD said, " Nah, I don't

think

> this is a problem... "

>

> But there are many more problems with this study, some of them have

> been started to be addressed by Hendren, he's apparently rewriting

the

> description of the study for the clinicaltrials.gov site....

>

> I want to know if it's time for someone to step in and stop this

> business... look at this. Stroke-like symptoms from kids getting

> these shots. What do we do? Sit on our hands until they kill a

child

> with this stuff? Give me some ideas of how to deal with this,

please?

>

> -----------

> From: " c----- w------- ........ "

> -----------

> Sent: Thursday, May 25, 2006 11:26 PM

> Subject: ------- NEED HELP WITH OVERMETHYLATION (anyone at the last

DAN)

>

> We started our daughter on the nasal B12 and saw some really good

> gains to begin with (first week). she was dosing every day. After

the

> first week, we noticed some strange mouth movements and at times,

she

> looked almost like a stroke victim. Dr. Jerry K[artzinel] said that

> she was over methylated and to stop for several days and that the

> issue would clear on its own. She has become irritable and

> beligerent. Someone who was at the last DAN said that there was a

> mention of needing to take TMG if this happens. I would like to

know

> from any of the listmates who attended what was said> If anyone

else

> has any information regarding this problem, I would appreciate

hearing

> from you.

> Thanks,

> CW

>

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent

Coalition.

>

>

>

>

>