RE: What is going on with my daughter?

[Guest guest]

Nuha:

You might consider having her seen by a pediatric

gastroenterologist to determine whether she has

abnormal bacterial overgrowth in her stools. The

cyclicity could reflect how long it takes for such

overgrowth to occur and then a flare up would be seen.

Usually they can be treated with antibiotics.

It is also possible your daughter has a recurring

streptococcal infection. Some of the symptoms you

describe are similar to those seen in PANDAS. The

term PANDAS is generally used to describe a subgroup

of children who have either a tic disorder (such as

Tourette's Syndrome) or Obsessive-Compulsive Disorder

and whose tics, obsessions, and/or compulsions

typically worsen dramatically following streptococcal

infections or children who have no prior history or

tics, obsessions, and compulsions but who suddenly

" explode " in symptoms following a streptococcal

infection. What parents refer to as " strep throat " is

one form of streptococcal infection. In some cases,

parents may be aware that their child had a strep

throat in the recent past, but in other cases, the

child may have (or have had) a strep infection without

it being detected.

You need to work closely with a pediatric immunologist

and gastroenterologist to track down your daughter's

problem.

Sounds very unsettling. Good luck in finding a

solutions.

--- Nuha Shiblie <nshiblie2002@...> wrote:

>

> Folks

> I am hoping for some advice and some answers

>

> my daughter is 34 months, diagnosed PDD/high

> functioning ASD

> unlike most of you I have noticed some odd things

> about her before the age of one... she would never

> look at us or the camera... she did not respond to

> her name... and she had stopped babbling at 9

> months... however no behaviors issues whatsoever ...

> no lining up toys, no getting stuck and not

> transitioning, not fussy or tantrums prone... she in

> fact was an angel... ate almost everything and slept

> well ... she showed no stemming or hand flapping

> behaviors

>

> but, she would go though a few days of what I call

> Manic behavior every few weeks... get frequent BMs

> and always ends with a yeast infection ... she will

> act strange... either laugh a lot or cry for no

> reason... will not eat or sleep... and becomes too

> hyper and hard to calm down...

>

> so I started documenting the dates and found that

> it will happen almost always every 7 to eight weeks

> for a week (almost like a cycle) and it started at

> about one year of age (when i noticed it)

>

> talking to others or pediatricians... no one

> seemed to believe me and I don't think anyone does

> now... but its real and it still happens but it no

> longer lasts as long as it used to but the frequency

> is till valid...

>

> When I finally convinced her pediatrician to test

> her they referred me to a developmental predication

> for social and language delay... he ordered 23

> different blood work and only 2 came back with some

> cause of concern, Amino Acid was very high and she

> tested to be a carrier of the fragile X... I was

> told that many people are walking around as carriers

> of the fragile X and that it means nothing and that

> only if she decides to have children we can worry

> about it... at the time my daughter was only 2 years

> old and picking up language quickly with the help of

> a speech therapist... she also tested normal by a

> well renowned OT at Kennedy Krieger

>

> when she hit 30 months I started seeing behaviors

> associated with full autism... spinning, occasional

> fist licking, occasional cars lining up... and have

> regressed in play skills ... potty skills, she also

> have become so defiant that we cant get her to

> cooperate most of the time...

>

> so after months of reading posts and

> researching I decided to go for NAET and RDI as

> means of therapies for now... I just ordered the

> toxic urine and stool tests and tested her by an

> NAET doctor who tells me she is allergic to more

> than 8 elements and will start treatment next week

>

> if I don't see improvements with NAET I will move

> to DAN or protocols

>

> now here is why I am writing this:

>

> 1. have any of you seen symptoms like this as

> early as 6 months and if so did your childs symptoms

> continue to get worse?

>

> 2. any of you noticed this cycle I mentioned where

> for few days there will act manic and out of

> character and have some tummy issues and yeast

> issues associated? and if so, do you think its the

> yeast die off everyone talks about... (I am not

> treating her for anything or with anything right

> now) so is it possible that she is having yeast die

> off episodes naturally?

>

> 3, Have any of you tried NAET as means of

> treatment before you tried the biomedical and if so

> how did it go?

>

> following our first visit with the NAET doctor

> last Friday almost a couple of hours after she

> developed a sudden fever of 105.4... I rushed her to

> the hospital where she was admitted and placed on IV

> fluids and a hosts of test done... she was also

> checked for strep (by mouth) ... and they could not

> find one reason why her fever was so high... they

> all dismissed any relation to the NAET testing and

> they all dismissed the NAET treatment as Hoax or

> quack doctors...

> meanwhile for the last 5 days my daughter's fever

> has been real high, she finally broke out in a rash

> all over her body, her stool is strange and smelly,

> she looks yellowish to us and she is complaining

> from tummy ache constantly and is not sleeping and

> is not eating... could this be the yeast die off you

> write about?

>

> I am sorry I went on and on... but I feel lost and

> worried about my daughter

> thanks

>

>

> ---------------------------------

> Do you ?

> Everyone is raving about the all-new .

__________________________________________________

[Guest guest]

Nuha:

You might consider having her seen by a pediatric

gastroenterologist to determine whether she has

abnormal bacterial overgrowth in her stools. The

cyclicity could reflect how long it takes for such

overgrowth to occur and then a flare up would be seen.

Usually they can be treated with antibiotics.

It is also possible your daughter has a recurring

streptococcal infection. Some of the symptoms you

describe are similar to those seen in PANDAS. The

term PANDAS is generally used to describe a subgroup

of children who have either a tic disorder (such as

Tourette's Syndrome) or Obsessive-Compulsive Disorder

and whose tics, obsessions, and/or compulsions

typically worsen dramatically following streptococcal

infections or children who have no prior history or

tics, obsessions, and compulsions but who suddenly

" explode " in symptoms following a streptococcal

infection. What parents refer to as " strep throat " is

one form of streptococcal infection. In some cases,

parents may be aware that their child had a strep

throat in the recent past, but in other cases, the

child may have (or have had) a strep infection without

it being detected.

You need to work closely with a pediatric immunologist

and gastroenterologist to track down your daughter's

problem.

Sounds very unsettling. Good luck in finding a

solutions.

--- Nuha Shiblie <nshiblie2002@...> wrote:

>

> Folks

> I am hoping for some advice and some answers

>

> my daughter is 34 months, diagnosed PDD/high

> functioning ASD

> unlike most of you I have noticed some odd things

> about her before the age of one... she would never

> look at us or the camera... she did not respond to

> her name... and she had stopped babbling at 9

> months... however no behaviors issues whatsoever ...

> no lining up toys, no getting stuck and not

> transitioning, not fussy or tantrums prone... she in

> fact was an angel... ate almost everything and slept

> well ... she showed no stemming or hand flapping

> behaviors

>

> but, she would go though a few days of what I call

> Manic behavior every few weeks... get frequent BMs

> and always ends with a yeast infection ... she will

> act strange... either laugh a lot or cry for no

> reason... will not eat or sleep... and becomes too

> hyper and hard to calm down...

>

> so I started documenting the dates and found that

> it will happen almost always every 7 to eight weeks

> for a week (almost like a cycle) and it started at

> about one year of age (when i noticed it)

>

> talking to others or pediatricians... no one

> seemed to believe me and I don't think anyone does

> now... but its real and it still happens but it no

> longer lasts as long as it used to but the frequency

> is till valid...

>

> When I finally convinced her pediatrician to test

> her they referred me to a developmental predication

> for social and language delay... he ordered 23

> different blood work and only 2 came back with some

> cause of concern, Amino Acid was very high and she

> tested to be a carrier of the fragile X... I was

> told that many people are walking around as carriers

> of the fragile X and that it means nothing and that

> only if she decides to have children we can worry

> about it... at the time my daughter was only 2 years

> old and picking up language quickly with the help of

> a speech therapist... she also tested normal by a

> well renowned OT at Kennedy Krieger

>

> when she hit 30 months I started seeing behaviors

> associated with full autism... spinning, occasional

> fist licking, occasional cars lining up... and have

> regressed in play skills ... potty skills, she also

> have become so defiant that we cant get her to

> cooperate most of the time...

>

> so after months of reading posts and

> researching I decided to go for NAET and RDI as

> means of therapies for now... I just ordered the

> toxic urine and stool tests and tested her by an

> NAET doctor who tells me she is allergic to more

> than 8 elements and will start treatment next week

>

> if I don't see improvements with NAET I will move

> to DAN or protocols

>

> now here is why I am writing this:

>

> 1. have any of you seen symptoms like this as

> early as 6 months and if so did your childs symptoms

> continue to get worse?

>

> 2. any of you noticed this cycle I mentioned where

> for few days there will act manic and out of

> character and have some tummy issues and yeast

> issues associated? and if so, do you think its the

> yeast die off everyone talks about... (I am not

> treating her for anything or with anything right

> now) so is it possible that she is having yeast die

> off episodes naturally?

>

> 3, Have any of you tried NAET as means of

> treatment before you tried the biomedical and if so

> how did it go?

>

> following our first visit with the NAET doctor

> last Friday almost a couple of hours after she

> developed a sudden fever of 105.4... I rushed her to

> the hospital where she was admitted and placed on IV

> fluids and a hosts of test done... she was also

> checked for strep (by mouth) ... and they could not

> find one reason why her fever was so high... they

> all dismissed any relation to the NAET testing and

> they all dismissed the NAET treatment as Hoax or

> quack doctors...

> meanwhile for the last 5 days my daughter's fever

> has been real high, she finally broke out in a rash

> all over her body, her stool is strange and smelly,

> she looks yellowish to us and she is complaining

> from tummy ache constantly and is not sleeping and

> is not eating... could this be the yeast die off you

> write about?

>

> I am sorry I went on and on... but I feel lost and

> worried about my daughter

> thanks

>

>

> ---------------------------------

> Do you ?

> Everyone is raving about the all-new .

__________________________________________________

[Guest guest]

does Panda stands for anything? Thanks <sam9fred@...> wrote: Nuha:You might consider having her seen by a pediatricgastroenterologist to determine whether she hasabnormal bacterial overgrowth in her stools. Thecyclicity could reflect how long it takes for suchovergrowth to occur and then a flare up would be seen.Usually they can be treated with antibiotics. It is also possible your daughter has a recurringstreptococcal

infection. Some of the symptoms youdescribe are similar to those seen in PANDAS. Theterm PANDAS is generally used to describe a subgroupof children who have either a tic disorder (such asTourette's Syndrome) or Obsessive-Compulsive Disorderand whose tics, obsessions, and/or compulsionstypically worsen dramatically following streptococcalinfections or children who have no prior history ortics, obsessions, and compulsions but who suddenly"explode" in symptoms following a streptococcalinfection. What parents refer to as "strep throat" isone form of streptococcal infection. In some cases,parents may be aware that their child had a strepthroat in the recent past, but in other cases, thechild may have (or have had) a strep infection withoutit being detected.You need to work closely with a pediatric immunologistand gastroenterologist to track down your daughter'sproblem.Sounds very

unsettling. Good luck in finding asolutions. --- Nuha Shiblie <nshiblie2002 > wrote:> > Folks> I am hoping for some advice and some answers> > my daughter is 34 months, diagnosed PDD/high> functioning ASD > unlike most of you I have noticed some odd things> about her before the age of one... she would never> look at us or the camera... she did not respond to> her name... and she had stopped babbling at 9> months... however no behaviors issues whatsoever ...> no lining up toys, no getting stuck and not> transitioning, not fussy or tantrums prone... she in> fact was an angel... ate almost everything and slept> well ... she showed no stemming or hand flapping> behaviors> > but, she would go though a few days of what I call> Manic behavior every few

weeks... get frequent BMs> and always ends with a yeast infection ... she will> act strange... either laugh a lot or cry for no> reason... will not eat or sleep... and becomes too> hyper and hard to calm down...> > so I started documenting the dates and found that> it will happen almost always every 7 to eight weeks> for a week (almost like a cycle) and it started at> about one year of age (when i noticed it)> > talking to others or pediatricians... no one> seemed to believe me and I don't think anyone does> now... but its real and it still happens but it no> longer lasts as long as it used to but the frequency> is till valid...> > When I finally convinced her pediatrician to test> her they referred me to a developmental predication> for social and language delay... he ordered 23> different blood work and only 2 came back with

some> cause of concern, Amino Acid was very high and she> tested to be a carrier of the fragile X... I was> told that many people are walking around as carriers> of the fragile X and that it means nothing and that> only if she decides to have children we can worry> about it... at the time my daughter was only 2 years> old and picking up language quickly with the help of> a speech therapist... she also tested normal by a> well renowned OT at Kennedy Krieger > > when she hit 30 months I started seeing behaviors> associated with full autism... spinning, occasional> fist licking, occasional cars lining up... and have> regressed in play skills ... potty skills, she also> have become so defiant that we cant get her to> cooperate most of the time...> > so after months of reading posts and> researching I decided to go for NAET and RDI

as> means of therapies for now... I just ordered the> toxic urine and stool tests and tested her by an> NAET doctor who tells me she is allergic to more> than 8 elements and will start treatment next week> > if I don't see improvements with NAET I will move> to DAN or protocols> > now here is why I am writing this: > > 1. have any of you seen symptoms like this as> early as 6 months and if so did your childs symptoms> continue to get worse?> > 2. any of you noticed this cycle I mentioned where> for few days there will act manic and out of> character and have some tummy issues and yeast> issues associated? and if so, do you think its the> yeast die off everyone talks about... (I am not> treating her for anything or with anything right> now) so is it possible that she is having yeast die> off episodes

naturally?> > 3, Have any of you tried NAET as means of> treatment before you tried the biomedical and if so> how did it go?> > following our first visit with the NAET doctor> last Friday almost a couple of hours after she> developed a sudden fever of 105.4... I rushed her to> the hospital where she was admitted and placed on IV> fluids and a hosts of test done... she was also> checked for strep (by mouth) ... and they could not> find one reason why her fever was so high... they> all dismissed any relation to the NAET testing and> they all dismissed the NAET treatment as Hoax or> quack doctors... > meanwhile for the last 5 days my daughter's fever> has been real high, she finally broke out in a rash> all over her body, her stool is strange and smelly,> she looks yellowish to us and she is complaining> from tummy ache constantly and is

not sleeping and> is not eating... could this be the yeast die off you> write about?> > I am sorry I went on and on... but I feel lost and> worried about my daughter> thanks> > > ---------------------------------> Do you ?> Everyone is raving about the all-new .__________________________________________________

[Guest guest]

does Panda stands for anything? Thanks <sam9fred@...> wrote: Nuha:You might consider having her seen by a pediatricgastroenterologist to determine whether she hasabnormal bacterial overgrowth in her stools. Thecyclicity could reflect how long it takes for suchovergrowth to occur and then a flare up would be seen.Usually they can be treated with antibiotics. It is also possible your daughter has a recurringstreptococcal

infection. Some of the symptoms youdescribe are similar to those seen in PANDAS. Theterm PANDAS is generally used to describe a subgroupof children who have either a tic disorder (such asTourette's Syndrome) or Obsessive-Compulsive Disorderand whose tics, obsessions, and/or compulsionstypically worsen dramatically following streptococcalinfections or children who have no prior history ortics, obsessions, and compulsions but who suddenly"explode" in symptoms following a streptococcalinfection. What parents refer to as "strep throat" isone form of streptococcal infection. In some cases,parents may be aware that their child had a strepthroat in the recent past, but in other cases, thechild may have (or have had) a strep infection withoutit being detected.You need to work closely with a pediatric immunologistand gastroenterologist to track down your daughter'sproblem.Sounds very

unsettling. Good luck in finding asolutions. --- Nuha Shiblie <nshiblie2002 > wrote:> > Folks> I am hoping for some advice and some answers> > my daughter is 34 months, diagnosed PDD/high> functioning ASD > unlike most of you I have noticed some odd things> about her before the age of one... she would never> look at us or the camera... she did not respond to> her name... and she had stopped babbling at 9> months... however no behaviors issues whatsoever ...> no lining up toys, no getting stuck and not> transitioning, not fussy or tantrums prone... she in> fact was an angel... ate almost everything and slept> well ... she showed no stemming or hand flapping> behaviors> > but, she would go though a few days of what I call> Manic behavior every few

weeks... get frequent BMs> and always ends with a yeast infection ... she will> act strange... either laugh a lot or cry for no> reason... will not eat or sleep... and becomes too> hyper and hard to calm down...> > so I started documenting the dates and found that> it will happen almost always every 7 to eight weeks> for a week (almost like a cycle) and it started at> about one year of age (when i noticed it)> > talking to others or pediatricians... no one> seemed to believe me and I don't think anyone does> now... but its real and it still happens but it no> longer lasts as long as it used to but the frequency> is till valid...> > When I finally convinced her pediatrician to test> her they referred me to a developmental predication> for social and language delay... he ordered 23> different blood work and only 2 came back with

some> cause of concern, Amino Acid was very high and she> tested to be a carrier of the fragile X... I was> told that many people are walking around as carriers> of the fragile X and that it means nothing and that> only if she decides to have children we can worry> about it... at the time my daughter was only 2 years> old and picking up language quickly with the help of> a speech therapist... she also tested normal by a> well renowned OT at Kennedy Krieger > > when she hit 30 months I started seeing behaviors> associated with full autism... spinning, occasional> fist licking, occasional cars lining up... and have> regressed in play skills ... potty skills, she also> have become so defiant that we cant get her to> cooperate most of the time...> > so after months of reading posts and> researching I decided to go for NAET and RDI

as> means of therapies for now... I just ordered the> toxic urine and stool tests and tested her by an> NAET doctor who tells me she is allergic to more> than 8 elements and will start treatment next week> > if I don't see improvements with NAET I will move> to DAN or protocols> > now here is why I am writing this: > > 1. have any of you seen symptoms like this as> early as 6 months and if so did your childs symptoms> continue to get worse?> > 2. any of you noticed this cycle I mentioned where> for few days there will act manic and out of> character and have some tummy issues and yeast> issues associated? and if so, do you think its the> yeast die off everyone talks about... (I am not> treating her for anything or with anything right> now) so is it possible that she is having yeast die> off episodes

naturally?> > 3, Have any of you tried NAET as means of> treatment before you tried the biomedical and if so> how did it go?> > following our first visit with the NAET doctor> last Friday almost a couple of hours after she> developed a sudden fever of 105.4... I rushed her to> the hospital where she was admitted and placed on IV> fluids and a hosts of test done... she was also> checked for strep (by mouth) ... and they could not> find one reason why her fever was so high... they> all dismissed any relation to the NAET testing and> they all dismissed the NAET treatment as Hoax or> quack doctors... > meanwhile for the last 5 days my daughter's fever> has been real high, she finally broke out in a rash> all over her body, her stool is strange and smelly,> she looks yellowish to us and she is complaining> from tummy ache constantly and is

not sleeping and> is not eating... could this be the yeast die off you> write about?> > I am sorry I went on and on... but I feel lost and> worried about my daughter> thanks> > > ---------------------------------> Do you ?> Everyone is raving about the all-new .__________________________________________________

[Guest guest]

Nuha,

Chiari is evidently missed or even IGNORED sometimes when a Dr. is reading

an MRI, so you will want to really stress that you want it checked for.

Some people have a mild form and function normally, so believe it or not it

is sometimes not mentioned to the patient as an abnormal finding on a MRI.

Caroline

[Guest guest]

Pediatric Autoimmune Neuropsychiatric Disorders

Associated with Streptococcal Infection

--- Nuha Shiblie <nshiblie2002@...> wrote:

>

> does Panda stands for anything?

> Thanks

>

> <sam9fred@...> wrote:

> Nuha:

>

> You might consider having her seen by a pediatric

> gastroenterologist to determine whether she has

> abnormal bacterial overgrowth in her stools. The

> cyclicity could reflect how long it takes for such

> overgrowth to occur and then a flare up would be

> seen.

> Usually they can be treated with antibiotics.

>

> It is also possible your daughter has a recurring

> streptococcal infection. Some of the symptoms you

> describe are similar to those seen in PANDAS. The

> term PANDAS is generally used to describe a subgroup

> of children who have either a tic disorder (such as

> Tourette's Syndrome) or Obsessive-Compulsive

> Disorder

> and whose tics, obsessions, and/or compulsions

> typically worsen dramatically following

> streptococcal

> infections or children who have no prior history or

> tics, obsessions, and compulsions but who suddenly

> " explode " in symptoms following a streptococcal

> infection. What parents refer to as " strep throat "

> is

> one form of streptococcal infection. In some cases,

> parents may be aware that their child had a strep

> throat in the recent past, but in other cases, the

> child may have (or have had) a strep infection

> without

> it being detected.

>

> You need to work closely with a pediatric

> immunologist

> and gastroenterologist to track down your daughter's

> problem.

>

> Sounds very unsettling. Good luck in finding a

> solutions.

>

>

>

> --- Nuha Shiblie <nshiblie2002@...> wrote:

>

> >

> > Folks

> > I am hoping for some advice and some answers

> >

> > my daughter is 34 months, diagnosed PDD/high

> > functioning ASD

> > unlike most of you I have noticed some odd things

> > about her before the age of one... she would never

> > look at us or the camera... she did not respond to

> > her name... and she had stopped babbling at 9

> > months... however no behaviors issues whatsoever

> ...

> > no lining up toys, no getting stuck and not

> > transitioning, not fussy or tantrums prone... she

> in

> > fact was an angel... ate almost everything and

> slept

> > well ... she showed no stemming or hand flapping

> > behaviors

> >

> > but, she would go though a few days of what I call

> > Manic behavior every few weeks... get frequent BMs

> > and always ends with a yeast infection ... she

> will

> > act strange... either laugh a lot or cry for no

> > reason... will not eat or sleep... and becomes too

> > hyper and hard to calm down...

> >

> > so I started documenting the dates and found that

> > it will happen almost always every 7 to eight

> weeks

> > for a week (almost like a cycle) and it started at

> > about one year of age (when i noticed it)

> >

> > talking to others or pediatricians... no one

> > seemed to believe me and I don't think anyone does

> > now... but its real and it still happens but it no

> > longer lasts as long as it used to but the

> frequency

> > is till valid...

> >

> > When I finally convinced her pediatrician to test

> > her they referred me to a developmental

> predication

> > for social and language delay... he ordered 23

> > different blood work and only 2 came back with

> some

> > cause of concern, Amino Acid was very high and she

> > tested to be a carrier of the fragile X... I was

> > told that many people are walking around as

> carriers

> > of the fragile X and that it means nothing and

> that

> > only if she decides to have children we can worry

> > about it... at the time my daughter was only 2

> years

> > old and picking up language quickly with the help

> of

> > a speech therapist... she also tested normal by a

> > well renowned OT at Kennedy Krieger

> >

> > when she hit 30 months I started seeing behaviors

> > associated with full autism... spinning,

> occasional

> > fist licking, occasional cars lining up... and

> have

> > regressed in play skills ... potty skills, she

> also

> > have become so defiant that we cant get her to

> > cooperate most of the time...

> >

> > so after months of reading posts and

> > researching I decided to go for NAET and RDI as

> > means of therapies for now... I just ordered the

> > toxic urine and stool tests and tested her by an

> > NAET doctor who tells me she is allergic to more

> > than 8 elements and will start treatment next week

> >

> > if I don't see improvements with NAET I will move

> > to DAN or protocols

> >

> > now here is why I am writing this:

> >

> > 1. have any of you seen symptoms like this as

> > early as 6 months and if so did your childs

> symptoms

> > continue to get worse?

> >

> > 2. any of you noticed this cycle I mentioned where

> > for few days there will act manic and out of

> > character and have some tummy issues and yeast

> > issues associated? and if so, do you think its the

> > yeast die off everyone talks about... (I am not

> > treating her for anything or with anything right

> > now) so is it possible that she is having yeast

> die

> > off episodes naturally?

> >

> > 3, Have any of you tried NAET as means of

> > treatment before you tried the biomedical and if

> so

> > how did it go?

> >

> > following our first visit with the NAET doctor

> > last Friday almost a couple of hours after she

> > developed a sudden fever of 105.4... I rushed her

> to

> > the hospital where she was admitted and placed on

> IV

> > fluids and a hosts of test done... she was also

> > checked for strep (by mouth) ... and they could

> not

> > find one reason why her fever was so high... they

> > all dismissed any relation to the NAET testing and

> > they all dismissed the NAET treatment as Hoax or

> > quack doctors...

> > meanwhile for the last 5 days my daughter's fever

> > has been real high, she finally broke out in a

> rash

> > all over her body, her stool is strange and

> smelly,

> > she looks yellowish to us and she is complaining

> > from tummy ache constantly and is not sleeping and

> > is not eating... could this be the yeast die off

> you

> > write about?

> >

> > I am sorry I went on and on... but I feel lost and

> > worried about my daughter

> > thanks

> >

> >

> > ---------------------------------

> > Do you ?

> > Everyone is raving about the all-new .

>

> __________________________________________________

>

[Guest guest]

Thanks everyone... i spoke to the neurologist that is heading this study at NIH

and who will be reading the MRI's and EEG's and she said she will be looking for

that too : )

I spoke to her at length about my daughter's " Manic " cycles that i mentioned

in my email and she said that she will look at all records and when we finish

testing we can address that by looking at possible causes

Caroline Glover <sfglover@...> wrote:

Nuha,

Chiari is evidently missed or even IGNORED sometimes when a Dr. is reading

an MRI, so you will want to really stress that you want it checked for.

Some people have a mild form and function normally, so believe it or not it

is sometimes not mentioned to the patient as an abnormal finding on a MRI.

Caroline

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

, did the chiari not show up on the neurospects

but did with the mri? I get nervous when I hear there

can be mild forms of it. Perhaps that could be a

reason for hypo and hyperperfusion of the brain? Barb

--- LINDA ANAGNOSTAKOS <lsa5885@...> wrote:

> Nuha,

>

> Chiari is not something that you look for, it's

> either there or it's not. If

> a radiologist fails to mention it as a finding

> during an MRI then they're

> committing malpractice in a big way!! All

> radiologists look for anything out

> of the norm when they are reading studies. It's not

> an incidental finding

> it's sufficient in the life and development of a

> child.

>

> Believe me, my son's four neurosurgeries were the

> best things that ever

> happened to him. With the CSF flow restored to his

> brain and the brain given

> enough room to move into the correct position to

> heal he has been given a

> very good chance at a full and complete recovery.

>

> As far as not taking her to NIH because she's not

> back to herself.........

> Not sure what this means?? Wouldn't that be the

> best time for the

> physicians to see her?? They're not there to judge

> her, just help her.

>

> It's often best for a physician to see a child at

> his/her worst to get a

> clear picture of what might be going on. Seeing it

> is easier than making a

> judgement call based on a parents description of a

> problem. IMHO

>

>

>

> >From: Nuha Shiblie <nshiblie2002@...>

> >Reply-

> >

> >Subject: RE: What is going on with my

> daughter?

> >Date: Wed, 30 Aug 2006 21:28:16 -0700 (PDT)

> >

> >I just looked it up... wow... that must have been a

> serious surgery

> > funny enough you ask about MRI and EEG, because

> she is supposed to get

> >an MRI under sedation for a study on Autism at NIH

> on Tuesday and then they

> >were to do a 24 hour EEG inpatient ,,, but i can

> assure you that Chiari is

> >not what they are looking for

> >

> > anyhow, i will not take her if she is not back

> to herself by this

> >weekend... i might have reschedule... i will call

> them and see if this is

> >something they will look for... thanks for the tip

> >

> >LINDA ANAGNOSTAKOS <lsa5885@...> wrote:

> > Hi Nuha,

> >

> >Did your daughter have an MRI of her brain as well

> as an EEG to rule out

> >seizures??

> >

> >Your daughters history sounds exactly like my sons.

> He was finally

> >diagnosed

> >with Chiari 1 Malformation. He had this corrected

> with neurosurgery and is

> >making amazing progress. An MRI is the only way to

> diagnose this problem

> >correctly so it's important that this be done to

> rule it out. The longer a

> >child goes without a correct diagnoses the risk of

> permanent damage is

> >great!!

> >

> >Take care,

> >

> >

> > >From: Nuha Shiblie <nshiblie2002@...>

> > >Reply-

> > >To:

> AllergyRelatedVaccineInducedAutism ,

> > > ,

> asd_solutions ,

> > >autism ,

> Asd_kids

> > >Subject: What is going on with my

> daughter?

> > >Date: Tue, 29 Aug 2006 13:49:45 -0700 (PDT)

> > >

> > >

> > > Folks

> > > I am hoping for some advice and some answers

> > >

> > > my daughter is 34 months, diagnosed PDD/high

> functioning ASD

> > > unlike most of you I have noticed some odd

> things about her before the

> > >age of one... she would never look at us or the

> camera... she did not

> > >respond to her name... and she had stopped

> babbling at 9 months...

> >however

> > >no behaviors issues whatsoever ... no lining up

> toys, no getting stuck

> >and

> > >not transitioning, not fussy or tantrums prone...

> she in fact was an

> > >angel... ate almost everything and slept well ...

> she showed no stemming

> >or

> > >hand flapping behaviors

> > >

> > > but, she would go though a few days of what I

> call Manic behavior every

> > >few weeks... get frequent BMs and always ends

> with a yeast infection ...

> > >she will act strange... either laugh a lot or cry

> for no reason... will

> >not

> > >eat or sleep... and becomes too hyper and hard to

> calm down...

> > >

> > > so I started documenting the dates and found

> that it will happen almost

> > >always every 7 to eight weeks for a week (almost

> like a cycle) and it

> > >started at about one year of age (when i noticed

> it)

> > >

> > > talking to others or pediatricians... no one

> seemed to believe me and I

> > >don't think anyone does now... but its real and

> it still happens but it

> >no

> > >longer lasts as long as it used to but the

> frequency is till valid...

> > >

> > > When I finally convinced her pediatrician to

> test her they referred me

> > >to a developmental predication for social and

> language delay... he

> >ordered

> > >23 different blood work and only 2 came back with

> some cause of concern,

> > >Amino Acid was very high and she tested to be a

> carrier of the fragile

> >X...

> > >I was told that many people are walking around as

> carriers of the fragile

> >X

> > >and that it means nothing and that only if she

> decides to have children

> >we

> > >can worry about it... at the time my daughter was

> only 2 years old and

> > >picking up language quickly with the help of a

> speech therapist... she

> >also

> > >tested normal by a well renowned OT at Kennedy

> Krieger

> > >

> > > when she hit 30 months I started seeing

> behaviors associated with full

> > >autism... spinning, occasional fist licking,

> occasional cars lining up...

> > >and have regressed in play skills ... potty

> skills, she also have become

> >so

> > >defiant that we cant get her to cooperate most of

> the time...

> > >

> > > so after months of reading posts and

> researching I decided to go

> > >for NAET and RDI as means of therapies for now...

> I just ordered the

> >toxic

> > >urine and stool tests and tested her by an NAET

> doctor who tells me she

> >is

> > >allergic to more than 8 elements and will start

> treatment next week

> > >

> > > if I don't see improvements with NAET I will

> move to DAN or

> > >protocols

> > >

> > > now here is why I am writing this:

> > >

> > > 1. have any of you seen symptoms like this as

> early as 6 months and if

> > >so did your childs symptoms continue to get

> worse?

> > >

> > > 2. any of you noticed this cycle I mentioned

> where for few days there

>

=== message truncated ===

Barb Katsaros

barbkatsaros@...

__________________________________________________

[Guest guest]

Hi Barb,

Not sure if a neurospect would show a Chiari Malformation . I do know that

an MRI is the way it's diagnosed and my son has had a dozen over the past

two years. The only other imagimg studies that he has had were a 3-D Cat

Scan and regular CT.

>From: Barb Katsaros <barbkatsaros@...>

>Reply-

>

>Subject: RE: What is going on with my daughter?

>Date: Thu, 31 Aug 2006 22:11:48 -0700 (PDT)

>

>, did the chiari not show up on the neurospects

>but did with the mri? I get nervous when I hear there

>can be mild forms of it. Perhaps that could be a

>reason for hypo and hyperperfusion of the brain? Barb

>

>--- LINDA ANAGNOSTAKOS <lsa5885@...> wrote:

>

> > Nuha,

> >

> > Chiari is not something that you look for, it's

> > either there or it's not. If

> > a radiologist fails to mention it as a finding

> > during an MRI then they're

> > committing malpractice in a big way!! All

> > radiologists look for anything out

> > of the norm when they are reading studies. It's not

> > an incidental finding

> > it's sufficient in the life and development of a

> > child.

> >

> > Believe me, my son's four neurosurgeries were the

> > best things that ever

> > happened to him. With the CSF flow restored to his

> > brain and the brain given

> > enough room to move into the correct position to

> > heal he has been given a

> > very good chance at a full and complete recovery.

> >

> > As far as not taking her to NIH because she's not

> > back to herself.........

> > Not sure what this means?? Wouldn't that be the

> > best time for the

> > physicians to see her?? They're not there to judge

> > her, just help her.

> >

> > It's often best for a physician to see a child at

> > his/her worst to get a

> > clear picture of what might be going on. Seeing it

> > is easier than making a

> > judgement call based on a parents description of a

> > problem. IMHO

> >

> >

> >

> > >From: Nuha Shiblie <nshiblie2002@...>

> > >Reply-

> > >

> > >Subject: RE: What is going on with my

> > daughter?

> > >Date: Wed, 30 Aug 2006 21:28:16 -0700 (PDT)

> > >

> > >I just looked it up... wow... that must have been a

> > serious surgery

> > > funny enough you ask about MRI and EEG, because

> > she is supposed to get

> > >an MRI under sedation for a study on Autism at NIH

> > on Tuesday and then they

> > >were to do a 24 hour EEG inpatient ,,, but i can

> > assure you that Chiari is

> > >not what they are looking for

> > >

> > > anyhow, i will not take her if she is not back

> > to herself by this

> > >weekend... i might have reschedule... i will call

> > them and see if this is

> > >something they will look for... thanks for the tip

> > >

> > >LINDA ANAGNOSTAKOS <lsa5885@...> wrote:

> > > Hi Nuha,

> > >

> > >Did your daughter have an MRI of her brain as well

> > as an EEG to rule out

> > >seizures??

> > >

> > >Your daughters history sounds exactly like my sons.

> > He was finally

> > >diagnosed

> > >with Chiari 1 Malformation. He had this corrected

> > with neurosurgery and is

> > >making amazing progress. An MRI is the only way to

> > diagnose this problem

> > >correctly so it's important that this be done to

> > rule it out. The longer a

> > >child goes without a correct diagnoses the risk of

> > permanent damage is

> > >great!!

> > >

> > >Take care,

> > >

> > >

> > > >From: Nuha Shiblie <nshiblie2002@...>

> > > >Reply-

> > > >To:

> > AllergyRelatedVaccineInducedAutism ,

> > > > ,

> > asd_solutions ,

> > > >autism ,

> > Asd_kids

> > > >Subject: What is going on with my

> > daughter?

> > > >Date: Tue, 29 Aug 2006 13:49:45 -0700 (PDT)

> > > >

> > > >

> > > > Folks

> > > > I am hoping for some advice and some answers

> > > >

> > > > my daughter is 34 months, diagnosed PDD/high

> > functioning ASD

> > > > unlike most of you I have noticed some odd

> > things about her before the

> > > >age of one... she would never look at us or the

> > camera... she did not

> > > >respond to her name... and she had stopped

> > babbling at 9 months...

> > >however

> > > >no behaviors issues whatsoever ... no lining up

> > toys, no getting stuck

> > >and

> > > >not transitioning, not fussy or tantrums prone...

> > she in fact was an

> > > >angel... ate almost everything and slept well ...

> > she showed no stemming

> > >or

> > > >hand flapping behaviors

> > > >

> > > > but, she would go though a few days of what I

> > call Manic behavior every

> > > >few weeks... get frequent BMs and always ends

> > with a yeast infection ...

> > > >she will act strange... either laugh a lot or cry

> > for no reason... will

> > >not

> > > >eat or sleep... and becomes too hyper and hard to

> > calm down...

> > > >

> > > > so I started documenting the dates and found

> > that it will happen almost

> > > >always every 7 to eight weeks for a week (almost

> > like a cycle) and it

> > > >started at about one year of age (when i noticed

> > it)

> > > >

> > > > talking to others or pediatricians... no one

> > seemed to believe me and I

> > > >don't think anyone does now... but its real and

> > it still happens but it

> > >no

> > > >longer lasts as long as it used to but the

> > frequency is till valid...

> > > >

> > > > When I finally convinced her pediatrician to

> > test her they referred me

> > > >to a developmental predication for social and

> > language delay... he

> > >ordered

> > > >23 different blood work and only 2 came back with

> > some cause of concern,

> > > >Amino Acid was very high and she tested to be a

> > carrier of the fragile

> > >X...

> > > >I was told that many people are walking around as

> > carriers of the fragile

> > >X

> > > >and that it means nothing and that only if she

> > decides to have children

> > >we

> > > >can worry about it... at the time my daughter was

> > only 2 years old and

> > > >picking up language quickly with the help of a

> > speech therapist... she

> > >also

> > > >tested normal by a well renowned OT at Kennedy

> > Krieger

> > > >

> > > > when she hit 30 months I started seeing

> > behaviors associated with full

> > > >autism... spinning, occasional fist licking,

> > occasional cars lining up...

> > > >and have regressed in play skills ... potty

> > skills, she also have become

> > >so

> > > >defiant that we cant get her to cooperate most of

> > the time...

> > > >

> > > > so after months of reading posts and

> > researching I decided to go

> > > >for NAET and RDI as means of therapies for now...

> > I just ordered the

> > >toxic

> > > >urine and stool tests and tested her by an NAET

> > doctor who tells me she

> > >is

> > > >allergic to more than 8 elements and will start

> > treatment next week

> > > >

> > > > if I don't see improvements with NAET I will

> > move to DAN or

> > > >protocols

> > > >

> > > > now here is why I am writing this:

> > > >

> > > > 1. have any of you seen symptoms like this as

> > early as 6 months and if

> > > >so did your childs symptoms continue to get

> > worse?

> > > >

> > > > 2. any of you noticed this cycle I mentioned

> > where for few days there

> >

>=== message truncated ===

>

>

>Barb Katsaros

>barbkatsaros@...

>

>__________________________________________________

>

[Guest guest]

Does anybody know the latest research about PANDAS??? Is there a

treatment?

> >

> > >

> > > Folks

> > > I am hoping for some advice and some answers

> > >

> > > my daughter is 34 months, diagnosed PDD/high

> > > functioning ASD

> > > unlike most of you I have noticed some odd things

> > > about her before the age of one... she would never

> > > look at us or the camera... she did not respond to

> > > her name... and she had stopped babbling at 9

> > > months... however no behaviors issues whatsoever

> > ...

> > > no lining up toys, no getting stuck and not

> > > transitioning, not fussy or tantrums prone... she

> > in

> > > fact was an angel... ate almost everything and

> > slept

> > > well ... she showed no stemming or hand flapping

> > > behaviors

> > >

> > > but, she would go though a few days of what I call

> > > Manic behavior every few weeks... get frequent BMs

> > > and always ends with a yeast infection ... she

> > will

> > > act strange... either laugh a lot or cry for no

> > > reason... will not eat or sleep... and becomes too

> > > hyper and hard to calm down...

> > >

> > > so I started documenting the dates and found that

> > > it will happen almost always every 7 to eight

> > weeks

> > > for a week (almost like a cycle) and it started at

> > > about one year of age (when i noticed it)

> > >

> > > talking to others or pediatricians... no one

> > > seemed to believe me and I don't think anyone does

> > > now... but its real and it still happens but it no

> > > longer lasts as long as it used to but the

> > frequency

> > > is till valid...

> > >

> > > When I finally convinced her pediatrician to test

> > > her they referred me to a developmental

> > predication

> > > for social and language delay... he ordered 23

> > > different blood work and only 2 came back with

> > some

> > > cause of concern, Amino Acid was very high and she

> > > tested to be a carrier of the fragile X... I was

> > > told that many people are walking around as

> > carriers

> > > of the fragile X and that it means nothing and

> > that

> > > only if she decides to have children we can worry

> > > about it... at the time my daughter was only 2

> > years

> > > old and picking up language quickly with the help

> > of

> > > a speech therapist... she also tested normal by a

> > > well renowned OT at Kennedy Krieger

> > >

> > > when she hit 30 months I started seeing behaviors

> > > associated with full autism... spinning,

> > occasional

> > > fist licking, occasional cars lining up... and

> > have

> > > regressed in play skills ... potty skills, she

> > also

> > > have become so defiant that we cant get her to

> > > cooperate most of the time...

> > >

> > > so after months of reading posts and

> > > researching I decided to go for NAET and RDI as

> > > means of therapies for now... I just ordered the

> > > toxic urine and stool tests and tested her by an

> > > NAET doctor who tells me she is allergic to more

> > > than 8 elements and will start treatment next week

> > >

> > > if I don't see improvements with NAET I will move

> > > to DAN or protocols

> > >

> > > now here is why I am writing this:

> > >

> > > 1. have any of you seen symptoms like this as

> > > early as 6 months and if so did your childs

> > symptoms

> > > continue to get worse?

> > >

> > > 2. any of you noticed this cycle I mentioned where

> > > for few days there will act manic and out of

> > > character and have some tummy issues and yeast

> > > issues associated? and if so, do you think its the

> > > yeast die off everyone talks about... (I am not

> > > treating her for anything or with anything right

> > > now) so is it possible that she is having yeast

> > die

> > > off episodes naturally?

> > >

> > > 3, Have any of you tried NAET as means of

> > > treatment before you tried the biomedical and if

> > so

> > > how did it go?

> > >

> > > following our first visit with the NAET doctor

> > > last Friday almost a couple of hours after she

> > > developed a sudden fever of 105.4... I rushed her

> > to

> > > the hospital where she was admitted and placed on

> > IV

> > > fluids and a hosts of test done... she was also

> > > checked for strep (by mouth) ... and they could

> > not

> > > find one reason why her fever was so high... they

> > > all dismissed any relation to the NAET testing and

> > > they all dismissed the NAET treatment as Hoax or

> > > quack doctors...

> > > meanwhile for the last 5 days my daughter's fever

> > > has been real high, she finally broke out in a

> > rash

> > > all over her body, her stool is strange and

> > smelly,

> > > she looks yellowish to us and she is complaining

> > > from tummy ache constantly and is not sleeping and

> > > is not eating... could this be the yeast die off

> > you

> > > write about?

> > >

> > > I am sorry I went on and on... but I feel lost and

> > > worried about my daughter

> > > thanks

> > >

> > >

> > > ---------------------------------

> > > Do you ?

> > > Everyone is raving about the all-new .

> >

> > __________________________________________________

> >

[Guest guest]

Does anybody know the latest research about PANDAS??? Is there a

treatment?

> >

> > >

> > > Folks

> > > I am hoping for some advice and some answers

> > >

> > > my daughter is 34 months, diagnosed PDD/high

> > > functioning ASD

> > > unlike most of you I have noticed some odd things

> > > about her before the age of one... she would never

> > > look at us or the camera... she did not respond to

> > > her name... and she had stopped babbling at 9

> > > months... however no behaviors issues whatsoever

> > ...

> > > no lining up toys, no getting stuck and not

> > > transitioning, not fussy or tantrums prone... she

> > in

> > > fact was an angel... ate almost everything and

> > slept

> > > well ... she showed no stemming or hand flapping

> > > behaviors

> > >

> > > but, she would go though a few days of what I call

> > > Manic behavior every few weeks... get frequent BMs

> > > and always ends with a yeast infection ... she

> > will

> > > act strange... either laugh a lot or cry for no

> > > reason... will not eat or sleep... and becomes too

> > > hyper and hard to calm down...

> > >

> > > so I started documenting the dates and found that

> > > it will happen almost always every 7 to eight

> > weeks

> > > for a week (almost like a cycle) and it started at

> > > about one year of age (when i noticed it)

> > >

> > > talking to others or pediatricians... no one

> > > seemed to believe me and I don't think anyone does

> > > now... but its real and it still happens but it no

> > > longer lasts as long as it used to but the

> > frequency

> > > is till valid...

> > >

> > > When I finally convinced her pediatrician to test

> > > her they referred me to a developmental

> > predication

> > > for social and language delay... he ordered 23

> > > different blood work and only 2 came back with

> > some

> > > cause of concern, Amino Acid was very high and she

> > > tested to be a carrier of the fragile X... I was

> > > told that many people are walking around as

> > carriers

> > > of the fragile X and that it means nothing and

> > that

> > > only if she decides to have children we can worry

> > > about it... at the time my daughter was only 2

> > years

> > > old and picking up language quickly with the help

> > of

> > > a speech therapist... she also tested normal by a

> > > well renowned OT at Kennedy Krieger

> > >

> > > when she hit 30 months I started seeing behaviors

> > > associated with full autism... spinning,

> > occasional

> > > fist licking, occasional cars lining up... and

> > have

> > > regressed in play skills ... potty skills, she

> > also

> > > have become so defiant that we cant get her to

> > > cooperate most of the time...

> > >

> > > so after months of reading posts and

> > > researching I decided to go for NAET and RDI as

> > > means of therapies for now... I just ordered the

> > > toxic urine and stool tests and tested her by an

> > > NAET doctor who tells me she is allergic to more

> > > than 8 elements and will start treatment next week

> > >

> > > if I don't see improvements with NAET I will move

> > > to DAN or protocols

> > >

> > > now here is why I am writing this:

> > >

> > > 1. have any of you seen symptoms like this as

> > > early as 6 months and if so did your childs

> > symptoms

> > > continue to get worse?

> > >

> > > 2. any of you noticed this cycle I mentioned where

> > > for few days there will act manic and out of

> > > character and have some tummy issues and yeast

> > > issues associated? and if so, do you think its the

> > > yeast die off everyone talks about... (I am not

> > > treating her for anything or with anything right

> > > now) so is it possible that she is having yeast

> > die

> > > off episodes naturally?

> > >

> > > 3, Have any of you tried NAET as means of

> > > treatment before you tried the biomedical and if

> > so

> > > how did it go?

> > >

> > > following our first visit with the NAET doctor

> > > last Friday almost a couple of hours after she

> > > developed a sudden fever of 105.4... I rushed her

> > to

> > > the hospital where she was admitted and placed on

> > IV

> > > fluids and a hosts of test done... she was also

> > > checked for strep (by mouth) ... and they could

> > not

> > > find one reason why her fever was so high... they

> > > all dismissed any relation to the NAET testing and

> > > they all dismissed the NAET treatment as Hoax or

> > > quack doctors...

> > > meanwhile for the last 5 days my daughter's fever

> > > has been real high, she finally broke out in a

> > rash

> > > all over her body, her stool is strange and

> > smelly,

> > > she looks yellowish to us and she is complaining

> > > from tummy ache constantly and is not sleeping and

> > > is not eating... could this be the yeast die off

> > you

> > > write about?

> > >

> > > I am sorry I went on and on... but I feel lost and

> > > worried about my daughter

> > > thanks

> > >

> > >

> > > ---------------------------------

> > > Do you ?

> > > Everyone is raving about the all-new .

> >

> > __________________________________________________

> >

[Guest guest]

It is strange all this talk of strep throat - my son was OK in life health wise till he had this and then had convulsions, fevers galore, loads of convulsions, repeated infections - ears being the most common, notice of delay, no commuincation ect, diagnosis of autism and so on and so on, but it all started with the strep throat. I didn't actually realise it can be very dangerous - my sons turned to septeacemia and then they were scared at the hospital it could spread the the menegicocal tissues and cause the deadly menegicocal septeacemia. Fortunateley it did not but still had to have a week of 4 x daily intavenous anti biotics for him. It can be bad news

Re: What is going on with my daughter?

Does anybody know the latest research about PANDAS??? Is there a treatment?> > > > > > > > Folks> > > I am hoping for some advice and some answers> > > > > > my daughter is 34 months, diagnosed PDD/high> > > functioning ASD > > > unlike most of you I have noticed some odd things> > > about her before the age of one... she would never> > > look at us or the camera... she did not respond to> > > her name... and she had stopped babbling at 9> > > months... however no behaviors issues whatsoever> > ...> > > no lining up toys, no getting stuck and not> > > transitioning, not fussy or tantrums prone... she> > in> > > fact was an angel... ate almost everything and> > slept> > > well ... she showed no stemming or hand flapping> > > behaviors> > > > > > but, she would go though a few days of what I call> > > Manic behavior every few weeks... get frequent BMs> > > and always ends with a yeast infection ... she> > will> > > act strange... either laugh a lot or cry for no> > > reason... will not eat or sleep... and becomes too> > > hyper and hard to calm down...> > > > > > so I started documenting the dates and found that> > > it will happen almost always every 7 to eight> > weeks> > > for a week (almost like a cycle) and it started at> > > about one year of age (when i noticed it)> > > > > > talking to others or pediatricians... no one> > > seemed to believe me and I don't think anyone does> > > now... but its real and it still happens but it no> > > longer lasts as long as it used to but the> > frequency> > > is till valid...> > > > > > When I finally convinced her pediatrician to test> > > her they referred me to a developmental> > predication> > > for social and language delay... he ordered 23> > > different blood work and only 2 came back with> > some> > > cause of concern, Amino Acid was very high and she> > > tested to be a carrier of the fragile X... I was> > > told that many people are walking around as> > carriers> > > of the fragile X and that it means nothing and> > that> > > only if she decides to have children we can worry> > > about it... at the time my daughter was only 2> > years> > > old and picking up language quickly with the help> > of> > > a speech therapist... she also tested normal by a> > > well renowned OT at Kennedy Krieger > > > > > > when she hit 30 months I started seeing behaviors> > > associated with full autism... spinning,> > occasional> > > fist licking, occasional cars lining up... and> > have> > > regressed in play skills ... potty skills, she> > also> > > have become so defiant that we cant get her to> > > cooperate most of the time...> > > > > > so after months of reading posts and> > > researching I decided to go for NAET and RDI as> > > means of therapies for now... I just ordered the> > > toxic urine and stool tests and tested her by an> > > NAET doctor who tells me she is allergic to more> > > than 8 elements and will start treatment next week> > > > > > if I don't see improvements with NAET I will move> > > to DAN or protocols> > > > > > now here is why I am writing this: > > > > > > 1. have any of you seen symptoms like this as> > > early as 6 months and if so did your childs> > symptoms> > > continue to get worse?> > > > > > 2. any of you noticed this cycle I mentioned where> > > for few days there will act manic and out of> > > character and have some tummy issues and yeast> > > issues associated? and if so, do you think its the> > > yeast die off everyone talks about... (I am not> > > treating her for anything or with anything right> > > now) so is it possible that she is having yeast> > die> > > off episodes naturally?> > > > > > 3, Have any of you tried NAET as means of> > > treatment before you tried the biomedical and if> > so> > > how did it go?> > > > > > following our first visit with the NAET doctor> > > last Friday almost a couple of hours after she> > > developed a sudden fever of 105.4... I rushed her> > to> > > the hospital where she was admitted and placed on> > IV> > > fluids and a hosts of test done... she was also> > > checked for strep (by mouth) ... and they could> > not> > > find one reason why her fever was so high... they> > > all dismissed any relation to the NAET testing and> > > they all dismissed the NAET treatment as Hoax or> > > quack doctors... > > > meanwhile for the last 5 days my daughter's fever> > > has been real high, she finally broke out in a> > rash> > > all over her body, her stool is strange and> > smelly,> > > she looks yellowish to us and she is complaining> > > from tummy ache constantly and is not sleeping and> > > is not eating... could this be the yeast die off> > you> > > write about?> > > > > > I am sorry I went on and on... but I feel lost and> > > worried about my daughter> > > thanks> > > > > > > > > ---------------------------------> > > Do you ?> > > Everyone is raving about the all-new .> > > > __________________________________________________> >

[Guest guest]

I wonder if the strep virus acts in some strange way with the virus

administered via the MMR vaccine.

I'm certainly no doctor and really haven't a clue as to whether or

not there's any connection. But this has made me curious....

Kat

> > >

> > > >

> > > > Folks

> > > > I am hoping for some advice and some answers

> > > >

> > > > my daughter is 34 months, diagnosed PDD/high

> > > > functioning ASD

> > > > unlike most of you I have noticed some odd things

> > > > about her before the age of one... she would never

> > > > look at us or the camera... she did not respond to

> > > > her name... and she had stopped babbling at 9

> > > > months... however no behaviors issues whatsoever

> > > ...

> > > > no lining up toys, no getting stuck and not

> > > > transitioning, not fussy or tantrums prone... she

> > > in

> > > > fact was an angel... ate almost everything and

> > > slept

> > > > well ... she showed no stemming or hand flapping

> > > > behaviors

> > > >

> > > > but, she would go though a few days of what I call

> > > > Manic behavior every few weeks... get frequent BMs

> > > > and always ends with a yeast infection ... she

> > > will

> > > > act strange... either laugh a lot or cry for no

> > > > reason... will not eat or sleep... and becomes too

> > > > hyper and hard to calm down...

> > > >

> > > > so I started documenting the dates and found that

> > > > it will happen almost always every 7 to eight

> > > weeks

> > > > for a week (almost like a cycle) and it started at

> > > > about one year of age (when i noticed it)

> > > >

> > > > talking to others or pediatricians... no one

> > > > seemed to believe me and I don't think anyone does

> > > > now... but its real and it still happens but it no

> > > > longer lasts as long as it used to but the

> > > frequency

> > > > is till valid...

> > > >

> > > > When I finally convinced her pediatrician to test

> > > > her they referred me to a developmental

> > > predication

> > > > for social and language delay... he ordered 23

> > > > different blood work and only 2 came back with

> > > some

> > > > cause of concern, Amino Acid was very high and she

> > > > tested to be a carrier of the fragile X... I was

> > > > told that many people are walking around as

> > > carriers

> > > > of the fragile X and that it means nothing and

> > > that

> > > > only if she decides to have children we can worry

> > > > about it... at the time my daughter was only 2

> > > years

> > > > old and picking up language quickly with the help

> > > of

> > > > a speech therapist... she also tested normal by a

> > > > well renowned OT at Kennedy Krieger

> > > >

> > > > when she hit 30 months I started seeing behaviors

> > > > associated with full autism... spinning,

> > > occasional

> > > > fist licking, occasional cars lining up... and

> > > have

> > > > regressed in play skills ... potty skills, she

> > > also

> > > > have become so defiant that we cant get her to

> > > > cooperate most of the time...

> > > >

> > > > so after months of reading posts and

> > > > researching I decided to go for NAET and RDI as

> > > > means of therapies for now... I just ordered the

> > > > toxic urine and stool tests and tested her by an

> > > > NAET doctor who tells me she is allergic to more

> > > > than 8 elements and will start treatment next week

> > > >

> > > > if I don't see improvements with NAET I will move

> > > > to DAN or protocols

> > > >

> > > > now here is why I am writing this:

> > > >

> > > > 1. have any of you seen symptoms like this as

> > > > early as 6 months and if so did your childs

> > > symptoms

> > > > continue to get worse?

> > > >

> > > > 2. any of you noticed this cycle I mentioned where

> > > > for few days there will act manic and out of

> > > > character and have some tummy issues and yeast

> > > > issues associated? and if so, do you think its the

> > > > yeast die off everyone talks about... (I am not

> > > > treating her for anything or with anything right

> > > > now) so is it possible that she is having yeast

> > > die

> > > > off episodes naturally?

> > > >

> > > > 3, Have any of you tried NAET as means of

> > > > treatment before you tried the biomedical and if

> > > so

> > > > how did it go?

> > > >

> > > > following our first visit with the NAET doctor

> > > > last Friday almost a couple of hours after she

> > > > developed a sudden fever of 105.4... I rushed her

> > > to

> > > > the hospital where she was admitted and placed on

> > > IV

> > > > fluids and a hosts of test done... she was also

> > > > checked for strep (by mouth) ... and they could

> > > not

> > > > find one reason why her fever was so high... they

> > > > all dismissed any relation to the NAET testing and

> > > > they all dismissed the NAET treatment as Hoax or

> > > > quack doctors...

> > > > meanwhile for the last 5 days my daughter's fever

> > > > has been real high, she finally broke out in a

> > > rash

> > > > all over her body, her stool is strange and

> > > smelly,

> > > > she looks yellowish to us and she is complaining

> > > > from tummy ache constantly and is not sleeping and

> > > > is not eating... could this be the yeast die off

> > > you

> > > > write about?

> > > >

> > > > I am sorry I went on and on... but I feel lost and

> > > > worried about my daughter

> > > > thanks

> > > >

> > > >

> > > > ---------------------------------

> > > > Do you ?

> > > > Everyone is raving about the all-new .

> > >

> > > __________________________________________________

> > >

[Guest guest]

My son had the strep throat at 6 mths old so it was before the MMR

Re: What is going on with my daughter?

I wonder if the strep virus acts in some strange way with the virus administered via the MMR vaccine.I'm certainly no doctor and really haven't a clue as to whether or not there's any connection. But this has made me curious....Kat> > > > > > > > > > > Folks> > > > I am hoping for some advice and some answers> > > > > > > > my daughter is 34 months, diagnosed PDD/high> > > > functioning ASD > > > > unlike most of you I have noticed some odd things> > > > about her before the age of one... she would never> > > > look at us or the camera... she did not respond to> > > > her name... and she had stopped babbling at 9> > > > months... however no behaviors issues whatsoever> > > ...> > > > no lining up toys, no getting stuck and not> > > > transitioning, not fussy or tantrums prone... she> > > in> > > > fact was an angel... ate almost everything and> > > slept> > > > well ... she showed no stemming or hand flapping> > > > behaviors> > > > > > > > but, she would go though a few days of what I call> > > > Manic behavior every few weeks... get frequent BMs> > > > and always ends with a yeast infection ... she> > > will> > > > act strange... either laugh a lot or cry for no> > > > reason... will not eat or sleep... and becomes too> > > > hyper and hard to calm down...> > > > > > > > so I started documenting the dates and found that> > > > it will happen almost always every 7 to eight> > > weeks> > > > for a week (almost like a cycle) and it started at> > > > about one year of age (when i noticed it)> > > > > > > > talking to others or pediatricians... no one> > > > seemed to believe me and I don't think anyone does> > > > now... but its real and it still happens but it no> > > > longer lasts as long as it used to but the> > > frequency> > > > is till valid...> > > > > > > > When I finally convinced her pediatrician to test> > > > her they referred me to a developmental> > > predication> > > > for social and language delay... he ordered 23> > > > different blood work and only 2 came back with> > > some> > > > cause of concern, Amino Acid was very high and she> > > > tested to be a carrier of the fragile X... I was> > > > told that many people are walking around as> > > carriers> > > > of the fragile X and that it means nothing and> > > that> > > > only if she decides to have children we can worry> > > > about it... at the time my daughter was only 2> > > years> > > > old and picking up language quickly with the help> > > of> > > > a speech therapist... she also tested normal by a> > > > well renowned OT at Kennedy Krieger > > > > > > > > when she hit 30 months I started seeing behaviors> > > > associated with full autism... spinning,> > > occasional> > > > fist licking, occasional cars lining up... and> > > have> > > > regressed in play skills ... potty skills, she> > > also> > > > have become so defiant that we cant get her to> > > > cooperate most of the time...> > > > > > > > so after months of reading posts and> > > > researching I decided to go for NAET and RDI as> > > > means of therapies for now... I just ordered the> > > > toxic urine and stool tests and tested her by an> > > > NAET doctor who tells me she is allergic to more> > > > than 8 elements and will start treatment next week> > > > > > > > if I don't see improvements with NAET I will move> > > > to DAN or protocols> > > > > > > > now here is why I am writing this: > > > > > > > > 1. have any of you seen symptoms like this as> > > > early as 6 months and if so did your childs> > > symptoms> > > > continue to get worse?> > > > > > > > 2. any of you noticed this cycle I mentioned where> > > > for few days there will act manic and out of> > > > character and have some tummy issues and yeast> > > > issues associated? and if so, do you think its the> > > > yeast die off everyone talks about... (I am not> > > > treating her for anything or with anything right> > > > now) so is it possible that she is having yeast> > > die> > > > off episodes naturally?> > > > > > > > 3, Have any of you tried NAET as means of> > > > treatment before you tried the biomedical and if> > > so> > > > how did it go?> > > > > > > > following our first visit with the NAET doctor> > > > last Friday almost a couple of hours after she> > > > developed a sudden fever of 105.4... I rushed her> > > to> > > > the hospital where she was admitted and placed on> > > IV> > > > fluids and a hosts of test done... she was also> > > > checked for strep (by mouth) ... and they could> > > not> > > > find one reason why her fever was so high... they> > > > all dismissed any relation to the NAET testing and> > > > they all dismissed the NAET treatment as Hoax or> > > > quack doctors... > > > > meanwhile for the last 5 days my daughter's fever> > > > has been real high, she finally broke out in a> > > rash> > > > all over her body, her stool is strange and> > > smelly,> > > > she looks yellowish to us and she is complaining> > > > from tummy ache constantly and is not sleeping and> > > > is not eating... could this be the yeast die off> > > you> > > > write about?> > > > > > > > I am sorry I went on and on... but I feel lost and> > > > worried about my daughter> > > > thanks> > > > > > > > > > > > ---------------------------------> > > > Do you ?> > > > Everyone is raving about the all-new .> > > > > > __________________________________________________> > >