Re: Digest Number 384

[Guest guest]

To the list -

I know I'm a couple of weeks behind with the list, but I just read

Patti's comment about praising her daughter and i want to put in my two cents

worth on how important it is to oserve and comment on even a small step

forward.

is twenty-six, but if he takes some new step and I overlook it, I

hear about it! Even at his age he needs to hear that I see and appreciate

any effort he makes to get himself out of his self-imposed prison (in the

bathroom). And I also had to learn to be satisfied with a small step at a

time. is very articulate and let me know how much it upset him if I

said " Good work on that step. Now what's next? " He complained that it made

him feel as though I would never be satisfied with the small steps he was

making. So I am now very careful to praise each step - more than once!

Jackie

[Guest guest]

Dear Kats DH !

Thankyou so much for your reply. It was reasuring to hear

from someone who has heard of this. I admit that i did think of the more

dire consequences of the bruising as a possibility, more out of panic than

anything else. I am happy with the doctors diagnosis (and relieved) but just

wondered as i had never heard of anything like this. Knowing methotrexate

for what it is and how it has affected other areas of my sons general health

since he went on it, i just wondered if it too could have been responsible

for this particular reaction. Since i posted the bruising has at last faded

and jason is fine. I will be keeping a check for this sort of thing in the

future though!

Thanks again

carol

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[Guest guest]

Hi carol,

I'd never heard of a spontaneous bleed happening like that, but I'm glad

to hear that seems to be doing fine. You must have been very

worried!

take care,

Georgina

c cleaver wrote:

> Dear Kats DH !

> Thankyou so much for your reply. It was reasuring to hear

> from someone who has heard of this. I admit that i did think of the more

> dire consequences of the bruising as a possibility, more out of panic than

> anything else. I am happy with the doctors diagnosis (and relieved) but just

> wondered as i had never heard of anything like this. Knowing methotrexate

> for what it is and how it has affected other areas of my sons general health

> since he went on it, i just wondered if it too could have been responsible

> for this particular reaction. Since i posted the bruising has at last faded

> and jason is fine. I will be keeping a check for this sort of thing in the

> future though!

> Thanks again

> carol

[Guest guest]

Hi Carolyn, Your site is terrific! Your family is beautiful (but you knew

that) and all the links and info are great. You did a great job!!

love debbi mom to Logan (6 tomorrow!) Eli (DS) and Milo (4 in sept)

[Guest guest]

Hi Carolyn, Your site is terrific! Your family is beautiful (but you knew

that) and all the links and info are great. You did a great job!!

love debbi mom to Logan (6 tomorrow!) Eli (DS) and Milo (4 in sept)

[Guest guest]

Franziska-

If it is psoriasis the problem is internal, and putting anything

oily on the skin would be a bad idea. You would want some sort of

herbal infusion (elder flower, maybe?) in water to wash with.

If it isn't psoriasis, you could try heart-of-Jesus oil (infusion

of St. 's wort in olive oil), blended with a

calendula-infused oil, perhaps. We have found this blend to be

very healing. If the olive oil is too greasy for her you could

use a lighter oil, such as almond or grapeseed, to infuse in.

God bless,

Jerry & Willis

Care about what you put on your skin?

All natural herbal soap and aromatherapy

bath products at www.heavensoap.com

extreme sensitive skin

>

> A friend of mine has really bad troubles with her skin. She

always had a

> red spots in her face, but now, since 3 month her whole face is

dark red

> with itchy spots. She said that her face feels like a hard

stretched mask.

> There are other spots which looks a bit like the beginning of

psoriarsis

> (my brother and my mother suffer on it so I know how it looks

like), but as

> far as she knows , it isn't this. At the beginning she used

(unfortunately)

> a thick layer of make-up since she was afraid to go out like

this. Now the

> woman from the drugstore recommend her not to use anything. She

has a hard

> time and her date with the doctor is next week. She thinks that

it maybe an

> allergy (milk) or stress.

> Has anybody an idea what I could make for her?

> I thought first of jojoba with helychrisum EO or camomile EO,

but she's

> afraid to use oils, but I think she should use something which

moisturizes

> and calmes her skin.

> Any suggestion are very appreciated!

> Thanks.

> Franziska

> ________________________________________

>

> JUST A PERFECT DAY - THE SOAP FACTORY

> Handmade soap and fine toiletries

> http://www.perfectday.ch

>

>

>

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>

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>

>

>

>

[Guest guest]

Greetings to all~having to come out of lurker mode to say that Butch made me

laugh so hard this morning & to say thanks....needed

that.hahahaha...........

~V~

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[Guest guest]

salt will make it thicker

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[Guest guest]

In a message dated 3/17/01 12:50:22 AM, writes:

<< If a state still has 1200 people in institutions, then there is a

problem. When they have under a hundred and are pressured into closing

the institution that cares for the most extreme cases, it is a different

story. Essentially no one with down syndrome is in this category. If

they are capable of 'informed' or even 'assisted' consent, they

shouldn't be in institutions. There are a few who really do require

hospital care. That is what a small band of CT parents is concerned

about because their loved ones would simply die without the right level

of care. This is the last such hospital in the state.

Rick>>

Yes, those 100 people in extreme cases DO need a high level of care, but

surely it doesn't have to take place in a 100 year old building that was

built to serve 3000. If that's not what's happening in CT, I see your point.

Unfortunately there are only 8 states who have completely closed their large

institutions, so I'm afraid what is happening in my state is more the rule

than the exception. The word institution around here is a pretty sore

subject.

We have a dinosaur of a legislator here (who is chairman of a Key committee)

that believes that ALL people with DD belong in institutions and we should

quit funding community programs. Her leg district is in one with and

institution (We still have 4 here in WA) and the union lobby is VERY strong.

So everytime we try to get some legislation passed, she sits on it in

committee. When asked whether she would want a family member sent to one of

these place she said " those people are so retarded, they won't know the

difference " ..remember she's talking about kids like ours....I just wanted to

slap her...sorry.

For those of you with young children who think this will all be taken care of

before your child gets to this stage, take note. I recently came across a

document that said that Fairview (a large institution in Oregon) should never

have been built and that the needed to look at other options. That document

was written in the 1960's. Fairview just closed this last year....that is

how " fast " the process goes....So if you have a voice, start speaking up now!

BTW, Rick, Californina still has over 4000 people in large institutions...

M.

[Guest guest]

> My official IQ is 141.

Always thought you were pretty clever, Dana!

[Guest guest]

Don, I would have thought that with a raw diet you wouldn't need deodorant.

Don't you think your olive oil version would leave oil spots on clothing? There

is no perfect solution, is there? Since I've been reading on this site, no one

has mentioned muscle testing as a way to check for the appropriateness of any

remedy. I was taught a great way to do it. The mind must be clear and neutral.

Face North, place the substance you have questions about in the area of your

heart or solar plexus. Make a yes - no statement only, such as " My body needs

this " , or " This is good for my body. Be neutral in waiting for a response. If

the body will respond positively to the substance, you will feel pulled forward.

If it is an undesirable substance, you will feel pulled backward. I have

experimented with this using sustances good and bad for my body in identical

containers without looking at them and get consistent results, but only if my

mind is quiet and in listening mode. I use it when I am looking for homeopathic

tinctures for me or my pets. There are other ways of doing this as well, but

this is the one I have had the most success with. Sometimes I fall out of the

habit, but I was re-reminded when you mentioned not knowing how healthy the

salts were. Does anyone use this or a similar method in checking for which

rmemedies to use?

So, I

got the great idea of infusing calendula into some olive oil and using

that. I haven't tried this yet but am going to as soon as I can get some

calendula infused. Personally I prefer using a stone too but am still

not 100% percent comfortable with it. I guess because I am not 100% sure

what salts are in it.

--

Peace, love and light,

Don Quai

[Guest guest]

cweeks@... wrote:

> Don, I would have thought that with a raw diet you wouldn't need

> deodorant.

> Don't you think your olive oil version would leave oil spots on

> clothing? There

> is no perfect solution, is there? Since I've been reading on this

> site, no one

> has mentioned muscle testing as a way to check for the appropriateness

> of any

> remedy. I was taught a great way to do it. The mind must be clear and

> neutral.

> Face North,

> place the substance you have questions about in the area of your heart

> or solar

> plexus. Make a yes - no statement only, such as " My body needs this " ,

> or " This

> is good for my body. Be neutral in waiting for a response. If the body

> will

> respond positively to the substance, you will feel pulled forward. If

> it is an

> undesirable substance, you will feel pulled backward. I have

> experimented with

> this using sustances good and bad for my body in identical containers

> without

> looking at them and get consistent results, but only if my mind is

> quiet and in

> listening mode. There are other ways of doing this as well, but this

> is the one

> I have had the most success with. Sometimes I fall out of the habit,

> but I was

> re-reminded when you mentioned not knowing how healthy the salts were.

>

===========================

Hi ,

You are quite correct in that deoderant is of very little use to someone

who eats only raw food and who has done a fair amount of fasting and

cleansing. Okay, maybe calendula infused in some shea butter or some

such. Got to be something more natural that will absorb and not stain

clothing. We will find it eventually. LOL

Thanks for sharing your style of kinesiology (sp?). Your right, I don't

think anyone has mentioned this yet. Very interesting and something I

will try for sure. I love the simplicity of it.

--

Peace, love and light,

Don Quai

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

[Guest guest]

Jill & Sue

Of course some people got totally well on amoxi (or

some other abx). That's not the point. Sue's daughter

has not gotten well on what she is on. She is

seropositive for Cpn and Lyme's, and clearly something

is missing. There is good, solid research about the

criticality of the flagyl-class drugs in Cpn. Take a

look at the site and especially at the Stratton

patent materials.

Sue-

I cannot tolerate flagyl. It makes me terribly sick.

Some of this was from the cryptic die-off and all the

endotoxin, secondary porphyria and cytokine reactions.

Some of it was to the drug itself. I found, along with

many others, that Tinidazole is much more tolerable

and seems to work just as well. It is pricey, but

worth it. One has to start pulses slowly, just one

dose, every three weeks, then two, etc up to a full

fivve day pulse.

Jim

Message: 2

Date: Tue, 22 Nov 2005 15:34:51 -0000

From: " jill1313 " <jenbooks13@...>

Subject: Re: Sue's dtr

Jim, I know several people who got totally well from

lyme just taking

amoxicillin and a few other orals for years and they

never used

flagyl. I think it is a little bit dangerous to insist

on flagyl or

tini over the internet to someone just because ne

fellow, Stratton,

uses it for what he believes is chlamydia p.

Message: 5

Date: Tue, 22 Nov 2005 14:51:30 -0500

From: <rhbailey@...>

Subject: Re: Sue Re: dtr

Hi Jim,

> The missing element I see in her combination is

Flagyl

> (or the more costly but tolerable Tinidazole). What

we

> have found in Cpn is that the addition of this

> liberates a lot of cellular energy which cryptic Cpn

> seems to steal from the mitochondria.

The PA did mention Flagyl and Tinidazole. My daughter

did test

positive for Cpn so I'll tell her if she does take

them again that it

might liberate a lot of cellular energy. They were

often included in

the drug combinations her LLMD used earlier.

In fact, Flagyl was the very first drug she used after

her sudden onset

in 1994. She tried it about a year after onset, and

it made her very,

very sick. With the first dose, she flipped from

hypersomnolence to

terrible insomnia, and this continued for years after

that single

10-day course of Flagyl in 1995.

She had other severe symptoms with the early Flagyl

also. At that

time, we looked up Flagyl side effects and they

matched her symptoms.

Her symptoms were so severe that it was years before

she would even

consider using it again--or any other drug. When she

used it later, as

part of her LLMD treatment, it was not so bad.

Now we're not so sure that her original reaction to

Flagyl was a side

effect. It could have been tick-borne die-off, but of

course at that

time we didn't know. If she had continued Flagyl

instead of stopping

it after ten days would she have recovered? She'd had

a negative ELISA

and it was years before we thought about it again.

For years, every

time she was offered Flagyl she said no.

Sue ,

Upstate New York