Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 On the subject of SSRIs, how does everyone determine if a behvavioral symptom is a result of an SSRI, a food interaction such as casein, gluten, phenols, etc? We keep a food diary and are GFCF, but also use Paxil at a low dose since July 2003. When he stims and is silly I usually assume it's sugar/yeast/carbs. However, it might be drug interactions or other pathologies. How does everyone else determine cause and effect? Thanks in advance for your thoughts -- in land, mom to AS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Hi, I am looking for experiences related to using SSRIs with kids with ASD. My son is 4. We started him on a very low dose SSRI a few months ago. We liked what we saw in terms of engagement, eye contact, language, but it made him aggressive and hyper. Then we tried another, but it made him alternately spacey and hyper, and compulsive! We started him on a 3rd this morning, and I'm scared about what it might do to him. Each time we've tried it has been a very low dose, and slowly worked up. Please share your experiences and advice - good and bad. Are they necessary? For those who have had success, did you hit it right off the bat? Have some of you tried them, and decided they are not worth while? Thank you, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Kristy: Which ones did you try? SSRIs Hi, I am looking for experiences related to using SSRIs with kids with ASD. My son is 4. We started him on a very low dose SSRI a few months ago. We liked what we saw in terms of engagement, eye contact, language, but it made him aggressive and hyper. Then we tried another, but it made him alternately spacey and hyper, and compulsive! We started him on a 3rd this morning, and I'm scared about what it might do to him. Each time we've tried it has been a very low dose, and slowly worked up. Please share your experiences and advice - good and bad. Are they necessary? For those who have had success, did you hit it right off the bat? Have some of you tried them, and decided they are not worth while? Thank you, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Kristy, In the past 4.5 years, we have been through various rotations of Prozac, Celexa, Zoloft and Paxil with our 11 year old son... and we have had both positive and negative results. One result was a greatly increased capacity to handle stressful social situations. For example, there was a girl on the bus who drove my son CRAZY in 1st grade, to the point where she would set him off into a screaming fit regularly. After a short time on his first SSRI (and you know, it's been so long that I don't remember which one it was), he came home and said this this girl was now his FRIEND. I was floored. He got along pretty well with her for the rest of the year. That blew my mind. As far as negatives, we have had bizarre behaviors when the dosage got too high (such as spitting on our carpet). He also just didn't act himself sometimes. I think one made him get angry or upset more easily. He also has a tendency to get more " stimmy " (hand flinging) when we increase the dose for a while. Anyway, to me the SSRI trials have always been the most difficult and dreaded part of the protocol. At a recent phone consult, we told Dr. G that our son had seemed to be on a plateau for quite some time now. We have been fiddling with other meds for a while, and it just hasn't gotten things moving in a positive direction. Anyway, Dr. G said he felt it was time to increase the Celexa. I braced myself for the worst, and guess what? We're seeing improvement again! I guess for me, I have had to keep telling myself that we're trying to find what helps, and if we don't look for it, we'll never find it. I also remember Dr. G saying one time that as the brain matures, its need change, so that is why the SSRIs are rotated... and even why sometimes an SSRI that was a nightmare on a child might be just the one they need in the future. Caroline > From: Kristy Nardini <krnardini@...> > Reply-< > > Date: Mon, 17 Jul 2006 08:46:03 -0700 > < > > Subject: SSRIs > > Hi, > > I am looking for experiences related to using SSRIs with kids with ASD. My > son is 4. We started him on a very low dose SSRI a few months ago. We liked > what we saw in terms of engagement, eye contact, language, but it made him > aggressive and hyper. Then we tried another, but it made him alternately > spacey and hyper, and compulsive! We started him on a 3rd this morning, and > I'm scared about what it might do to him. Each time we've tried it has been > a very low dose, and slowly worked up. > > Please share your experiences and advice - good and bad. Are they necessary? > For those who have had success, did you hit it right off the bat? Have some > of you tried them, and decided they are not worth while? > > Thank you, > > Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 , First Celexa, then Zoloft, now Paxil. Today (first day on Paxil), so far, is not much better. He is also on Famvir and Nizoral, and (chelated) iron. He was recently on Biaxin and Cipradex (antibiotic ear drops) for an upper respiratory and ear infection. During that time, I doubled his usual probiotic. Kristy SSRIs Hi, I am looking for experiences related to using SSRIs with kids with ASD. My son is 4. We started him on a very low dose SSRI a few months ago. We liked what we saw in terms of engagement, eye contact, language, but it made him aggressive and hyper. Then we tried another, but it made him alternately spacey and hyper, and compulsive! We started him on a 3rd this morning, and I'm scared about what it might do to him. Each time we've tried it has been a very low dose, and slowly worked up. Please share your experiences and advice - good and bad. Are they necessary? For those who have had success, did you hit it right off the bat? Have some of you tried them, and decided they are not worth while? Thank you, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Prozac helps with OCD but I am not sure why a 4 year old would need SSRI's to start with... I am not trying to add insult to injury but why are they telling you he should be on them to start with Barb Katsaros <barbkatsaros@...> wrote: My boys (15 and 13), have been on all of the ssri's that dr. g uses, at least once. i have not seen improvements with any of them, and a few have had some negatives. even tho there are not improvements, dr. g says that the neurospects do show improvements, so they stay on them. i really don't like using them, to tell the truth. so far, i think i like prozac the best for both of my boys. it is also the most reasonable of them all. (we have to pay for them out of pocket.) --- Kristy Nardini <krnardini@...> wrote: > , > > First Celexa, then Zoloft, now Paxil. Today (first > day on Paxil), so far, is > not much better. > > He is also on Famvir and Nizoral, and (chelated) > iron. > > He was recently on Biaxin and Cipradex (antibiotic > ear drops) for an upper > respiratory and ear infection. During that time, I > doubled his usual > probiotic. > > Kristy > > SSRIs > > Hi, > > I am looking for experiences related to using > SSRIs with kids with ASD. > My > son is 4. We started him on a very low dose SSRI a > few months ago. We > liked > what we saw in terms of engagement, eye contact, > language, but it made > him > aggressive and hyper. Then we tried another, but > it made him alternately > spacey and hyper, and compulsive! We started him > on a 3rd this morning, > and > I'm scared about what it might do to him. Each > time we've tried it has > been > a very low dose, and slowly worked up. > > Please share your experiences and advice - good > and bad. Are they > necessary? > For those who have had success, did you hit it > right off the bat? Have > some > of you tried them, and decided they are not worth > while? > > Thank you, > > Kristy > > [Non-text portions of this message have been > removed] > > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > Barb Katsaros barbkatsaros@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Hi Doris, 1. Celexa, Zoloft, now Paxil 2. 1/8 tablet to start. We got up to 1/2 Zoloft. Today we started with 1/8 Paxil. 3. My son had a neurospect scan just before starting the SSRIs. 4. We've waited at least 4 weeks with the Celexa and Zoloft. 7. My son has always been a good sleeper *until* the doses for both the Celexa and Zoloft got higher. Then, it became difficult for him to fall asleep and he would stay up for 2-3 hours after we put him to bed (but usually want to make it up the next a.m. - not possible with school). 8. Increase flow of blood to his brain, particularly the temporal lobes. Kristy Re: SSRIs 1. what SSRIs were tried? 2. Please clarify 'low dose'. Dr G starts off with grains (we used a razor and piece of glass for 's 1st SSRI. Looked a bit odd ...) 3. What piece of medical documentation is being used to determine dose and type? Is there a scan or visual observations only? 4. Length of time on each SSRI ? usual time for an SSRI to settle in is 7-14 days. Was a decrease attempted before changing to another SSRI ? 5. my research has shown that 75% of all meds have some form of lactose (from milk) in them. THe SSRIs are no different. I think paxil or celexa was the only SSRI that did NOT contain any lactose. 6. There is a test available that can determine if your child carries a liver (gene? chromosome?) that determines the 'uptake' of the med or how the med is metabolized. Some people metabolize drugs quicker than others. Do a search on old files - I've posted this news item relating to this test. 7. How is your child sleeping? this is always an indicator for us. 8. What is the purpose of the SSRI ? if you search old files, you'll see a variety of files relating to SSRIs. They help to regulate everything from blood flow to immune operation. doris land > > Hi, > > I am looking for experiences related to using SSRIs with kids with ASD. My > son is 4. We started him on a very low dose SSRI a few months ago. We liked > what we saw in terms of engagement, eye contact, language, but it made him > aggressive and hyper. Then we tried another, but it made him alternately > spacey and hyper, and compulsive! We started him on a 3rd this morning, and > I'm scared about what it might do to him. Each time we've tried it has been > a very low dose, and slowly worked up. > > Please share your experiences and advice - good and bad. Are they necessary? > For those who have had success, did you hit it right off the bat? Have some > of you tried them, and decided they are not worth while? > > Thank you, > > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 Some of the SSRIs contain hidden casein, esp if they are generic. I think (brand name) Celexa does but Paxil does not. Drug companies do not have to list the inactive ingredients in medications, as per the FDA. Only the active ingredients. I posted once on all the SSRIs and which ones had a form of milk in them. (milk is added because it aids the digestive system). Now with that said, my son who is sensitive to casein does better on Celexa than Paxil and we aren't EVER trying Zoloft again. Doris land PS hey !! I can't send mail to you again!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2010 Report Share Posted July 2, 2010 First off, Wikipedia is not alternative-health friendly. Second, there is absolutely no evidence that anyone taking 5HTP has ever had this serotonin syndrome issue. 5HTP gives the brain the building blocks for serotonin. It does not force the brain to utilize serotonin. The statement that it " could " be the cause of it is purely theoretical, untested, and hostile. But this is why SSRIs and 5HTP need to be supervised if desired to move to 5HTP or enhance. btw SSRIs stop working over time because the underlying problem, serotonin depletion, is never addressed, and eventually the body just doesn't have any more serotonin to conserve. This list is not about SSRIs or anything else than LDN, so I'm not going to continue to interact on these subjects unless more false or inaccurate statements are made. I'm not going to stand by while the extract of a flower seed (griffonia), which is what 5HTP is, is demonized as coequal with prozac. with best wishes, -- At 02:39 PM 7/2/2010, you wrote: > > >I have recently been studying about antidepressants and have come across >information that shows that long term use may lead to a worsening and more >chronic condition. > >My interest in this is for a loved one that has been on them for many >years and showing signs that this may indeed be the case. > >I can vouch for short term results, but continuing for many years may >alter brain chemistry in undesirable ways. > >Here is a link to a very informative interview. I have also ordered the >book to study the references and associated studies more in depth. > ><http://articles.mercola.com/sites/articles/archive/2010/05/08/robert-whitaker-\ interview.aspx>http://articles.mercola.com/sites/articles/archive/2010/05/08/rob\ ert-whitaker-interview.aspx > >A large number of medications either alone or in combination can produce >Serotonin Syndrome. St. 's Wort, S-Adenosylmethionine (SAMe) , and >5-Hydroxytryptophan (5-HTP) can possibly cause Serotonin Syndrome. ><http://en.wikipedia.org/wiki/Serotonin_syndrome>http://en.wikipedia.org/wiki/S\ erotonin_syndrome > > > >Here are a few natural methods for depression. > > > St ’s wort ~ this cannot be used with some other meds. Always > check with your physician before taking new supplements. > >St ’s wort (Hypericum perforatum) is commonly used for the treatment >of depression. It is available in tablets, capsules and liquid form from >supermarkets and health food shops. Research suggests that it exerts its >antidepressant action by inhibiting the reuptake of the neurotransmitters >serotonin, norepinephrine, and dopamine. Numerous double-blind, >placebo-controlled studies have examined the effectiveness of St. ’s >wort for the treatment of mild to moderate major depression, and most have >found the herb more effective than a placebo. It can be at least as >effective as paroxetine (Paxil) in the treatment of moderate to severe >depression in the short term. > > > > S-Adenosylmethionine (SAMe) > `<http://en.wikipedia.org/wiki/S-Adenosyl_methionine>http://en.wikipedia.org/wik\ i/S-Adenosyl_methionine~ > > >this cannot be used with some other meds. Always check with your physician >before taking new supplements. >SAMe is an amino acid derivative that occurs naturally in all cells. It >plays a role in many biological reactions by transferring its methyl group >to DNA, proteins, phospholipids and biogenic amines. Several scientific >studies indicate that SAMe may be useful in the treatment of depression. > > Light Therapy~ordered one of these but use has not been consistant. > Don't know how effective it would be if used as directed. >For years, light therapy has been used to treat seasonal affective >disorder, a type of depression caused by short winter days and extended >darkness. A lack of exposure to sunlight is responsible for the secretion >of the hormone melatonin, which can trigger a dispirited mood and a >lethargic condition. Light therapy helps to regulate the body’s internal >clock in the same way that sunlight does. Light therapy is an effective >treatment for seasonal affective disorder, and it may reduce the symptoms >of non-seasonal depression as well. > > Exercise~check with your Dr. before starating an exercise program. >Researchers have found that regular exercise, and the increase in physical >fitness that results, alters serotonin levels in the brain and leads to >improved mood and feelings of wellbeing. Study after study has shown that >exercise promotes mental health and reduces symptoms of depression. The >antidepressant effect of regular physical exercise is comparable to potent >antidepressants like Sertraline. > > 5-Hydroxytryptophan (5-HTP) ~ this cannot be used with some other meds. > Always check with your physician before taking new supplements. >Hoping to get feedback from some of you that have tried this one. > >5-Hydroxytryptophan (5-HTP) and tryptophan are also natural alternatives >to traditional antidepressants. When your body sets about manufacturing >serotonin, it first makes 5-HTP. Taking 5-HTP as a supplement may raise >serotonin levels. The evidence suggests 5-HTP and tryptophan are better >than a placebo at alleviating depression. > > Massage~I've tried this one once. Can't say there were any benefits > other than it hurt and felt good, but haven't been back. >One of the best-known benefits of massage therapy is its ability to >enhance feelings of well-being. Massage produces chemical changes in the >brain that result in a feeling of relaxation and calm. It also reduces >levels of stress hormones. Massage therapy lowers levels of stress hormone >cortisol by an average of 30 percent. Massage also increases serotonin and >dopamine, neurotransmitters that help reduce depression. > > > > B Vitamins~I take B vitamins along with my other supplements. I haven't > had a cold or flu since starting them @ 5 years ago. They have also > greatly reduced my PMS. > > > ><http://en.wikipedia.org/wiki/B_vitamins>http://en.wikipedia.org/wiki/B_vitamin\ s > > > > >B vitamins play a role in the production of certain neurotransmitters, >which are important in regulating mood and other brain functions. Folic >acid deficiency has been noted among people with depression. Vitamin B6, >or pyridoxine, is the cofactor for enzymes that convert L-tryptophan to >serotonin, so vitamin B6 deficiency might result in depression. And there >is some evidence that people with depression respond better to treatment >if they have higher levels of vitamin B12. > > > > > > >No virus found in this incoming message. >Checked by AVG - www.avg.com >Version: 9.0.830 / Virus Database: 271.1.1/2977 - Release Date: 07/02/10 >01:35:00 ~~~ There is no way to peace; peace is the way ~~~~ --A.J. Muste Quote Link to comment Share on other sites More sharing options...
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