Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 This is really scarry This was just forwarded to me. You may know that the MIND insititute (Dr. Hendren) is doing a Methyl B12 study that has no legitimate scientific basis, and some risk, on autistic kids. I have brought up the anecdotal reports of autistic kids on these B12 shots have seizures. The IRB at UCD had an MD look at the papers that tangentially suggest that B12 can methylate certain genes and create an imbalance of neurotransmitters (GABA?) in the brain that would tend to kindle seizures in some people... The MD said, " Nah, I don't think this is a problem... " But there are many more problems with this study, some of them have been started to be addressed by Hendren, he's apparently rewriting the description of the study for the clinicaltrials.gov site.... I want to know if it's time for someone to step in and stop this business... look at this. Stroke-like symptoms from kids getting these shots. What do we do? Sit on our hands until they kill a child with this stuff? Give me some ideas of how to deal with this, please? ----------- From: " c----- w------- ........ " ----------- Sent: Thursday, May 25, 2006 11:26 PM Subject: ------- NEED HELP WITH OVERMETHYLATION (anyone at the last DAN) We started our daughter on the nasal B12 and saw some really good gains to begin with (first week). she was dosing every day. After the first week, we noticed some strange mouth movements and at times, she looked almost like a stroke victim. Dr. Jerry K[artzinel] said that she was over methylated and to stop for several days and that the issue would clear on its own. She has become irritable and beligerent. Someone who was at the last DAN said that there was a mention of needing to take TMG if this happens. I would like to know from any of the listmates who attended what was said> If anyone else has any information regarding this problem, I would appreciate hearing from you. Thanks, CW Quote Link to comment Share on other sites More sharing options...
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