Re: let's be fair

[Guest guest]

Hi April,

I was not speaking of Dr. Goldberg (I have not yet met him). I was referring

to the experience that many of us Phoenix families have had, which is why we all

banded together a few years ago to take back control & bring new doctors into

the autism treatment gig.

My intent is not to try to make someone look stupid. Just my opinion, but

speculative statements are often made rather recklessly here when it comes to

anything but . An accurate statement is that nobody knows the long-term

effects of medically treating autism by ANY protocol. Medical treatments have

not been used for long enough to have the long-term outcomes. There are also

antecdotal reports of kids who are deemed recovered at age 7 (by various

protocols), but then puberty hits and autism is back. None of us have crystal

balls.

Medical hypothesis are where it all begins -- science catches up about 20

years later. Our kids can't afford for us to wait that long, so we make them

guinia pigs. A child is a guinia pig, just like a DMPS kid is. I guess I

don't understanding why we all don't share that common belief/observation, but

I'm fine with agreeing to disagree!

-

PS -- maybe it is more of a recent development and Dr. G. was ahead of the

game, but all of the autism treatment protocols I am aware of address all of the

symptoms you mentioned. I am aware of one that goes even further (Klinghardt)

by also addressing the PTSD the parents develop in having a child with autism.

April Jagnow <april@...> wrote:

,

I just have to comment on a couple of your recent remarks because I think

they are unfair.

1. " no more ego-driven protocols "

I certainly hope your are not referring to Dr. Goldberg or my claws will

come out. Yes, he has had to build a very stong backbone because he was

treating autism as an autoimmune disease while the vast majority in the

medical field still considered it a birth defect. I've heard on this board

that he actually got laughed at when giving a talk at a medical convention.

Yeah. I know when I'm trying to boost my ego, I go in front of a large

group of colleagues and plead with them that autism can be treated so they

will laugh at me. He has always been all about helping our kids. He urges

his patients to not chelate because he believes that it is too risky, not

because it is a competing protocol. If the statement you made was not

targeted at Dr. Goldberg, forgive me for being protective.

2. " apparently removing poison from you body causes autoimmune disease -- I

had never heard that before "

Please don't try make the folks on this board who oppose chelation look

stupid. Obviously removing poison from your body is a good thing. No

reasonable person would say it isn't. It is our belief that the children

who would " need " chelation already have an autoimmune disease which is why

the metals were stored in the first place. *Releasing* those metals is what

is scary, not removing them. How can we be sure they are all safely removed

without wreaking havok on their way out or even just getting stored

somewhere else in a way that would present a different autoimmune problem

later on. Cognitive function may improve for a while, maybe even

permanently which is great. We all want that. But at what later cost we

just can't know. I have no problem with people who choose chelation. My

heart goes out to all parents with autistic kids. The burden we bear in

directing their treatment is tremendous. But don't put down our fears of

possible bad long-term effects. They are valid.

I appreciate what you add to this group , and I hope we can inform you

about because I think that this treatment is the most calculated,

logical approach I have found to treating my son. It considers all of his

symptoms as a whole-- gut issues, allergies, developmental delay, frequent

illness, and even explains why his body stores metals and doesn't absorb

nutrients efficiently-- and I haven't come across other treatments that do

this. I think the word needs to get out and I am so glad that you are

interested in helping us there.

Sincerely,

April

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[Guest guest]

Actually Dr Goldberg has been doing this for almost two decades. Children he

has treated are not only adults but parents so I think there is some

information out there on the long term effects of this approach.

The body does have a way to get rid of heavy metals. We have found that in

the children who come to us with high lead levels that those levels will go

down as their body gets healthier.

Dr Goldberg said to me once that he thinks that some supplements would be

very helpful but here are the problems with supplements:

1. who standardizes them?

2. Who inspects the labs in which they are made?

3. Who decides what a safe dose is for a child?

4. Who decides that they are safe?

5. Who does quality control?

6. How do we know what works?

7. How do we know what cannot be taken together?

FDA approved medication have to be tested but where they are made has also

got to be inspected.

Kathy

[Guest guest]

Remember (on a positive note):

When we're debated heated topics and details, just

keep in mind that these debates and downright

arguments are excellent practice, serving to keep us

as educated as we can be on these topics. Learning

what 'arguments' get presented and other people's

points of view arm us with the ability to make solid

statements when we are " out there " seeking help for

our son, and teaches us where and how to back up our

statements.

Not all debating is bad. I'd rather make a foolish

impression of myself here than sitting in a doctor's

office. (I am not implying anyone has been made a

fool - just that I have! lol)

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