Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 , I just have to comment on a couple of your recent remarks because I think they are unfair. 1. " no more ego-driven protocols " I certainly hope your are not referring to Dr. Goldberg or my claws will come out. Yes, he has had to build a very stong backbone because he was treating autism as an autoimmune disease while the vast majority in the medical field still considered it a birth defect. I've heard on this board that he actually got laughed at when giving a talk at a medical convention. Yeah. I know when I'm trying to boost my ego, I go in front of a large group of colleagues and plead with them that autism can be treated so they will laugh at me. He has always been all about helping our kids. He urges his patients to not chelate because he believes that it is too risky, not because it is a competing protocol. If the statement you made was not targeted at Dr. Goldberg, forgive me for being protective. 2. " apparently removing poison from you body causes autoimmune disease -- I had never heard that before " Please don't try make the folks on this board who oppose chelation look stupid. Obviously removing poison from your body is a good thing. No reasonable person would say it isn't. It is our belief that the children who would " need " chelation already have an autoimmune disease which is why the metals were stored in the first place. *Releasing* those metals is what is scary, not removing them. How can we be sure they are all safely removed without wreaking havok on their way out or even just getting stored somewhere else in a way that would present a different autoimmune problem later on. Cognitive function may improve for a while, maybe even permanently which is great. We all want that. But at what later cost we just can't know. I have no problem with people who choose chelation. My heart goes out to all parents with autistic kids. The burden we bear in directing their treatment is tremendous. But don't put down our fears of possible bad long-term effects. They are valid. I appreciate what you add to this group , and I hope we can inform you about because I think that this treatment is the most calculated, logical approach I have found to treating my son. It considers all of his symptoms as a whole-- gut issues, allergies, developmental delay, frequent illness, and even explains why his body stores metals and doesn't absorb nutrients efficiently-- and I haven't come across other treatments that do this. I think the word needs to get out and I am so glad that you are interested in helping us there. Sincerely, April Quote Link to comment Share on other sites More sharing options...
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