(No subject)

[Guest guest]

I dont know about the hallucinations or even if the sleeping is

related to the meds she is on, but I thought this was worth

mentioning because it is a possibility. I went to a lot of different

doctors for many years because I slept so much and felt so dog tired

all the time. They would test my blood and my thyroid etc and

everything would come back perfect. Physically, I was in perfect

health but the amount I slept was not normal. I would get up at 7

am, get my kids fed and off to school, and go back to bed. I would

wake up at 4 pm when the kids got home from school, make them

dinner, help with homework, and fall back to sleep from 7-9. Get up

at 9, get them all tucked into bed, take a shower and go to

bed..only to do the same thing day after day. I was NOT

depressed.This is the first thing people always say " aww, your

depressed, here take some pills! " And then the stupid pills have a

calming effect that make you MORE tired!!! Finally I found the

doctor I have now and when I told him about this he was REALLY

concerned. He sent me to a sleep doctor who hooked me up to a

bazillion monitors and took one night to discover I was waking up 17

times every hour because I had stopped breathing. Of course I didnt

remember waking up, so I would think I had a full night's sleep,

when I really got NO restful sleep at all. This is called sleep

apnea. If your sister snores,that is a symptom....then maybe you

should mention this to the doctor. It would be worth investigation

when everything else just seems to be a mystery! I wasted a lot of

years of my life with this disorder.

>

> Hello to all,

> My sister is sleeping a lot and I mean all night and probably 6-8

hours a

> day!!!! I am told my many she is probably depressed, but all she

has is the awful

> headaches.

> So when she takes something for the headache or even if she

doesn't she is

> only up about 2 hours and then she is back in bed.

> Also I read post that tells of their lo hallucinations. Ruth did

this at the

> very beginning of the diagnosis but has not had hallucinations

for about a

> year. Does this sound right?

> Thanks to all

>

> Jayn in

> S Ga

>

>

>

[Guest guest]

To those writing about sleep apnea. My Mom use to breath , or rather

stop breathing at times during the night and I didn't think much of it

until I ran across an article about sleep apnea. Then I learned it

really needed to be checked. I never did get it checked as we were

dealing with so much. It sure doesn't hurt to check this out with an

MD.

Donna

[Guest guest]

Wow Jayn, you've got me stumped again. I'd be really interested to hear

what her doctors have to say about all this. Please let us know and don't

forget to take some time for yourself as well.

Courage

(no subject)

>

> Hello to all,

>My sister is sleeping a lot and I mean all night and probably 6-8 hours a

>day!!!! I am told my many she is probably depressed, but all she has is the

awful

>headaches.

>So when she takes something for the headache or even if she doesn't she is

>only up about 2 hours and then she is back in bed.

>Also I read post that tells of their lo hallucinations. Ruth did this at

the

>very beginning of the diagnosis but has not had hallucinations for about a

>year. Does this sound right?

> Thanks to all

>

>Jayn in

>S Ga

>

>

>

[Guest guest]

Hi Courage...I stop breathing altogether, too. It is very scary for

someone else to watch (like my husband, and your daughter!). My

husband even used to do tricks like plugging my nose to stop snoring

and then he would freak, because I wouldnt respond by waking up, I

would just stop breathing! Anyway, when you stop breathing at night,

the body has this natural defense, it realizes the brain is being

denied oxygen and that you are going to die if you dont get air and

you suddenly (and noisily) take air in. Usually you hear a big

**snort** when this happens. Your son in law would have to go to his

family doctor and get a referral to a sleep doctor. Then he would

have to spend a couple of nights in a sleep lab, the first one or

two to watch his breathing on his own, then another one to try

various strengths of air pressure from a machine. Then you get your

own machine, called a CPAP --a snorkel-like apparatus that is

programmed to force a certain air pressure through a mask that sits

over your nose. You can't open your mouth while you sleep because of

the air flowing through, but it forces your airway to stay open. The

machines range from $1200-$2000, and OHIP will pay a small part of

it (max $600 I think) but if he has coverage through where he works,

that will usually pick up the remainder. Hope this helps!

> >>

> >> Hello to all,

> >> My sister is sleeping a lot and I mean all night and probably 6-

8

> >hours a

> >> day!!!! I am told my many she is probably depressed, but all she

> >has is the awful

> >> headaches.

> >> So when she takes something for the headache or even if she

> >doesn't she is

> >> only up about 2 hours and then she is back in bed.

> >> Also I read post that tells of their lo hallucinations. Ruth did

> >this at the

> >> very beginning of the diagnosis but has not had hallucinations

> >for about a

> >> year. Does this sound right?

> >> Thanks to all

> >>

> >> Jayn in

> >> S Ga

> >>

> >>

> >>

[Guest guest]

laughing out loud! LOL!

[Guest guest]

Jayn, When my granda was just about to and when he finally did enter the final

stage of the illness he would go through periods of sleeping round the clock,

this doesn't mean that your sister is in the final stage but just to let you

know that sleeping a lot and a lack of sleep are part of the illness.

Also the hallucinations can come and go at short notice.

granda was admitted to hospital in January last year bacause of the severity of

his hallucinations and then didn't suffer from them for about eight months,

there were also times when he was hallucinating and didn't tell us, we learned

by trial and error and by watching his reactions to things when he was

hallucinating and not telling us.

If we were talking to him he would start to look over our shoulders and not

follow the conversation and we knew then that he was seeing something.

Hope this helps.

.x

(no subject)

Hello to all,

My sister is sleeping a lot and I mean all night and probably 6-8 hours a

day!!!! I am told my many she is probably depressed, but all she has is the

awful

headaches.

So when she takes something for the headache or even if she doesn't she is

only up about 2 hours and then she is back in bed.

Also I read post that tells of their lo hallucinations. Ruth did this at the

very beginning of the diagnosis but has not had hallucinations for about a

year. Does this sound right?

Thanks to all

Jayn in

S Ga

[Guest guest]

hahahhahahahahahahahahhahahaha...thanks for the laugh Piper!

Courage

Re: Re: (no subject)

>Hi, Coyote,

>

>I am so glad you have a CPAP machine! One of my best friends has been on

one

>for years. It really made a difference in his life, too. He was kind of

>upset about having the machine at first. He is a single man and was

worried

>about how unattractive the machine would be to a girlfriend. He thought it

was

>kind of like sleeping with Darth Vader! I told him that was a whole lot

more

>attractive that waking up next to a dead person!

>

>Hugs,

>

>Piper

>

>

>

[Guest guest]

yeah, its true, they arent the most attractive things. And you do

sound like Darth Vader when you have it on, lol! However, there are

a lot of worse things you could be stuck with...like a wheelchair or

something that will never be just " out of sight, out of mind " during

the day. The thing I hate worst of all about that machine is waking

up with elastic strap marks on my face and the fact that I have a

permanent DENT in my forehead from one of the cushy pads, lol. I

have to wear mine very tight otherwise I pull it off in my sleep and

get booted in the night by my dh!

> Hi, Coyote,

>

> I am so glad you have a CPAP machine! One of my best friends has

been on one

> for years. It really made a difference in his life, too. He was

kind of

> upset about having the machine at first. He is a single man and

was worried

> about how unattractive the machine would be to a girlfriend. He

thought it was

> kind of like sleeping with Darth Vader! I told him that was a

whole lot more

> attractive that waking up next to a dead person!

>

> Hugs,

>

> Piper

>

>

>

[Guest guest]

hahaha! yep, lol=laugh out loud, rofl=rolling on the floor laughing,

and for the REALLY funny things it ROFLMAO...rolling on the floor

laughing my ass off.

> Hi, SEPJ,

>

> I thimk lol means " laugh out loud " It has taken me a while to get

the

> " lingo " down!

> Hope you are having a good day!

>

> Hugs,

>

> Piper

>

>

>

[Guest guest]

What is dh?

Re: (no subject)

> yeah, its true, they arent the most attractive things. And you do

> sound like Darth Vader when you have it on, lol! However, there are

> a lot of worse things you could be stuck with...like a wheelchair or

> something that will never be just " out of sight, out of mind " during

> the day. The thing I hate worst of all about that machine is waking

> up with elastic strap marks on my face and the fact that I have a

> permanent DENT in my forehead from one of the cushy pads, lol. I

> have to wear mine very tight otherwise I pull it off in my sleep and

> get booted in the night by my dh!

>

> > Hi, Coyote,

> >

> > I am so glad you have a CPAP machine! One of my best friends has

> been on one

> > for years. It really made a difference in his life, too. He was

> kind of

> > upset about having the machine at first. He is a single man and

> was worried

> > about how unattractive the machine would be to a girlfriend. He

> thought it was

> > kind of like sleeping with Darth Vader! I told him that was a

> whole lot more

> > attractive that waking up next to a dead person!

> >

> > Hugs,

> >

> > Piper

> >

> >

> >

[Guest guest]

Dear Ruth:

No failures! You are taking care of it asap, that's all that counts! Hugs,

Josie

[Guest guest]

Dear Jan:

UTI is urinary tract infection. Yes, of course, if he had problems with his

catheter, he may still have some residual problem with it. Please take him

back to the DR and have him do a culture of your husband's urine. It sounds like

UTI, because he should not feel like going back to the bathroom right away.

It reminded me that my dad had to go to the bathroom very often and it took

him very long to finish. He had prostate cancer a few years ago and they told

him the radiation cause scarring and a narrowing of his urethra, but who knows,

it could have been the LBD, so many people have that symptom.

Hugs, Josie

[Guest guest]

Hi Deb,

What you are describing is the exact thing that my mother went through with my

dad. At times, he would recognize people that he hadn't seen in 20 years, but

would ask my mom who she was and where his wife was. As time progressed it

became more frequent and more bizarre, he started accusing her of having affairs

with any male that she talked to. That was probably the hardest thing for her to

deal with. She learned to except it and would smile and say " I'm right here

" even though he wouldn't believe her. Eventually, he had difficulty

recognizing everyone except my sisters kid. For some reason, everytime she

walked into the room and said hi Grandpa, he would look at her and smile and say

Hi , even though he would not and did not acknowledge any of the others in

the room.

Hope this helps a bit,

Dennis

dsh1664@... wrote:

Hello,

My dad was diagnosed with PD two years ago. The end of July he started seeing

people. Ended up in the hospital for seven days and things have not been the

same since. Doctors thought it was the meds. Sent him home. Then in September

he became so aggitated mom had to call the paramedics per the doctor. He ended

up in the hospital again for five days. Two weeks again he was diagnosed

Dementia with Lewy Body. Mom is home on family leave, but that runs out shortly.

We have to get her back to work, she is only 63 and needs her insurance.

The hardest part right now is the fact that dad rarely recognizes my mom. He

thinks that she is taking care of him and asks where mom is all the time.

First he thought there was one caregiver and now he sees three. All are actually

mom. She took him out to the store the other day, went for a walk at the park

and then to lunch. They went home, he did a few things around the house and

walked back into the room and asked mom when she got home from work. He then

told

mom all about his day with the other lady while she was at work. He had been

with mom all day. Dad seems to know eveyone else, but has the hardest time

with mom. Has anyone else had this problem? He can be looking at a recent photo

of the two of them and still not recognize my mom holding the photo.

This is my first post and probably not my last.

Hi to . We just saw Dr. for the first time last week. Like you we

have so many questions?

Deb

[Guest guest]

Love the One coconut water, too.  It is expensive, though.Safika

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