Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Jerri, When my son's strep antibodies were high a few years ago, he became spacey and VERY disconnected... so much so that I pulled him out of school for a few days. He was in his own world... it was like he had zero auditory processing. Dr. Goldberg had been watching his strep levels for quite some time and had us put him on erythromycin. It upset his stomach and made him feel so bad he was lying in bed moaning (the person who gave him one of the first doses didn't realize it was to be given with food...), but we could tell even then that he was more connected. We switched him to the ERYped liquid because his stomach could not seem to settle down and he was able to go back to school after a couple of days. The day he went back was his teacher's last day before she left on maternity leave. The phone rang in the middle of that school day and it was his teacher. She said she couldn't believe the change... that it was like a miracle... he was totally back to his " regular " self. I have no doubt that the spaciness was due to the strep... maybe it was a sort of OCD where his thoughts were just cycling so intensely that he couldn't break out of the cycle. Caroline > From: Jerri Gann <njgann@...> > Reply-< > > Date: Sat, 07 Oct 2006 04:07:26 -0700 > < > > Subject: My son's medicines > > I forgot on the response I sent to about my son's medicines. He > is also on Eryped and has been for probably six months. At first it > brought the strep titers down and now they are on the way back up. Dr G > said to increase the dose to 3 times a day and then we will have labs > done on the 18th. I'm thinking this is part of the problem also. The > strep is coming back. Thanks in advance for any insight. I know > has given a lot of info about strep and also how erythromicin can stop > working. I'm hoping a switch is in order here. Does anyone know the > symptoms of high strep titers. I know about the OCD behaviors but are > there any others? Jerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Thanks this sounds exactly like what my son is doing. He even told the detention teacher " his mind is a mess and he can't stop the thoughts. The trouble must definitely be that the Eryped is not working anymore. Sometimes it's so frustrating to move so slow. I told this to Dr G two phone consults but he wants to try this increase which does not seem to be working. I guess I just have to wait for the labs and then the phone consult and hope he's not totally gone by then. Jerri Caroline Glover wrote: > Jerri, > > When my son's strep antibodies were high a few years ago, he became spacey > and VERY disconnected... so much so that I pulled him out of school for a > few days. He was in his own world... it was like he had zero auditory > processing. > > Dr. Goldberg had been watching his strep levels for quite some time and had > us put him on erythromycin. It upset his stomach and made him feel so bad > he was lying in bed moaning (the person who gave him one of the first doses > didn't realize it was to be given with food...), but we could tell even then > that he was more connected. We switched him to the ERYped liquid because > his stomach could not seem to settle down and he was able to go back to > school after a couple of days. The day he went back was his teacher's last > day before she left on maternity leave. > > The phone rang in the middle of that school day and it was his teacher. She > said she couldn't believe the change... that it was like a miracle... he was > totally back to his " regular " self. > > I have no doubt that the spaciness was due to the strep... maybe it was a > sort of OCD where his thoughts were just cycling so intensely that he > couldn't break out of the cycle. > > Caroline > > > >> From: Jerri Gann <njgann@...> >> Reply-< > >> Date: Sat, 07 Oct 2006 04:07:26 -0700 >> < > >> Subject: My son's medicines >> >> I forgot on the response I sent to about my son's medicines. He >> is also on Eryped and has been for probably six months. At first it >> brought the strep titers down and now they are on the way back up. Dr G >> said to increase the dose to 3 times a day and then we will have labs >> done on the 18th. I'm thinking this is part of the problem also. The >> strep is coming back. Thanks in advance for any insight. I know >> has given a lot of info about strep and also how erythromicin can stop >> working. I'm hoping a switch is in order here. Does anyone know the >> symptoms of high strep titers. I know about the OCD behaviors but are >> there any others? Jerri >> > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Jerri, I have been thinking of asking Dr. G something and haven't done it yet but you might want to consider it as well (I have a feeling the answer will be no but I just keep wondering about this). I just keep wondering if there could be some other kind of bacterial infection that our kids could have that the Erythromycin might not touch and if so if there is another antibiotic that might come with a different angle of attack. I had the strangest experience once when I was starting an antibiotic for mastitis... I don't remember what the antibiotic was, but a day or two after starting it, I awoke feeling completely rested and refreshed (that NEVER happens to me) and totally clear-minded (I also NEVER feel like that). It was shocking and amazing. It was so great. I had not expected any of that... I was just hoping for some relief from the infection, so the other stuff just took me completely by surprise. It was wild... it lasted a few days and then was gone. I'm trying to remember if that was the time I had to change antibiotics because the baby got hives (I was nursing)... if so that might be why it only lasted a short time. I always think of that experience when considering antibiotics. I wish I could give my son that clear minded feeling. Caroline > From: Jerri Gann <njgann@...> > Reply-< > > Date: Sat, 07 Oct 2006 10:06:38 -0700 > < > > Subject: Re: My son's medicines > > Thanks this sounds exactly like what my son is doing. He even told the > detention teacher " his mind is a mess and he can't stop the thoughts. > The trouble must definitely be that the Eryped is not working anymore. > Sometimes it's so frustrating to move so slow. I told this to Dr G two > phone consults but he wants to try this increase which does not seem to > be working. I guess I just have to wait for the labs and then the phone > consult and hope he's not totally gone by then. Jerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Caroline I have wondered this exact thing. And yet what it is and how to test for it and get the right antibiotic is a whole other set of issues. And like Jerri mentioned, my son was on ERYPED a couple of years ago with good results, then stopped after the 90 days. Then when we tried it again about a year later we did not see the same positives as the 1st time. > > Jerri, > > I have been thinking of asking Dr. G something and haven't done it yet but > you might want to consider it as well (I have a feeling the answer will be > no but I just keep wondering about this). > > I just keep wondering if there could be some other kind of bacterial > infection that our kids could have that the Erythromycin might not touch and > if so if there is another antibiotic that might come with a different angle > of attack. > > I had the strangest experience once when I was starting an antibiotic for > mastitis... I don't remember what the antibiotic was, but a day or two after > starting it, I awoke feeling completely rested and refreshed (that NEVER > happens to me) and totally clear-minded (I also NEVER feel like that). It > was shocking and amazing. It was so great. I had not expected any of > that... I was just hoping for some relief from the infection, so the other > stuff just took me completely by surprise. It was wild... it lasted a few > days and then was gone. I'm trying to remember if that was the time I had > to change antibiotics because the baby got hives (I was nursing)... if so > that might be why it only lasted a short time. > > I always think of that experience when considering antibiotics. I wish I > could give my son that clear minded feeling. > > Caroline > > > > From: Jerri Gann <njgann@...> > > Reply-< > > > Date: Sat, 07 Oct 2006 10:06:38 -0700 > > < > > > Subject: Re: My son's medicines > > > > Thanks this sounds exactly like what my son is doing. He even told the > > detention teacher " his mind is a mess and he can't stop the thoughts. > > The trouble must definitely be that the Eryped is not working anymore. > > Sometimes it's so frustrating to move so slow. I told this to Dr G two > > phone consults but he wants to try this increase which does not seem to > > be working. I guess I just have to wait for the labs and then the phone > > consult and hope he's not totally gone by then. Jerri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 , We have had the the same experience with ERYPED... marvelous results the first time and not the second and we're still watching with this, the third round. The first round was for high strep antibodies, the second round was sort of a trial if I remember correctly, and this third round is due to his mycoplasma testing coming back high. I know that with my son (this is the 11 year old) it is harder to tell when he is better because he he is so much more stable than he used to be. The differences now would be more subtle. He's not hyper... more of the " quiet " ADD type, so it is just really hard to tell. Caroline > > And like Jerri mentioned, my son was on ERYPED a couple of years ago > with good results, then stopped after the 90 days. Then when we > tried it again about a year later we did not see the same positives > as the 1st time. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 The last phone consult Dr. G did say he prescribes the Eryped because it does other helpful things for the children but sometimes it doesn't work long enough or good enough or something like that. Anyway, he did say he will have to try something else if the increase doesn't help. I've decided to call the office on Monday and tell them what is going on and pray they do something now. I'll do the labs on Monday because I know he will want to see them first. I hope and pray we can find something to give him the clear mind also. At least now he is articulating a little better about what is going on. I'm going to ask him about the minocycoline that spoke of and I saw an article on it too. I'll keep you all posted. Thanks, Jerri Caroline Glover wrote: > Jerri, > > I have been thinking of asking Dr. G something and haven't done it yet but > you might want to consider it as well (I have a feeling the answer will be > no but I just keep wondering about this). > > I just keep wondering if there could be some other kind of bacterial > infection that our kids could have that the Erythromycin might not touch and > if so if there is another antibiotic that might come with a different angle > of attack. > > I had the strangest experience once when I was starting an antibiotic for > mastitis... I don't remember what the antibiotic was, but a day or two after > starting it, I awoke feeling completely rested and refreshed (that NEVER > happens to me) and totally clear-minded (I also NEVER feel like that). It > was shocking and amazing. It was so great. I had not expected any of > that... I was just hoping for some relief from the infection, so the other > stuff just took me completely by surprise. It was wild... it lasted a few > days and then was gone. I'm trying to remember if that was the time I had > to change antibiotics because the baby got hives (I was nursing)... if so > that might be why it only lasted a short time. > > I always think of that experience when considering antibiotics. I wish I > could give my son that clear minded feeling. > > Caroline > > > >> From: Jerri Gann <njgann@...> >> Reply-< > >> Date: Sat, 07 Oct 2006 10:06:38 -0700 >> < > >> Subject: Re: My son's medicines >> >> Thanks this sounds exactly like what my son is doing. He even told the >> detention teacher " his mind is a mess and he can't stop the thoughts. >> The trouble must definitely be that the Eryped is not working anymore. >> Sometimes it's so frustrating to move so slow. I told this to Dr G two >> phone consults but he wants to try this increase which does not seem to >> be working. I guess I just have to wait for the labs and then the phone >> consult and hope he's not totally gone by then. Jerri >> > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Jerri, I think you've got an excellent plan. For your son to be acting so out of character there has to be something going on. Getting the labs done is right on the mark... then maybe you can see which way things are leaning... bacterial or viral. You might want to ask the lab to please call you as soon as the results are done so you can grab a copy (we always pick up a copy of the results for our files at home) and make sure they are faxed right away to Dr. G. I thought about you all last night. I hope things will get better soon. Caroline > From: Jerri Gann <njgann@...> > Reply-< > > Date: Sat, 07 Oct 2006 22:49:59 -0700 > < > > Subject: Re: My son's medicines > > > The last phone consult Dr. G did say he prescribes the Eryped because it > does other helpful things for the children but sometimes it doesn't work > long enough or good enough or something like that. Anyway, he did say he > will have to try something else if the increase doesn't help. I've > decided to call the office on Monday and tell them what is going on and > pray they do something now. I'll do the labs on Monday because I know he > will want to see them first. I hope and pray we can find something to > give him the clear mind also. At least now he is articulating a little > better about what is going on. I'm going to ask him about the > minocycoline that spoke of and I saw an article on it too. I'll > keep you all posted. Thanks, Jerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Thank you so much Caroline. I'm keeping my son out of school too, until I can get him back on track. It's just too much damage there. Well, now I'm feeling really sick. Just as I was writing this email my younger son (Trevor) came and told me my older son (Ty, Dr G's patient) bit him. So I spanked Ty who is having so much trouble right now. I have never spanked him. I don't know what it's going to take to get him to not bite. I feel as bad as the schools are now. I know Trevor was pestering him. I explained to Ty how much I love him and how everything I do is for him and how he *should* have handled the situation and I scolded Trevor too, for constantly pestering his big brother to do what he wants. So I hopefully handled it ok but I sure feel sick about it. I seriously want to throw up. Thanks for thinking of us. Our lab won't give us a copy. I have to get a copy from Dr G's office. But I am going to have them call so I can find out right away when they are done. Thanks for the reinforcement. Jerri P.S. My sons are playing together now and Ty sounds fine. I think he did understand everything. So hopefully all is well. Caroline Glover wrote: > Jerri, > > I think you've got an excellent plan. For your son to be acting so out of > character there has to be something going on. Getting the labs done is > right on the mark... then maybe you can see which way things are leaning... > bacterial or viral. You might want to ask the lab to please call you as > soon as the results are done so you can grab a copy (we always pick up a > copy of the results for our files at home) and make sure they are faxed > right away to Dr. G. > > I thought about you all last night. I hope things will get better soon. > > Caroline > > > >> From: Jerri Gann <njgann@...> >> Reply-< > >> Date: Sat, 07 Oct 2006 22:49:59 -0700 >> < > >> Subject: Re: My son's medicines >> >> >> The last phone consult Dr. G did say he prescribes the Eryped because it >> does other helpful things for the children but sometimes it doesn't work >> long enough or good enough or something like that. Anyway, he did say he >> will have to try something else if the increase doesn't help. I've >> decided to call the office on Monday and tell them what is going on and >> pray they do something now. I'll do the labs on Monday because I know he >> will want to see them first. I hope and pray we can find something to >> give him the clear mind also. At least now he is articulating a little >> better about what is going on. I'm going to ask him about the >> minocycoline that spoke of and I saw an article on it too. I'll >> keep you all posted. Thanks, Jerri >> > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Jerri, I'm so sorry about the biting. That has got to have you feeling so frustrated! Be careful with the spanking, though... you may not want to give him any new ideas especially when he's in the frame of mind he's in. I'm just saying that because my oldest son never hit his brother until the day he saw a woman spank her own son. He came right home and spanked his brother. Will he stay in a time out? Sometimes if it's a wrestling match it's not worth it... and if you're holding onto him he might bite again, which defeats the purpose. One time when my littlest guy was being horribly oppositional, Dr. Goldberg suggested that we think of a few extra privileges that we could allow the him so that (I know it sounds awful) we could take them away if needed... because there's not all that much they have to get super excited about sometimes at a young age. It might sink in some, especially if he sees his brother getting to have that privilege when he has lost it. That's too bad your lab won't give you a copy... here I think they have to by law, but we have to sign a release for it. I hope that Dr. G can help to get things back on track quickly... maybe you could ask for schoolwork ASAP tomorrow morning to keep up with school which will make it clear to him that he is not on vacation. Oh dear... good luck! Caroline > From: Jerri Gann <njgann@...> > Reply-< > > Date: Sun, 08 Oct 2006 12:57:44 -0700 > < > > Subject: Re: My son's medicines > > Thank you so much Caroline. I'm keeping my son out of school too, until > I can get him back on track. It's just too much damage there. Well, now > I'm feeling really sick. Just as I was writing this email my younger son > (Trevor) came and told me my older son (Ty, Dr G's patient) bit him. So > I spanked Ty who is having so much trouble right now. I have never > spanked him. I don't know what it's going to take to get him to not > bite. I feel as bad as the schools are now. I know Trevor was pestering > him. I explained to Ty how much I love him and how everything I do is > for him and how he *should* have handled the situation and I scolded > Trevor too, for constantly pestering his big brother to do what he > wants. So I hopefully handled it ok but I sure feel sick about it. I > seriously want to throw up. > > Thanks for thinking of us. Our lab won't give us a copy. I have to get a > copy from Dr G's office. But I am going to have them call so I can find > out right away when they are done. Thanks for the reinforcement. Jerri > P.S. My sons are playing together now and Ty sounds fine. I think he did > understand everything. So hopefully all is well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Thanks again. I have never used a time out. He is 9 so I don't know if it's too late now. He has always been my overly compliant son, doing what everyone wanted. He wants to make everyone happy (and laugh). So in some ways I guess this is good. We have taken away things he really wants. Nothing has worked so I resorted to the spank. Yikes! I think right now he can't help a lot of things so I'm just going to keep him home, pray Dr G gets me some help quick and yes get him some homework and lots to do because he has told me he just wants to stay home so this is going to seem like a reward! I am going to take him to the lab in the morning which he hates so maybe it won't be so fun for awhile. Thanks, Jerri Caroline Glover wrote: > Jerri, > > I'm so sorry about the biting. That has got to have you feeling so > frustrated! > > Be careful with the spanking, though... you may not want to give him any new > ideas especially when he's in the frame of mind he's in. I'm just saying > that because my oldest son never hit his brother until the day he saw a > woman spank her own son. He came right home and spanked his brother. > > Will he stay in a time out? Sometimes if it's a wrestling match it's not > worth it... and if you're holding onto him he might bite again, which > defeats the purpose. > > One time when my littlest guy was being horribly oppositional, Dr. Goldberg > suggested that we think of a few extra privileges that we could allow the > him so that (I know it sounds awful) we could take them away if needed... > because there's not all that much they have to get super excited about > sometimes at a young age. It might sink in some, especially if he sees his > brother getting to have that privilege when he has lost it. > > That's too bad your lab won't give you a copy... here I think they have to > by law, but we have to sign a release for it. > > I hope that Dr. G can help to get things back on track quickly... maybe you > could ask for schoolwork ASAP tomorrow morning to keep up with school which > will make it clear to him that he is not on vacation. > > Oh dear... good luck! > > Caroline > > > > > > > > >> From: Jerri Gann <njgann@...> >> Reply-< > >> Date: Sun, 08 Oct 2006 12:57:44 -0700 >> < > >> Subject: Re: My son's medicines >> >> Thank you so much Caroline. I'm keeping my son out of school too, until >> I can get him back on track. It's just too much damage there. Well, now >> I'm feeling really sick. Just as I was writing this email my younger son >> (Trevor) came and told me my older son (Ty, Dr G's patient) bit him. So >> I spanked Ty who is having so much trouble right now. I have never >> spanked him. I don't know what it's going to take to get him to not >> bite. I feel as bad as the schools are now. I know Trevor was pestering >> him. I explained to Ty how much I love him and how everything I do is >> for him and how he *should* have handled the situation and I scolded >> Trevor too, for constantly pestering his big brother to do what he >> wants. So I hopefully handled it ok but I sure feel sick about it. I >> seriously want to throw up. >> >> Thanks for thinking of us. Our lab won't give us a copy. I have to get a >> copy from Dr G's office. But I am going to have them call so I can find >> out right away when they are done. Thanks for the reinforcement. Jerri >> P.S. My sons are playing together now and Ty sounds fine. I think he did >> understand everything. So hopefully all is well. >> > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Jerri, Our lives seem to parallel each other so much right now. Have you ever considered that your son might be affected by parasites? On another list I'm on, this is a big topic right now. Apparently the parasites really rear their ugly heads during a full moon (and this full moon is 12% bigger than usual). I saw evidence of them yesterday in my son's stool, so I have samples to take to the lab tomorrow, then we'll start treatment. I'm sorry, but I had to laugh just a bit as you described what happened between your two sons. We are experiencing something very similar with my twins. My dd will torment my ds, he yells " NO!! " but she doesn't stop, so he hits her. Then he gets the time out. I don't want her to feel like she ever *deserves* to get hit, but I have told her that he used his words and she didn't respect him, so next time she gets a time-out, too. I know she's feeling like she hasn't been getting much attention lately, so she's doing what she can to get it. She also loves him and wants to play with him, so this is her way of connecting with him ;-( It makes me sad. My son did something this morning and I felt angrier than I think I've ever been. I put him in a chair, and went off on my own for several minutes to cool down. I know this isn't his fault, but it's still sooooooo frustrating and scary. Will it always be like this? Really good moments and really bad ones? I have felt nauseated over it all day. Hang in there! Kristy Re: My son's medicines >> >> Thank you so much Caroline. I'm keeping my son out of school too, until >> I can get him back on track. It's just too much damage there. Well, now >> I'm feeling really sick. Just as I was writing this email my younger son >> (Trevor) came and told me my older son (Ty, Dr G's patient) bit him. So >> I spanked Ty who is having so much trouble right now. I have never >> spanked him. I don't know what it's going to take to get him to not >> bite. I feel as bad as the schools are now. I know Trevor was pestering >> him. I explained to Ty how much I love him and how everything I do is >> for him and how he *should* have handled the situation and I scolded >> Trevor too, for constantly pestering his big brother to do what he >> wants. So I hopefully handled it ok but I sure feel sick about it. I >> seriously want to throw up. >> >> Thanks for thinking of us. Our lab won't give us a copy. I have to get a >> copy from Dr G's office. But I am going to have them call so I can find >> out right away when they are done. Thanks for the reinforcement. Jerri >> P.S. My sons are playing together now and Ty sounds fine. I think he did >> understand everything. So hopefully all is well. >> > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Jerri, Considering that these kids are developmentally behind for their age, he might not be too old for a time out. They work really well at our house on my 6-year old... he is told to " go have a time out " ... I keep discussion short... " You hit your sister... time out! " . If he is oppositional I will say " If you don't do the time out now you won't be able to watch your video, " (or whatever). He also loses the privilege if he refuses to stay in the time out. He goes to the place we have specified for time outs and sits there for one minute for each year of his age... I set a timer (you could shorten it because 9 minutes is a long time). When the timer goes off, I go sit down beside him and ask him if he remembers why he had the time out... sometimes he forgets! We briefly discuss why he had the time out, he is required to apologize to the person he offended if that is needed (he is so sweet about this because usually by the end of the time out he is calmed down and genuinely sorry). Then he goes on his merry way. Works wonders. It gives him a chance to cool down. He HATES the time out, but loves the discussion afterwards (go figure)... maybe because he's so happy the time out is over. It's wonderful that your son is usually so compliant. My little guy was too until his seizures started. For a couple of years he was a real trial but he's getting back to the boy I knew. Oh, how I missed him! Caroline > From: Jerri Gann <njgann@...> > Reply-< > > Date: Sun, 08 Oct 2006 20:11:50 -0700 > < > > Subject: Re: My son's medicines > > Thanks again. I have never used a time out. He is 9 so I don't know if > it's too late now. He has always been my overly compliant son, doing > what everyone wanted. He wants to make everyone happy (and laugh). So in > some ways I guess this is good. We have taken away things he really > wants. Nothing has worked so I resorted to the spank. Yikes! I think > right now he can't help a lot of things so I'm just going to keep him > home, pray Dr G gets me some help quick and yes get him some homework > and lots to do because he has told me he just wants to stay home so this > is going to seem like a reward! I am going to take him to the lab in the > morning which he hates so maybe it won't be so fun for awhile. Thanks, Jerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Thanks, I will definitely try this! Jerri Caroline Glover wrote: > Jerri, > > Considering that these kids are developmentally behind for their age, he > might not be too old for a time out. > > They work really well at our house on my 6-year old... he is told to " go > have a time out " ... I keep discussion short... " You hit your sister... time > out! " . If he is oppositional I will say " If you don't do the time out now > you won't be able to watch your video, " (or whatever). He also loses the > privilege if he refuses to stay in the time out. > > He goes to the place we have specified for time outs and sits there for one > minute for each year of his age... I set a timer (you could shorten it > because 9 minutes is a long time). When the timer goes off, I go sit down > beside him and ask him if he remembers why he had the time out... sometimes > he forgets! We briefly discuss why he had the time out, he is required to > apologize to the person he offended if that is needed (he is so sweet about > this because usually by the end of the time out he is calmed down and > genuinely sorry). Then he goes on his merry way. > > Works wonders. It gives him a chance to cool down. He HATES the time out, > but loves the discussion afterwards (go figure)... maybe because he's so > happy the time out is over. > > It's wonderful that your son is usually so compliant. My little guy was too > until his seizures started. For a couple of years he was a real trial but > he's getting back to the boy I knew. Oh, how I missed him! > > Caroline > > > >> From: Jerri Gann <njgann@...> >> Reply-< > >> Date: Sun, 08 Oct 2006 20:11:50 -0700 >> < > >> Subject: Re: My son's medicines >> >> Thanks again. I have never used a time out. He is 9 so I don't know if >> it's too late now. He has always been my overly compliant son, doing >> what everyone wanted. He wants to make everyone happy (and laugh). So in >> some ways I guess this is good. We have taken away things he really >> wants. Nothing has worked so I resorted to the spank. Yikes! I think >> right now he can't help a lot of things so I'm just going to keep him >> home, pray Dr G gets me some help quick and yes get him some homework >> and lots to do because he has told me he just wants to stay home so this >> is going to seem like a reward! I am going to take him to the lab in the >> morning which he hates so maybe it won't be so fun for awhile. Thanks, Jerri >> > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Ummmm - I can vouch for that. That is exactly how I would describe it. And you are powerless to change it. The child cannot tell, the adult can but cannot change it except w/the extreme force of will, and even then it is very difficult. --- Caroline Glover <sfglover@...> wrote: > Jerri, > > I have no doubt that the spaciness was due to the > strep... maybe it was a > sort of OCD where his thoughts were just cycling so > intensely that he > couldn't break out of the cycle. > > Caroline > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Hi - I'll throw in my parrallels too. My 5yr old also has to be sent to time-out for doing things that trigger his 7yr old brother to whack him one, too. It really hurts his feelings, and I absolutely hate doing it, because I understand completely what my youngest suffers... His brother will tune him out and be rude and impatient so often, and will freak out if he sees the bottom of his feet and attack him, so sometimes little brother is just so angry and hurt that he gets spiteful. However, big brother cannot understand this concept, so failing to 'punish' little brother (although compassionately w/out 'anger' when he gets sent) would make big brother that much angrier at little one and the cycle continues. So in the end, even though it doesn't seem fair, little one gets 'punished' too. Once I caught on to this, it did eventually help - not resolve or fix - but help. Big brother must see fairness and not feel constantly bombarded and feel like the only one who gets 'in trouble'. As a kid, I always felt that my siblings were little monsters (well they were! jk) and that they had driven me to do what I had to do (hit, pinch, yell, or otherwise punish or torture), and it always facilitated my anger to get in trouble and hear them laughing about it. I never saw them get in trouble, and the problem truly was within 'my brain' (very asperger-like and so much like my oldest oh dear), and no amount of punishment could have changed how I felt. I wonder if compassion and teaching could have, but so far w/my experience w/the boys, I guess you can only do so much. I can say that there are times they play wonderfully and it brings a lot of joy when they do. Continuously 'educating' my son on his emotions and teaching him alternative ways to respond (repetitively), is the only solution I can find, especially since it so mirrors how I felt as a child. I can't say I like it - I'll just have to have faith that it will change in the future. My siblings and I are very close now - they are such cool and hysterically funny people, but I was very abusive to my sister growing up and have had to explain to her how my brain was so dysfunctional that I could not see her for who she was, nor understand what I was doing to her when I shut her out so much. But we all grow up with baggage and adulthood brings wonderful opportunities for working that out. Will it always be like this? Oh heavens I hope not, but it's going to be that way for a long time in this household I'm afraid. So I will provide the best opportunities to bring happiness as often as I can and hope that it helps balance things out. --- Kristy Nardini <krnardini@...> wrote: My dd will torment my ds, he yells " NO!! " but > she doesn't stop, so he > hits her. Then he gets the time out. I don't want > her to feel like she ever > *deserves* to get hit, but I have told her that he > used his words and she > didn't respect him, so next time she gets a > time-out, too. I know she's > feeling like she hasn't been getting much attention > lately, so she's doing > what she can to get it. She also loves him and wants > to play with him, so > this is her way of connecting with him ;-( It makes > me sad. > > My son did something this morning and I felt angrier > than I think I've ever > been. I put him in a chair, and went off on my own > for several minutes to > cool down. I know this isn't his fault, but it's > still sooooooo frustrating > and scary. Will it always be like this? Really good > moments and really bad > ones? I have felt nauseated over it all day. > > Hang in there! > > Kristy > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 In my experience, in the most acute stage of my PANDAS, I get gains from ANY antibiotic (that targets strep, that is). But when the most acute phase is relieved, some symptoms go away but Biaxin and other mycins exacerbate the fog and some brain racing, even though the OCDs and some sensory problems ease up. It doesn't happen that way for all kids. But for me, it wasn't about the meds losing their effectiveness. Perhaps it depends on the cytokines circulating. I experience the same thing from mycoplasma and lactobacillus, and that's about stimulating a certain cytokine. I wonder if it could be identified in an immune panel? If Dr G is on tonight, I could try to ask him. --- Caroline Glover <sfglover@...> wrote: > > , > > We have had the the same experience with ERYPED... > marvelous results the > first time and not the second and we're still > watching with this, the third > round. The first round was for high strep > antibodies, the second round was > sort of a trial if I remember correctly, and this > third round is due to his > mycoplasma testing coming back high. > > I know that with my son (this is the 11 year old) it > is harder to tell when > he is better because he he is so much more stable > than he used to be. The > differences now would be more subtle. He's not > hyper... more of the " quiet " > ADD type, so it is just really hard to tell. > > Caroline > > > > > > > And like Jerri mentioned, my son was on ERYPED a > couple of years ago > > with good results, then stopped after the 90 days. > Then when we > > tried it again about a year later we did not see > the same positives > > as the 1st time. > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 A lot of the problem is internal thought - very scattered, very difficult to keep focus (like going to the refrigerator and wondering why you're there magnified 100 times), intrusive thoughts, thought loops... it's like your brain is racing along, bumping up against something (inflammation?), then starting all over again! I think that the description of people checking and rechecking locks, if the stove is turned off, etc, can often be because we're not really sure that we did it. I'm not that extreme (usually - I think lol), but I believe they truly don't remember, and it may persevere because of the anxiety that you may not remember and don't realize it. I truly don't REMEMBER if I checked something or not. That reminds me - another hallmark is anxiety. I can track my ASO titers (on the way up or on the way down) by my anxiety level, and I can do it with amazing accuracy. It is far more in line w/the ASO levels than any other symptom. HTH- --- Jerri Gann <njgann@...> wrote: Does > anyone know the > symptoms of high strep titers. I know about the OCD > behaviors but are > there any others? Jerri > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 > > How did the parasite testing come out? I know I had to go to a chiropractor for an adjustment at this time because I pulled a neck muscle and felt completely mental. The adjustment actually helped qute a bit. It's still a daily struggle to figure out what is going on with my son. I can only obsess over it so much. LOL because I have another beautiful son that needs some attention too probably like your daughter. I am so thankful I have two children. My younger son is helping my older son probably way much more then any therapist. You are so smart to take yourself away and cool down. I have been making myself take lots of fun breaks with friends and it seems to be helping tremendously. We all need a life in this family! Thanks again, Jerri > Jerri, > > Our lives seem to parallel each other so much right now. > > Have you ever considered that your son might be affected by parasites? On > another list I'm on, this is a big topic right now. Apparently the parasites > really rear their ugly heads during a full moon (and this full moon is 12% > bigger than usual). I saw evidence of them yesterday in my son's stool, so I > have samples to take to the lab tomorrow, then we'll start treatment. > > I'm sorry, but I had to laugh just a bit as you described what happened > between your two sons. We are experiencing something very similar with my > twins. My dd will torment my ds, he yells " NO!! " but she doesn't stop, so he > hits her. Then he gets the time out. I don't want her to feel like she ever > *deserves* to get hit, but I have told her that he used his words and she > didn't respect him, so next time she gets a time-out, too. I know she's > feeling like she hasn't been getting much attention lately, so she's doing > what she can to get it. She also loves him and wants to play with him, so > this is her way of connecting with him ;-( It makes me sad. > > My son did something this morning and I felt angrier than I think I've ever > been. I put him in a chair, and went off on my own for several minutes to > cool down. I know this isn't his fault, but it's still sooooooo frustrating > and scary. Will it always be like this? Really good moments and really bad > ones? I have felt nauseated over it all day. > > Hang in there! > > Kristy > > Re: My son's medicines > >> > >> Thank you so much Caroline. I'm keeping my son out of school too, until > >> I can get him back on track. It's just too much damage there. Well, now > >> I'm feeling really sick. Just as I was writing this email my younger > son > >> (Trevor) came and told me my older son (Ty, Dr G's patient) bit him. So > >> I spanked Ty who is having so much trouble right now. I have never > >> spanked him. I don't know what it's going to take to get him to not > >> bite. I feel as bad as the schools are now. I know Trevor was pestering > >> him. I explained to Ty how much I love him and how everything I do is > >> for him and how he *should* have handled the situation and I scolded > >> Trevor too, for constantly pestering his big brother to do what he > >> wants. So I hopefully handled it ok but I sure feel sick about it. I > >> seriously want to throw up. > >> > >> Thanks for thinking of us. Our lab won't give us a copy. I have to get > a > >> copy from Dr G's office. But I am going to have them call so I can find > >> out right away when they are done. Thanks for the reinforcement. Jerri > >> P.S. My sons are playing together now and Ty sounds fine. I think he > did > >> understand everything. So hopefully all is well. > >> > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute, the Parent Coalition, or > the list moderator(s). > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Hi Jerri, I've, too, have been taking lots of time to do things for me, with my friends and no kids (and spending way too much $$, too) and I'm feeling great these days. And, my daughter and I get lots of mommy & me time when my son is in school (he goes 5 days/week, she goes 2, but she goes until late afternoon so he and I also get some mommy & me time without her). The parasite tests all came back negative. We waited a full week for the results, too. I was disappointed, but not too surprised, because I guess there are 1000+ parasites and tests for only ~50. I am still exploring ways to treat them. First magazine had an article on them in this month's issue, with lots of info on how to treat them with diet and natural remedies. If only I could get my son to eat veggies and fruits. Any ideas? He will drink juice, so I get veggies in him that way. He won't eat many of the baked goods I've tried (except spinach brownies). It's sensory for him. Kristy Re: My son's medicines > >> > >> Thank you so much Caroline. I'm keeping my son out of school too, until > >> I can get him back on track. It's just too much damage there. Well, now > >> I'm feeling really sick. Just as I was writing this email my younger > son > >> (Trevor) came and told me my older son (Ty, Dr G's patient) bit him. So > >> I spanked Ty who is having so much trouble right now. I have never > >> spanked him. I don't know what it's going to take to get him to not > >> bite. I feel as bad as the schools are now. I know Trevor was pestering > >> him. I explained to Ty how much I love him and how everything I do is > >> for him and how he *should* have handled the situation and I scolded > >> Trevor too, for constantly pestering his big brother to do what he > >> wants. So I hopefully handled it ok but I sure feel sick about it. I > >> seriously want to throw up. > >> > >> Thanks for thinking of us. Our lab won't give us a copy. I have to get > a > >> copy from Dr G's office. But I am going to have them call so I can find > >> out right away when they are done. Thanks for the reinforcement. Jerri > >> P.S. My sons are playing together now and Ty sounds fine. I think he > did > >> understand everything. So hopefully all is well. > >> > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute, the Parent Coalition, or > the list moderator(s). > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 I am buying an Oralflo cup and going to give him " Paraguard " for 3 weeks. It won't hurt him whether he does or does not have parasites. Really there is no good tests for parasites and all we can go by is how they act or what we see. K > > > Jerri, > > > > > > I'm so sorry about the biting. That has got to have you feeling so > > > frustrated! > > > > > > Be careful with the spanking, though... you may not want to give him > any > > new > > > ideas especially when he's in the frame of mind he's in. I'm just > saying > > > that because my oldest son never hit his brother until the day he saw > a > > > woman spank her own son. He came right home and spanked his brother. > > > > > > Will he stay in a time out? Sometimes if it's a wrestling match it's > not > > > worth it... and if you're holding onto him he might bite again, which > > > defeats the purpose. > > > > > > One time when my littlest guy was being horribly oppositional, Dr. > > Goldberg > > > suggested that we think of a few extra privileges that we could allow > > the > > > him so that (I know it sounds awful) we could take them away if > > needed... > > > because there's not all that much they have to get super excited about > > > sometimes at a young age. It might sink in some, especially if he sees > > his > > > brother getting to have that privilege when he has lost it. > > > > > > That's too bad your lab won't give you a copy... here I think they > have > > to > > > by law, but we have to sign a release for it. > > > > > > I hope that Dr. G can help to get things back on track quickly... > maybe > > you > > > could ask for schoolwork ASAP tomorrow morning to keep up with school > > which > > > will make it clear to him that he is not on vacation. > > > > > > Oh dear... good luck! > > > > > > Caroline > > > > > > > > > > > > > > > > > > > > > > > > > > >> From: Jerri Gann <njgann@...> > > >> Reply-< > > > >> Date: Sun, 08 Oct 2006 12:57:44 -0700 > > >> < > > > >> Subject: Re: My son's medicines > > >> > > >> Thank you so much Caroline. I'm keeping my son out of school too, > until > > >> I can get him back on track. It's just too much damage there. Well, > now > > >> I'm feeling really sick. Just as I was writing this email my younger > > son > > >> (Trevor) came and told me my older son (Ty, Dr G's patient) bit him. > So > > >> I spanked Ty who is having so much trouble right now. I have never > > >> spanked him. I don't know what it's going to take to get him to not > > >> bite. I feel as bad as the schools are now. I know Trevor was > pestering > > >> him. I explained to Ty how much I love him and how everything I do is > > >> for him and how he *should* have handled the situation and I scolded > > >> Trevor too, for constantly pestering his big brother to do what he > > >> wants. So I hopefully handled it ok but I sure feel sick about it. I > > >> seriously want to throw up. > > >> > > >> Thanks for thinking of us. Our lab won't give us a copy. I have to > get > > a > > >> copy from Dr G's office. But I am going to have them call so I can > find > > >> out right away when they are done. Thanks for the reinforcement. > Jerri > > >> P.S. My sons are playing together now and Ty sounds fine. I think he > > did > > >> understand everything. So hopefully all is well. > > >> > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author(s), and is not necessarily endorsed by or the > > > opinion of the Research Institute, the Parent Coalition, or > > the list moderator(s). > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Hi Kristie, I'm interested in more info. How did you determine to give your son " Paraguard " and for 3 weeks? Will you treat your whole family, or just your son? Is the Oralflo cup to help your son learn to swallow pills? I taught my son by cradling him in my arms (like a baby), then putting a very small pill at the back of his tongue and giving him a chaser with a syringe of juice. It took 2-3 times, but he 'got it' right away and can swallow some pretty big stuff now. Thanks, Kristy Re: My son's medicines > > >> > > >> Thank you so much Caroline. I'm keeping my son out of school too, > until > > >> I can get him back on track. It's just too much damage there. Well, > now > > >> I'm feeling really sick. Just as I was writing this email my younger > > son > > >> (Trevor) came and told me my older son (Ty, Dr G's patient) bit him. > So > > >> I spanked Ty who is having so much trouble right now. I have never > > >> spanked him. I don't know what it's going to take to get him to not > > >> bite. I feel as bad as the schools are now. I know Trevor was > pestering > > >> him. I explained to Ty how much I love him and how everything I do is > > >> for him and how he *should* have handled the situation and I scolded > > >> Trevor too, for constantly pestering his big brother to do what he > > >> wants. So I hopefully handled it ok but I sure feel sick about it. I > > >> seriously want to throw up. > > >> > > >> Thanks for thinking of us. Our lab won't give us a copy. I have to > get > > a > > >> copy from Dr G's office. But I am going to have them call so I can > find > > >> out right away when they are done. Thanks for the reinforcement. > Jerri > > >> P.S. My sons are playing together now and Ty sounds fine. I think he > > did > > >> understand everything. So hopefully all is well. > > >> > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author(s), and is not necessarily endorsed by or the > > > opinion of the Research Institute, the Parent Coalition, or > > the list moderator(s). > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Well Paraguard helps eliminate parasites if they have any but won't hurt if they don't. Testing does not show parasites but testing is very limited. I was only going to do treatment on him to see if there was improvement first. The Oralfil cup others have mentioned it on other listservs so I ordered it and shipping is free. Kristie > > > > Jerri, > > > > > > > > I'm so sorry about the biting. That has got to have you > feeling so > > > > frustrated! > > > > > > > > Be careful with the spanking, though... you may not want to > give him > > any > > > new > > > > ideas especially when he's in the frame of mind he's in. I'm > just > > saying > > > > that because my oldest son never hit his brother until the > day he saw > > a > > > > woman spank her own son. He came right home and spanked his > brother. > > > > > > > > Will he stay in a time out? Sometimes if it's a wrestling > match it's > > not > > > > worth it... and if you're holding onto him he might bite > again, which > > > > defeats the purpose. > > > > > > > > One time when my littlest guy was being horribly > oppositional, Dr. > > > Goldberg > > > > suggested that we think of a few extra privileges that we > could allow > > > the > > > > him so that (I know it sounds awful) we could take them away > if > > > needed... > > > > because there's not all that much they have to get super > excited about > > > > sometimes at a young age. It might sink in some, especially > if he sees > > > his > > > > brother getting to have that privilege when he has lost it. > > > > > > > > That's too bad your lab won't give you a copy... here I > think they > > have > > > to > > > > by law, but we have to sign a release for it. > > > > > > > > I hope that Dr. G can help to get things back on track > quickly... > > maybe > > > you > > > > could ask for schoolwork ASAP tomorrow morning to keep up > with school > > > which > > > > will make it clear to him that he is not on vacation. > > > > > > > > Oh dear... good luck! > > > > > > > > Caroline > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> From: Jerri Gann <njgann@> > > > >> Reply-< > > > > >> Date: Sun, 08 Oct 2006 12:57:44 -0700 > > > >> < > > > > >> Subject: Re: My son's medicines > > > >> > > > >> Thank you so much Caroline. I'm keeping my son out of > school too, > > until > > > >> I can get him back on track. It's just too much damage > there. Well, > > now > > > >> I'm feeling really sick. Just as I was writing this email > my younger > > > son > > > >> (Trevor) came and told me my older son (Ty, Dr G's patient) > bit him. > > So > > > >> I spanked Ty who is having so much trouble right now. I > have never > > > >> spanked him. I don't know what it's going to take to get > him to not > > > >> bite. I feel as bad as the schools are now. I know Trevor > was > > pestering > > > >> him. I explained to Ty how much I love him and how > everything I do is > > > >> for him and how he *should* have handled the situation and > I scolded > > > >> Trevor too, for constantly pestering his big brother to do > what he > > > >> wants. So I hopefully handled it ok but I sure feel sick > about it. I > > > >> seriously want to throw up. > > > >> > > > >> Thanks for thinking of us. Our lab won't give us a copy. I > have to > > get > > > a > > > >> copy from Dr G's office. But I am going to have them call > so I can > > find > > > >> out right away when they are done. Thanks for the > reinforcement. > > Jerri > > > >> P.S. My sons are playing together now and Ty sounds fine. I > think he > > > did > > > >> understand everything. So hopefully all is well. > > > >> > > > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly > with > > > > the original author(s), and is not necessarily endorsed by > or the > > > > opinion of the Research Institute, the Parent > Coalition, or > > > the list moderator(s). > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 You mentioned in the first post you saw evidence of parasites in your son's stools. What does this look like? I'm still wondering about all the possibilities of what is setting my son back still. Thanks, Jerri aaron2kristie wrote: > Well Paraguard helps eliminate parasites if they have any but won't > hurt if they don't. Testing does not show parasites but testing is > very limited. I was only going to do treatment on him to see if > there was improvement first. > > The Oralfil cup others have mentioned it on other listservs so I > ordered it and shipping is free. > Kristie > > >> > > > Jerri, >> > > > >> > > > I'm so sorry about the biting. That has got to have you >> feeling so >> > > > frustrated! >> > > > >> > > > Be careful with the spanking, though... you may not want to >> give him >> > any >> > > new >> > > > ideas especially when he's in the frame of mind he's in. >> > I'm > >> just >> > saying >> > > > that because my oldest son never hit his brother until the >> day he saw >> > a >> > > > woman spank her own son. He came right home and spanked his >> brother. >> > > > >> > > > Will he stay in a time out? Sometimes if it's a wrestling >> match it's >> > not >> > > > worth it... and if you're holding onto him he might bite >> again, which >> > > > defeats the purpose. >> > > > >> > > > One time when my littlest guy was being horribly >> oppositional, Dr. >> > > Goldberg >> > > > suggested that we think of a few extra privileges that we >> could allow >> > > the >> > > > him so that (I know it sounds awful) we could take them >> > away > >> if >> > > needed... >> > > > because there's not all that much they have to get super >> excited about >> > > > sometimes at a young age. It might sink in some, especially >> if he sees >> > > his >> > > > brother getting to have that privilege when he has lost it. >> > > > >> > > > That's too bad your lab won't give you a copy... here I >> think they >> > have >> > > to >> > > > by law, but we have to sign a release for it. >> > > > >> > > > I hope that Dr. G can help to get things back on track >> quickly... >> > maybe >> > > you >> > > > could ask for schoolwork ASAP tomorrow morning to keep up >> with school >> > > which >> > > > will make it clear to him that he is not on vacation. >> > > > >> > > > Oh dear... good luck! >> > > > >> > > > Caroline >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > >> From: Jerri Gann <njgann@> >> > > >> Reply-< > >> > > >> Date: Sun, 08 Oct 2006 12:57:44 -0700 >> > > >> < > >> > > >> Subject: Re: My son's medicines >> > > >> >> > > >> Thank you so much Caroline. I'm keeping my son out of >> school too, >> > until >> > > >> I can get him back on track. It's just too much damage >> there. Well, >> > now >> > > >> I'm feeling really sick. Just as I was writing this email >> my younger >> > > son >> > > >> (Trevor) came and told me my older son (Ty, Dr G's >> > patient) > >> bit him. >> > So >> > > >> I spanked Ty who is having so much trouble right now. I >> have never >> > > >> spanked him. I don't know what it's going to take to get >> him to not >> > > >> bite. I feel as bad as the schools are now. I know Trevor >> was >> > pestering >> > > >> him. I explained to Ty how much I love him and how >> everything I do is >> > > >> for him and how he *should* have handled the situation and >> I scolded >> > > >> Trevor too, for constantly pestering his big brother to do >> what he >> > > >> wants. So I hopefully handled it ok but I sure feel sick >> about it. I >> > > >> seriously want to throw up. >> > > >> >> > > >> Thanks for thinking of us. Our lab won't give us a copy. I >> have to >> > get >> > > a >> > > >> copy from Dr G's office. But I am going to have them call >> so I can >> > find >> > > >> out right away when they are done. Thanks for the >> reinforcement. >> > Jerri >> > > >> P.S. My sons are playing together now and Ty sounds fine. >> > I > >> think he >> > > did >> > > >> understand everything. So hopefully all is well. >> > > >> >> > > > >> > > > >> > > > >> > > > >> > > > Responsibility for the content of this message lies >> > strictly > >> with >> > > > the original author(s), and is not necessarily endorsed by >> or the >> > > > opinion of the Research Institute, the Parent >> Coalition, or >> > > the list moderator(s). >> > > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Hi Kristie, Thanks for your reply. I was wondering how you decided on the Paraguard, vs. another type of product(s)? Where do you get Paraguard? Do you know if it work for all parasites? Did you happen to see the cover of " First " magazine/read the article about parasites? Kristy Re: My son's medicines > > > >> > > > >> Thank you so much Caroline. I'm keeping my son out of > school too, > > until > > > >> I can get him back on track. It's just too much damage > there. Well, > > now > > > >> I'm feeling really sick. Just as I was writing this email > my younger > > > son > > > >> (Trevor) came and told me my older son (Ty, Dr G's patient) > bit him. > > So > > > >> I spanked Ty who is having so much trouble right now. I > have never > > > >> spanked him. I don't know what it's going to take to get > him to not > > > >> bite. I feel as bad as the schools are now. I know Trevor > was > > pestering > > > >> him. I explained to Ty how much I love him and how > everything I do is > > > >> for him and how he *should* have handled the situation and > I scolded > > > >> Trevor too, for constantly pestering his big brother to do > what he > > > >> wants. So I hopefully handled it ok but I sure feel sick > about it. I > > > >> seriously want to throw up. > > > >> > > > >> Thanks for thinking of us. Our lab won't give us a copy. I > have to > > get > > > a > > > >> copy from Dr G's office. But I am going to have them call > so I can > > find > > > >> out right away when they are done. Thanks for the > reinforcement. > > Jerri > > > >> P.S. My sons are playing together now and Ty sounds fine. I > think he > > > did > > > >> understand everything. So hopefully all is well. > > > >> > > > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly > with > > > > the original author(s), and is not necessarily endorsed by > or the > > > > opinion of the Research Institute, the Parent > Coalition, or > > > the list moderator(s). > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Kristy I got the Paraguard from Dr Barrett in Irvine. She is a naturopath. Her office has lots of supplements but she said we didn't have to buy it there. She said other health stores carry that supplement. She said testing did not show parasites but this would wipe them out if there were any. The reason I am concerned about parasites is my son continues to stick his hand in the back of his diaper and into you know where. Sometimes if I dont catch it and there is a bowel movement,, you can figure out the rest...ughh. I think it is possible that clearing the gut of yeast and bacteria (she gave us a stronger probiotic too) can and does leave room possibly for parasites to thrive and they may need dealing with. To be clear this is not under the advisement of Dr Goldberg. I have no idea how he feels about parasites at all. This is just my hunch and testing doesn't show it but testing is limited. I figure if it cant hurt why not try? Kristie > > > > > Jerri, > > > > > > > > > > I'm so sorry about the biting. That has got to have you > > feeling so > > > > > frustrated! > > > > > > > > > > Be careful with the spanking, though... you may not want to > > give him > > > any > > > > new > > > > > ideas especially when he's in the frame of mind he's in. > I'm > > just > > > saying > > > > > that because my oldest son never hit his brother until the > > day he saw > > > a > > > > > woman spank her own son. He came right home and spanked his > > brother. > > > > > > > > > > Will he stay in a time out? Sometimes if it's a wrestling > > match it's > > > not > > > > > worth it... and if you're holding onto him he might bite > > again, which > > > > > defeats the purpose. > > > > > > > > > > One time when my littlest guy was being horribly > > oppositional, Dr. > > > > Goldberg > > > > > suggested that we think of a few extra privileges that we > > could allow > > > > the > > > > > him so that (I know it sounds awful) we could take them > away > > if > > > > needed... > > > > > because there's not all that much they have to get super > > excited about > > > > > sometimes at a young age. It might sink in some, especially > > if he sees > > > > his > > > > > brother getting to have that privilege when he has lost it. > > > > > > > > > > That's too bad your lab won't give you a copy... here I > > think they > > > have > > > > to > > > > > by law, but we have to sign a release for it. > > > > > > > > > > I hope that Dr. G can help to get things back on track > > quickly... > > > maybe > > > > you > > > > > could ask for schoolwork ASAP tomorrow morning to keep up > > with school > > > > which > > > > > will make it clear to him that he is not on vacation. > > > > > > > > > > Oh dear... good luck! > > > > > > > > > > Caroline > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> From: Jerri Gann <njgann@> > > > > >> Reply-< > > > > > >> Date: Sun, 08 Oct 2006 12:57:44 -0700 > > > > >> < > > > > > >> Subject: Re: My son's medicines > > > > >> > > > > >> Thank you so much Caroline. I'm keeping my son out of > > school too, > > > until > > > > >> I can get him back on track. It's just too much damage > > there. Well, > > > now > > > > >> I'm feeling really sick. Just as I was writing this email > > my younger > > > > son > > > > >> (Trevor) came and told me my older son (Ty, Dr G's > patient) > > bit him. > > > So > > > > >> I spanked Ty who is having so much trouble right now. I > > have never > > > > >> spanked him. I don't know what it's going to take to get > > him to not > > > > >> bite. I feel as bad as the schools are now. I know Trevor > > was > > > pestering > > > > >> him. I explained to Ty how much I love him and how > > everything I do is > > > > >> for him and how he *should* have handled the situation and > > I scolded > > > > >> Trevor too, for constantly pestering his big brother to do > > what he > > > > >> wants. So I hopefully handled it ok but I sure feel sick > > about it. I > > > > >> seriously want to throw up. > > > > >> > > > > >> Thanks for thinking of us. Our lab won't give us a copy. I > > have to > > > get > > > > a > > > > >> copy from Dr G's office. But I am going to have them call > > so I can > > > find > > > > >> out right away when they are done. Thanks for the > > reinforcement. > > > Jerri > > > > >> P.S. My sons are playing together now and Ty sounds fine. > I > > think he > > > > did > > > > >> understand everything. So hopefully all is well. > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies > strictly > > with > > > > > the original author(s), and is not necessarily endorsed by > > or the > > > > > opinion of the Research Institute, the Parent > > Coalition, or > > > > the list moderator(s). > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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