Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Thank you so much. You made me cry. I think detention is good too. This is the first year I have requested no aide (because they were not trained and they constantly mothered him). I asked them to treat him the same as any other kid. So I knew it was going to be tough. But I didn't expect this one. It's so out of character for him. He is really floundering without an aide but I knew I had to do it now or he will never be independent. Thanks so much again for your kind email. I know everything you advised me to do is right on. Jerri meljackmom wrote: > Jerri, > Oh yes I know exactly how you feel. I know how easy it is to feel > like you are under a microscope, and it feels like everyone is > watching every move. > > Remember they have detention for a reason, for other kids too. Your > son is not the 1st one to ever bite anyone. In some ways, it is a > positive they put him in detention. i think many schools would > not have treated him like they would any other kid who bit someone. > > I also know your son has been through a rough period with the > acyclovir. It is not anyone's fault, he can't help how he feels > right now, but he will get back on track. Once he does, be > aggressive with getting ALL of his meds right working with Dr G. > > You can't give up, we won't let you But you can take a break. > Take one if possible, even if it is a bath and ignore everyone > else. I made my husband get my son ready for school this fall....Im > too exhausted right now. The good reports and the steady kid will > come, I know it will. > Hang in there, > > 317-844-8051 > > >> I picked up my son at school today and he was in detention. He bit >> > a > >> child in the back of the head. He didn't puncture him or but it >> > freaked > >> the kid out and my son has to be in detention tomorrow also. This >> > was > >> after a finally great day yesterday at school of completing most >> > of his > >> work, which he hasn't done at all so far this year. I finally got >> > him on > >> track again after the disastrous switch to Acyclovir and now he is >> > out > >> of whack again. Eyes dilated and hyper. I don't know if he is >> > coming > >> down with something or what's up but somethings definitely off >> > again. > >> I'm worried about this going on his permanent record. *My* *son >> > has > >> never been aggressive*. So this is such a shock. After trying to >> > pry any > >> information out of him I could. All I could get is, he is really >> > bored. > >> Which I believe is true. Some days I just want to lay down and >> > quit. > >> It's just too much to figure out, too much medicines, too much >> > worry, > >> too little progress for so much effort. I know I can't give up. >> > Hope is > >> all I have. But some times it's too difficult to put one foot in >> > front > >> of the other. They made such a big deal out of it at school. I'm >> thinking anyone that sees his school record will see autism and >> aggression and that's all they will see. >> Sorry for all the venting but I know you guys are the only ones >> > who will > >> understand. I just now got some children to agree to come over to >> > our > >> house after school to play with my son and the therapist that >> > works with > >> him. I'm wondering if they will even come over now. Any >> > encouragement > >> would be greatly appreciated. Thanks, Jerri >> >> > > > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Jerri, Was it totally your son's fault? Did the other child maybe hit him first? When my son was in kindergarten they told me that he bit another child during recess...well it turned out that the other child was hitting him and to get away he bit his arm in self defense! My husband got all over the principal and teachers until he got to the bottom of the problem and what happened and made sure it did not go on his record. (his aid of course didn't notice anything because she had left him by himself). Hang in there, we will pray for your son. Argie Re: I'm devastated Jerri, Oh yes I know exactly how you feel. I know how easy it is to feel like you are under a microscope, and it feels like everyone is watching every move. Remember they have detention for a reason, for other kids too. Your son is not the 1st one to ever bite anyone. In some ways, it is a positive they put him in detention. i think many schools would not have treated him like they would any other kid who bit someone. I also know your son has been through a rough period with the acyclovir. It is not anyone's fault, he can't help how he feels right now, but he will get back on track. Once he does, be aggressive with getting ALL of his meds right working with Dr G. You can't give up, we won't let you But you can take a break. Take one if possible, even if it is a bath and ignore everyone else. I made my husband get my son ready for school this fall....Im too exhausted right now. The good reports and the steady kid will come, I know it will. Hang in there, 317-844-8051 > > I picked up my son at school today and he was in detention. He bit a > child in the back of the head. He didn't puncture him or but it freaked > the kid out and my son has to be in detention tomorrow also. This was > after a finally great day yesterday at school of completing most of his > work, which he hasn't done at all so far this year. I finally got him on > track again after the disastrous switch to Acyclovir and now he is out > of whack again. Eyes dilated and hyper. I don't know if he is coming > down with something or what's up but somethings definitely off again. > I'm worried about this going on his permanent record. *My* *son has > never been aggressive*. So this is such a shock. After trying to pry any > information out of him I could. All I could get is, he is really bored. > Which I believe is true. Some days I just want to lay down and quit. > It's just too much to figure out, too much medicines, too much worry, > too little progress for so much effort. I know I can't give up. Hope is > all I have. But some times it's too difficult to put one foot in front > of the other. They made such a big deal out of it at school. I'm > thinking anyone that sees his school record will see autism and > aggression and that's all they will see. > Sorry for all the venting but I know you guys are the only ones who will > understand. I just now got some children to agree to come over to our > house after school to play with my son and the therapist that works with > him. I'm wondering if they will even come over now. Any encouragement > would be greatly appreciated. Thanks, Jerri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Argie, Thank you so much for your prayers. You guys are the greatest. I'm feeling so much better. I was told my son did this out of the blue and I think he did. I think he was trying to be funny and he is very bored in school, he finally told me. It did not hurt the child just freaked him out, which is understandable. I think I will ask them about his permanent record. Jerri P.S. I sure like getting the NIDs list in the non digest format. I can respond better than when I read the whole thing. olivo@... wrote: > Jerri, > > Was it totally your son's fault? Did the other child maybe hit him first? > When my son was in kindergarten they told me that he bit another child > during recess...well it turned out that the other child was hitting him and > to get away he bit his arm in self defense! My husband got all over the > principal and teachers until he got to the bottom of the problem and what > happened and made sure it did not go on his record. (his aid of course > didn't notice anything because she had left him by himself). > > Hang in there, we will pray for your son. > Argie > Re: I'm devastated > > > Jerri, > Oh yes I know exactly how you feel. I know how easy it is to feel > like you are under a microscope, and it feels like everyone is > watching every move. > > Remember they have detention for a reason, for other kids too. Your > son is not the 1st one to ever bite anyone. In some ways, it is a > positive they put him in detention. i think many schools would > not have treated him like they would any other kid who bit someone. > > I also know your son has been through a rough period with the > acyclovir. It is not anyone's fault, he can't help how he feels > right now, but he will get back on track. Once he does, be > aggressive with getting ALL of his meds right working with Dr G. > > You can't give up, we won't let you But you can take a break. > Take one if possible, even if it is a bath and ignore everyone > else. I made my husband get my son ready for school this fall....Im > too exhausted right now. The good reports and the steady kid will > come, I know it will. > Hang in there, > > 317-844-8051 > > > > > I picked up my son at school today and he was in detention. He bit > a > > child in the back of the head. He didn't puncture him or but it > freaked > > the kid out and my son has to be in detention tomorrow also. This > was > > after a finally great day yesterday at school of completing most > of his > > work, which he hasn't done at all so far this year. I finally got > him on > > track again after the disastrous switch to Acyclovir and now he is > out > > of whack again. Eyes dilated and hyper. I don't know if he is > coming > > down with something or what's up but somethings definitely off > again. > > I'm worried about this going on his permanent record. *My* *son > has > > never been aggressive*. So this is such a shock. After trying to > pry any > > information out of him I could. All I could get is, he is really > bored. > > Which I believe is true. Some days I just want to lay down and > quit. > > It's just too much to figure out, too much medicines, too much > worry, > > too little progress for so much effort. I know I can't give up. > Hope is > > all I have. But some times it's too difficult to put one foot in > front > > of the other. They made such a big deal out of it at school. I'm > > thinking anyone that sees his school record will see autism and > > aggression and that's all they will see. > > Sorry for all the venting but I know you guys are the only ones > who will > > understand. I just now got some children to agree to come over to > our > > house after school to play with my son and the therapist that > works with > > him. I'm wondering if they will even come over now. Any > encouragement > > would be greatly appreciated. Thanks, Jerri > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Jerri and all... I just wanted to throw in here that as time goes by things should get much more stable. We just had a rough few days with my 6 year old as he switched back to being very negative, uncooperative and unhappy (I wish I knew the trigger)... we hunkered down and dealt with it for a couple of days and then yesterday he woke up and within one minute of his being out of bed, I knew the " switch " had flipped back the other way. He was full of sunshine. At the end of the day, instead of scribbling on his homework as he had the day before, he was writing so carefully and showing proudly me how nice his handwriting was. I feel like I live with Dr. Jekyll's great grandson. Anyway, I remembered last night that when my now 6th grader was in 1st grade, I was telling his teacher (a superwoman) how he was so variable from day to day (thinking she'd think I was crazy) and she said, " Oh, I know... I can tell how he's going to be that day when I watch him walk in the door first thing in the morning. " Now in 6th grade he is quite stable... not recovered, but functioning much better and very stable. We just don't seem to have those " off " days anymore. I'm looking forward to that with my little guy. Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 I can't remember if I replied or I was saving this to savor it again. Thank you so much for this email. It was a God send. I am baffled by this second setback because he was so much better initially on Famvir. I guess I just have to wait it out. It's so wonderful to get him so on target but it's such a fleeting thing. I wish I could figure it all out. I think now it might be seasonal allergies. He is congested and eyes dilated again. We have had a weather change. It's cold and rainy. I am being aggressive with the nasal sprays, antihistamines and Aerobid inhaler, in hopes he won't get sick which sets him way way back. I know you all know this. You all are helping me not give up. Thank you. Really there is no other choice. But putting the rest of the family in the equation I see now is so important too, including myself. Thanks again, Jerri > Jerri, > Oh yes I know exactly how you feel. I know how easy it is to feel > like you are under a microscope, and it feels like everyone is > watching every move. > > Remember they have detention for a reason, for other kids too. Your > son is not the 1st one to ever bite anyone. In some ways, it is a > positive they put him in detention. i think many schools would > not have treated him like they would any other kid who bit someone. > > I also know your son has been through a rough period with the > acyclovir. It is not anyone's fault, he can't help how he feels > right now, but he will get back on track. Once he does, be > aggressive with getting ALL of his meds right working with Dr G. > > You can't give up, we won't let you But you can take a break. > Take one if possible, even if it is a bath and ignore everyone > else. I made my husband get my son ready for school this fall....Im > too exhausted right now. The good reports and the steady kid will > come, I know it will. > Hang in there, > > 317-844-8051 > > >> I picked up my son at school today and he was in detention. He bit >> > a > >> child in the back of the head. He didn't puncture him or but it >> > freaked > >> the kid out and my son has to be in detention tomorrow also. This >> > was > >> after a finally great day yesterday at school of completing most >> > of his > >> work, which he hasn't done at all so far this year. I finally got >> > him on > >> track again after the disastrous switch to Acyclovir and now he is >> > out > >> of whack again. Eyes dilated and hyper. I don't know if he is >> > coming > >> down with something or what's up but somethings definitely off >> > again. > >> I'm worried about this going on his permanent record. *My* *son >> > has > >> never been aggressive*. So this is such a shock. After trying to >> > pry any > >> information out of him I could. All I could get is, he is really >> > bored. > >> Which I believe is true. Some days I just want to lay down and >> > quit. > >> It's just too much to figure out, too much medicines, too much >> > worry, > >> too little progress for so much effort. I know I can't give up. >> > Hope is > >> all I have. But some times it's too difficult to put one foot in >> > front > >> of the other. They made such a big deal out of it at school. I'm >> thinking anyone that sees his school record will see autism and >> aggression and that's all they will see. >> Sorry for all the venting but I know you guys are the only ones >> > who will > >> understand. I just now got some children to agree to come over to >> > our > >> house after school to play with my son and the therapist that >> > works with > >> him. I'm wondering if they will even come over now. Any >> > encouragement > >> would be greatly appreciated. Thanks, Jerri >> >> > > > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 In a message dated 10/6/2006 8:07:33 AM Central Standard Time, eszbi5@... writes: <<I know that my daughter reacts to the full moon with rare form. It is a tough few days every full moon at our house. >> I'd have her checked for parrasites. Many worms are at their most active state during the full moon so that's the best time to run parrasite tests. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Gaylen, How/where is parasite testing done? Kristy Re: Re: I'm devastated In a message dated 10/6/2006 8:07:33 AM Central Standard Time, eszbi5@... writes: <<I know that my daughter reacts to the full moon with rare form. It is a tough few days every full moon at our house. >> I'd have her checked for parrasites. Many worms are at their most active state during the full moon so that's the best time to run parrasite tests. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 My son is on Famvir, Diflucan, Wellbutrin, Paxil, Tenex, Astelin, Flovent, Kyodophilous, and Ferrous Sulfate Elixir. All of these he has been on for a very long time except this summer we switched from Celexa to Prozac to Paxil and we switched from Nizoral to Diflucan at the beginning of Sept. I believe. We recently tried the Acylcovir switch from Famvir which was my idea and I think it was awful but Dr G thinks he might be something helpful to try again later. We ran out of time this summer also to switch again to Zoloft. We have never had much improvements from the SSRI's. He was on Celexa for a very long time because it was the only one that didn't make him hyper. We tried again this summer with Prozac and Paxil and they didn't make him hyper this time but not much improvement that I can see. I have never seen the bright light come on that people talk about but rather a very slow gradual improvement with many setbacks. I always feel like we are missing something with my son. I also regret not making the additional switch to Zoloft this summer. It might have been very helpful. I got sick and dropped the ball. We are also on the generic for these drugs except for Famvir and Wellbutrin. I haven't read the lyme's disease article someone forwarded yet, but I did get a deer tick bite and went on antibiotics for a long time but I'm wondering if maybe I got it anyway. I don't know how my son could have got it at such a young age. Don't you have to get a deer tick bite for this? Sorry, I'm probably asking you a question you don't know. Thank you for any advice. My son is in detention again for three days.This time for pulling his pants down (not underwear) in class. He was trying to make everyone laugh. It's from a smiley face email he saw. He and my younger son have been doing this at home. I told him never to do this anywhere else but he is not listening to me about a lot of things lately which may be a good thing. I guess he just has to learn the hard way right now. Thanks, Jerri meljackmom wrote: > Jerri > What meds is your son on and for how long? > Just curious. > > > > >>> >>> >>>> I picked up my son at school today and he was in detention. He >>>> > bit > >>>> >>>> >>> a >>> >>> >>>> child in the back of the head. He didn't puncture him or but it >>>> >>>> >>> freaked >>> >>> >>>> the kid out and my son has to be in detention tomorrow also. >>>> > This > >>>> >>>> >>> was >>> >>> >>>> after a finally great day yesterday at school of completing >>>> > most > >>>> >>>> >>> of his >>> >>> >>>> work, which he hasn't done at all so far this year. I finally >>>> > got > >>>> >>>> >>> him on >>> >>> >>>> track again after the disastrous switch to Acyclovir and now he >>>> > is > >>>> >>>> >>> out >>> >>> >>>> of whack again. Eyes dilated and hyper. I don't know if he is >>>> >>>> >>> coming >>> >>> >>>> down with something or what's up but somethings definitely off >>>> >>>> >>> again. >>> >>> >>>> I'm worried about this going on his permanent record. *My* *son >>>> >>>> >>> has >>> >>> >>>> never been aggressive*. So this is such a shock. After trying >>>> > to > >>>> >>>> >>> pry any >>> >>> >>>> information out of him I could. All I could get is, he is >>>> > really > >>>> >>>> >>> bored. >>> >>> >>>> Which I believe is true. Some days I just want to lay down and >>>> >>>> >>> quit. >>> >>> >>>> It's just too much to figure out, too much medicines, too much >>>> >>>> >>> worry, >>> >>> >>>> too little progress for so much effort. I know I can't give up. >>>> >>>> >>> Hope is >>> >>> >>>> all I have. But some times it's too difficult to put one foot >>>> > in > >>>> >>>> >>> front >>> >>> >>>> of the other. They made such a big deal out of it at school. >>>> > I'm > >>>> thinking anyone that sees his school record will see autism and >>>> aggression and that's all they will see. >>>> Sorry for all the venting but I know you guys are the only ones >>>> >>>> >>> who will >>> >>> >>>> understand. I just now got some children to agree to come over >>>> > to > >>>> >>>> >>> our >>> >>> >>>> house after school to play with my son and the therapist that >>>> >>>> >>> works with >>> >>> >>>> him. I'm wondering if they will even come over now. Any >>>> >>>> >>> encouragement >>> >>> >>>> would be greatly appreciated. Thanks, Jerri >>>> >>>> >>>> >>> >>> >>> >>> >>> >>> Responsibility for the content of this message lies strictly >>> > with > >>> the original author(s), and is not necessarily endorsed by or >>> > the > >>> opinion of the Research Institute, the Parent >>> > Coalition, or the list moderator(s). > >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 In a message dated 10/6/2006 11:38:58 PM Central Standard Time, krnardini@... writes: <<How/where is parasite testing done?>> Stool test. I don't think you need a specialty lab. Any doctor could order one. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Jerri Gann: Hi, My son is also a patient of Dr. Goldberg's for many years. I had to respond to your message that your son is constantly being put in detention. I think this is a very unfair way to treat a child with autism. There was a child who was having similar problems to your son's in Long Island, New York on the news recently and he was also being put into detention for the same kinds of behaviors. The father was in tears and the son was on camera and it was obvious that he was a sweet boy who has a problem-autism! All the reporters and anchor people were outraged at the way the school handled the problem of the boy's behavior, and I think the father took the boy out of the school. I think detention is a very cruel way to handle the kinds of behavioral problems that children with autism have. The better way would be to try to talk to the child or reach him with pictures if he has trouble understanding and help him through the problems in a more humane way than punishment! I'm sorry for the long message, but I just can't accept this kind of treatment of children with autism! Gayle Re: I'm devastated Jerri I know what you mean by " missing something " . I wrack my brain sometimes trying to figure it out. Are you sure your Diflucan has no red dye? (you may have already posted this before, I forget.) Is your son one of those who seems to do better when on antibiotics? And one other very subtle....my son did better when I took him off kyodophilus and put him on a sraight acidophilus....I don't know why. > >>> > >>> > >>>> I picked up my son at school today and he was in detention. He > >>>> > > bit > > > >>>> > >>>> > >>> a > >>> > >>> > >>>> child in the back of the head. He didn't puncture him or but it > >>>> > >>>> > >>> freaked > >>> > >>> > >>>> the kid out and my son has to be in detention tomorrow also. > >>>> > > This > > > >>>> > >>>> > >>> was > >>> > >>> > >>>> after a finally great day yesterday at school of completing > >>>> > > most > > > >>>> > >>>> > >>> of his > >>> > >>> > >>>> work, which he hasn't done at all so far this year. I finally > >>>> > > got > > > >>>> > >>>> > >>> him on > >>> > >>> > >>>> track again after the disastrous switch to Acyclovir and now he > >>>> > > is > > > >>>> > >>>> > >>> out > >>> > >>> > >>>> of whack again. Eyes dilated and hyper. I don't know if he is > >>>> > >>>> > >>> coming > >>> > >>> > >>>> down with something or what's up but somethings definitely off > >>>> > >>>> > >>> again. > >>> > >>> > >>>> I'm worried about this going on his permanent record. *My* *son > >>>> > >>>> > >>> has > >>> > >>> > >>>> never been aggressive*. So this is such a shock. After trying > >>>> > > to > > > >>>> > >>>> > >>> pry any > >>> > >>> > >>>> information out of him I could. All I could get is, he is > >>>> > > really > > > >>>> > >>>> > >>> bored. > >>> > >>> > >>>> Which I believe is true. Some days I just want to lay down and > >>>> > >>>> > >>> quit. > >>> > >>> > >>>> It's just too much to figure out, too much medicines, too much > >>>> > >>>> > >>> worry, > >>> > >>> > >>>> too little progress for so much effort. I know I can't give up. > >>>> > >>>> > >>> Hope is > >>> > >>> > >>>> all I have. But some times it's too difficult to put one foot > >>>> > > in > > > >>>> > >>>> > >>> front > >>> > >>> > >>>> of the other. They made such a big deal out of it at school. > >>>> > > I'm > > > >>>> thinking anyone that sees his school record will see autism and > >>>> aggression and that's all they will see. > >>>> Sorry for all the venting but I know you guys are the only ones > >>>> > >>>> > >>> who will > >>> > >>> > >>>> understand. I just now got some children to agree to come over > >>>> > > to > > > >>>> > >>>> > >>> our > >>> > >>> > >>>> house after school to play with my son and the therapist that > >>>> > >>>> > >>> works with > >>> > >>> > >>>> him. I'm wondering if they will even come over now. Any > >>>> > >>>> > >>> encouragement > >>> > >>> > >>>> would be greatly appreciated. Thanks, Jerri > >>>> > >>>> > >>>> > >>> > >>> > >>> > >>> > >>> > >>> Responsibility for the content of this message lies strictly > >>> > > with > > > >>> the original author(s), and is not necessarily endorsed by or > >>> > > the > > > >>> opinion of the Research Institute, the Parent > >>> > > Coalition, or the list moderator(s). > > > >>> > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Thanks , He has been on Kyodophilous for a long time. Maybe a switch is in order. Have you found one with no lactobacilous thats good? Thanks, Jerri meljackmom wrote: > Jerri > I know what you mean by " missing something " . I wrack my brain > sometimes trying to figure it out. > > Are you sure your Diflucan has no red dye? (you may have already > posted this before, I forget.) > > Is your son one of those who seems to do better when on > antibiotics? > > And one other very subtle....my son did better when I took him off > kyodophilus and put him on a sraight acidophilus....I don't know why. > > > > > >>>>> >>>>> >>>>> >>>>>> I picked up my son at school today and he was in detention. >>>>>> > He > >>>>>> >>>>>> >>> bit >>> >>> >>>>>> >>>>>> >>>>>> >>>>> a >>>>> >>>>> >>>>> >>>>>> child in the back of the head. He didn't puncture him or but >>>>>> > it > >>>>>> >>>>>> >>>>>> >>>>> freaked >>>>> >>>>> >>>>> >>>>>> the kid out and my son has to be in detention tomorrow also. >>>>>> >>>>>> >>> This >>> >>> >>>>>> >>>>>> >>>>>> >>>>> was >>>>> >>>>> >>>>> >>>>>> after a finally great day yesterday at school of completing >>>>>> >>>>>> >>> most >>> >>> >>>>>> >>>>>> >>>>>> >>>>> of his >>>>> >>>>> >>>>> >>>>>> work, which he hasn't done at all so far this year. I finally >>>>>> >>>>>> >>> got >>> >>> >>>>>> >>>>>> >>>>>> >>>>> him on >>>>> >>>>> >>>>> >>>>>> track again after the disastrous switch to Acyclovir and now >>>>>> > he > >>>>>> >>>>>> >>> is >>> >>> >>>>>> >>>>>> >>>>>> >>>>> out >>>>> >>>>> >>>>> >>>>>> of whack again. Eyes dilated and hyper. I don't know if he is >>>>>> >>>>>> >>>>>> >>>>> coming >>>>> >>>>> >>>>> >>>>>> down with something or what's up but somethings definitely >>>>>> > off > >>>>>> >>>>>> >>>>>> >>>>> again. >>>>> >>>>> >>>>> >>>>>> I'm worried about this going on his permanent record. *My* >>>>>> > *son > >>>>>> >>>>>> >>>>>> >>>>> has >>>>> >>>>> >>>>> >>>>>> never been aggressive*. So this is such a shock. After trying >>>>>> >>>>>> >>> to >>> >>> >>>>>> >>>>>> >>>>>> >>>>> pry any >>>>> >>>>> >>>>> >>>>>> information out of him I could. All I could get is, he is >>>>>> >>>>>> >>> really >>> >>> >>>>>> >>>>>> >>>>>> >>>>> bored. >>>>> >>>>> >>>>> >>>>>> Which I believe is true. Some days I just want to lay down >>>>>> > and > >>>>>> >>>>>> >>>>>> >>>>> quit. >>>>> >>>>> >>>>> >>>>>> It's just too much to figure out, too much medicines, too >>>>>> > much > >>>>>> >>>>>> >>>>>> >>>>> worry, >>>>> >>>>> >>>>> >>>>>> too little progress for so much effort. I know I can't give >>>>>> > up. > >>>>>> >>>>>> >>>>>> >>>>> Hope is >>>>> >>>>> >>>>> >>>>>> all I have. But some times it's too difficult to put one foot >>>>>> >>>>>> >>> in >>> >>> >>>>>> >>>>>> >>>>>> >>>>> front >>>>> >>>>> >>>>> >>>>>> of the other. They made such a big deal out of it at school. >>>>>> >>>>>> >>> I'm >>> >>> >>>>>> thinking anyone that sees his school record will see autism >>>>>> > and > >>>>>> aggression and that's all they will see. >>>>>> Sorry for all the venting but I know you guys are the only >>>>>> > ones > >>>>>> >>>>>> >>>>>> >>>>> who will >>>>> >>>>> >>>>> >>>>>> understand. I just now got some children to agree to come >>>>>> > over > >>>>>> >>>>>> >>> to >>> >>> >>>>>> >>>>>> >>>>>> >>>>> our >>>>> >>>>> >>>>> >>>>>> house after school to play with my son and the therapist that >>>>>> >>>>>> >>>>>> >>>>> works with >>>>> >>>>> >>>>> >>>>>> him. I'm wondering if they will even come over now. Any >>>>>> >>>>>> >>>>>> >>>>> encouragement >>>>> >>>>> >>>>> >>>>>> would be greatly appreciated. Thanks, Jerri >>>>>> >>>>>> >>>>>> >>>>>> >>>>> >>>>> >>>>> >>>>> Responsibility for the content of this message lies strictly >>>>> >>>>> >>> with >>> >>> >>>>> the original author(s), and is not necessarily endorsed by or >>>>> >>>>> >>> the >>> >>> >>>>> opinion of the Research Institute, the Parent >>>>> >>>>> >>> Coalition, or the list moderator(s). >>> >>> >>>>> >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Yes that is suspected however I did not know that they were most active during the full moon. She was once on an antibiotic for something else and she did better. I am going to bring that up to Dr. Russel when we see him. The problem has been that we are just getting started and we can't start all the meds at once. Sheri Googahly@... wrote: In a message dated 10/6/2006 8:07:33 AM Central Standard Time, eszbi5@... writes: <<I know that my daughter reacts to the full moon with rare form. It is a tough few days every full moon at our house. >> I'd have her checked for parrasites. Many worms are at their most active state during the full moon so that's the best time to run parrasite tests. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Thank you! I agree. In my last IEP we discussed having him miss his lunch recess if he didn't complete his work. At the time this was his only problem. He has not biten anyone nor pulled his pants down before. He was trying to be funny, imitating skits he has seen before. He is taking it pretty well but the rest of the school is very aware and looking at him differently because everyone knows detention is for the really bad stuff. I'm going to call Spec Ed on Monday and tell them what is happening and how I think this is way to harsh. I'm not taking him to school nor detention on Monday. I'm pretty sure now it is the strep issue, so I don't believe he could help it. I'm also working on getting a trained aide like I've wanted all along. Lots of work ahead but I can't let anyone undo all the positive work that has been done. As our neuropsychologist said that diagnosed him over five years ago, " always guard and nourish his self-esteem and he will be fine. " Thank you for you input. I need all I can get right now. Jerri gvizjazz@... wrote: > Jerri Gann: Hi, My son is also a patient of Dr. Goldberg's for many years. I had to respond to your message that your son is constantly being put in detention. I think this is a very unfair way to treat a child with autism. There was a child who was having similar problems to your son's in Long Island, New York on the news recently and he was also being put into detention for the same kinds of behaviors. The father was in tears and the son was on camera and it was obvious that he was a sweet boy who has a problem-autism! All the reporters and anchor people were outraged at the way the school handled the problem of the boy's behavior, and I think the father took the boy out of the school. I think detention is a very cruel way to handle the kinds of behavioral problems that children with autism have. The better way would be to try to talk to the child or reach him with pictures if he has trouble understanding and help him through the problems in a more humane way than punishment! I'm sorry for the long message, but I just can't accept this kind of treatment of children with autism! Gayle > > > Re: I'm devastated > > > Jerri > I know what you mean by " missing something " . I wrack my brain > sometimes trying to figure it out. > > Are you sure your Diflucan has no red dye? (you may have already > posted this before, I forget.) > > Is your son one of those who seems to do better when on > antibiotics? > > And one other very subtle....my son did better when I took him off > kyodophilus and put him on a sraight acidophilus....I don't know why. > > > > >>>>> >>>>> >>>>> >>>>>> I picked up my son at school today and he was in detention. >>>>>> > He > >>> bit >>> >>> >>>>>> >>>>> a >>>>> >>>>> >>>>> >>>>>> child in the back of the head. He didn't puncture him or but >>>>>> > it > >>>>>> >>>>> freaked >>>>> >>>>> >>>>> >>>>>> the kid out and my son has to be in detention tomorrow also. >>>>>> >>>>>> >>> This >>> >>> >>>>>> >>>>> was >>>>> >>>>> >>>>> >>>>>> after a finally great day yesterday at school of completing >>>>>> >>>>>> >>> most >>> >>> >>>>>> >>>>> of his >>>>> >>>>> >>>>> >>>>>> work, which he hasn't done at all so far this year. I finally >>>>>> >>>>>> >>> got >>> >>> >>>>>> >>>>> him on >>>>> >>>>> >>>>> >>>>>> track again after the disastrous switch to Acyclovir and now >>>>>> > he > >>> is >>> >>> >>>>>> >>>>> out >>>>> >>>>> >>>>> >>>>>> of whack again. Eyes dilated and hyper. I don't know if he is >>>>>> >>>>>> >>>>>> >>>>> coming >>>>> >>>>> >>>>> >>>>>> down with something or what's up but somethings definitely >>>>>> > off > >>>>>> >>>>> again. >>>>> >>>>> >>>>> >>>>>> I'm worried about this going on his permanent record. *My* >>>>>> > *son > >>>>>> >>>>> has >>>>> >>>>> >>>>> >>>>>> never been aggressive*. So this is such a shock. After trying >>>>>> >>>>>> >>> to >>> >>> >>>>>> >>>>> pry any >>>>> >>>>> >>>>> >>>>>> information out of him I could. All I could get is, he is >>>>>> >>>>>> >>> really >>> >>> >>>>>> >>>>> bored. >>>>> >>>>> >>>>> >>>>>> Which I believe is true. Some days I just want to lay down >>>>>> > and > >>>>>> >>>>> quit. >>>>> >>>>> >>>>> >>>>>> It's just too much to figure out, too much medicines, too >>>>>> > much > >>>>>> >>>>> worry, >>>>> >>>>> >>>>> >>>>>> too little progress for so much effort. I know I can't give >>>>>> > up. > >>>>>> >>>>> Hope is >>>>> >>>>> >>>>> >>>>>> all I have. But some times it's too difficult to put one foot >>>>>> >>>>>> >>> in >>> >>> >>>>>> >>>>> front >>>>> >>>>> >>>>> >>>>>> of the other. They made such a big deal out of it at school. >>>>>> >>>>>> >>> I'm >>> >>> >>>>>> thinking anyone that sees his school record will see autism >>>>>> > and > >>>>>> aggression and that's all they will see. >>>>>> Sorry for all the venting but I know you guys are the only >>>>>> > ones > >>>>>> >>>>> who will >>>>> >>>>> >>>>> >>>>>> understand. I just now got some children to agree to come >>>>>> > over > >>> to >>> >>> >>>>>> >>>>> our >>>>> >>>>> >>>>> >>>>>> house after school to play with my son and the therapist that >>>>>> >>>>>> >>>>>> >>>>> works with >>>>> >>>>> >>>>> >>>>>> him. I'm wondering if they will even come over now. Any >>>>>> >>>>>> >>>>>> >>>>> encouragement >>>>> >>>>> >>>>> >>>>>> would be greatly appreciated. Thanks, Jerri >>>>>> >>>>>> >>>>>> >>>>>> >>>>> >>>>> >>>>> >>>>> Responsibility for the content of this message lies strictly >>>>> >>>>> >>> with >>> >>> >>>>> the original author(s), and is not necessarily endorsed by or >>>>> >>>>> >>> the >>> >>> >>>>> opinion of the Research Institute, the Parent >>>>> >>>>> >>> Coalition, or the list moderator(s). >>> >>> >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Similar experience here... My son was kicked out of a wonderful Waldorf school because of hitting (they worked very hard with him first but he was 'damaged' from being bullied at a previous school), and he was devastated. I was furious at him, too, because I was forced to quit work and it is the reason my kids are not longer on the protocol - it was a very devastating occurance. I was not as compassionate - I really let my anger with him show. I regret it and could have handled it better, and I did quickly calm down and become compassionate. But he does understand that it is a consequence of his own actions and that it is not tolerated. He made it thru his first year of public kindergarten the next school season, until the last 6 weeks (again, bullying eventually set him off). This year, however, he's having problems again, but it is associated w/his 'brain' function again (slowly regressing now). How we will address it is yet to be seen but he will suffer some consequences that will be hard for him (permanent loss of a cherished treat that he shouldn't be having for one). Losing his cherished teacher was a hard blow, and we (both teacher and I) were very concerned about him perceiving it as rejection, but he really does 'get it' that it wasn't because she did not love him - she did, and she tried, and he wouldn't stop. When he did stop, he asked if he could go back now (many months later), and he was told no (various reasons including I could not afford it now because I lost that job). It was a permanent consequence that he will not forget. --- hindssite@... wrote: > As far as the detention goes, sometimes we need to > hurt our kids to help them. At first I wasn't going to tell him about why > she didn't want to come over because I wanted to > protect his feelings, but then I realized that > wasn't really helping . I told him that the > little girl wouldn't be coming over to play anymore > because he screamed and acted bad when it was time > for her to go home and now she doesn't want to play > with him anymore. > > He and I cried together, but it was a turning point > for us. I no longer tried to protect him from the > world and let him feel the consequences of bad > behavior. This was a major step in making him join > the rest of the world. But if they are too > protected, they don't learn what is appropriate and > expected. When they are little and still cute > people excuse their weird behavior, but when they > get older this no longer applies. Use this as a > learning lesson with your son. > Marcia > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 My son's school did this and it blew up in their face. Missing recess is the last thing our kids need. They have to be able to have some way to wind down from the stress. Just wanted to share in case you can fight that one. We changed to introducing a new treat only as a reward for self-control to remove. Give something new to take away if you can... HTH- --- Jerri Gann <njgann@...> wrote: > Thank you! I agree. In my last IEP we discussed > having him miss his > lunch recess if he didn't complete his work. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 I found out that the teacher was with holding Zack's recess because he was not completing this assignments and all crap hit the fan. I commented on the fact that they were further isolating him and that was inconsistent with his IEP. I can pull out the wording if it is needed. Sheri <thecolemans4@...> wrote: My son's school did this and it blew up in their face. Missing recess is the last thing our kids need. They have to be able to have some way to wind down from the stress. Just wanted to share in case you can fight that one. We changed to introducing a new treat only as a reward for self-control to remove. Give something new to take away if you can... HTH- --- Jerri Gann <njgann@...> wrote: > Thank you! I agree. In my last IEP we discussed > having him miss his > lunch recess if he didn't complete his work. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Thanks so much for this. I can see now how this is so true! I was talking to our therapist and she said the consequence must be immediate not a long drawn out detention. I can't get his teacher to do this. So I guess I'm going to have to fight to get a trained aide for him but I don't know how long this is going to take. Anyway, thank you so mcuh for this idea. Jerri wrote: > My son's school did this and it blew up in their face. > Missing recess is the last thing our kids need. They > have to be able to have some way to wind down from the > stress. > > Just wanted to share in case you can fight that one. > We changed to introducing a new treat only as a reward > for self-control to remove. Give something new to > take away if you can... > > HTH- > > > --- Jerri Gann <njgann@...> wrote: > > >> Thank you! I agree. In my last IEP we discussed >> having him miss his >> lunch recess if he didn't complete his work. >> > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 So Sorry you went through all this. I hope and pray it all gets better for you. Jerri > Similar experience here... > My son was kicked out of a wonderful Waldorf school > because of hitting (they worked very hard with him > first but he was 'damaged' from being bullied at a > previous school), and he was devastated. I was > furious at him, too, because I was forced to quit work > and it is the reason my kids are not longer on the > protocol - it was a very devastating occurance. > > I was not as compassionate - I really let my anger > with him show. I regret it and could have handled it > better, and I did quickly calm down and become > compassionate. But he does understand that it is a > consequence of his own actions and that it is not > tolerated. He made it thru his first year of public > kindergarten the next school season, until the last 6 > weeks (again, bullying eventually set him off). This > year, however, he's having problems again, but it is > associated w/his 'brain' function again (slowly > regressing now). How we will address it is yet to be > seen but he will suffer some consequences that will be > hard for him (permanent loss of a cherished treat that > he shouldn't be having for one). > > Losing his cherished teacher was a hard blow, and we > (both teacher and I) were very concerned about him > perceiving it as rejection, but he really does 'get > it' that it wasn't because she did not love him - she > did, and she tried, and he wouldn't stop. > > When he did stop, he asked if he could go back now > (many months later), and he was told no (various > reasons including I could not afford it now because I > lost that job). It was a permanent consequence that > he will not forget. > > > --- hindssite@... wrote: > > >> As far as the detention goes, sometimes we need to >> hurt our kids to help them. >> > At first I wasn't going to tell him about why > >> she didn't want to come over because I wanted to >> protect his feelings, but then I realized that >> wasn't really helping . I told him that the >> little girl wouldn't be coming over to play anymore >> because he screamed and acted bad when it was time >> for her to go home and now she doesn't want to play >> with him anymore. >> >> He and I cried together, but it was a turning point >> for us. I no longer tried to protect him from the >> world and let him feel the consequences of bad >> behavior. This was a major step in making him join >> the rest of the world. >> > > But if they are too > >> protected, they don't learn what is appropriate and >> expected. When they are little and still cute >> people excuse their weird behavior, but when they >> get older this no longer applies. Use this as a >> learning lesson with your son. > Marcia >> >> > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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