Dr Uszler, Brain SPECT and HBOT

August 28, 2006

ok - would someone like to explain why Dr Uszler is using

HBOT? Dr Uszler is connected to Brain Matters Inc

which of course is connected to Dr Goldberg.

Dr Goldberg is still against HBOT, yes?

Just trying to clarify a few things ...

Doris

land

Autism One Radio Schedule Sept 1-10 Dr. Uszler, Brain SPECT Imaging Sept 5

A Worldwide, Internet-Based Radio Station for the Care, Treatment, and

Recovery of All Children with Autism

http://www.autismone.org/radio

Tues, Sept 5 10:30am11:30 Teri Small: Autism: Help, Hope, and

Healing. Guest: J. Uszler, MD, Medical Director at Santa

Imaging & Therapy Associates, with emphasis on brain SPECT imaging of

pediatric age brain disorders, such as cerebral palsy and ADD/ADHD, is using

that imaging modality to follow the course of various therapies,

particularly Hyperbaric Oxygen Therapy and Biofeedback Therapy.

August 29, 2006

I suspect that Dr Uszler was doing HBOT before he had anything to do with

BrainMatters. Dr Goldberg is against using HBOT for patients, but I

don't think he is against the procedure for appropriate conditions.

Dr Uszler, Brain SPECT and HBOT

ok - would someone like to explain why Dr Uszler is using

HBOT? Dr Uszler is connected to Brain Matters Inc

which of course is connected to Dr Goldberg.

Dr Goldberg is still against HBOT, yes?

Just trying to clarify a few things ...

Doris

land

Autism One Radio Schedule Sept 1-10 Dr. Uszler, Brain SPECT Imaging Sept 5

A Worldwide, Internet-Based Radio Station for the Care, Treatment, and

Recovery of All Children with Autism

http://www.autismone.org/radio

Tues, Sept 5 10:30am11:30 Teri Small: Autism: Help, Hope, and

Healing. Guest: J. Uszler, MD, Medical Director at Santa

Imaging & Therapy Associates, with emphasis on brain SPECT imaging of

pediatric age brain disorders, such as cerebral palsy and ADD/ADHD, is using

that imaging modality to follow the course of various therapies,

particularly Hyperbaric Oxygen Therapy and Biofeedback Therapy.

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August 29, 2006

I just want to say not to measure the success of something by the acceptance or

reaction of other professionals. I have 4 children two have albinism (albino)

and one of those have autism as well. I took my oldest for a surgical procedure

that many professionals called " experimental. " The procedure that my son had

was called Tenotomy and it was to dampen his nystagmus. This is a 4 muscle

procedure that has been around for 7 years and the 2 muscle versions has been

around for 30 years. I have never met a person who had either the 2 muscle or

the 4 muscle procedure that did not indicate that it was the best thing that

they had ever done. We moved forward with our oldest as he was 12 and we told

him the risks and benefits and allowed him to make the decision. He choose to

have the operation and the results were amazing. His acuity has improved from

20/140 to 20/70 and when he is 16 he will be legal to drive in the state of NY.

Once Zack healed he told me to schedule

his sisters surgery ASAP because the results were amazing. We did and within

days of surgery our daughter began to run, and do many things that she had never

done before. It was the greatest thing in the world for them but if you ask 100

doctor's for a referral to have this done 97 of them will tell you that they

will not provide one. Kind of makes me wonder? I keep my eyes and ears open

for new advancements in any area that could help my children, I keep an open

mind...maybe they are on to something and if so I want to learn all that I can

so that I can make an educated decisions not a narrowmineded one. (I am not

calling anyone here narrow minded I am referring to all of those who just say

that something does not work without learning all they can about it) Not every

treatment is for everyone but let me learn about all of them. Sheri

---------------------------------

Get your email and more, right on the new .com

August 29, 2006

Sheri: What a wonderful story about your son! Sometimes God puts us in the right

place at the right time. I feel that way about the day I saw Dr G on C-Span, I

never have it on that channel, but I really believe that was God putting me in

that place so I was able to see, this was the pathway to treatment.

Sheri <eszbi5@...> wrote:

I just want to say not to measure the success of something by the

acceptance or reaction of other professionals. I have 4 children two have

albinism (albino) and one of those have autism as well. I took my oldest for a

surgical procedure that many professionals called " experimental. " The procedure

that my son had was called Tenotomy and it was to dampen his nystagmus. This is

a 4 muscle procedure that has been around for 7 years and the 2 muscle versions

has been around for 30 years. I have never met a person who had either the 2

muscle or the 4 muscle procedure that did not indicate that it was the best

thing that they had ever done. We moved forward with our oldest as he was 12 and

we told him the risks and benefits and allowed him to make the decision. He

choose to have the operation and the results were amazing. His acuity has

improved from 20/140 to 20/70 and when he is 16 he will be legal to drive in the

state of NY. Once Zack healed he told me to schedule

his sisters surgery ASAP because the results were amazing. We did and within

days of surgery our daughter began to run, and do many things that she had never

done before. It was the greatest thing in the world for them but if you ask 100

doctor's for a referral to have this done 97 of them will tell you that they

will not provide one. Kind of makes me wonder? I keep my eyes and ears open for

new advancements in any area that could help my children, I keep an open

mind...maybe they are on to something and if so I want to learn all that I can

so that I can make an educated decisions not a narrowmineded one. (I am not

calling anyone here narrow minded I am referring to all of those who just say

that something does not work without learning all they can about it) Not every

treatment is for everyone but let me learn about all of them. Sheri

---------------------------------

Get your email and more, right on the new .com

August 29, 2006

I can't agree more. I attended the NOAH (National Organization of Albinism and

Hypopigmentation) this summer. I was asked to be a presenter for a couple

panels. One was an ask the parents panel where I was asked about a million

questions about how we helped our son be so " normal " socially and a million more

about his progress visually. I was also asked to do a presentation on adopting

a child who has albinism as I have advocated for children with albinism on

adoption lists for years. I believe that at that conference God put me in the

right place at the right time as children with albinism are no longer waiting

forever for their families because many families have stepped forward to adopt

these children and the other wonderful thing is that literally more than 100

children and adults who have albinism are going to see the doctor who did Zack's

surgery and they are going to have the Tenotomy procedure as well. I have been

told that many are scheduled and they are

booking up though next year. When I told Zack (my son) about all the parents

that had contacted me and told me that their children were going to have the

surgery Zack's eyes began to tear. He told me that they were all going to be so

glad that they did this because they are all going to see so much better. I

feel good when I think about the lives that my son has touched by go in ahead

with the surgery. I followed the work of Dr. Hertle closely for more than 2

years before telling Zack about the possibility and he thought about it for

about 3 months before asking me to call the doctor and he had the life changing

procedure about 5 months later.

When I think back to Zack's birth when I was told that he was totally blind

except for light and dark, he was probably deaf, and he had albinism and I fast

forward to the young man that he has become in spite of all his obstacles I know

that there is hope for my gorgeous daughter and it is my job to help her find

her way. That is all that any of us want for our children isn't it? They just

need to find their way. Sheri

catherine quinn <quinn.cat1968@...> wrote:

Sheri: What a wonderful story about your son! Sometimes God puts us in

the right place at the right time. I feel that way about the day I saw Dr G on

C-Span, I never have it on that channel, but I really believe that was God

putting me in that place so I was able to see, this was the pathway to

treatment.

Sheri <eszbi5@...> wrote:

I just want to say not to measure the success of something by the acceptance or

reaction of other professionals. I have 4 children two have albinism (albino)

and one of those have autism as well. I took my oldest for a surgical procedure

that many professionals called " experimental. " The procedure that my son had was

called Tenotomy and it was to dampen his nystagmus. This is a 4 muscle procedure

that has been around for 7 years and the 2 muscle versions has been around for

30 years. I have never met a person who had either the 2 muscle or the 4 muscle

procedure that did not indicate that it was the best thing that they had ever

done. We moved forward with our oldest as he was 12 and we told him the risks

and benefits and allowed him to make the decision. He choose to have the

operation and the results were amazing. His acuity has improved from 20/140 to

20/70 and when he is 16 he will be legal to drive in the state of NY. Once Zack

healed he told me to schedule