Guest guest Posted August 26, 2006 Report Share Posted August 26, 2006 Yeah I am washing off the blue coating and everything. I give my son Primadaphilous (acidophilous). Also Dr G did say we would start an anti fungal in a month...end of September. I am concerned because other parents have stated (in other groups mind you) that really an anti fungal is necessary at the same time as doing Valtrex. BTW your post below about HHV-6...1:320 represents " 4 fold rise in titers are suggestive of either recent, primary or reactivated infection. The presence of elevated titers to HHV6 in the absence of responses to HAV, HBV, CMV and EBV suggest that titer results are associated with high specificity. " According to hhv-6foundation.org " IN CSF patients, 89% of patients with IgG titers of 1:320 and above were found to have active infections by culture. " This is what I have discovered thus far. I am glad we decided to just do it. Dr G says we are doing a trial to see what changes we see and decide whether or not to continue. I think he is being pretty patient with me and understanding too. Also with our ped neurologist we decided last week to stop the anti convulsant and Dr G was of course happy about this. We will in the upcoming months do a video 3-4 day EEG at UC Irvine or CHOC in Orange and my personal hope is that the slowing that has shown on two EEG's will no longer be present...whether our not the neurologist attributes this to Valtrex that's another story. I definitely would though!!! Would love it too if the " spikes " on the EEG are gone altogether.Here's hoping for good things. Kristie Aidan 3.2 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.