Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 , Thank you for your input...she's 19 years old..so she's not really " young. " I've actually done a cryptopyrrole test on her that just came back elevated, so we've begun some high dose b-6/ zinc as well as a potent multi vitamin which seems to be working..she's really calming down. However, the psychosomatic part of it..her fear of having another attacks, is still pretty strong.. I'm looking for a medication that she doesn't have to take daily, that perhaps she could take when needed. I'm not really a big fan of meds, especially not SSRIs..(sorry). Thanks for the response! Vicki Hi Vicki - I can't help w/anxiety meds ... she's pretty young? Perhaps combo of low dose SSRI and Tenex would work well together.... Then, possibly looking into strep (aso titer), mycoplasma pneum., and checking NK cells... maybe those would be helpful to see if there's an underlying issue triggering the panic attacks. There very likely would be something going on for panic attacks to be happening...h HTH- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Hi Vicki - I can't help w/anxiety meds ... she's pretty young? Perhaps combo of low dose SSRI and Tenex would work well together.... Then, possibly looking into strep (aso titer), mycoplasma pneum., and checking NK cells... maybe those would be helpful to see if there's an underlying issue triggering the panic attacks. There very likely would be something going on for panic attacks to be happening.... HTH- --- vickiandwes@... wrote: > Hey all! > I need some help for my NT daughter. She's been > having panic > attacks...etc..and we may want to try some > medication. Her body chemistry is VERY similar to > her ASD brother..so I thought I'd ask all of you for > your input.. > Thanks in advance, > Vicki > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Have a burning question? Go to www.Answers. and get answers from real people who know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Hi Vicki - I can understand the aversion to the SSRIs. At 19 was probably when I peaked in anxiety - I can certainly relate to the fear of it coming back. Perhaps the most important thing she could learn to focus on and devote herself to at this age is yoga. If she can learn to utilize it and recognize it's benefit, it will carry her through life. I've also read that - as yoga apparently benefites the lymph system - that doing yoga can be like getting a dose of gammaglobulin. Don't know if this is true but the health benefits have always been accepted. And the calming benefit can't be underestimated either.... HTH- --- vickiandwes@... wrote: > > , > Thank you for your input...she's 19 years old..so > she's not really " young. " > I've actually done a cryptopyrrole test on her that > just came back elevated, > so we've begun some high dose b-6/ zinc as well as > a potent multi vitamin > which seems to be working..she's really calming > down. However, the psychosomatic > part of it..her fear of having another attacks, is > still pretty strong.. I'm > looking for a medication that she doesn't have to > take daily, that perhaps > she could take when needed. I'm not really a big > fan of meds, especially not > SSRIs..(sorry). > Thanks for the response! > Vicki > ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Hi, Vicki, Having had anxiety attacks myself, I can attest to the benefit of ssris, for at least 6 mos. until the brain gets back " in order. " It really helped me on a couple of occasions. Barb --- <thecolemans4@...> wrote: > Hi Vicki - > > I can understand the aversion to the SSRIs. At 19 > was > probably when I peaked in anxiety - I can certainly > relate to the fear of it coming back. Perhaps the > most important thing she could learn to focus on and > devote herself to at this age is yoga. If she can > learn to utilize it and recognize it's benefit, it > will carry her through life. > > I've also read that - as yoga apparently benefites > the > lymph system - that doing yoga can be like getting a > dose of gammaglobulin. Don't know if this is true > but > the health benefits have always been accepted. And > the calming benefit can't be underestimated > either.... > > HTH- > > > --- vickiandwes@... wrote: > > > > > , > > Thank you for your input...she's 19 years old..so > > she's not really " young. " > > I've actually done a cryptopyrrole test on her > that > > just came back elevated, > > so we've begun some high dose b-6/ zinc as well > as > > a potent multi vitamin > > which seems to be working..she's really calming > > down. However, the psychosomatic > > part of it..her fear of having another attacks, > is > > still pretty strong.. I'm > > looking for a medication that she doesn't have to > > take daily, that perhaps > > she could take when needed. I'm not really a big > > fan of meds, especially not > > SSRIs..(sorry). > > Thanks for the response! > > Vicki > > > > > > ________________________________________________________________________________\ ____ > Want to start your own business? > Learn how on Small Business. > http://smallbusiness./r-index > Barb Katsaros barbkatsaros@... ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Kristy, Thank you for the diet info. My daughter just got her allergy test back...and out of 50 foods, she's allergic to 38..Some are extremely high!! We did some other testing and are seeing our DAN! doctor tomorrow. We use him for all our family members, not just our ASD child.. She also used to be a very dedicated " gym " person..not so much lately. Maybe I need to push that issue too!! Thanks to all of you for all your wise advice, I'll keep you posted, Vicki I think diet, too, is very important. At 19 I was an emotional mess, then a dr. asked me about my diet (was I lucky or what?). At the time, I lived mainly on diet coke and simple carbs - no wonder I was a mess! I took out all white sugar (no sugar except a little honey now and then), caffeine and white flour and added in lots of lean protein and veggies and it made an amazing difference. I also started getting B vitamin shots (not the same kind Dr. Neubrander recommends). Wow! I was always an exerciser - it is essential to my well-being to exercise. I have never taken any kind of mood altering drugs and don't need to even think about them if I eat well, watch stress levels, and exercise. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 I think diet, too, is very important. At 19 I was an emotional mess, then a dr. asked me about my diet (was I lucky or what?). At the time, I lived mainly on diet coke and simple carbs - no wonder I was a mess! I took out all white sugar (no sugar except a little honey now and then), caffeine and white flour and added in lots of lean protein and veggies and it made an amazing difference. I also started getting B vitamin shots (not the same kind Dr. Neubrander recommends). Wow! I was always an exerciser - it is essential to my well-being to exercise. I have never taken any kind of mood altering drugs and don't need to even think about them if I eat well, watch stress levels, and exercise. Kristy Re: anti anxiety meds? Hi Vicki - I can understand the aversion to the SSRIs. At 19 was probably when I peaked in anxiety - I can certainly relate to the fear of it coming back. Perhaps the most important thing she could learn to focus on and devote herself to at this age is yoga. If she can learn to utilize it and recognize it's benefit, it will carry her through life. I've also read that - as yoga apparently benefites the lymph system - that doing yoga can be like getting a dose of gammaglobulin. Don't know if this is true but the health benefits have always been accepted. And the calming benefit can't be underestimated either.... HTH- --- vickiandwes@... wrote: > > , > Thank you for your input...she's 19 years old..so > she's not really " young. " > I've actually done a cryptopyrrole test on her that > just came back elevated, > so we've begun some high dose b-6/ zinc as well as > a potent multi vitamin > which seems to be working..she's really calming > down. However, the psychosomatic > part of it..her fear of having another attacks, is > still pretty strong.. I'm > looking for a medication that she doesn't have to > take daily, that perhaps > she could take when needed. I'm not really a big > fan of meds, especially not > SSRIs..(sorry). > Thanks for the response! > Vicki > __________________________________________________________ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Vicki, Good luck with everything. I just emailed some additional info to you. Kristy Re: anti anxiety meds? Kristy, Thank you for the diet info. My daughter just got her allergy test back...and out of 50 foods, she's allergic to 38..Some are extremely high!! We did some other testing and are seeing our DAN! doctor tomorrow. We use him for all our family members, not just our ASD child.. She also used to be a very dedicated " gym " person..not so much lately. Maybe I need to push that issue too!! Thanks to all of you for all your wise advice, I'll keep you posted, Vicki I think diet, too, is very important. At 19 I was an emotional mess, then a dr. asked me about my diet (was I lucky or what?). At the time, I lived mainly on diet coke and simple carbs - no wonder I was a mess! I took out all white sugar (no sugar except a little honey now and then), caffeine and white flour and added in lots of lean protein and veggies and it made an amazing difference. I also started getting B vitamin shots (not the same kind Dr. Neubrander recommends). Wow! I was always an exerciser - it is essential to my well-being to exercise. I have never taken any kind of mood altering drugs and don't need to even think about them if I eat well, watch stress levels, and exercise. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Hi Vicki - If you get overwhelmed over the # of allergy foods listed, take heart... it doesn't always mean you have to remove all foods in the beginning... Dr G said that that test shows the level of activation against foods, but in some kids, he starts out with the do's and don'ts of diet, tracks eosiniphils, and in some cases, even highly activated systems can cool down w/out pulling out each and every food listed on the panel. A lot do end up getting stricter, but that isn't always the case. Treating other issues, especially yeast and getting good flora established, can go a long way towards addressing the activation against foods. So if you're like me and have a complete meltdown over foods (I mean that is just the most stressful issue in the world for me!), that report may not be the end all of each and every food. Some may dispute that, and I do know there are kids out there that Dr G pulls just about everything from their diet, but I do believe other factors (especially eos's) are involved when he does that. HTH- --- vickiandwes@... wrote: > > Kristy, > Thank you for the diet info. My daughter just got > her allergy test > back...and out of 50 foods, she's allergic to > 38..Some are extremely high!! > Vicki > ________________________________________________________________________________\ ____ Need a quick answer? Get one in minutes from people who know. Ask your question on www.Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Wow I can so relate - I was a soda/carb addict too. On top of that, I interpret hunger as anxiety. Even now that I've experienced the connection, I still get confused and don't realize I'm hungry. Salami and high fat proteins have made the world of difference for me. I wish I could exercise again. I'm trying to add 5 mins of aerobic exercise at a time, but w/CFIDS, it makes me feel worse still rather than better, but the 5 min blocks seem to be doing alright so far. I'm currently mis-wired, and in the past, the more I exercise, like if I did jazzercise or other classes (I'm a huge believer) the worse I felt by the week. But I could dance at home for an hour and feel fabulous. And weight lifting always feels great, as does yoga. Nothing like a good chemical boost than dancing for an hour! --- Kristy Nardini <krnardini@...> wrote: > I think diet, too, is very important. At 19 I was an > emotional mess, then a > dr. asked me about my diet (was I lucky or what?). > At the time, I lived > mainly on diet coke and simple carbs - no wonder I > was a mess! I took out > all white sugar (no sugar except a little honey now > and then), caffeine and > white flour and added in lots of lean protein and > veggies and it made an > amazing difference. I also started getting B vitamin > shots (not the same > kind Dr. Neubrander recommends). Wow! I was always > an exerciser - it is > essential to my well-being to exercise. I have never > taken any kind of mood > altering drugs and don't need to even think about > them if I eat well, watch > stress levels, and exercise. > > Kristy > ________________________________________________________________________________\ ____ Any questions? Get answers on any topic at www.Answers.. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Someone might have recommended it, but I was thinking of suggesting Buspar for anxiety... It is supposed to be highly effective, doesn't develope a tolerance, and supposed to be very well tolerated... nothing quite like it. I've been on it before. > > Vicki, > > Good luck with everything. I just emailed some additional info to you. > > Kristy > Re: anti anxiety meds? > > > > Kristy, > Thank you for the diet info. My daughter just got her allergy test > back...and out of 50 foods, she's allergic to 38..Some are extremely > high!! We did > some other testing and are seeing our DAN! doctor tomorrow. We use him for > all > our family members, not just our ASD child.. > She also used to be a very dedicated " gym " person..not so much lately. > Maybe > I need to push that issue too!! > Thanks to all of you for all your wise advice, I'll keep you posted, > Vicki > > I think diet, too, is very important. At 19 I was an emotional mess, then > a > dr. asked me about my diet (was I lucky or what?). At the time, I lived > mainly on diet coke and simple carbs - no wonder I was a mess! I took out > all white sugar (no sugar except a little honey now and then), caffeine > and > white flour and added in lots of lean protein and veggies and it made an > amazing difference. I also started getting B vitamin shots (not the same > kind Dr. Neubrander recommends). Wow! I was always an exerciser - it is > essential to my well-being to exercise. I have never taken any kind of > mood > altering drugs and don't need to even think about them if I eat well, > watch > stress levels, and exercise. > > Kristy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 , Can you do pilates? Kristy RE: anti anxiety meds? Wow I can so relate - I was a soda/carb addict too. On top of that, I interpret hunger as anxiety. Even now that I've experienced the connection, I still get confused and don't realize I'm hungry. Salami and high fat proteins have made the world of difference for me. I wish I could exercise again. I'm trying to add 5 mins of aerobic exercise at a time, but w/CFIDS, it makes me feel worse still rather than better, but the 5 min blocks seem to be doing alright so far. I'm currently mis-wired, and in the past, the more I exercise, like if I did jazzercise or other classes (I'm a huge believer) the worse I felt by the week. But I could dance at home for an hour and feel fabulous. And weight lifting always feels great, as does yoga. Nothing like a good chemical boost than dancing for an hour! --- Kristy Nardini <krnardini@...> wrote: > I think diet, too, is very important. At 19 I was an > emotional mess, then a > dr. asked me about my diet (was I lucky or what?). > At the time, I lived > mainly on diet coke and simple carbs - no wonder I > was a mess! I took out > all white sugar (no sugar except a little honey now > and then), caffeine and > white flour and added in lots of lean protein and > veggies and it made an > amazing difference. I also started getting B vitamin > shots (not the same > kind Dr. Neubrander recommends). Wow! I was always > an exerciser - it is > essential to my well-being to exercise. I have never > taken any kind of mood > altering drugs and don't need to even think about > them if I eat well, watch > stress levels, and exercise. > > Kristy > __________________________________________________________ Any questions? Get answers on any topic at www.Answers.. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 Buspar works only if the anxiety is caused by the neurotransmitter that it effects. It does not work for anxiety that results from other neurotransmitter imbalances. on RN NNY Autism Clinic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 , Kristy, et al, Thank you all for your insight. We went to the doctor on friday, and talked to him in depth. He's a DAN! doctor didn't really support the use of SSRI's in this case. He actually prescribed propranolol in very low doses. We also do emotional work called EFT, which has really helped as well. I never have believed in a " one avenue " approach.. I'm a mind/body/spirit type supporter. The propranolol is working wonderfully...she feels that with this complete approach, she's finally feeling empowered to get to the other side of this..and hopefully see a light at the end of this tunnel. Yoga: That was so ironic you should mention this. She took a class at the local college this summer..and it was her favorite class by far. She spoke daily about how much she loved it. Unfortunately, the class ended and because she's leaving for Australia in two weeks, there wasn't time to sign up for another class. She'll be gone for 6 months..and we're both thinking that when she gets home we can both sign up together for classes. Diet: Again, interesting subject matter in our home. Our family has been " diet focused " for over 12 years, as my ASD son is now 15 and has been gf/cf almost since diagnoses. We are healthy eaters, nothing junky here..but she IS 19 and doesn't always eat at home..When her allergy tests came in much worse than any I've seen, I knew we'd hit on another marker. She's still mentally processing this extensive list of foods...but has been put on VSL3- a very high dose probiotic..and if she stays away from anything over a +2 or 3, she should start reducing her load.. Thank you so much for all your input..I really appreciate it. Vicki Hi Vicki - I can understand the aversion to the SSRIs. At 19 was probably when I peaked in anxiety - I can certainly relate to the fear of it coming back. Perhaps the most important thing she could learn to focus on and devote herself to at this age is yoga. If she can learn to utilize it and recognize it's benefit, it will carry her through life. I've also read that - as yoga apparently benefits the lymph system - that doing yoga can be like getting a dose of gammaglobulin. Don't know if this is true but the health benefits have always been accepted. And the calming benefit can't be underestimated either.... HTH- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 Hi Vicki- Great gift idea! Yoga books and videos. Re diet and healthy eating: the more I tried to " eat healthy " , the un-healthier (lol) I would get. I was so reactive to whole grains, nuts, citrus, and other highly nutritious foods that to eat them made me much sicker and far more anxious. Sigh. You think you're doing something good for yourself. Watch out for that probiotic. If she finds an increase in anxiety or ocd, she may want to try an easier one. Not saying that will happen, but I can have really bad reactions to quite a few different kinds of probiotics, and it took a long time to realize what was happening. I may have mentioned - sometimes the foods that show up on the immune panel don't have to be completely restricted, that sometimes following the low-allergy diet allows cooling, and limiting and rotating lower range foods can be helpful. Also, tracking eosiniphils (on the CBC w/differential) can help determine how successful her diet restricting is - you want them to be under 1.5%. That's a little known test that can really help track success and progress and could potentially take some of the anxiety out of diet restricting if you see it doing well. If she can no longer find foods to eat, she may want to check out the group GFCFNN - it's a gluten casein free website that follows Nourishing Traditions style eating and in my opinion a far better type of diet changing than trying to figure out how to duplicate the american diet. Nourishing Traditions is an awesome cookbook - by Sally Fallon. I don't follow everything on the site, and really prefer the book alone except for getting recipes, as the topics aren't always related, but I get a great deal of ideas and have added foods to my diet that have definitely increased my joy in eating - something I've always had issues with. There's a lot more wonderful food to eat than what we typically think of in America. Before I found this book and site, I had a lot of anxiety from trying to read GFCF diets and all the other " bad food " things I read about, and this book literally 'set my head on straight' and helped me get over my fear of food and embrace eating again. I find I have to eat very high fat foods to function, and also found certain types of sorta fermented foods really benefit me. A lot of foods I thrive on (salami, bacon, dried meats, acid-cooked raw meats, etc), I would never eat from fear of preservatives and nitrates, etc, and once I understood a few things and started eating them anyway, I have had a definite upswing! (Not that everyone should go on that type of diet, but since I can't consume enough calories to function due to eating issues, I have to choose nutrient/energy dense foods to make it.) I also have some staple roasted veggies I eat almost every day (and vary them up) that are delicious and I always feel much better when I eat them too. Gosh it's just a wonderful book and I could never recommend anything about food more. Everything else has always left me feeling stressed and anxious, and I've searched for eating answers all of my life. HTH- --- vickiandwes@... wrote: > Yoga: That was so ironic you should mention this. > She took a class at the > local college this summer..and it was her favorite > class by far. She spoke daily > about how much she loved it. Unfortunately, the > class ended and because > she's leaving for Australia in two weeks, there > wasn't time to sign up for > another class. >> > Diet: Again, interesting subject matter in our home. > Our family has been > " diet focused " for over 12 years, as my ASD son is > now 15 and has been gf/cf > almost since diagnoses. We are healthy eaters, > nothing junky here..but she IS > 19 and doesn't always eat at home..When her allergy > tests came in much worse > than any I've seen, I knew we'd hit on another > marker. > She's still mentally processing this extensive list > of foods...but has been > put on VSL3- a very high dose probiotic..and if she > stays away from anything > over a +2 or 3, she should start reducing her load.. > Thank you so much for all your input..I really > appreciate it. > Vicki > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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