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,

Thank you for your input...she's 19 years old..so she's not really " young. "

I've actually done a cryptopyrrole test on her that just came back elevated,

so we've begun some high dose b-6/ zinc as well as a potent multi vitamin

which seems to be working..she's really calming down. However, the

psychosomatic

part of it..her fear of having another attacks, is still pretty strong.. I'm

looking for a medication that she doesn't have to take daily, that perhaps

she could take when needed. I'm not really a big fan of meds, especially not

SSRIs..(sorry).

Thanks for the response!

Vicki

Hi Vicki -

I can't help w/anxiety meds ... she's pretty young?

Perhaps combo of low dose SSRI and Tenex would work

well together....

Then, possibly looking into strep (aso titer),

mycoplasma pneum., and checking NK cells... maybe

those would be helpful to see if there's an underlying

issue triggering the panic attacks. There very likely

would be something going on for panic attacks to be

happening...h

HTH-

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Hi Vicki -

I can't help w/anxiety meds ... she's pretty young?

Perhaps combo of low dose SSRI and Tenex would work

well together....

Then, possibly looking into strep (aso titer),

mycoplasma pneum., and checking NK cells... maybe

those would be helpful to see if there's an underlying

issue triggering the panic attacks. There very likely

would be something going on for panic attacks to be

happening....

HTH-

--- vickiandwes@... wrote:

> Hey all!

> I need some help for my NT daughter. She's been

> having panic

> attacks...etc..and we may want to try some

> medication. Her body chemistry is VERY similar to

> her ASD brother..so I thought I'd ask all of you for

> your input..

> Thanks in advance,

> Vicki

>

>

> [Non-text portions of this message have been

> removed]

>

>

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Hi Vicki -

I can understand the aversion to the SSRIs. At 19 was

probably when I peaked in anxiety - I can certainly

relate to the fear of it coming back. Perhaps the

most important thing she could learn to focus on and

devote herself to at this age is yoga. If she can

learn to utilize it and recognize it's benefit, it

will carry her through life.

I've also read that - as yoga apparently benefites the

lymph system - that doing yoga can be like getting a

dose of gammaglobulin. Don't know if this is true but

the health benefits have always been accepted. And

the calming benefit can't be underestimated either....

HTH-

--- vickiandwes@... wrote:

>

> ,

> Thank you for your input...she's 19 years old..so

> she's not really " young. "

> I've actually done a cryptopyrrole test on her that

> just came back elevated,

> so we've begun some high dose b-6/ zinc as well as

> a potent multi vitamin

> which seems to be working..she's really calming

> down. However, the psychosomatic

> part of it..her fear of having another attacks, is

> still pretty strong.. I'm

> looking for a medication that she doesn't have to

> take daily, that perhaps

> she could take when needed. I'm not really a big

> fan of meds, especially not

> SSRIs..(sorry).

> Thanks for the response!

> Vicki

>

________________________________________________________________________________\

____

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http://smallbusiness./r-index

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Hi, Vicki,

Having had anxiety attacks myself, I can attest to the

benefit of ssris, for at least 6 mos. until the brain

gets back " in order. " It really helped me on a couple

of occasions. Barb

--- <thecolemans4@...> wrote:

> Hi Vicki -

>

> I can understand the aversion to the SSRIs. At 19

> was

> probably when I peaked in anxiety - I can certainly

> relate to the fear of it coming back. Perhaps the

> most important thing she could learn to focus on and

> devote herself to at this age is yoga. If she can

> learn to utilize it and recognize it's benefit, it

> will carry her through life.

>

> I've also read that - as yoga apparently benefites

> the

> lymph system - that doing yoga can be like getting a

> dose of gammaglobulin. Don't know if this is true

> but

> the health benefits have always been accepted. And

> the calming benefit can't be underestimated

> either....

>

> HTH-

>

>

> --- vickiandwes@... wrote:

>

> >

> > ,

> > Thank you for your input...she's 19 years old..so

> > she's not really " young. "

> > I've actually done a cryptopyrrole test on her

> that

> > just came back elevated,

> > so we've begun some high dose b-6/ zinc as well

> as

> > a potent multi vitamin

> > which seems to be working..she's really calming

> > down. However, the psychosomatic

> > part of it..her fear of having another attacks,

> is

> > still pretty strong.. I'm

> > looking for a medication that she doesn't have to

> > take daily, that perhaps

> > she could take when needed. I'm not really a big

> > fan of meds, especially not

> > SSRIs..(sorry).

> > Thanks for the response!

> > Vicki

> >

>

>

>

>

________________________________________________________________________________\

____

> Want to start your own business?

> Learn how on Small Business.

> http://smallbusiness./r-index

>

Barb Katsaros

barbkatsaros@...

________________________________________________________________________________\

____

Want to start your own business?

Learn how on Small Business.

http://smallbusiness./r-index

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Kristy,

Thank you for the diet info. My daughter just got her allergy test

back...and out of 50 foods, she's allergic to 38..Some are extremely high!! We

did

some other testing and are seeing our DAN! doctor tomorrow. We use him for all

our family members, not just our ASD child..

She also used to be a very dedicated " gym " person..not so much lately. Maybe

I need to push that issue too!!

Thanks to all of you for all your wise advice, I'll keep you posted,

Vicki

I think diet, too, is very important. At 19 I was an emotional mess, then a

dr. asked me about my diet (was I lucky or what?). At the time, I lived

mainly on diet coke and simple carbs - no wonder I was a mess! I took out

all white sugar (no sugar except a little honey now and then), caffeine and

white flour and added in lots of lean protein and veggies and it made an

amazing difference. I also started getting B vitamin shots (not the same

kind Dr. Neubrander recommends). Wow! I was always an exerciser - it is

essential to my well-being to exercise. I have never taken any kind of mood

altering drugs and don't need to even think about them if I eat well, watch

stress levels, and exercise.

Kristy

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I think diet, too, is very important. At 19 I was an emotional mess, then a

dr. asked me about my diet (was I lucky or what?). At the time, I lived

mainly on diet coke and simple carbs - no wonder I was a mess! I took out

all white sugar (no sugar except a little honey now and then), caffeine and

white flour and added in lots of lean protein and veggies and it made an

amazing difference. I also started getting B vitamin shots (not the same

kind Dr. Neubrander recommends). Wow! I was always an exerciser - it is

essential to my well-being to exercise. I have never taken any kind of mood

altering drugs and don't need to even think about them if I eat well, watch

stress levels, and exercise.

Kristy

Re: anti anxiety meds?

Hi Vicki -

I can understand the aversion to the SSRIs. At 19 was

probably when I peaked in anxiety - I can certainly

relate to the fear of it coming back. Perhaps the

most important thing she could learn to focus on and

devote herself to at this age is yoga. If she can

learn to utilize it and recognize it's benefit, it

will carry her through life.

I've also read that - as yoga apparently benefites the

lymph system - that doing yoga can be like getting a

dose of gammaglobulin. Don't know if this is true but

the health benefits have always been accepted. And

the calming benefit can't be underestimated either....

HTH-

--- vickiandwes@... wrote:

>

> ,

> Thank you for your input...she's 19 years old..so

> she's not really " young. "

> I've actually done a cryptopyrrole test on her that

> just came back elevated,

> so we've begun some high dose b-6/ zinc as well as

> a potent multi vitamin

> which seems to be working..she's really calming

> down. However, the psychosomatic

> part of it..her fear of having another attacks, is

> still pretty strong.. I'm

> looking for a medication that she doesn't have to

> take daily, that perhaps

> she could take when needed. I'm not really a big

> fan of meds, especially not

> SSRIs..(sorry).

> Thanks for the response!

> Vicki

>

__________________________________________________________

Want to start your own business?

Learn how on Small Business.

http://smallbusiness./r-index

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Vicki,

Good luck with everything. I just emailed some additional info to you.

Kristy

Re: anti anxiety meds?

Kristy,

Thank you for the diet info. My daughter just got her allergy test

back...and out of 50 foods, she's allergic to 38..Some are extremely

high!! We did

some other testing and are seeing our DAN! doctor tomorrow. We use him for

all

our family members, not just our ASD child..

She also used to be a very dedicated " gym " person..not so much lately.

Maybe

I need to push that issue too!!

Thanks to all of you for all your wise advice, I'll keep you posted,

Vicki

I think diet, too, is very important. At 19 I was an emotional mess, then

a

dr. asked me about my diet (was I lucky or what?). At the time, I lived

mainly on diet coke and simple carbs - no wonder I was a mess! I took out

all white sugar (no sugar except a little honey now and then), caffeine

and

white flour and added in lots of lean protein and veggies and it made an

amazing difference. I also started getting B vitamin shots (not the same

kind Dr. Neubrander recommends). Wow! I was always an exerciser - it is

essential to my well-being to exercise. I have never taken any kind of

mood

altering drugs and don't need to even think about them if I eat well,

watch

stress levels, and exercise.

Kristy

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Hi Vicki -

If you get overwhelmed over the # of allergy foods

listed, take heart... it doesn't always mean you have

to remove all foods in the beginning... Dr G said that

that test shows the level of activation against foods,

but in some kids, he starts out with the do's and

don'ts of diet, tracks eosiniphils, and in some cases,

even highly activated systems can cool down w/out

pulling out each and every food listed on the panel.

A lot do end up getting stricter, but that isn't

always the case.

Treating other issues, especially yeast and getting

good flora established, can go a long way towards

addressing the activation against foods. So if you're

like me and have a complete meltdown over foods (I

mean that is just the most stressful issue in the

world for me!), that report may not be the end all of

each and every food. Some may dispute that, and I do

know there are kids out there that Dr G pulls just

about everything from their diet, but I do believe

other factors (especially eos's) are involved when he

does that.

HTH-

--- vickiandwes@... wrote:

>

> Kristy,

> Thank you for the diet info. My daughter just got

> her allergy test

> back...and out of 50 foods, she's allergic to

> 38..Some are extremely high!! > Vicki

>

________________________________________________________________________________\

____

Need a quick answer? Get one in minutes from people who know.

Ask your question on www.Answers.

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Wow I can so relate - I was a soda/carb addict too.

On top of that, I interpret hunger as anxiety. Even

now that I've experienced the connection, I still get

confused and don't realize I'm hungry.

Salami and high fat proteins have made the world of

difference for me.

I wish I could exercise again. I'm trying to add 5

mins of aerobic exercise at a time, but w/CFIDS, it

makes me feel worse still rather than better, but the

5 min blocks seem to be doing alright so far. I'm

currently mis-wired, and in the past, the more I

exercise, like if I did jazzercise or other classes

(I'm a huge believer) the worse I felt by the week.

But I could dance at home for an hour and feel

fabulous. And weight lifting always feels great, as

does yoga. Nothing like a good chemical boost than

dancing for an hour! :)

--- Kristy Nardini <krnardini@...> wrote:

> I think diet, too, is very important. At 19 I was an

> emotional mess, then a

> dr. asked me about my diet (was I lucky or what?).

> At the time, I lived

> mainly on diet coke and simple carbs - no wonder I

> was a mess! I took out

> all white sugar (no sugar except a little honey now

> and then), caffeine and

> white flour and added in lots of lean protein and

> veggies and it made an

> amazing difference. I also started getting B vitamin

> shots (not the same

> kind Dr. Neubrander recommends). Wow! I was always

> an exerciser - it is

> essential to my well-being to exercise. I have never

> taken any kind of mood

> altering drugs and don't need to even think about

> them if I eat well, watch

> stress levels, and exercise.

>

> Kristy

>

________________________________________________________________________________\

____

Any questions? Get answers on any topic at www.Answers.. Try it now.

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Someone might have recommended it, but I was thinking of suggesting

Buspar for anxiety... It is supposed to be highly effective, doesn't

develope a tolerance, and supposed to be very well tolerated...

nothing quite like it.

I've been on it before.

>

> Vicki,

>

> Good luck with everything. I just emailed some additional info to you.

>

> Kristy

> Re: anti anxiety meds?

>

>

>

> Kristy,

> Thank you for the diet info. My daughter just got her allergy test

> back...and out of 50 foods, she's allergic to 38..Some are extremely

> high!! We did

> some other testing and are seeing our DAN! doctor tomorrow. We use

him for

> all

> our family members, not just our ASD child..

> She also used to be a very dedicated " gym " person..not so much lately.

> Maybe

> I need to push that issue too!!

> Thanks to all of you for all your wise advice, I'll keep you posted,

> Vicki

>

> I think diet, too, is very important. At 19 I was an emotional

mess, then

> a

> dr. asked me about my diet (was I lucky or what?). At the time, I

lived

> mainly on diet coke and simple carbs - no wonder I was a mess! I

took out

> all white sugar (no sugar except a little honey now and then),

caffeine

> and

> white flour and added in lots of lean protein and veggies and it

made an

> amazing difference. I also started getting B vitamin shots (not

the same

> kind Dr. Neubrander recommends). Wow! I was always an exerciser -

it is

> essential to my well-being to exercise. I have never taken any kind of

> mood

> altering drugs and don't need to even think about them if I eat well,

> watch

> stress levels, and exercise.

>

> Kristy

>

>

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,

Can you do pilates?

Kristy

RE: anti anxiety meds?

Wow I can so relate - I was a soda/carb addict too.

On top of that, I interpret hunger as anxiety. Even

now that I've experienced the connection, I still get

confused and don't realize I'm hungry.

Salami and high fat proteins have made the world of

difference for me.

I wish I could exercise again. I'm trying to add 5

mins of aerobic exercise at a time, but w/CFIDS, it

makes me feel worse still rather than better, but the

5 min blocks seem to be doing alright so far. I'm

currently mis-wired, and in the past, the more I

exercise, like if I did jazzercise or other classes

(I'm a huge believer) the worse I felt by the week.

But I could dance at home for an hour and feel

fabulous. And weight lifting always feels great, as

does yoga. Nothing like a good chemical boost than

dancing for an hour! :)

--- Kristy Nardini <krnardini@...> wrote:

> I think diet, too, is very important. At 19 I was an

> emotional mess, then a

> dr. asked me about my diet (was I lucky or what?).

> At the time, I lived

> mainly on diet coke and simple carbs - no wonder I

> was a mess! I took out

> all white sugar (no sugar except a little honey now

> and then), caffeine and

> white flour and added in lots of lean protein and

> veggies and it made an

> amazing difference. I also started getting B vitamin

> shots (not the same

> kind Dr. Neubrander recommends). Wow! I was always

> an exerciser - it is

> essential to my well-being to exercise. I have never

> taken any kind of mood

> altering drugs and don't need to even think about

> them if I eat well, watch

> stress levels, and exercise.

>

> Kristy

>

__________________________________________________________

Any questions? Get answers on any topic at www.Answers.. Try it

now.

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Buspar works only if the anxiety is caused by the neurotransmitter that it

effects. It does not work for anxiety that results from other neurotransmitter

imbalances.

on RN

NNY Autism Clinic

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, Kristy, et al,

Thank you all for your insight. We went to the doctor on friday, and talked

to him in depth. He's a DAN! doctor didn't really support the use of SSRI's

in this case. He actually prescribed propranolol in very low doses. We also

do emotional work called EFT, which has really helped as well. I never have

believed in a " one avenue " approach.. I'm a mind/body/spirit type supporter.

The propranolol is working wonderfully...she feels that with this complete

approach, she's finally feeling empowered to get to the other side of this..and

hopefully see a light at the end of this tunnel.

Yoga: That was so ironic you should mention this. She took a class at the

local college this summer..and it was her favorite class by far. She spoke daily

about how much she loved it. Unfortunately, the class ended and because

she's leaving for Australia in two weeks, there wasn't time to sign up for

another class. She'll be gone for 6 months..and we're both thinking that when

she

gets home we can both sign up together for classes.

Diet: Again, interesting subject matter in our home. Our family has been

" diet focused " for over 12 years, as my ASD son is now 15 and has been gf/cf

almost since diagnoses. We are healthy eaters, nothing junky here..but she IS

19 and doesn't always eat at home..When her allergy tests came in much worse

than any I've seen, I knew we'd hit on another marker.

She's still mentally processing this extensive list of foods...but has been

put on VSL3- a very high dose probiotic..and if she stays away from anything

over a +2 or 3, she should start reducing her load..

Thank you so much for all your input..I really appreciate it.

Vicki

Hi Vicki -

I can understand the aversion to the SSRIs. At 19 was

probably when I peaked in anxiety - I can certainly

relate to the fear of it coming back. Perhaps the

most important thing she could learn to focus on and

devote herself to at this age is yoga. If she can

learn to utilize it and recognize it's benefit, it

will carry her through life.

I've also read that - as yoga apparently benefits the

lymph system - that doing yoga can be like getting a

dose of gammaglobulin. Don't know if this is true but

the health benefits have always been accepted. And

the calming benefit can't be underestimated either....

HTH-

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Hi Vicki-

Great gift idea! Yoga books and videos. :)

Re diet and healthy eating: the more I tried to " eat

healthy " , the un-healthier (lol) I would get. I was

so reactive to whole grains, nuts, citrus, and other

highly nutritious foods that to eat them made me much

sicker and far more anxious. Sigh. You think you're

doing something good for yourself.

Watch out for that probiotic. If she finds an

increase in anxiety or ocd, she may want to try an

easier one. Not saying that will happen, but I can

have really bad reactions to quite a few different

kinds of probiotics, and it took a long time to

realize what was happening.

I may have mentioned - sometimes the foods that show

up on the immune panel don't have to be completely

restricted, that sometimes following the low-allergy

diet allows cooling, and limiting and rotating

lower range foods can be helpful. Also, tracking

eosiniphils (on the CBC w/differential) can help

determine how successful her diet restricting is - you

want them to be under 1.5%. That's a little known

test that can really help track success and progress

and could potentially take some of the anxiety out of

diet restricting if you see it doing well.

If she can no longer find foods to eat, she may want

to check out the group GFCFNN - it's a gluten

casein free website that follows Nourishing Traditions

style eating and in my opinion a far better type of

diet changing than trying to figure out how to

duplicate the american diet. Nourishing Traditions is

an awesome cookbook - by Sally Fallon. I don't follow

everything on the site, and really prefer the book

alone except for getting recipes, as the topics aren't

always related, but I get a great deal of ideas

and have added foods to my diet that have definitely

increased my joy in eating - something I've always had

issues with. There's a lot more wonderful food to eat

than what we typically think of in America. Before I

found this book and site, I had a lot of anxiety from

trying to read GFCF diets and all the other " bad food "

things I read about, and this book literally 'set my

head on straight' and helped me get over my fear of

food and embrace eating again. I find I have to eat

very high fat foods to function, and also found

certain types of sorta fermented foods really benefit

me. A lot of foods I thrive on (salami, bacon, dried

meats, acid-cooked raw meats, etc), I would never eat

from fear of preservatives and nitrates, etc, and once

I understood a few things and started eating them

anyway, I have had a definite upswing! (Not that

everyone should go on that type of diet, but since I

can't consume enough calories to function due to

eating issues, I have to choose nutrient/energy dense

foods to make it.) I also have some staple roasted

veggies I eat almost every day (and vary them up) that

are delicious and I always feel much better when I eat

them too. Gosh it's just a wonderful book and I could

never recommend anything about food more. Everything

else has always left me feeling stressed and anxious,

and I've searched for eating answers all of my life.

HTH-

--- vickiandwes@... wrote:

> Yoga: That was so ironic you should mention this.

> She took a class at the

> local college this summer..and it was her favorite

> class by far. She spoke daily

> about how much she loved it. Unfortunately, the

> class ended and because

> she's leaving for Australia in two weeks, there

> wasn't time to sign up for

> another class.

>>

> Diet: Again, interesting subject matter in our home.

> Our family has been

> " diet focused " for over 12 years, as my ASD son is

> now 15 and has been gf/cf

> almost since diagnoses. We are healthy eaters,

> nothing junky here..but she IS

> 19 and doesn't always eat at home..When her allergy

> tests came in much worse

> than any I've seen, I knew we'd hit on another

> marker.

> She's still mentally processing this extensive list

> of foods...but has been

> put on VSL3- a very high dose probiotic..and if she

> stays away from anything

> over a +2 or 3, she should start reducing her load..

> Thank you so much for all your input..I really

> appreciate it.

> Vicki

>

__________________________________________________

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