Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 , Welcome. I am so glad that your are able to get in to see Dr. Goldberg. Although you are older and have struggled with this for longer than most of our children, you have the distinct advantage of being able to discern and communicate how the meds are affecting you in person. We struggle through trying to figure out how each change is affecting our kids and convey that to Dr. Goldberg... it's a definite challenge. One of the best things you can do right now is to get onto Dr. Goldberg's website (neuroimmunedr.com) and read everything you can find, especially the articles section. Then you can get started on the diet (you'll find it on the website), which may help you some immediately. Even if the diet doesn't seem to help right away, stick with it... you have been ill a long time and things aren't going to reverse themselves overnight. Dr. Goldberg will do a food screen (blood test) when you see him which will help to fine tune what foods might be bothering you so that you can remove them from your diet. That is a very important part of calming your immune system down. We can help you if you have questions. Start with switching to soy milk (but be aware that some people are bothered by that, so it may have to go eventually). The kind we like best at our house is Soysilk. We get it at Walmart or Sam's Club. Another thing that seems silly to say (but I'm a mom so I'm going to say it!) is to make sure you're getting enough sleep. That can make a huge difference. At your age it's easy to burn the midnight oil... you're at an exciting phase of life. If you are having trouble sleeping that is something Dr. Goldberg will probably be able to help you with. Restorative sleep is a very important part of helping you body to heal. It sounds as though you're doing your best to take care of yourself that's wonderful! Just think how much worse off you might be if you hadn't been leading a healthy lifestyle. I hate to tell you this but most of the supplements will probably have to go except for a basic multivitamin (no more than the recommended daily allowance) and maybe a probiotic such as kyodophilus. Dr. Goldberg is big on only putting things into your body that should already be there... believe it or not, some supplements can throw you off. There is much more to treatment than what I have mentioned, but the above items are things you can focus on now to help yourself. Good luck... we'll help you all we can. Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Hi , I'm a mom of an ASD son and we just started seeing Dr. G. I can't tell you much but what I know of our first meeting. I can tell you that he is very passionate about what he does so expect a lot of talking on your first visit. You've already got some good info from Caroline. I just wanted to answer your question about probiotics. You can usually find a good probiotic at a " nice " pharmacy, meaning not Rite Aid or such. You can also order it online. You can get it from foods but if you *need* a probiotic, you will probably need more than that. We use Culturelle and Dr. G knows and made no comment as far as it being a bad choice. He knows it's done wonders for my son (we've tried a few other brands) and he never mentioned that I should stop or choose another brand/type. Dr. G does test B levels (if you choose) but I don't think he approves of the B12 shots. Many non Dr. G patients (DAN! patients) are doing B12 shots with success but (and this is just from our first meeting) he says he finds that most of his patients are *high* on B's so adding more isn't a good idea but rather help the body actually use what it's got. HTH, Cheryl On Dec 1, 2006, at 11:58 AM, J wrote: > Caroline- > > Thanks for the prompt response and the good information :-) > Mother or not-it was a good message to recieve-and I surely appreciate > it and all the information you were willing to share. > I'll take a look at the diet, and see how I can incorporate it. > I was curious, about the probiotic bacteria-do you have a place where > you might know to get some of that? I guess I know yogurt has it-but > it is made from milk, so I guess in some ways it might kinda counter > the benefits. > I'm curious if there might be good places online to order some > capsules or something. > > Aside from that, have you ever had any experience with b12 shots? I'm > learning they can be very beneficial, and that is one of the things > that Dr. Goldberg tests for is the amount of b12 in the system. I > guess it is supposed to have immune helping properties and such. > > thanks again for the help. > > - :-) > > > > > > , > > > > Welcome. > > > > I am so glad that your are able to get in to see Dr. Goldberg. > Although you > > are older and have struggled with this for longer than most of our > children, > > you have the distinct advantage of being able to discern and > communicate how > > the meds are affecting you in person. We struggle through trying to > figure > > out how each change is affecting our kids and convey that to Dr. > Goldberg... > > it's a definite challenge. > > > > One of the best things you can do right now is to get onto Dr. > Goldberg's > > website (neuroimmunedr.com) and read everything you can find, > especially the > > articles section. Then you can get started on the diet (you'll find > it on > > the website), which may help you some immediately. Even if the diet > doesn't > > seem to help right away, stick with it... you have been ill a long > time and > > things aren't going to reverse themselves overnight. Dr. Goldberg > will do a > > food screen (blood test) when you see him which will help to fine > tune what > > foods might be bothering you so that you can remove them from > your diet. > > That is a very important part of calming your immune system down. > We can > > help you if you have questions. Start with switching to soy milk > (but be > > aware that some people are bothered by that, so it may have to go > > eventually). The kind we like best at our house is Soysilk. We get > it at > > Walmart or Sam's Club. > > > > Another thing that seems silly to say (but I'm a mom so I'm going > to say > > it!) is to make sure you're getting enough sleep. That can make a > huge > > difference. At your age it's easy to burn the midnight oil... > you're at an > > exciting phase of life. If you are having trouble sleeping that is > > something Dr. Goldberg will probably be able to help you with. > Restorative > > sleep is a very important part of helping you body to heal. > > > > It sounds as though you're doing your best to take care of yourself > that's > > wonderful! Just think how much worse off you might be if you hadn't > been > > leading a healthy lifestyle. I hate to tell you this but most of the > > supplements will probably have to go except for a basic > multivitamin (no > > more than the recommended daily allowance) and maybe a probiotic > such as > > kyodophilus. Dr. Goldberg is big on only putting things into your > body that > > should already be there... believe it or not, some supplements can > throw you > > off. > > > > There is much more to treatment than what I have mentioned, but the > above > > items are things you can focus on now to help yourself. > > > > Good luck... we'll help you all we can. > > > > Caroline > > > > > Quote Link to comment Share on other sites More sharing options...
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