Re: I'm new-Share your information? (I just got my blood work done, now what???)

[Guest guest]

k-great news. I appreciate the update.

So I just got my regular physician to run the list of blood work that

Dr. G usually wants ran before he sees you.

I ran everything he has listed on the list... the numbers are

interesting.

I'm still taking a look at them, and looking up what I can about some

of the levels.

It seems that a few really stand out to me. I had been 'thinking'

that something related to strep might come up...

my titer level was 413... I think I read something and the highest

is considered to be like 149-200, they call that 'PANDAS.' So I'm

well above that.

I also tested positive for Rubella, and Ebstein virus, I think Herpes

6 virus, a slightly positive CNC presense, and a 1:40 ratio of ANA

titer was positive... the doctor told me that 'could' mean lupus,

however that is at the very lowest level in which they would require

to be lupus... and it isn't uncommon for it to come up positive.

I also had low '18' of IgM... which is a little above the 'ANA'

screen in the immunology section.

You all have been soo good to help me out-thank you

-, 24 yo, CA

I did come up positive for Herpes simplex virus 1, but from what I

was reading that isn't a big deal.

> > >

> > > ,

> > >

> > > Welcome.

> > >

> > > I am so glad that your are able to get in to see Dr. Goldberg.

> > Although you

> > > are older and have struggled with this for longer than most of

our

> > children,

> > > you have the distinct advantage of being able to discern and

> > communicate how

> > > the meds are affecting you in person. We struggle through

trying to

> > figure

> > > out how each change is affecting our kids and convey that to Dr.

> > Goldberg...

> > > it's a definite challenge.

> > >

> > > One of the best things you can do right now is to get onto Dr.

> > Goldberg's

> > > website (neuroimmunedr.com) and read everything you can find,

> > especially the

> > > articles section. Then you can get started on the diet (you'll

find

> > it on

> > > the website), which may help you some immediately. Even if the

diet

> > doesn't

> > > seem to help right away, stick with it... you have been ill a

long

> > time and

> > > things aren't going to reverse themselves overnight. Dr.

Goldberg

> > will do a

> > > food screen (blood test) when you see him which will help to

fine

> > tune what

> > > foods might be bothering you so that you can remove them from

> > your diet.

> > > That is a very important part of calming your immune system

down.

> > We can

> > > help you if you have questions. Start with switching to soy milk

> > (but be

> > > aware that some people are bothered by that, so it may have to

go

> > > eventually). The kind we like best at our house is Soysilk. We

get

> > it at

> > > Walmart or Sam's Club.

> > >

> > > Another thing that seems silly to say (but I'm a mom so I'm

going

> > to say

> > > it!) is to make sure you're getting enough sleep. That can make

a

> > huge

> > > difference. At your age it's easy to burn the midnight oil...

> > you're at an

> > > exciting phase of life. If you are having trouble sleeping that

is

> > > something Dr. Goldberg will probably be able to help you with.

> > Restorative

> > > sleep is a very important part of helping you body to heal.

> > >

> > > It sounds as though you're doing your best to take care of

yourself

> > that's

> > > wonderful! Just think how much worse off you might be if you

hadn't

> > been

> > > leading a healthy lifestyle. I hate to tell you this but most

of the

> > > supplements will probably have to go except for a basic

> > multivitamin (no

> > > more than the recommended daily allowance) and maybe a

probiotic

> > such as

> > > kyodophilus. Dr. Goldberg is big on only putting things into

your

> > body that

> > > should already be there... believe it or not, some supplements

can

> > throw you

> > > off.

> > >

> > > There is much more to treatment than what I have mentioned, but

the

> > above

> > > items are things you can focus on now to help yourself.

> > >

> > > Good luck... we'll help you all we can.

> > >

> > > Caroline

> > >

> >

> >

> >

>