I'm so mad!!!

[Guest guest]

Hi all-

I need to vent! I'm so furious I can't think

straight.

My 5 yr old has spent most of May thru all of

September running a low grade temp of 99.8-100.2 on

average, so tired he wouldn't go play anywhere, had

very very diminshed eye contact, big changes in his

speech, memory, just lots of things, and eventually we

were finally referred to infectious disease, waiting 2

months of course. At 3 days before he arrives for the

appointment, the temp stops and he starts perking up a

bit, but still clearly diminished.

Anyway, they did a lab workup including HHV6 and NK

activity (the only ones I was particularly interested

in although others were done too), and the lab lost

the blood. But because the sed rate came back normal,

the doctor sees no reason to do any further testing

and advised us to just return to his pediatrician!

This is after we also attended the appt w/the

neurologist as advised (although I didn't expect much

there), but by then his eye contact was so much

improved. She looked at me like I was absolutely

crazy and said my little boy is just fine. (Well, I

can see where she would say that as he was having a

great day and significantly improved, but ...the

recent history anybody?)

So ... two specialists have given him the thumbs up.

And he is still not right, not up to par, this is

going to happen again, and the one opportunity where

he was so significantly - so obviously - ill, and

nobody could freakin' tell! There is nothing normal

about a child who is so tired that you cannot bribe

with anything to please just walk across the park to

the swing - about him simply begging me not to make

him go to the play ground because he's just too tired,

and when you force him to anyway (and I mean his

favorite park) he lays down and cries. (Yes, I

know... mean mommy.)

I could PUKE. Why in the ...world... (to be polite)

would they not be concerned?>?>?

I'm sorry to vent, but thank you.

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