Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 > , > Ugh. > Amber Hi Amber, Did I upset you? It wasn't meant that way. Forgot to mention that my parents never suspected allergies. Just thought I was a sickly child. You are probably protecting your kid by investigating and dealing with this now. Just nip it in the bud, and he'll be fine, I think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 No , you didn't upset me. I think it like n's stuff. The more layers you peel back, the more layers you find underneath that need peeling back. So, just one more avenue to investigate...but at least this one has alot of history and experience so that it is easier to ferret out the quacks and sharks and get to the heart of the matter...if there is a matter to get to the heart of. Thanks for telling me about your experiences...I just wonder how many people in this world either become self-diagnosed or push their docs to test for things based on discussions with others whose symptomolgy is similar...as compared with folks who just walk into the docs' office and the doc is able to immediately suspect the right cause and move forward. I always appreciate someone who listems and can offer feedback that is relevent, even if not particulary happy feedback. Thanks again...and I will follow up on that avenue. Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Just because you don¹t have a lot of bone erosion showing up in a bone scan, it doesn¹t mean your pain isn¹t real. Fibromyalgia does not cause bone erosion. Your rheumy should know this. Please don¹t stress over the bone scan results. Your are very lucky that it isn¹t eroding your bones. If you¹ve been diagnosed with fibromyalgia, that is probably responsible for your pain and fatigue. I wish you could find a doctor that you were more comfortable with. a > Went to my grotesque rheumy today. He reitierated that my bone scan > showed a tiny bit of uptake on the bone scan. As if to say that a > tiny bit of uptake means that I shouldn't be experiencing this amount > of pain. I am in constant fatigue. The pain and weakness has > invaded every single one of my joints. My disability review is now > and I am a nervous wreck that he isn't going to cooperate in filling > out the paperwork to I bailed in even asking him too. What does " a > teeny bit of uptake mean " ? I am feeling awful. Can anyone help? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 --- In , " sandit328 " <SandiT328@a...> wrote: > Went to my grotesque rheumy today. He reitierated that my bone scan > showed a tiny bit of uptake on the bone scan. As if to say that a > tiny bit of uptake means that I shouldn't be experiencing this amount > of pain. I am in constant fatigue. The pain and weakness has > invaded every single one of my joints. My disability review is now > and I am a nervous wreck that he isn't going to cooperate in filling > out the paperwork to I bailed in even asking him too. What does " a > teeny bit of uptake mean " ? I am feeling awful. Can anyone help? If I read what you are saying - it means that you have a change in the bone structure from damage for RA. If not handled quickly it will continue to deform. I would say that this is good news for the board but not good news for you. Any amount of damage from RA can be devastating once it starts. I don't want to alarm you but if he doesn't/or hasn't put you on one of the drugs(remicade, humira, enbrel) to stop deformity of the bones then you need to find a new RA. My RA saw minimal damage of my bones but a little was there and immediately started me on Remicade on top of my MTX. Now each xray shows that that minimal damage is still there but it hasn't gotten any worse. You need an RA who is going to go after your disease with everything not wait till you are crippled and there isn't anything to reverse it. Again, I don't want to alarm you but I think you need to think about it. God bless, Althea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 that's okay...I know it can get confusing...lol... I take three droppers full in the morning...and my son takes two droppers full...which I guess we could cut in half...do you think that would be sufficient at least for a few weeks? I still have Super Nutrition...so that is not a problem. Caroline Sorry Caroline... I was thinking super nutrition this morning... How much super tonic you taking a day... Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Even if you only take one dropperful... or half... whatever works to get you thru to the next batch... if you miss a day it won't hurt (unless you're trying to get sick)... SuziCaroline <ladyguinevere@...> wrote: that's okay...I know it can get confusing...lol... I take three droppers full in the morning...and my son takes two droppers full...which I guess we could cut in half...do you think that would be sufficient at least for a few weeks? I still have Super Nutrition...so that is not a problem. Caroline Sorry Caroline... I was thinking super nutrition this morning... How much super tonic you taking a day... Suzi Quote Link to comment Share on other sites More sharing options...
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