Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Very interesting question. We stopped Tenex a few months ago because my son was seeming lethargic after several rounds of neurofeedback training. The neuro said that many patients need to make adjustments to meds through the neurofeedback process so advised us to do a trial off the Tenex. Right away, we was also brighter and much more focused. But we have also seen a decrease in frustration level and more yelling behavior. I didn't connect the two. He's since done a round of neurofeedback training targeting the frustration level that brought down the yelling/high frustration but seemed to temporarily lead to more goofy behavior. Aack, if it's not one thing, it always seems to be another. We're not working with Dr. G anymore so I'll be curious to hear what he says. Would you mind posting his thoughts about reducing Tenex and lowered frustration levels to the group? Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 > We're not working with Dr. G anymore so I'll be curious to hear what he says. > Would you mind posting his thoughts about reducing Tenex and lowered > frustration levels to the group? > Gaylen > Absolutely. I probably won't hear from him until Tuesday, late in the day, though. Unless the office is open tomorrow. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Gaylen, I am new to the list and just beginning to research different treatment options for my 2 year old that was daignosed with autism in December. I was just curious why you were no longer seeing Dr. G? I'm trying to decide if I should take my son to him. It is a huge expense to fly to CA and stay in a hotel and probably have to pay out of pocket for all the medical expenses as our insurance deductible is $5000 if they even cover this at all. Thank you, Caldwell Googahly@... wrote: Very interesting question. We stopped Tenex a few months ago because my son was seeming lethargic after several rounds of neurofeedback training. The neuro said that many patients need to make adjustments to meds through the neurofeedback process so advised us to do a trial off the Tenex. Right away, we was also brighter and much more focused. But we have also seen a decrease in frustration level and more yelling behavior. I didn't connect the two. He's since done a round of neurofeedback training targeting the frustration level that brought down the yelling/high frustration but seemed to temporarily lead to more goofy behavior. Aack, if it's not one thing, it always seems to be another. We're not working with Dr. G anymore so I'll be curious to hear what he says. Would you mind posting his thoughts about reducing Tenex and lowered frustration levels to the group? Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2007 Report Share Posted February 20, 2007 Donna, My first reaction when reading this was " infection " because every time my son is ill or getting ill or has something brewing in his sinus, he is irritable, tantrummy, unexpected outbursts, etc. I have no idea if your son was/is getting ill, or if Tenex has immune system impact that a decrease would accelerate this happening, but this was my first reaction. For what its worth! > > Hi all -- we're going through something puzzling and I'm hoping I can > draw on others' experiences. > > A week ago, Dr. Goldberg had us reduce the amount of Tenex our son is > taking. After a day or two of needing extra sleep, he perked way up > and is so bright, talkative, funny, empathetic and focused now that > we're practically in hog heaven enjoying him! The down side? Last > couople of days, he's been much more emotional, much harder on himself > than ever if he doesn't do something perfectly right away (leading to > a tantrum), and had a *very* unusual aggressive episode when his day > wasn't going the way he wanted (he BIT his classroom aide on the > cheek!!! No skin was broken, thank God). Last night he was playing a > video game and I could hear him crying and yelling out in frustration > over not being able to complete a difficult level; I knew that it was > mostly because he was hungry. He WOULD NOT come to dinner. I'm > talking a screaming tantrum about not coming to dinner UNTIL HE > COMPLETED THE LEVEL. > > Okay. So, does this sound normal for reducing Tenex, and will this > pass? He's doing SOOOO well otherwise. > > TIA, > > Donna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 In a message dated 3/4/2007 3:42:45 PM Central Standard Time, jacaldwell6@... writes: <<Gaylen, I am new to the list and just beginning to research different treatment options for my 2 year old that was daignosed with autism in December. I was just curious why you were no longer seeing Dr. G? I'm trying to decide if I should take my son to him. It is a huge expense to fly to CA and stay in a hotel and probably have to pay out of pocket for all the medical expenses as our insurance deductible is $5000 if they even cover this at all.>> Mainly financial reasons. Our insurance stopped paying for phone consults and it was a major drain on our ability to do the various other therapies that my son needed as well. We found a local doctor willing to continue the protocol, which was helpful for my son. If your child has viral problems and immune dysregulation, I do think that the benefit of care he'd get from Dr. G is well worth the initial expense. We worked with Dr. G for almost three years and had seemed to hit a point where my son was relatively stable on the protocol and we weren't seeing enough increased benefits from medicine changes to make it worth the money to continue doing the protocol long distance. We've been fortunate in that my son has been pretty stable since we started working with the local doctor but there have been a few times that I wished I had Dr. G's expertise to help pull him out of a slump. Gaylen <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
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