Re: PMG Awareness Organization, Inc - OUR own nonprofit organization and

[Guest guest]

I think we have connected already, , but just in case, your pictures

can be sent to: mel@.... And yes, this information is on all the

FaceBook pages. Thank you so much for your kind words. We have been completely

blown away by the response to the organization and our website. It is so

exciting to see it grow so fast and to receive all the emails and comments for

the lives we have already touched in such a short time. We can hardly wait until

we see the results of all of OUR efforts, " Working TOGETHER to unlock the

mysteries of PMG " .

With utmost appreciation, Catrina

>

> Dear Brie,

>

> Wow! Thank you so much for starting this. I love the website and your mission.

I'm so happy to have this for our children. I just went to the Epilepsy Pipeline

Conference and there were a number of patient advocacy groups there and I was

thinking that we really need one too. And here it is!! Great job! I will take a

closer look at it over the next few days and give you any thoughts I have. How

can we include our kids in the faces of pmg page? Also, have you advertised it

on the Facebook page for 'Families affected by polymicrogyria'?

>

> All the best,

>

>