Guest guest Posted October 26, 2011 Report Share Posted October 26, 2011 Hi Rosemary, My son Calvin (two next month) also took a very long time to get his teeth and they came in SO slowly. Must be something with PMG. I wouldn't worry about the dentist yet. You could use a NUK brush to rub her gums and a little toothbrush to clean her gums. It's good oral stimulation plus keeps them clean, this was suggested by our speech pathologist. Her head control may get better, it just does so slowly. Do you have a therapist working with your daughter? It's important so that you too know how to work with your daughter and help her progress. Calvin also has had sleep issues and often they were due to epileptic discharges...basically the brain preparing for seizures. This was found by an EEG. Wishing you the best, Kara Dedert ________________________________ To: polymicrogyria Sent: Wednesday, October 26, 2011 11:01 AM Subject: IN GENERAL Â HELLO EVERYONE I HAVE A COUPLE OF QUESTIONS AND CONCERS My daughter is 14 months and still no teeth is this common do i take her to the dentist? ShE also has no head control is getting better at it and still cant sit up . SHE wiggles all over the floor what can i do to help her with her head controll? anD LAST I NOTICE SHE HAS Sleeping problems she seems to fight her sleep mostly at night' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2011 Report Share Posted October 26, 2011 Catrina, I just want to remind you that not all PMG kids have feeding issues. My daughter ate a very normal diet - and her teeth didn't come in until after a year. She also has enamel issues, partially from the seizure drugs but also just as part of PMG. I say if you're worried talk to a doctor that you trust. If you're not worried, let it go for a little while. R. Holman PADI OWSI #193832 Subject: Re: IN GENERAL To: polymicrogyria Date: Wednesday, October 26, 2011, 12:09 PM  > > HELLO EVERYONE I HAVE A COUPLE OF QUESTIONS AND CONCERS > My daughter is 14 months and still no teeth is this common do i take her to the dentist? > ShE also has no head control is getting better at it and still cant sit up . SHE wiggles all over the floor what can i do to help her with her head controll? > anD LAST I NOTICE SHE HAS Sleeping problems she seems to fight her sleep mostly at night' > Hi and Welcome to the group! I'm relatively new but I have read here that there are a lot of PMG kids whose teeth do not come in until later. It's just a guess on my part, but I would think it has a lot to do with them not eating/chewing therefore not exerting pressure on their gums to help the process along. Brie, my granddaughter, is 3 months old and her speech and language therapist says it's important to give them teethers even if it seems like they aren't teething. She suggests smooth and bumpy teethers or anything (including your fingers) that has differing textures to provide stimulation for them. I'm sure seeing your dentist wouldn't hurt anything. Have you seen a speech therapist? Brie also has trouble holding her head up but she is working with physical therapy and occupational therapy. She has low tone and needs regular therapy to help her gain control of her head and trunk as well as to become coordinated with her hands and arms. Therapy is SUPER important so if you haven't had the opportunity to start therapy, you should try to get it as soon as possible. Do you have an Early Intervention Program where you live? It takes a LOT of work and fighting for what our kids need. It's sad that it takes so much but if WE don't make a stand for them, then the government, insurance companies, even their doctors are content to just let things go when they should be stepping up to help. I have read on here a lot about sleep disorders so I would recommend you go back through the messages and see what people said. Brie is so young so right now it's not a noticeable concern. I pray it never is! Anyway..hope this helps some. Please feel free to let us know how we can help. Hugs, Catrina - Brie'Gram Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2011 Report Share Posted October 26, 2011 One of our physical therapists suggested wearing my son in a carrier as much as possible to help with neck and trunk strength. I have carried him in a moby or ergo baby carrier for the last 6 weeks or so and his neck control has improved considerably. His trunk strength has improved as well. I wear him in the carrier while grocery shopping or vacuuming or really any time I am out and would have otherwise carried him in the car seat or stroller. Hope this helps. My best to you and your family!! :-) “I am learning all the time. The tombstone will be my diploma.†— Eartha Kitt > HELLO EVERYONE I HAVE A COUPLE OF QUESTIONS AND CONCERS > My daughter is 14 months and still no teeth is this common do i take her to the dentist? > ShE also has no head control is getting better at it and still cant sit up . SHE wiggles all over the floor what can i do to help her with her head controll? > anD LAST I NOTICE SHE HAS Sleeping problems she seems to fight her sleep mostly at night' > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.