Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 My son also goes through that, all the time. (daze's). I was told that if you can snap your child out of it, then its nothing to worry about. And if your child doesn't come too, then that could be a possible seizure. If these 'dazes' continue, I would let her neuro know and have them order an EEG. - Sent on the Sprint® Now Network from my BlackBerry® possible invisible seizure? Okay I need some advice. My daughter was sick this past week along with strep. Once she was placed on antibiotics she was much better. I contacted our neuro because she was having this dazed look but she was alert just 'out-of-it " , speaking really soft, having trouble finding words, and would all of a sudden get really tired. I saw no obvious seizures but there was definitely something awry. The neuro just wrote us off saying it was from her being sick however she was better the day before. They just said that if she is still on antibiotics then she is still " sick " and just to let them know if it continues. I know there is more to it and isn't it common for seizures to increase when there is illness? I just feel lost in know what is going on with my little lady. She is 7 but all her EEGs have been normal seizure-wise(I am told) except for showing she has a risk of seizure due to spikes. We have not seen an actual seizure that we knew for sure was one except when she was 1 and had a high fever. She has woke up in the morning and lost all motor function and such which we are told there is no other explanation but a nocturnal seizures. It is just hard to not know what is going on. Has anyone else experienced this? S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 My son does the same thing and often wondered if that was a seizure. I call his name and he looks at me so I was told it probably was not a seizure. He is not on any seizure medication because he has only had them with fevers but I'm wondering if we should be more aggressive with it. His EEG a year ago showed spikes but no activity. His nero does not know a lot about PMG and I'm wondering if we should make the trip to Seattle to get a once over from a specialist. I just get a feeling we are missing something and I worry he is going to get a huge seizure out of the blue that causes him to regress. He is 5 and just starting to walk with a walker. > To: polymicrogyria > From: suga_mamma04@... > Date: Tue, 8 Mar 2011 16:37:17 +0000 > Subject: Re: possible invisible seizure? > > My son also goes through that, all the time. (daze's). I was told that if you can snap your child out of it, then its nothing to worry about. And if your child doesn't come too, then that could be a possible seizure. > > > > If these 'dazes' continue, I would let her neuro know and have them order an EEG. > > - > > Sent on the Sprint® Now Network from my BlackBerry® > > > > possible invisible seizure? > > > > Okay I need some advice. My daughter was sick this past week along with strep. Once she was placed on antibiotics she was much better. I contacted our neuro because she was having this dazed look but she was alert just 'out-of-it " , speaking really soft, having trouble finding words, and would all of a sudden get really tired. I saw no obvious seizures but there was definitely something awry. The neuro just wrote us off saying it was from her being sick however she was better the day before. They just said that if she is still on antibiotics then she is still " sick " and just to let them know if it continues. > > I know there is more to it and isn't it common for seizures to increase when there is illness? > > I just feel lost in know what is going on with my little lady. She is 7 but all her EEGs have been normal seizure-wise(I am told) except for showing she has a risk of seizure due to spikes. We have not seen an actual seizure that we knew for sure was one except when she was 1 and had a high fever. She has woke up in the morning and lost all motor function and such which we are told there is no other explanation but a nocturnal seizures. It is just hard to not know what is going on. > > Has anyone else experienced this? > > S > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Steve was talking about ESES and I have read about it I wonder if this is what our kids have? I totally agree it is something about not sleeping well. Since the Keppra Nisha sleeps so much better but if she is sick then she has that daze, lack of focus soft and slow language. Her EEG is theta/delta, spikes and slowing right frontal central. She has left hemi cp too. Diane Re: possible invisible seizure? > > My son also goes through that, all the time. (daze's). I was told that if you can snap your child out of it, then its nothing to worry about. And if your child doesn't come too, then that cou Quote Link to comment Share on other sites More sharing options...
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