Need a Pediatric Epileptologist Recommendation

[Guest guest]

Hi All,

We want to get a second opinion and are looking for the best pediatric

epileptologist out there. My son is 2 and a half and has had seizures since he

was 14 weeks old. We have tried about 10 different medications, the ketogenic

diet and the vagus nerve stimulator. The VNS seemed to be working like a

miracle until he went under general anesthesia for ear tube placement and an

adenoidectomy. That night they came back. Our current neurologist is telling

me to just wait and see what happens, and I can't. I need someone else's

opinion and an action plan.

I am looking at the Cleveland Clinic, Mass General, or Orrin Devinsky at NYU.

Does anyone have any recommendations there, or elsewhere?

Thanks for your help,