Re: My Lana is 14 months now

[Guest guest]

Hi Lina!

My daughter was recently diagnosed with left unilateral PMG. She is 18 months

old 15.5 corrected and is nowhere close to crawling. She doesn't have the

strength in her right arm to crawl, and her trunk control is poor. She will walk

along furniture very gingerly, and will walk as long as her hands are being

held. That being said, when she walks along the couch, she lacks the protective

instinct to protect herself if she falls, so she just topples over and will

smack her head on whatever is nearby. She will roll all over the place to get

where she wants to go.

We see both physiotherapy and occupational once a week.

Tara

> Dear all,

>

> My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

>

> Best Regards,

> Lina Kurdi

>

>

[Guest guest]

!

Elara won't army crawl, she down right refuses to try any type of crawling. It's

crazy. Our PT really wants to see some crawling, but we know she has no

inclination to push up on her arms. BUT, what she will do is really neat. We

have a bench that is about 7 inches off the floor. She will stand at the bench,

and bend over nearly halfway, and put weight on her arms. So we play like that

at least twice a day. We saw a lot of change with her right hand after we

constrained the left with a splint for three weeks. She will now at least try

and hold things in her right hand and will open it up to help with balance. I'm

very proud of her for that.

I have a lot more that I'd like to type, but she is now loosing her mind because

she wants the laptop that mommy is playing with.

Tara

> Lina,

> Yes, my son did not crawl or walk at 14 months. His PT worked a lot on getting

him onto his hands and knees to build up strength. Around 20 months he started

crawling on his hands and knees. He was able to army crawl for a bit before

then. He was also able to stand if placed against something before he could

crawl. That sounds strange, but his upper body couldn't hold up his weight. His

PT was adamant about getting him crawling and now I see why. His upper body is

much stronger because of that. At 2 1/2 he started walking. It took a lot of

hard work (physically for him, emotionally for me!). Just keep up the PT and if

she is tight, stretch her several times a day. Hang in there! I remember those

days clearly.

>

>

> Sent from my iPhone

>

>

>

> > Dear all,

> >

> > My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

> >

> > Best Regards,

> > Lina Kurdi

> >

> >

> >

> >

> > TODAY(Beta) • Powered by Yahoo!

> > 'Ugliest fish in the world' draws big crowd

> > A cringe-inducing kiss is one of the wild traditions at Minnesota's bizarre

eelpout festival.

> > Privacy Policy

>

>

[Guest guest]

My daughter is 18 ,month and still cant sit on her own,she has improve so much

and has come along she is just now building head support and rolling over.

Sent via my Samsung Galaxy Prevail from Boost Mobile

Brown wrote:

>Lina,

>Yes, my son did not crawl or walk at 14 months. His PT worked a lot on getting

him onto his hands and knees to build up strength. Around 20 months he started

crawling on his hands and knees. He was able to army crawl for a bit before

then. He was also able to stand if placed against something before he could

crawl. That sounds strange, but his upper body couldn't hold up his weight.

His PT was adamant about getting him crawling and now I see why. His upper body

is much stronger because of that. At 2 1/2 he started walking. It took a lot

of hard work (physically for him, emotionally for me!). Just keep up the PT and

if she is tight, stretch her several times a day. Hang in there! I remember

those days clearly.

>

>

>Sent from my iPhone

>

>

>

>> Dear all,

>>

>> My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

>>

>> Best Regards,

>> Lina Kurdi

>>

>>

>>

>>

>> TODAY(Beta) • Powered by Yahoo!

>> 'Ugliest fish in the world' draws big crowd

>> A cringe-inducing kiss is one of the wild traditions at Minnesota's bizarre

eelpout festival.

>> Privacy Policy

>

>

[Guest guest]

Yes my girl is 18mths and isnt doing either or even sitting unassisted yet,

altho getting stronger every day and has lots of therapy.

cheers

kat

________________________________

To: polymicrogyria

Sent: Monday, 5 March 2012 11:59 PM

Subject: My Lana is 14 months now

 

Dear all,

My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

Best Regards,

Lina Kurdi

[Guest guest]

Kat, does your child have bilateral or unilateral?

> Yes my girl is 18mths and isnt doing either or even sitting unassisted yet,

altho getting stronger every day and has lots of therapy.

>

> cheers

>

> kat

>

> ________________________________

>

> To: polymicrogyria

> Sent: Monday, 5 March 2012 11:59 PM

> Subject: My Lana is 14 months now

>

>

>

> Dear all,

>

> My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

>

> Best Regards,

> Lina Kurdi

>

>

>

[Guest guest]

Bi lateral but worse on the left side affecting mainly her right side, and

infantile spasms.

________________________________

To: polymicrogyria

Sent: Wednesday, 7 March 2012 3:26 AM

Subject: Re: My Lana is 14 months now

Kat, does your child have bilateral or unilateral?

> Yes my girl is 18mths and isnt doing either or even sitting unassisted yet,

altho getting stronger every day and has lots of therapy.

>

> cheers

>

> kat

>

> ________________________________

>

> To: polymicrogyria

> Sent: Monday, 5 March 2012 11:59 PM

> Subject: My Lana is 14 months now

>

>

> 

> Dear all,

>

> My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

>

> Best Regards,

> Lina Kurdi

>

>

>

[Guest guest]

Hi Lina,

I am late to this conversation, but I just wanted to be an encouragement

that there is still plenty of time to crawl and walk. Callie just started

crawling on all fours last October, a month before her second birthday.

And she is just now starting to take independent steps at 2 years, 3

months (she is far from running around the house, but it is a start!).

Hope your little one is on the move before you know it.

Best,

Callie's Mommy

http://calliebloggie.blogspot.com/

> **

>

>

>

>

> Bi lateral but worse on the left side affecting mainly her right side, and

> infantile spasms.

>

> ________________________________

>

> To: polymicrogyria

> Sent: Wednesday, 7 March 2012 3:26 AM

> Subject: Re: My Lana is 14 months now

>

>

> Kat, does your child have bilateral or unilateral?

>

>

>

> > Yes my girl is 18mths and isnt doing either or even sitting unassisted

> yet, altho getting stronger every day and has lots of therapy.

> >

> > cheers

> >

> > kat

> >

> > ________________________________

> >

> > To: polymicrogyria

> > Sent: Monday, 5 March 2012 11:59 PM

> > Subject: My Lana is 14 months now

> >

> >

> >

> > Dear all,

> >

> > My daughter is 14 months now but she is not walking or crawling yet!!

> Any experience about this specifically?

> >

> > Best Regards,

> > Lina Kurdi

> >

> >

> >

[Guest guest]

While we have to be realistic, don't give up!  My will be 4 years old

next month and is just now starting to sit up on his own.  He does it

consistently in bed but won't do it on the floor, yet.  One thing I've learned

is that each individual kiddo will do their thing on their own time.  Don't

worry so much about their developmental progress, they are on a different

timeline.  Just enjoy who they are and support them in any and every way you

can.  It makes every milestone reached even more worthwhile.

 

Stacey Klim

http://lifeonmysterylane.blogspot.com/

To: " polymicrogyria " <polymicrogyria >

Sent: Tuesday, March 6, 2012 9:03 PM

Subject: Re: My Lana is 14 months now

 

I am also happy to hear these words of encouragement. Our girl is 18mths this

week and still not sitting unassisted, although she did only start holding her

head up at 1 yr so we are hoping although delayed that she will get strong

enough to sit. We are doing therapy with her and I have ordered Theratogs for

her aswell.

I am realistic aswell and know that it may also not happen but I am going to do

all I can to bring out any potential she has thats for sure I know she will

write her own story.

Thanks for sharing

Kat

________________________________

To: polymicrogyria

Sent: Wednesday, 7 March 2012 10:50 AM

Subject: Re: My Lana is 14 months now

Hi Lina,

I am late to this conversation, but I just wanted to be an encouragement

that there is still plenty of time to crawl and walk.  Callie just started

crawling on all fours last October, a month before her second birthday.

And she is just now starting to take independent steps at 2 years, 3

months (she is far from running around the house, but it is a start!).

Hope your little one is on the move before you know it.

Best,

Callie's Mommy

http://calliebloggie.blogspot.com/

> **

>

>

>

>

> Bi lateral but worse on the left side affecting mainly her right side, and

> infantile spasms.

>

> ________________________________

>

> To: polymicrogyria

> Sent: Wednesday, 7 March 2012 3:26 AM

> Subject: Re: My Lana is 14 months now

>

>

> Kat, does your child have bilateral or unilateral?

>

>

>

> > Yes my girl is 18mths and isnt doing either or even sitting unassisted

> yet, altho getting stronger every day and has lots of therapy.

> >

> > cheers

> >

> > kat

> >

> > ________________________________

> >

> > To: polymicrogyria

> > Sent: Monday, 5 March 2012 11:59 PM

> > Subject: My Lana is 14 months now

> >

> >

> >

> > Dear all,

> >

> > My daughter is 14 months now but she is not walking or crawling yet!!

> Any experience about this specifically?

> >

> > Best Regards,

> > Lina Kurdi

> >

> >

> >

[Guest guest]

Thank you dear for the encouraging words. Hope the best for your little one:)

Best Regards,

Lina Kurdi

> Hi Lina,

>

> I am late to this conversation, but I just wanted to be an encouragement

> that there is still plenty of time to crawl and walk. Callie just started

> crawling on all fours last October, a month before her second birthday.

> And she is just now starting to take independent steps at 2 years, 3

> months (she is far from running around the house, but it is a start!).

> Hope your little one is on the move before you know it.

>

> Best,

>

> Callie's Mommy

> http://calliebloggie.blogspot.com/

>

>

>

>

>> **

>>

>>

>>

>>

>> Bi lateral but worse on the left side affecting mainly her right side, and

>> infantile spasms.

>>

>> ________________________________

>>

>> To: polymicrogyria

>> Sent: Wednesday, 7 March 2012 3:26 AM

>> Subject: Re: My Lana is 14 months now

>>

>>

>> Kat, does your child have bilateral or unilateral?

>>

>>

>>

>>> Yes my girl is 18mths and isnt doing either or even sitting unassisted

>> yet, altho getting stronger every day and has lots of therapy.

>>>

>>> cheers

>>>

>>> kat

>>>

>>> ________________________________

>>>

>>> To: polymicrogyria

>>> Sent: Monday, 5 March 2012 11:59 PM

>>> Subject: My Lana is 14 months now

>>>

>>>

>>>

>>> Dear all,

>>>

>>> My daughter is 14 months now but she is not walking or crawling yet!!

>> Any experience about this specifically?

>>>

>>> Best Regards,

>>> Lina Kurdi

>>>

>>>

>>>