Re: Polymicrogyria (Never Give Up)

[Guest guest]

Beautiful video, !!! He is adorable! Thanks for sharing!

Mel

> Hi Everyone,

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>

> I do not typically post to this group, however, I do read what others

write.

> My youngest son has bilateral perisylvian polymicrogyria. We did not

> get the official diagnosis until he was 2 ½ years old from Dr. Dobyns,

whom

> we were fortunate to meet at an FCM Convention back in 2009. Anyways, when

> he was an infant the Dr.’s told us that he would never walk, talk, have

> severe learning/cognitive impairments, and would require a feeding tube at

> some point. is a blessing and continues to mystify the Dr.’s with

> progress.

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>

> Below is a link that I put together of him, that I hope will give hope to

> families who are walking a similar journey to us:

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> Koyshman

>

> Mom to Lara 9 yrs, Ethan (ASD) 7 yrs, 4 yrs (BPP)

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[Guest guest]

What a wonderful video! It really is encouraging to see what your amazing

son has accomplished! Thank you so much for sharing.

Best,

Callie's Mommy

http://calliebloggie.blogspot.com/

On Wed, Oct 5, 2011 at 11:11 PM, Koyshman wrote:

> **

>

>

> Hi Everyone,

>

> I do not typically post to this group, however, I do read what others

> write.

> My youngest son has bilateral perisylvian polymicrogyria. We did not

> get the official diagnosis until he was 2 ½ years old from Dr. Dobyns, whom

> we were fortunate to meet at an FCM Convention back in 2009. Anyways, when

> he was an infant the Dr.’s told us that he would never walk, talk, have

> severe learning/cognitive impairments, and would require a feeding tube at

> some point. is a blessing and continues to mystify the Dr.’s with

> progress.

>

> Below is a link that I put together of him, that I hope will give hope to

> families who are walking a similar journey to us:

>

>

>

> Koyshman

>

> Mom to Lara 9 yrs, Ethan (ASD) 7 yrs, 4 yrs (BPP)

>

>

[Guest guest]

Thank you so much. Even my husband got a little misty when he watched. :-) Keep

on trucking !

“I am learning all the time. The tombstone will be my diploma.â€

— Eartha Kitt

> Hi Everyone,

>

> I do not typically post to this group, however, I do read what others write.

> My youngest son has bilateral perisylvian polymicrogyria. We did not

> get the official diagnosis until he was 2 ½ years old from Dr. Dobyns, whom

> we were fortunate to meet at an FCM Convention back in 2009. Anyways, when

> he was an infant the Dr.’s told us that he would never walk, talk, have

> severe learning/cognitive impairments, and would require a feeding tube at

> some point. is a blessing and continues to mystify the Dr.’s with

> progress.

>

> Below is a link that I put together of him, that I hope will give hope to

> families who are walking a similar journey to us:

>

>

>

> Koyshman

>

> Mom to Lara 9 yrs, Ethan (ASD) 7 yrs, 4 yrs (BPP)

>

>