Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Hi everyone, My name is , and I have a daughter, Maureen, with bilateral perisylvian polymicrogyria. She also has hypoplasia of the CC, and some ventriculomegaly, plus some other oddities. She's visually impaired, pretty severely developmentally delayed, and has seizures. We used to live in Houston, and I really felt like I had things figured out there. I had a great team of specialists, great home healthcare nurses, great friends. Then, just to make things fun, we moved to Fort Worth a few months ago to be closer to family, so I'm starting all over. I'm so happy to join, I've already seen several topics I want to start reading. Thanks for having me. Quote Link to comment Share on other sites More sharing options...
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