Guest guest Posted October 21, 2011 Report Share Posted October 21, 2011 Hi Thanks for replying. We live in Leeds in the north of England. Most likely if she has it it'll be done here. I've just read your post about your daughter. What fantastic news that she's doing well. Is she well at the moment? have you any advice? Thanks katy (and Jenna :)x > > > Hi > > > > I've just spoken to our epilepsy nurse and confirmed a date to meet our neurosurgeon and neurologist. Jenna, my one year daughter has right-sided PMG, 15+spams daily plus absenses, jerks etc, severly sight impaired and slightly low tone in her trunk and left side. > > > > I'm hoping maybe as parents and family members of PMG kids if you have any advice on what questions i could ask at the meeting. I'll probably take my mum with me but i'd like someone else's perspective who's situation is similar. > > > > Thanks > > > > Katy (and Jenna :-) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2011 Report Share Posted October 22, 2011 I'm really pleased she's doing well. Thank you so much, i think i needed someone to tell me to listen to my gut. Our appointment is on the 31st so I've decided not to think about it until the end of next week. If i keep going over it i'll never sleep. I realised this week that the past nine months surgery assessment, daily therapies, appointments has been the easy bit. If i'm being honest i'm absolutley scared stiff. If it's ok can i email you next week with my list of questions i'm thinking of asking? Hope your having a good weekend :-) Katy (and Jenna)x > > > > > > > Hi > > > > > > > > I've just spoken to our epilepsy nurse and confirmed a date to meet our neurosurgeon and neurologist. Jenna, my one year daughter has right-sided PMG, 15+spams daily plus absenses, jerks etc, severly sight impaired and slightly low tone in her trunk and left side. > > > > > > > > I'm hoping maybe as parents and family members of PMG kids if you have any advice on what questions i could ask at the meeting. I'll probably take my mum with me but i'd like someone else's perspective who's situation is similar. > > > > > > > > Thanks > > > > > > > > Katy (and Jenna :-) > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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