Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Hi ! I have a blog about my little boy who has unilateral pmg. You can check it out at www.lifeonmysterylane.blogspot.com It is really a great outlet for me, hope it will be for you too. Stacey Sent from my iPad Hi Everyone! I have been feeling inspired to start a blog about my daughter Callie and was wondering if anyone else is blogging about their child with PMG. If so, please let me know if you feel like sharing your blog. I would love to read about others and will be happy to share mine as soon as I can get it up and running. Thanks! Mommy to Callie (14 months old, Bilateral Perisylvian PMG + Infantile Spasms) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Hi everyone! I also have a blog about our little one and our family. It too has been an amazing outlet for me. I also love reading about other family journeys, so thank you for sharing yours! Ellen http://ourjourney-ew.blogspot.com > > Hi Everyone! > I have been feeling inspired to start a blog about my daughter Callie and was wondering if anyone else is blogging about their child with PMG. If so, please let me know if you feel like sharing your blog. I would love to read about others and will be happy to share mine as soon as I can get it up and running. > > Thanks! > > Mommy to Callie (14 months old, Bilateral Perisylvian PMG + Infantile Spasms) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Hi Ellen, What a beautifull familly! God bless all of you and keep you all together in His love. A hug, maria, grandmom of Flora, 5 yrs, slight PMG To: polymicrogyria From: epwingate@... Date: Wed, 19 Jan 2011 14:45:21 +0000 Subject: Re: Blogs? Hi everyone! I also have a blog about our little one and our family. It too has been an amazing outlet for me. I also love reading about other family journeys, so thank you for sharing yours! Ellen http://ourjourney-ew.blogspot.com > > Hi Everyone! > I have been feeling inspired to start a blog about my daughter Callie and was wondering if anyone else is blogging about their child with PMG. If so, please let me know if you feel like sharing your blog. I would love to read about others and will be happy to share mine as soon as I can get it up and running. > > Thanks! > > Mommy to Callie (14 months old, Bilateral Perisylvian PMG + Infantile Spasms) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Hi Stacey, Nice to see yr blog and meet . God bless both and all the familly. Can you please inform which Ipod he plays with? Thanks a lot. maria, grandmom of Flora, 5 yrs, slight PMG To: polymicrogyria From: epwingate@... Date: Wed, 19 Jan 2011 14:45:21 +0000 Subject: Re: Blogs? Hi everyone! I also have a blog about our little one and our family. It too has been an amazing outlet for me. I also love reading about other family journeys, so thank you for sharing yours! Ellen http://ourjourney-ew.blogspot.com > > Hi Everyone! > I have been feeling inspired to start a blog about my daughter Callie and was wondering if anyone else is blogging about their child with PMG. If so, please let me know if you feel like sharing your blog. I would love to read about others and will be happy to share mine as soon as I can get it up and running. > > Thanks! > > Mommy to Callie (14 months old, Bilateral Perisylvian PMG + Infantile Spasms) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Hi , I have a blog too but I don't think it's great. I'm still trying to figure out what I want to say, and how to say it! www.benbenzen.blogspot.com Good luck starting your blog, and let us know when we can read it!! > > Hi Everyone! > I have been feeling inspired to start a blog about my daughter Callie and was wondering if anyone else is blogging about their child with PMG. If so, please let me know if you feel like sharing your blog. I would love to read about others and will be happy to share mine as soon as I can get it up and running. > > Thanks! > > Mommy to Callie (14 months old, Bilateral Perisylvian PMG + Infantile Spasms) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Hi ! has an Apple IPad. It has 14 gigabytes. We also paid to have a plastic cover attached to the screen to protect it. It cost about $600 total but has been so great for . There are lots of computer programs called " Apps " that you can download. You buy them from the Apple App Store. Many are free, some you have to pay for. The great thing is there are some apps that are for non-communicative kids. They are expensive (like $200 +) but a lot cheaper than buying a communicative computer. Most of the games I've gotten for have been free but the most expensive one was $2.99. Hope this helps. Let me know if you need more information. Stacey Klim ________________________________ To: PMG GRoup <polymicrogyria > Sent: Wed, January 19, 2011 2:43:24 PM Subject: RE: Re: Blogs? Hi Stacey, Nice to see yr blog and meet . God bless both and all the familly. Can you please inform which Ipod he plays with? Thanks a lot. maria, grandmom of Flora, 5 yrs, slight PMG To: polymicrogyria From: epwingate@... Date: Wed, 19 Jan 2011 14:45:21 +0000 Subject: Re: Blogs? Hi everyone! I also have a blog about our little one and our family. It too has been an amazing outlet for me. I also love reading about other family journeys, so thank you for sharing yours! Ellen http://ourjourney-ew.blogspot.com > > Hi Everyone! > I have been feeling inspired to start a blog about my daughter Callie and was >wondering if anyone else is blogging about their child with PMG. If so, please >let me know if you feel like sharing your blog. I would love to read about >others and will be happy to share mine as soon as I can get it up and running. > > Thanks! > > Mommy to Callie (14 months old, Bilateral Perisylvian PMG + Infantile Spasms) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Thank you to everyone who shared their blogs last month. I finally have mine up and running! I am not a very eloquent writer, but I have already found it to be a great outlet. I hope someone else might find it helpful to hear about Callie's experience. Here is the link in case you would like to follow it: http://calliebloggie.blogspot.com/ Stacey, I have enjoyed reading about and I think we went to see Dr. Dobyns on the same day last October! We probably passed each other in the waiting room. Thanks again everyone. Mommy to Callie (15 months old, Bilateral Perisylvian PMG + Infantile Spasms) ________________________________ To: " polymicrogyria " <polymicrogyria > Sent: Wed, January 19, 2011 1:51:55 AM Subject: Re: Blogs? Hi ! I have a blog about my little boy who has unilateral pmg. You can check it out at www.lifeonmysterylane.blogspot.com It is really a great outlet for me, hope it will be for you too. Stacey Sent from my iPad Hi Everyone! I have been feeling inspired to start a blog about my daughter Callie and was wondering if anyone else is blogging about their child with PMG. If so, please let me know if you feel like sharing your blog. I would love to read about others and will be happy to share mine as soon as I can get it up and running. Thanks! Mommy to Callie (14 months old, Bilateral Perisylvian PMG + Infantile Spasms) Quote Link to comment Share on other sites More sharing options...
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