Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Carol, Hard to say at this point really. It certainly sounds like you are very fatigued, but it also could be so many different things. You could be anemic for one. Sounds like if your doc won't consider anything else you need to see another doc that will run some tests and rule out a bunch of stuff. There is no specific test for CFS, but there are many tests to rule out things that could be causing the fatigue and that would get you towards some answers. Good luck. And for heaven's sake, if you aren't depressed and don't need anti-depressants, then get off them. I don't know which you take, but generally you need to wean off them as opposed to stopping all of a sudden. Sandrea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 Hi. I am also a y patient. You are in great hands! He is very encouraging, but always tells you to "watch those liquid calories!"...Ali To: SydBand From: jtomulescu@...Date: Fri, 28 Nov 2008 06:59:10 +1100Subject: RE: Newbie Hi , I was banded by Dr on the 10th of November, everything has gone like clockwork. The Hills hospital were great and the nurses looking after me were calm and in no rush, really friendly too. Best of luck during your surgery. I hope yours goes as well as mine did. Jade -----Original Message-----From: SydBand [mailto:SydBand ] On Behalf Of kez_at_home84Sent: Thursday, November 27, 2008 9:32 PMTo: SydBand Subject: Newbie Hey Everyone, My names Karem and I am being banded 1st December by Dr Desmond . Are any of you patients of his? I would love to get yo know you guys and any advice you could give me would be great hehe Multiple prizes and the ultimate dream beach house! Take a summer road trip with Windows Live Hotmail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 Hi, I just wanted to quickly introduce myself. My name is Adele and my baby (twin) was diagnosed with PMG at 7 mos through an MRI. It was probably caused by a complication during my twin pregnancy. Thank G-d he is doing really well, he has very mild CP, and doing well with all of his therapies. He is in PT, OT, Osteopathy, Early Intervention. He has RH so his right side is a lot weaker but since we started the intensive therapy he is improving and gettting a lot of function back. His 'limitations' are slight enough that most people don't notice. but having his twin brother who is reaching all the milestones, etc is hard at times. The one issue that I can't wrap around my head is seizures. I was told he has a higher chance of getting them, but there was no indication that he has had or ever will have them. More the neurologist wanted me to be educated etc. Since he has reached one years old they told me that the risk goes down a lot but I still worry. I know it is normal for a mother to worry but Ican't make myself nuts. I have gone to a CPR, sent my nanny and husband. We are religious people so we pray and hope for the best. My doctor says I can't sit and wait for it to happen, because it may never (Please G-d) Any tips, suggestions, to calm my nerves. A lot of posts on this forum and another one I am a part of has a lot of kids that have seizure , I am sure I am not the only one who feels like this and is in the same boat. I know seizures don't have to be the end of the world but one less problem would be great Thanks so much, Adele (Mom of 4 beautiful children) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 This sounds A LOT like my story. I would like to keep in touch to maybe compare notes? My twitter name is " @cinnamonflower " or we can always chat over email. Thanks for sending out this email. By the way, we live in the Washington DC metropolitan area. Best Regards, -Barbi On Sun, Aug 21, 2011 at 5:26 PM, RON PHILLIPSON wrote: > ** > > > Hi, I just wanted to quickly introduce myself. My name is Adele and my baby > (twin) was diagnosed with PMG at 7 mos through an MRI. It was probably > caused by a complication during my twin pregnancy. > Thank G-d he is doing really well, he has very mild CP, and doing well with > all of his therapies. He is in PT, OT, Osteopathy, Early Intervention. He > has RH so his right side is a lot weaker but since we started the intensive > therapy he is improving and gettting a lot of function back. His > 'limitations' are slight enough that most people don't notice. but having > his twin brother who is reaching all the milestones, etc is hard at times. > The one issue that I can't wrap around my head is seizures. I was told he > has a higher chance of getting them, but there was no indication that he has > had or ever will have them. More the neurologist wanted me to be educated > etc. Since he has reached one years old they told me that the risk goes down > a lot but I still worry. I know it is normal for a mother to worry but > Ican't make myself nuts. I have gone to a CPR, sent my nanny and husband. We > are religious people so we pray and hope for the best. My doctor says I > can't sit and wait for it to happen, because it may never (Please G-d) Any > tips, suggestions, to calm my nerves. A lot of posts on this forum and > another one I am a part of has a lot of kids that have seizure , I am sure I > am not the only one who feels like this and is in the same boat. I know > seizures don't have to be the end of the world but one less problem would be > great > Thanks so much, > > Adele (Mom of 4 beautiful children) > > > -- Barbi + @cinnamonflower <http://www.twitter.com/cinnamonflower> + cinnamonflower.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 Adele, My daughter is 4 left hemi CP and seizures which did not start till 14 months old. Yes the CP part is nearly resolved but the seizures I hate. We are on the second med and still has break through ones. They are 2 min or less complex partials seizures. We are learning her triggers but growth seems to be a big one. We also do a low glycemic diet with no artifical sweetners or coloring these could be a thing to try. The epilepsy foundation website is very educational. You can make yourself knowledgable about types and typical triggers. You could also have the diastat for an emergency med just in case they start. Diane Newbie Hi, I just wanted to quickly introduce myself. My name is Adele and my baby (twin) was diagnosed with PMG at 7 mos through an MRI. It was probably caused by a complication during my twin pregnancy. Thank G-d he is doing really well, he has very mild CP, and doing well with all of his therapies. He is in PT, OT, Osteopathy, Early Intervention. He has RH so his right side is a lot weaker but since we started the intensive therapy he is improving and gettting a lot of function back. His 'limitations' are slight enough that most people don't notice. but having his twin brother who is reaching all the milestones, etc is hard at times. The one issue that I can't wrap around my head is seizures. I was told he has a higher chance of getting them, but there was no indication that he has had or ever will have them. More the neurologist wanted me to be educated etc. Since he has reached one years old they told me that the risk goes down a lot but I still worry. I know it is normal for a mother to worry but Ican't make Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 Thank you so much for the quick reply. It is nice to know I am not the only one dealing with this on a daily basis. I really can't complain... Yitzi is doing amazingly it is his mom (me!) that has some hard days. Cognitively he is developmentally on track to his twin , for him the most affected is his right arm especially the fine motor stuff. I am lucky I am well connected and get a lot of services both government based and private. I am his mother so I worry I want him to have a functioning hand, reach the milestones etc. Walk, etc Right now he commando crawls, starting to get onto four point independently, starting to transition tummy to sit alone. Needs to still work on pulling up to stand etc . Her has come a long way and despite what the MRI shows he is very functional (physically) I am curious to hear and share your own story. Twins? RH? Etc We live in Toronto . Looking forward to hearing from you. Adele Sent from my iPhone > This sounds A LOT like my story. I would like to keep in touch to maybe > compare notes? > My twitter name is " @cinnamonflower " or we can always chat over email. > Thanks for sending out this email. By the way, we live in the Washington DC > metropolitan area. > > Best Regards, > -Barbi > > On Sun, Aug 21, 2011 at 5:26 PM, RON PHILLIPSON wrote: > >> ** >> >> >> Hi, I just wanted to quickly introduce myself. My name is Adele and my baby >> (twin) was diagnosed with PMG at 7 mos through an MRI. It was probably >> caused by a complication during my twin pregnancy. >> Thank G-d he is doing really well, he has very mild CP, and doing well with >> all of his therapies. He is in PT, OT, Osteopathy, Early Intervention. He >> has RH so his right side is a lot weaker but since we started the intensive >> therapy he is improving and gettting a lot of function back. His >> 'limitations' are slight enough that most people don't notice. but having >> his twin brother who is reaching all the milestones, etc is hard at times. >> The one issue that I can't wrap around my head is seizures. I was told he >> has a higher chance of getting them, but there was no indication that he has >> had or ever will have them. More the neurologist wanted me to be educated >> etc. Since he has reached one years old they told me that the risk goes down >> a lot but I still worry. I know it is normal for a mother to worry but >> Ican't make myself nuts. I have gone to a CPR, sent my nanny and husband. We >> are religious people so we pray and hope for the best. My doctor says I >> can't sit and wait for it to happen, because it may never (Please G-d) Any >> tips, suggestions, to calm my nerves. A lot of posts on this forum and >> another one I am a part of has a lot of kids that have seizure , I am sure I >> am not the only one who feels like this and is in the same boat. I know >> seizures don't have to be the end of the world but one less problem would be >> great >> Thanks so much, >> >> Adele (Mom of 4 beautiful children) >> >> >> > > > > -- > Barbi + @cinnamonflower <http://www.twitter.com/cinnamonflower> + > cinnamonflower.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 Thank you so much for the practical info! Adele Sent from my iPhone > Adele, My daughter is 4 left hemi CP and seizures which did not start till 14 months old. Yes the CP part is nearly resolved but the seizures I hate. We are on the second med and still has break through ones. They are 2 min or less complex partials seizures. We are learning her triggers but growth seems to be a big one. We also do a low glycemic diet with no artifical sweetners or coloring these could be a thing to try. > The epilepsy foundation website is very educational. You can make yourself knowledgable about types and typical triggers. You could also have the diastat for an emergency med just in case they start. > Diane > > > Newbie > > Hi, I just wanted to quickly introduce myself. My name is Adele and my baby (twin) was diagnosed with PMG at 7 mos through an MRI. It was probably caused by a complication during my twin pregnancy. > Thank G-d he is doing really well, he has very mild CP, and doing well with all of his therapies. He is in PT, OT, Osteopathy, Early Intervention. He has RH so his right side is a lot weaker but since we started the intensive therapy he is improving and gettting a lot of function back. His 'limitations' are slight enough that most people don't notice. but having his twin brother who is reaching all the milestones, etc is hard at times. The one issue that I can't wrap around my head is seizures. I was told he has a higher chance of getting them, but there was no indication that he has had or ever will have them. More the neurologist wanted me to be educated etc. Since he has reached one years old they told me that the risk goes down a lot but I still worry. I know it is normal for a mother to worry but Ican't make > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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