Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 My name is Deb and I live in Melbourne, Australia. My grandson was diagnosed with unilateral polymicrogyria the day before his first birthday. My daughter and i knew something was up at around 6 weeks of age, because he was born at 33weeks they kept telling us it was because he was premature that he was behind in most milestones. He had his mri on 1/8/11 and we got the diagnosis 10 days later. He cannot sit up by himself, his left arm & leg are floppy hence the unilateral diagnosis, basically his left brain is normal and we are currently attending physiotherapy, occupational therapy, speech therapy. He was fitted yesterday for a handsplint to wear at night to stop his hand and fingers contracting so that he wont need botox for a while. There are no support groups that we can find in Australia, we have only one specialist so cannot even get second opinion on treatment. Is anyone doing anything different?? I just want the best for my grandson. My daughter has been coping well, she is doing a wonderful job. Quote Link to comment Share on other sites More sharing options...
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