RE: Anyone have a child with apraxia/dyspraxia/motor planning/praxis issues?

[Guest guest]

Hi Kristie,

Our son does not have it, but Dr. Susie Fosnot, Ph.D., C.C.C.-slp, is

wonderful. We paid $800.00 a couple of years ago for a complete evaluation

& report and it came if very handy when requesting speech & language

services through the school system.

If you have any questions, you can email off list at golivo@....

Argie

Anyone have a child with apraxia/dyspraxia/motor

planning/praxis issues?

Hi there

Just wondering if anyone using has a child with

apraxia/dyspraxia/motor planning or praxis issues. If so how has

helped and how is your child doing now?

Kristie

Aidan 3.0

[Guest guest]

Kristie,

My son (now 4) was dx'd with apraxia of speech a while back, but I don't

think it applies anymore. He used to look like he was trying to talk, but

that it was just too hard (like he couldn't get the words to his mouth so

they could come out). He used to make open-and-close motions with his mouth

a lot (like a fish opening and closing its mouth), but he doesn't do that

anymore. He's been on Dr. G's protocol starting last October (he was

3.5 when we started). We're seeing amazing progress. (KOW)

Kristy

Anyone have a child with apraxia/dyspraxia/motor

planning/praxis issues?

Hi there

Just wondering if anyone using has a child with

apraxia/dyspraxia/motor planning or praxis issues. If so how has

helped and how is your child doing now?

Kristie

Aidan 3.0

[Guest guest]

Hi Kristie,

When we started 4 years ago, the first major improvement we saw

was with motor planning issues. My son wouldn't/couldn't swing,

climb, go on carosel, etc. That changed within a couple of weeks of

changing his diet and starting on an antifungal.

He still has some residual motor planning issues that we are

addressing with OT, but overall, the protocol has really helped.

Donna

> Anyone have a child with apraxia/dyspraxia/motor

> planning/praxis issues?

>

> Hi there

> Just wondering if anyone using has a child with

> apraxia/dyspraxia/motor planning or praxis issues. If so how has

> helped and how is your child doing now?

> Kristie

> Aidan 3.0

>

>

[Guest guest]

Kristy-

Can you explain to me what apraxia of speech is? Does

that basically mean that your son wasn't talking? I

am assuming that he must be talking now, after being

on Dr. G's protocol. We take our non-verbal son for

his first appt. in July & are very much looking

forward to positive things to start happening for him.

Thanks-

--- Kristy Nardini <krnardini@...> wrote:

> Kristie,

>

> My son (now 4) was dx'd with apraxia of speech a

> while back, but I don't

> think it applies anymore. He used to look like he

> was trying to talk, but

> that it was just too hard (like he couldn't get the

> words to his mouth so

> they could come out). He used to make open-and-close

> motions with his mouth

> a lot (like a fish opening and closing its mouth),

> but he doesn't do that

> anymore. He's been on Dr. G's protocol starting

> last October (he was

> 3.5 when we started). We're seeing amazing progress.

> (KOW)

>

> Kristy

>

>

>

> Anyone have a child with

> apraxia/dyspraxia/motor

> planning/praxis issues?

>

> Hi there

> Just wondering if anyone using has a child

> with

> apraxia/dyspraxia/motor planning or praxis issues.

> If so how has

> helped and how is your child doing now?

> Kristie

> Aidan 3.0

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

I thought that my daughter had apraxia before she was diagnosed with autism. I

believe that apraxia and autism can have similar effects on a child's speech.

My daughter pulls at her mouth when she is trying to make sounds. Sometimes she

can not make a sound until I pouch her cheek and then she may get started and

look out. Today we were out and she growled at everyone that she saw like a

bobcat. I laughed all day long because it is wonderful to hear any sounds out

of her mouth but leave it to her to growl. LOL It is so cute and she laughs

and laughs when she makes the sound. Sheri

Kristy Nardini <krnardini@...> wrote: Kristie,

My son (now 4) was dx'd with apraxia of speech a while back, but I don't

think it applies anymore. He used to look like he was trying to talk, but

that it was just too hard (like he couldn't get the words to his mouth so

they could come out). He used to make open-and-close motions with his mouth

a lot (like a fish opening and closing its mouth), but he doesn't do that

anymore. He's been on Dr. G's protocol starting last October (he was

3.5 when we started). We're seeing amazing progress. (KOW)

Kristy

Anyone have a child with apraxia/dyspraxia/motor

planning/praxis issues?

Hi there

Just wondering if anyone using has a child with

apraxia/dyspraxia/motor planning or praxis issues. If so how has

helped and how is your child doing now?

Kristie

Aidan 3.0

[Guest guest]

,

Not Kristy, but I have spent a lot of time studying and discussing

apraxia with SLPs and neurologists and can basically describe it as

this. Apraxia is a condition that causes difficulty in the neurological

transmission that is required to form the motor sequences to form

expressive speech. Children with " true " apraxia can usually understand

what is being said to them, their receptive speech is often intact, they

just can't form expressive speech. So most SLPs usually contend that a

child is truly apraxic if there is a major imbalance between expressive

speech (low) and receptive speech (which is age appropriate). Typically

ASD kids generally aren't solely apraxic as they tend (not always) but

tend to have major RECEPTIVE language issues as well as expressive

speech. Receptive language disorders are when you can't understand what

is being said to you (could be auditory processing, language

comprehension, cognitive deficits, etc). I have met a child with

APRAXIA that is his sole diagnosis and he understands everything you say

to him, he just has difficulty using words to respond, so he tends to

use lots of gestures, acting things out, short syllables for the real

word, etc. It becomes murky when ASD kids have some apraxic looking

issues (due to weakened muscle tone or motor planning) but when these

kids often start " PROCESSING " language, they tend to be able to actually

articulate expressive language (they can say the words quite clearly -

which is not apraxia). Does this make sense? I am just a parent, not

an expert, so I am sure there are far more technical ways to

differentiate apraxia, from other language disorders. My son's

therapist initially thought my son was apraxic at age 2, as expressive

speech was quite difficult, but as he gained words, phrases, it is quite

clear that its more of a receptive/comprehension issue, as he can say a

word quite clearly, but doesn't always know what it means. For

instance, if a child is echolic, can repeat lots of words he hears, but

doesn't use them functionally (with normal purpose), he would not be

apraxic at all. Some ASD kids are plagued with both motor planning

(apraxia) and receptive/auditory issues which can be quite

difficult..but therapy and treatment should help.

Anyone have a child with

> apraxia/dyspraxia/motor

> planning/praxis issues?

>

> Hi there

> Just wondering if anyone using has a child

> with

> apraxia/dyspraxia/motor planning or praxis issues.

> If so how has

> helped and how is your child doing now?

> Kristie

> Aidan 3.0

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Kristie:

Another person to check out is Kaufman, she is an SLP and often

considered the guru of " APRAXIA " . Her website is www.kidspeech.com

<http://www.kidsspeech.com/> . Most therapists around the country use

the Kaufman Apraxic Test and the Kaufman Apraxia Kit when working with

apraxic kids.

I believe she is out of Detroit, and she will do evaluations and

consultations with your therapist, from what I understand, she is quite

amazing. She is also starting to do conferences and workshops around

the country for professionals, parents directly targeting how to treat

ASD kids with apraxia (as it is different than how to treat a child with

solely apraxia).

Anyone have a child with apraxia/dyspraxia/motor

planning/praxis issues?

Hi there

Just wondering if anyone using has a child with

apraxia/dyspraxia/motor planning or praxis issues. If so how has

helped and how is your child doing now?

Kristie

Aidan 3.0

[Guest guest]

,

You can Google " speech apraxia " for a bunch of good sites that explain what

it is. Basically, it's when the brain knows it wants to say something, but

the mouth cannot form the words - there is a dysfunction between the two

working together.

My son started talking a few months before we started with Dr. G, with

intense 1:1 Pivotal Response Training that we did at home with him. This was

just after he got a second set of ear tubes and his adenoids removed.

Dr. G has helped my son's receptive language tons (he now understands just

about everything we say to him, and he is following multi-step commands) and

also helped his expressive language get beyond " I want _____ " and labeling.

Dr. G has also helped my son to be A LOT healthier. He used to have a

constant respiratory infection, which he still gets (usually when we screw

up and give him foods he doesn't tolerate), but he doesn't get sick nearly

as often and when he does it's been relatively mild. (KOW) I also think that

my son no longer has that issue between wanting to say something and

actually being able to say it...his words come out much, much quicker and

more spontaneously now.

Kristy

Anyone have a child with

> apraxia/dyspraxia/motor

> planning/praxis issues?

>

> Hi there

> Just wondering if anyone using has a child

> with

> apraxia/dyspraxia/motor planning or praxis issues.

> If so how has

> helped and how is your child doing now?

> Kristie

> Aidan 3.0

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

We are having a hard time differentiating between

apraxia....my son wanting to say something and not being able to

because of motor planning or disconnect

and

wanting to say something and not having all of the language to do so.

I guess I should push for our therapist to test this more thoroughly

or maybe get a second evaluation done?

>

> > Kristie,

> >

> > My son (now 4) was dx'd with apraxia of speech a

> > while back, but I don't

> > think it applies anymore. He used to look like he

> > was trying to talk, but

> > that it was just too hard (like he couldn't get the

> > words to his mouth so

> > they could come out). He used to make open-and-close

> > motions with his mouth

> > a lot (like a fish opening and closing its mouth),

> > but he doesn't do that

> > anymore. He's been on Dr. G's protocol starting

> > last October (he was

> > 3.5 when we started). We're seeing amazing progress.

> > (KOW)

> >

> > Kristy

> >

> >

> >

> > Anyone have a child with

> > apraxia/dyspraxia/motor

> > planning/praxis issues?

> >

> > Hi there

> > Just wondering if anyone using has a child

> > with

> > apraxia/dyspraxia/motor planning or praxis issues.

> > If so how has

> > helped and how is your child doing now?

> > Kristie

> > Aidan 3.0

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________

>

[Guest guest]

" So most SLPs usually contend that a

child is truly apraxic if there is a major imbalance between expressive

speech (low) and receptive speech (which is age appropriate). "

I have not found this to be the case while speaking on to

parents with apraxic kids or parents with children with autism and

apraxia. Nor have I found that true in speaking with speech

therapists, ped neurologists of occupational therapists. Everyone I

have spoken too has said that some kids with apraxia can have

expressive and receptive speech delays. Of course some do not and have

only low expressive speech and neuro typical receptive language.

I do agree that a majority of kids with autism and apraxia/dyspraxia

have both low expressive and receptive speech. The majority of my

son's issues are related to motor planning rather than autism in my

opinion.

Kristie

Aidan 3