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RE: Most Frustrating Part

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Dr. G might say to get a copy of a presentation video he did for a regional

center that explains the whole protocol. Maybe if you got it (from Dr.

G's office), you could show it to your husband and his family.

Dr. G recently put my son on a very low dose of Tenex for ADD, and it's

helping a lot. I don't think it has the side-effects of some of the other

ADD meds, but I'm definitely not an expert. I know my son would not be doing

as well as he is if it weren't for treating him for .

Best of luck, and hope you feel better!

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Do you have an attorney or can you get one? I would simply tell them

that if they aren't following the protocol you will get an attorney

and force the issue. I'm sure Dr. G would give a letter stating

medical necessity. I can say almost with certainty that Dr. G would

*not* be happy about the risperdal but this is my assumption. I

highly doubt he would approve. As for the Ritalin, I don't think he

would approve probably of dosage. Can you call him and ask? You

really need to be able to get it through to them that the only person

hurting here is Cam. It's already tough dealing with separation/

divorce but if they can't even work with you to address medical

needs, then it's only going to get worse. One person *can't* choose

one protocol and the other choose another protocol. You can't do

*and* traditional psychiatric medicine. You guys have to choose

one and work together. Otherwise someone is going to have to fight

for sole custody.

Good luck.

Cheryl

On Mar 9, 2007, at 7:44 PM, friendsofcam wrote:

> Any advice? The most frustrating thing for me in trying to follow

> the protocol is that to do anything, I practically have to keep it

> a secret. My seperated husband and his mother and father...pooh,

> pooh everything I mention about autism as if I'm the stupidist thing

> on earth. They don't want to bother with any medical protocol and

> it's been a very big strain on my marriage and relationships with

> them.

>

> It's one of the reasons I'm in no big hurry to get back together.

> When my son was first diagnosed, my husband said, " That's the way

> God wants him to be! There's nothing we can do about it! " But, I

> quickly learned that he was mostly concerned about having to spend

> money on medical bills, etc. I'm sorry...but, what a skin flint!

>

> Now here I am seperated and when my husband has my son, he doesn't

> want to follow the protocol. I've been sick with a bad back and

> rheumatic fever for two weeks. At which, time they have Cameron. He

> was beginning to regress in school. They've taken him off his anti-

> yeast meds...even though he was just on an anti-biotic for strep.

> They called me twice all upset at how Crazy Cam was acting. And I

> doubt he is getting an anti-viral. The school called them in about

> meds and my husband has put Cameron on risperadol and ritalin. If

> this will help him focus and he needs a little meds...fine. But,

> how does DR. G feel about this? And I'm concerned that they

> aren't treating the . Help!!!! I hate these battles!

>

>

>

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Cheryl, I think you are right about sole custody. My husband

wants to share custody. But, I just don't see that working out.

>

> > Any advice? The most frustrating thing for me in trying to follow

> > the protocol is that to do anything, I practically have to keep

it

> > a secret. My seperated husband and his mother and father...pooh,

> > pooh everything I mention about autism as if I'm the stupidist

thing

> > on earth. They don't want to bother with any medical protocol and

> > it's been a very big strain on my marriage and relationships with

> > them.

> >

> > It's one of the reasons I'm in no big hurry to get back together.

> > When my son was first diagnosed, my husband said, " That's the way

> > God wants him to be! There's nothing we can do about it! " But, I

> > quickly learned that he was mostly concerned about having to

spend

> > money on medical bills, etc. I'm sorry...but, what a skin flint!

> >

> > Now here I am seperated and when my husband has my son, he

doesn't

> > want to follow the protocol. I've been sick with a bad back and

> > rheumatic fever for two weeks. At which, time they have Cameron.

He

> > was beginning to regress in school. They've taken him off his

anti-

> > yeast meds...even though he was just on an anti-biotic for strep.

> > They called me twice all upset at how Crazy Cam was acting. And I

> > doubt he is getting an anti-viral. The school called them in

about

> > meds and my husband has put Cameron on risperadol and ritalin. If

> > this will help him focus and he needs a little meds...fine. But,

> > how does DR. G feel about this? And I'm concerned that they

> > aren't treating the . Help!!!! I hate these battles!

> >

> >

> >

>

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I am sorry to hear about your trouble. I recently won in the divorce drama by

asking

for a court evaluation. It is called a 730 eval. What this does or at least

can do is give

you sole medical which is what I got. We were to share the children but as far

as medical

issues I got the last word. Doesn't mean they will comply with the protocol

but you do have

leverage if he doesn't. Expensive yes, about 6to7k. Dr. G did write a letter

saying to not follow

would be grounds that child protective services should be called. To start and

stop made Mac

throw up everyday and then my ex confessed in front of the psychiatrist. This

is a hard one and

I really have been there and feel for you.

Re: Most Frustrating Part

Cheryl, I think you are right about sole custody. My husband

wants to share custody. But, I just don't see that working out.

>

> > Any advice? The most frustrating thing for me in trying to follow

> > the protocol is that to do anything, I practically have to keep

it

> > a secret. My seperated husband and his mother and father...pooh,

> > pooh everything I mention about autism as if I'm the stupidist

thing

> > on earth. They don't want to bother with any medical protocol and

> > it's been a very big strain on my marriage and relationships with

> > them.

> >

> > It's one of the reasons I'm in no big hurry to get back together.

> > When my son was first diagnosed, my husband said, " That's the way

> > God wants him to be! There's nothing we can do about it! " But, I

> > quickly learned that he was mostly concerned about having to

spend

> > money on medical bills, etc. I'm sorry...but, what a skin flint!

> >

> > Now here I am seperated and when my husband has my son, he

doesn't

> > want to follow the protocol. I've been sick with a bad back and

> > rheumatic fever for two weeks. At which, time they have Cameron.

He

> > was beginning to regress in school. They've taken him off his

anti-

> > yeast meds...even though he was just on an anti-biotic for strep.

> > They called me twice all upset at how Crazy Cam was acting. And I

> > doubt he is getting an anti-viral. The school called them in

about

> > meds and my husband has put Cameron on risperadol and ritalin. If

> > this will help him focus and he needs a little meds...fine. But,

> > how does DR. G feel about this? And I'm concerned that they

> > aren't treating the . Help!!!! I hate these battles!

> >

> >

> >

>

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