Re: siblings - Kat Reid

[Guest guest]

Hi, thank you for your reply. If def must of been stressful for you to hear

that, I am so pleased your baby is fine

We have been promised fetal MRI's also. We have had testing but nothing has come

up, they have said it could be a certain syndrome but they can't do a blood test

for it and she has to have her eyes checked as that is one of the symptoms, we

are doing that in Nov.  If it is that syndrome there is less than 1% chance of

the next baby having a problem, but if they can't be 100% sure then they said

they can't really put a figure on it, that we will have to have MRI's to monitor

the next baby.

So its all abit scarey. But we will see how we go.

thanks

Kat

________________________________

To: polymicrogyria

Sent: Saturday, 1 October 2011 1:39 AM

Subject: siblings - Kat Reid

 

We had another and she is a fine. We waited 5 years because we tried to find

out what had gone wrong for Finlay, but no one could give us an answer.

We had fetal MRI's, but PMG does not show until after 26 weeks, so they are

really only a way to prepare you is things go wrong.

In our case, the doctors were a bit out on the dates (not an exact science)

and kept telling us that the baby's brain was underdeveloped. Not exactly

what you want to hear when you already have a child with a migration

disorder.

As it is Rowan is a bright and healthy little girl.

Annelies

Mum to Gregor ,13; Finlay BPP, 10 and Rowan ,5

RE: seizures and medication

Kat, Has the doctors considered Ketogenic diet? The neuro is going to have

to recommend the vit b6 dose. Nisha takes 50 mg liquid. Since the B6 she is

no longer has mouth sores, she seems more focused and no seizures but it may

all be in my head.

Diane