Re: Re: Visual spots plus other stuff

[Guest guest]

My son has this too. You can feel it but not see it most times. But when it's

really bad and he has been scratching or has just come out of the bath you can

see it. When we first put him on antifungals it went away. Two years later, when

his antifungal caused liver problems and I stopped it abruptly, it came back.

When he went back on an antifungal it disappeared again. We just stopped all his

meds in December and the only problem we've had is the hyperpiloris (which I

know isn't spelled right -- not sure what the proper spelling is). It's back

and, because it's winter and very cold and dry where we live, he has it on his

legs, butt cheeks and hands. Poor thing. I have been using Aveeno bath soap and

Aveeno moisturizer -- sometimes Glaxo base moisturizer and it has really helped.

I wish I knew what it was too. No one seems to know. But there is a direct

correlation to the cessation of antifungal meds, that's for sure.

Rhoda

Re: Re: Visual spots plus other

> > stuff

> > >

> > > Did there seem to be any rhyme or reason to them?

> > > Could it just pop up while he's busy doing other

> > > things and just last 3 or 4 breaths sometimes,

> > then

> > > other times last half an hour? And often without

> > > missing a beat?

> > >

> > > It's like he's out of breath, gasping for air,

> > then

> > > clearing his throat (though first it was a little

> > > grunt). It sounds like he could have asthma but

> > > there's absolutely no 'bad sounds' in his lungs.

> > It's

> > > more noticable at rest. Also, when I point my

> > camera

> > > to video him, he tends to stop or it reduces a

> > lot. I

> > > would even be prone to think it's a tic ... IF it

> > > weren't also for the spots. I am certain that it

> > is

> > > an autonomic dysregulation, but that can still be

> > a

> > > seizure symptom. I was less worried before he

> > told me

> > > about the spots, but now....

> > >

> > > Thanks again,

> > >

> >

> >

> >

>

>

>

>

>

>

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