minocycoline

[Guest guest]

I had my phone consult this evening with Dr G and just wanted to share

in hopes it might be beneficial to others. First, , I asked Dr G

about minocycline as an alternative antibiotic for us because I had read

an article about it too. He said it is a form of tetracycline and it is

hard on children's bones. I have shared with everyone my recent

struggles with my son and trying to figure out what is going on. I have

been convinced the Eryped and Erythrocin have been the culprit. I wanted

a new antibiotic. Dr G said I may be right but everything in my son's

bloodwork indicates allergies, and that it has to be food. I have been

very tight with the diet except I made a slip buying a spaghetti sauce I

always buy and I grabbed a different variety and it contained milk! Dr G

said this will take 10 to 14 days to clear from the body. His

eosinophils are creeping up to a very unacceptable level. We had them

down to 1 and now they are up to 6! His IGE went way up again and IGM.

All this indicates food. I believe he said. I hope I am not misquoting.

He wants us to go back to the Eryped this weekend and see what happens.

If my son has a reaction to it then he will switch to Keflex. He said

Erythomicin is the least harmful to the body and my son did so well on

it for so long, he doesn't believe this is the culprit. He said you

don't have to switch anti-biotics every six months like other

medications. My son's ASO titers could have started creeping back up due

to not being very consistent with the Eryped. Anyway, bottom line is I

am extremely grateful Dr G is so careful. He doesn't want to switch meds

until he is very certain it is necessary. He really doesn't want to

cause our children any unnecessary harm and I don't believe he is using

our children as guinea pigs, as I have read others accuse him of on this

list. He told me to explain to my son (9) how he has a disease and just

eating the wrong thing has caused him a lot of trouble (all the

detention he has been in lately) and that soon Dr G will have medicines

that will help him with this disease (God help us all,I hope this is for

sure). So that when my son is older he will understand the repurcussions

of eating wrong things. He also reminded me my son's immune system was

cranked up so high when we first started, working way way over time and

it doesn't take much to mess him up. Our last blood tests are getting

similar to our first ones and that is what I have been noticing in his

behavior. He regressed way way back. I'm still on a search as to why and

hoping I can get him as good as he was. I know I fully appreciate the

importance of diet now for my son anyway. I've always not wanted him to

feel neglected but for him it has disastrous consequences. Hope this is

helpful and understandable as I am extremely tired. Thank you, Jerri